Transform Life with MS with These Tools to Live Your Best Life
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- Опубликовано: 7 июн 2024
- There are tools we can use when we live with multiple sclerosis (MS) or chronic illness that can help with everyday tasks. In this video I share tools, big and small, that can assist us to make life easier, to help conserve energy, to help us be more mobile, and able to participate more in the things we love to do!
Using assistive devices and mobility aids can help us do more and to participate in life more. They can improve our quality of life and enable us to participate in more.
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The Tools (I may earn from qualifying purchases of some products)
Vive Button Hook and Zipper Pull amzn.to/3TxbKfF
Magnetic Clasps amzn.to/41xItnq
Able Life Auto Cane amzn.to/3tintnY
Scrapper/Chopper amzn.to/3RriF7L
PrepNaturals 9 in 1 Vegetable Chopper/Slicer amzn.to/3RN0JFY
The Books
The MSing Link amzn.to/483SwTq
Recovering from Multiple Sclerosis: Real Life Stories of Hope and Inspiration amzn.to/3NBxUJX
Resilience in the Face of Multiple Sclerosis amzn.to/3TxQ3fy
Physical Therapists
Dr. Gretchen Hawley and The MSing Link
www.doctorgretchenhawley.com/
/ doctorgretchenhawley
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*20% off the first month of the MSing Link Membership*
www.doctorgretchenhawley.com/...
The MS Gym with Trevor Wicken
www.themsgym.com/
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*50% off the MS Gym Memberships*
Even So It Is Well Annual MS Gym
Even So It Is Well Semi Annual MS Gym
Even So It Is Well Monthly MS Gym
Mobility Aids
Trekking Poles amzn.to/3Tvr2Sc
byAcre Rollators www.byacre.com/?mtm_campaign=...
The Zeen (free accessory with this link) gozeen.com/discount/ItIsWell
Cionic Neural Sleeve ($50 off down payment with the coupon code evenso) cionic.com/
The Videos
Improve Walking, Strength, and Balance for People with MS with Dr. Gretchen Hawley • Improve Walking, Stren...
MS and Exercise-Functional vs Regular Exercise Dr. Gretchen Hawley • MS and Exercise Func...
Neuroplasticity-Rewire Your Brain • Neuroplasticity - Rewi...
A Mobility Aid that is Amazing! The Zeen! • A Mobility Aid that is...
Improve MS Walking Problems with Bionic FES Clothing • Improve MS Walking Pro...
*15 Simply Nutritious Plant-Based Meal Plans eBook*
Need inspiration for plant-based meal plans to get you in and out of the kitchen fast? Order my eBook here sowl.co/s/Rc5Fh
*Check out my Amazon Storefront for other stuff I use to help me live well with MS* (As an Amazon associate I earn from qualifying purchases.) www.amazon.com/shop/evensoiti...
The information on this channel is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. It is for educational purposes only. Always consult your doctor for professional medical advice.
#MS #MultipleSclerosis #LivingWithMS #EvenSoItIsWell, #VickieHadge
00:00 Introduction
02:26 Vive Button Hook and Zipper Pull Tool
02:54 Magnetic Lobster Clasp for Jewelry Necklace Bracelet
03:25 Able Life Auto Cane
04:11 Kitchen Scraper/Chopper
05:01 PrepNaturals 9 in 1 Vegetable Chopper/Slicer
05:31 The MSing Link Book
06:17 Recovering from Multiple Sclerosis: Real Life Stories of Hope and Inspiration
06:56 Resilience in the Face of Multiple Sclerosis
07:47 Dr. Gretchen Hawley (The MSing Link) & Trevor Wicken (The MS Gm)
08:23 TrailBuddy Trekking Poles
09:10 byAcre Rollators
10:02 The Zeen
10:53 Cionic Neural Sleeve
What tools do you use to help you live well with your MS or chronic illness?
I am using a cane (temporarily). It has been helpful indeed.
I don't use any stick . Am very scard to walk coz I fell many times and i lost my teeth tooo so I use my wheelchair and move bt that is giving me very bad backaches, now most of the time am on bed it's very difficult to turn over etc 😑
@@maryamjamimansoor8919 Selam aleyküm sister
I am very sorry to hear this. I understand your fear. Have you tried PT? Perhaps that can be helpful and help you also overcome the fear of falling.
So glad you are finding a cane useful!
Oh, I am sorry that has happened. Yes, physical therapy may be helpful.
I have Parkinson’s and I find your shows enlightening and helpful. Thank you!
Thanks Don! I appreciate your feedback and your watching!
Hi Vicky
Thank you for your video! I am a 34 year old male that got recently diagnosed with RRMS. I am using a cane temporarily until my PT feels I am ready to walk without my cane.
The cane has been useful indeed whilst walking, especially after my first relapse and after my two Ocrevus infusions.
Greetings from Mexico and Happy New Year!
Thanks for watching and checking in Ahmet! So glad you are finding your cane a helpful tool! Happy New Year to you too!
@@EvenSoItIsWell thanks, Vicky. I had been following your channel and videos as I also have Asperger’s syndrome (which makes me more prone to anxiety), and your relaxation videos have been very helpful!
Thank you kindly for your kind wishes ^_^. Stay positive!
Wowwww nice vidio I was lost coz of ths MS Masha-Allah ur vidio gave me strength to love life . I thought my life is of noooo use coz of negative thoughts and answers from people . Am suffering for 23 years 😢 am inside the 4 walls I want to enjoy my life today your vidio gave me strength I will bring all my lost dreams alive 💪 💪 txz a lot mam 🙏
Thanks for watching! I am so glad you found it helpful!
I use an alinker!
Brilliant! They are such a cool mobility aid!
I feel so sad. I go ghosted by a person I was dating and it was going so well. They said they couldn't handle my MS. 😢 feels like a life sentence.
Oh goodness! I am so sorry that happened. Keep being the goddess you are! There are others out there that will not see MS as a problem. I hope you find joy, shenanigans, and love in the new year!
@EvenSoItIsWell thank you and please continue your lovely inspiring videos. They are so informative and joyful to see ❤️ 🙏
I can relate. I was ghosted by someone I was dating and also friends, or people I thought were my friends. I will spare you what some of my family did and said. It has truly been interesting this last year. I was diagnosed in February 2023. It's been one heck of a learning lesson on all fronts. I always push myself too hard and too far to the point that my symptoms completely flare up-my form of denial I think 🤷♀️. I've gotten better at realizing my limits, but I still need to work at it. I am working at changing my diet, and I do good for a period of time then revert back to some of my old ways. Either way, I'm still holding positive I'll get better at changing and making better life choices as time goes on. I do my best to keep my eyes forward and not to look backwards. I do miss the old me and the things I use to be able do. I go to therapy every week trying to see if I can get any of it back, but time will tell. Try to stay strong and know you are not alone. I urge you to become part of a group like MS Teams. I met some wonderful people on there that are at all different places on their MS journeys.
Good on you for moving forward and trying to make changes! Making changes to our diets can be hard and we can have times where we revert back. Keep trying to make improvements.
Hello how are you? I enjoy your RUclips so much that it lets me know that I'm not alone. With MS and diagnosed with lupus there is help or comfort. I use my cane or a sit-down walker to help me to get around places. I love to cook as well so my husband bought me a lot of gadgets I can use lol to help me. You have a blessed day.
Hello! So glad you enjoy the channel. So awesome that you use tools to help and so you can continue to enjoy cooking!
Hi I am interested in the all terrain Rollator are they fairly quiet or do they rattle a lot? I had one and it was so noisy and rattled when pushed along pavements, so am looking for a quieter option.
Oh excellent question! I am actually going to be testing and reviewing a rollator soon. I will definitely test it out and listen for the rattles and noise.
Does anyone know ehat this means? Oligoclonal Bands, CSF
View trends
bands
Value
4
Oligoclonal Bands
View trends
bands
Value
1
Oligoclonal Band Interp
View trends
Normal value:
I can’t give medical advice but oligoclonal bands in CSF (central spinal fluid) can be an indicator to help diagnose MS.
@@EvenSoItIsWell thank you.. how come there are 2 different numbers.. 4 1?
@pattischmitz2680 I am sorry, I am not sure. Did you have the test twice? And a possible comparison? Or perhaps they ran the sample twice and got two different readings? Definitely ask your doctor.
@@EvenSoItIsWell the one says csf and the other one doesnt.. didn’t know if there 2 different test?
@@pattischmitz2680 I am not sure. Everything I have read has not classified them into different categories.