I was laughing when you said that about people doing whatever they need to do in the mornings... I checked in for a colonoscopy at 6:45 am today! LOL Felt like I would never get done with the prep stuff last night, but... "Do what you think you can't do!" And I did... Glad it's over for another year!... Four small polyps this time but no cancer~ big HURRAY!... Praying the day gets better for all of us! :-)
IMChrysalis GLAD YOU DON'T HAVE WHAT I HATE CANCER ME & DENISE LOST OUR BELOVED MOM TO A RARE KIDNEY CANCER 7 YEARS AGO BLESSINGS DANIELLE AGAJANIAN & DENISE
I HAD A COLONOSCOPY ALMOST 3 YEARS I DID THE CLEAN OUT PREP I THEN WAS OUT FOR 45MINS & I AWOKE FEELING OUT OF IT I THEN WAS TOLD I HAD A BIOPSY FROM MY COLON IN 2 PLACES BUT THANK THE GOOD LORD NO C WORD BUT HAVING SOME DISCOMFORT & SPLITTING PAIN NOW THROUGH THE 3RD YEAR I'LL SEE IF & WHY I'M HAVING THIS UNPLEASANT DISCOMFORT IN MY COLON RIGHT NOW YIKES!!! GOD BLESS DANIELLE AGAJANIAN & DENISE (TWIN)
Thank you all for your kind thoughts~I love the Frey family! Danielle Agajanian, so sorry for your loss... any kind of cancer is a totally obnoxious way to die or to lose someone you love... and you're right, the prep is the worst part about the whole procedure, (unless the doctor gives you bad news...) and Tiff is right, it's definitely worth celebrating when you're done! Though you do have to be rather cautious about dancing... ;-)
Mary and Peter, you guys are such a light on RUclips. I really appreciate how you guys treasure each other and show how great marriage can be. God bless
Mary, you do the best you can. No one expects anything more. Thank you for sharing your's and Peter's life with us. You are an inspirational young couple and a good role model about what marriage is all about.
She is right you do what you can and If that means that whe dont Get mornings in the morening Thats fine whit me you take care of Your selff first and then us
Also, one of my Facebook friends has CF and she finally got a double lung transplant last night. Please send prayers for a speedy and uneventful recovery. Her name is Anna.
I hope someday I have a relationship like you two, you're always just so happy to be around each other and so supportive it's amazing and makes me smile when I watch ❤❤❤
I'm an Australian pharmacist and out of curiosity looked up the Australian pulmozyme availability on our "pharmaceutical benefits scheme" (pbs) the standard allowance being 60 ampoules per dispensing with 5repeat/refills allowed per doctors prescription... So Aussie standard is a 2/day dose... In some cases your doctor is allowed to ask for special consideration for an increased quantity but that's a case by case basis so they don't put that on the pbs website, however there's no minimum dispense time listed so while 1 prescription is usually supposed to last you 6 months there's nothing to say you can't get it filled every 2 weeks so you could have a 4/day dose
Mary, you always know the right things to say in the right way. Past few mornings I've been waking up, looking around at all the syringes supplies, pills ECT and justing crying it's to much. I don't want to anymore. But we still do it and keeping going. You make it a lil less lonely. Thank you
Mary, thank you for the small insight into American insurances and the struggle behind insurances and chronic illnesses in general. Even though the german insurance system is really good, I also had to fight to get certain medications (calcium) because for me it is not just a food supplement but a medication and I also had to fight to get prescribed 2 packages of other medication instead of just one because that would only last me 3 weeks as I am on the max dose. Luckily everything I need is paid for. I am crossing my fingers that you win your many fights!
Ollie's little trot across the camera was SOOO CUTE!!!😍😍😍 I love him with his little doggy and trying to get his ball from under the seat! .....okay I might have a tiny little baby obsession with Ollie....
Mary I now understand what you go through on those days when you have low energy. Today I spent most of my day out of the house with my mom. I started my day out with an 11:30am doctor appointment to pickup my new brace for my left leg. Then, my mom had some errands to run so I joined her. We were out until almost 6pm As we were doing those errands, I felt myself getting weaker and weaker, so I kept singing your song,"Do what you think you can't do!"in my head and I made it to my ultimate goal for the day which was a candy run at Walmart! My mom let me pick out any two bags of candy that I wanted! Thanks for cheering me on without even knowing it! You guys are amazing and I look forward to watching your videos every day! I am so happy to be a part of the Frey Life family!
Whoa, that's a lot of boxes! You could build a 2 store play fort with all that! Ollie says "Mary's Yoga time is Ollie's play time!" Lol. Oh my Gosh, the footage of Ollie and Peter from under the furniture was took cute! Our younger dog ALWAYS loses her tennis balls (and we have over 2 dozen in the house) under the furniture. It's torture for her lol. Mary, the insurance struggle sucks sometimes when you have a medical condition, but, as you are, I'm just thankful to have insurance period because there are so many out there who don't have any at all. Also, that's a good way to look at things you deal with everyday. It may not be a glamorous life, but it's your life and you're okay with that. And at the end of the day, that's what matters.
i also agree with you with the insurance issues! i'm having a major problem with scandishakes because i desperately need to gain weight, but they keep denying it because of me not having a feeding tube. it is very stressful, but i am thankful for everything else they help provide us with what i need
Jenny perez keep researching! because there were a couple of meds my husband needed last year that our insurance didn't pay for when he was in the hospital, but submitting claim receipts afterwards - were were reimbursed by the insurance! so the upfront cost was annoying but in the end - it was covered (in a roundabout way). so I hope you're able to find some way or process that helps you out :)
You guys are a breath of fresh air! It's lovely to see how positive you are living with this chronic illness! Most would be so optimistic and happy with life! Thank you for sharing your life with us all 💖
Have you had some mean comments? If so please don't be upset- your such a delightful, courageous young woman & I'm so positive the Fry life helps many people around the world! Lots of love to the three of you from Australia!
I'm an intermittent watcher. I just want to say that I really admire the message that you put out into the world, and how you portray yourselves. It's so great to see someone battling chronic illness remain positive, as well as having a partner that is so supportive.
Thank you for raising awareness for CF and for invisible illnesses in general. The strength and grace you show is so amazing. You are so articulate. Thank you for always making me smile! Your strength inspires me to be strong in my fight against late stage neurological Lyme disease and chronic fatigue syndrome. I am looking for an hypoallergenic service dog for myself. Ollie seems quite wonderful. Would it be possible to private message me the name of his breeder? :) thanks a million! Blessings!
Mary, I must tell you that your yawning has come in super helpful to me. sometimes my jaw jumps out of place. when I'm out and about and can't get it back in right away. I pull up one of your vlogs and go to you yawning 80% of the time it works. I'm bookmarking this one because it right at the end. So keep yawning
LOVE! We're a Gardener! Related to your insurance appeals: Post deductible, I've had numerous diagnostics and treatments denied by insurance. Offering to pay as a cash patient has greatly cut costs, as well as contacting pharmaceutical manufacturers regarding discount programs. Doctors fill out applications with me, sign off on what I need, and often I get approved for various medication programs, especially inhalers, nasal meds, and oral meds not covered "enough" or at all by insurance.
I am early for the first time! Medicine tends to take over. Here we have 5 people that take meds 2 with mental illnesses, 1 with minor health issues, 1 with cancer and complex medical issue and me with complex medical issue. We have medicine everywhere!
Since you guys have such an enormous platform you guys should share more about your faith in GOD and in Christ. It is such an incredible platform that you have that most don't. Just like you said the world is broken... share the light of the LORD. I know Peter has his preaching channel but I know that most wont take the time to go there. So many people walk in this world without having heard the word of GOD.... that is why the world is so broken. Maybe share some scriptures daily or witness GODS glory. So many starving souls and spirits.
Hey Mary, don't worry about your medical supplies overtaking your house - that means they're doing what they suppose to do., I'm a sufferer with diabetes and my friend if it's gotten to the point of doing what's best for me I would, I always told myself if whatever time it is during my life I have to have medical equipments in order to keep me alive I would, and recently I bought a diabetic meter to aid in my blood glucose measuring, so don't worry you're not alone, it just means that you're taking command of the situation and not the other way around, so continue getting those boxes for they're all part of your survival. Keep up the good work.
I understand about insurance's idea of what we do and don't need. Our insurance introduced me to their formulary almost immediately after we started with them. The problem is they keep changing it but, like you, I'm thankful to have insurance that will pay for the almost all of my meds and equipment. Love your vlogs.
I would suggreat writing up a petition in change.com. I have signed many petitions written to insurance companies that have been successful. You'd be able to get a ton of signatures by mentioning it in your videos and linking it in the description box. You should be getting every medication you need in the correct dose, Mary.
I found out this week that knitting gives me awful toothache as referred neck pain. I won't be defeated, though. My little grandson WILL get his knitted toy, even if it takes me months! xxxx
I'm 20. I almost died on multiple occasions a few months after I turned 20 due to chronic illness. Mary and Peter, I love how supportive you are of each other and how you push through the hard days. Do what you think you can't do!
i relate so much to medicines taking over and i love your videos so much. im no where near as sick as you but i am also chronically ill, i have neurological problems not CF, but i still love your channel so much. You guys are always here for me on bad days and you guys are so inspiring. Im really glad Marys health is a better, I remember earlier this year you were in the hospital a lot.
good afternoon! so excited that I got my bag today! that was so quick!!! Also, since all the med supplies seem to be overtaking the house, just for now use the room that is supposed to be Peters office and just have it somewhat out of sight and mind seeing as its always all in your face! I just had 3 new drugs added fo my pulmonary hypertension, Drs say it will.help my heart which is now struggling....i understand stuff all over to try to make a bit invisable!
Today did go. Another surgery that I mentally and emotionally wasn't prepared for, but when you must have a surgery you must. All my years, 21 seems to be "put M to sleep" year while testing me with a psychiatrist who dealt with me in such a manner that I now had a form of PTSD(Yes, from the PhD weirder himself!) I haven't felt more used to hospitals and yet, absolutely terrified of almost each doctor and nurse... Do what you think you can't do, eh?
Thank you for sharing the ups and downs of your lives - I love your channel. You're doing a great job of educating people about cf and about chronic illness in general. I have a question. Does your insurance require you to pay co-pay amounts on everything? It seems like the cost would be overwhelming.
Peter, you and Ollie were hilarious! I hope you washed that tennis ball. 😊 Poor Mary, those back spasms are torture! It's so good to see you guys loving and enjoying life and now you are Gardeners!! ❤🙏
I love you lady and I'm so proud of you! we are always rooting for you and keep you and the family in our prayers! keep on keeping on your doing great😁
You guys are so awesome! You guys as a couple give me hope that I might find somebody like Peter! I am visually impaired and often wonder if anybodywill love me. But you guys give me hope! You also inspire me to make a RUclips channel of my own to talk about my disability and help give more information about my disability! I don't really have a set in stone diagnosis all I know is is that I had to have 25 I surgeries because of corneal problems and I want to share my story thanks for giving me the encouragement to think about starting my own channel! You guys rock
Try some coffee in your plants! Black coffee lol it helps my client I take care of(I'm a caregiver) she "waters" her green beans with coffee at night time and then the morning she waters them and they grew over night!!!
Hey Mary & Peter! It's so good to see you being so kind, with your natural beauty! I love that you're here to brighten up the world & be unique! Never stop knowing, that! Have an amazing day! 💝😊⭐🙌 You're a huge inspiration to me! You have a spirit that glows, from the inside all of your advice, kindness, makes me so happy! You're special & awesome! 😃💖 Thank you for being real, sharing your knowledge & loving life, being one of a kind, with a smile on your faces, which makes me, smile! ! :)👍💞 thank you, for being so kind & being, you & just being strong & awesome, everyday! I'm a type 1 diabetic & I'm doing my best, of course, there are moment's I feel weak but, my friends & superstar's like you, who know what strength is, are the beautiful reason I have, to keep, going! Your positivity makes a difference! 😄💖😘
Mary, this could be camera angles tricking me. But is your hair healthier since getting the feeding tube? It makes sense to be a bonus effect of extra and enough nutrients.
@Mary do u have any recording of when u used to do gymnastics. I think ppl should like this comment and get Mary to show us her old gymnastics meets or training sessions. x
You should have a good case for getting twice a day Pulmozyme covered because it says right on the drug company website that's it's FDA approved for once or TWICE daily dosing, and specifies "CF patients 21 and older may benefit from twice daily dosing". FIGHT ON! (you probably already know (!!), but I find that if you just keep asking, eventually you may find just the right person to finally give you an approval)
I hear ya on the insurance woes! Mind you, mine are minor. Mine will not pay for my asthma medication. They will cover my inhalers but not the pills that work for me. Two doctors and my pharmacist have fought to get it covered but no such luck. Thankfully there is now a generic brand of it so instead of paying $150-$200 a month I only pay around $60. I need it so I don't really have a choice!
You guys should put some of your feeding tube videos with the other "Watch more from the Frey Life" videos. I haven't been keeping up with the daily vlogs that much because I got super duper busy, and finding the videos about why you got a feeding tube took a bit of looking. Still, I love you guys, keep on making the great content!
Here in the netherlands there's a thing about orkambi recently. The insurance companies won't add it to their basic insurance because it's to expensive and it doesn't work for all people with cf. So stupid.
Thank you for speaking honestly about the UK healthcare system...people with chronic illness requiring expensive medications are often even more screwed here. Too many people in your comments always assuming that everything would be better for you in a country with "universal" healthcare...
The RAMQ (Québec, Canada) would pay for Pulmozyme twice a day when I used to take it. I don't know about more. They do pay for continuous Cayston though.
I know all about expensive medicine too. My medication for my intrathecal pump is $3,000.00 a month and insurance doesn't cover it. I've done a lot of gofundme pages for people to help me. I've been blessed with great friends.
Last summer I went home post op cervical fusion with picc line. Insurance wouldn't cover home IV antibiotics. But would cover me if in rehab /nursing home. Thankfully we had the funds for me to do it at home
That's a shame about the Pulmozyme :( Canada has a bit of an odd system - hospital admissions, doctor visits, tests and procedures are all covered by the government - but prescription drugs are not. A lot of people have drug benefits through their employers, but not everyone. Not to get too political, but could the AHCA affect your insurance coverage if it gets passed?
![Digital Circus Episode 4 [TRAILER]](http://i.ytimg.com/vi/abZtsmMUbJo/mqdefault.jpg)
I love how excited he got over the garden
I love how excited Peter is about the plants! "It's MAGICAL!" haha You guys are the best!
I was laughing when you said that about people doing whatever they need to do in the mornings... I checked in for a colonoscopy at 6:45 am today! LOL Felt like I would never get done with the prep stuff last night, but...
"Do what you think you can't do!" And I did... Glad it's over for another year!...
Four small polyps this time but no cancer~ big HURRAY!...
Praying the day gets better for all of us! :-)
IMChrysalis GLAD YOU DON'T HAVE WHAT I HATE CANCER ME & DENISE LOST OUR BELOVED MOM TO A RARE KIDNEY CANCER 7 YEARS AGO BLESSINGS DANIELLE AGAJANIAN & DENISE
I HAD A COLONOSCOPY ALMOST 3 YEARS I DID THE CLEAN OUT PREP I THEN WAS OUT FOR 45MINS & I AWOKE FEELING OUT OF IT I THEN WAS TOLD I HAD A BIOPSY FROM MY COLON IN 2 PLACES BUT THANK THE GOOD LORD NO C WORD BUT HAVING SOME DISCOMFORT & SPLITTING PAIN NOW THROUGH THE 3RD YEAR I'LL SEE IF & WHY I'M HAVING THIS UNPLEASANT DISCOMFORT IN MY COLON RIGHT NOW YIKES!!! GOD BLESS DANIELLE AGAJANIAN & DENISE (TWIN)
Thank you all for your kind thoughts~I love the Frey family!
Danielle Agajanian, so sorry for your loss... any kind of cancer is a totally obnoxious way to die or to lose someone you love... and you're right, the prep is the worst part about the whole procedure, (unless the doctor gives you bad news...) and Tiff is right, it's definitely worth celebrating when you're done! Though you do have to be rather cautious about dancing... ;-)
the shot with ollie and peter playing is very funny and precious. ollie definitely was in a playful mood this vlog!
Mary and Peter, you guys are such a light on RUclips. I really appreciate how you guys treasure each other and show how great marriage can be. God bless
Hi Rebecca! Thanks for taking the time to share that with us! Your encouragement means a lot, and reminds us why we do what we do!
The Frey Life you are so welcome. :-) We love you guys
lol 😂 peter had me laughing so hard at "we gardened, we're gardeners" ! That was great! I'm so glad your peas are growing.
Mary, you do the best you can. No one expects anything more. Thank you for sharing your's and Peter's life with us. You are an inspirational young couple and a good role model about what marriage is all about.
Awe, Lynn, that is really kind of you to take the time to spread some encouragement! I'm sending it right back to you! Thanks!
She is right you do what you can and If that means that whe dont Get mornings in the morening Thats fine whit me you take care of Your selff first and then us
Loved the clip of Peter and Ollie under the chair.
Peter's voice while getting excited over the garden really reminded me of Olaf
Love the shot of Peter and Ollie looking under the couch!
Wasn't that the cutest?!
Also, one of my Facebook friends has CF and she finally got a double lung transplant last night. Please send prayers for a speedy and uneventful recovery. Her name is Anna.
Sheena Aikins SENDING PRAYERS TO YOU & YOUR FRIEND ANNA MAY GOD BLESS YOU FROM DANIELLE AGAJANIAN & DENISE(TWIN)
Sheena Aikins sending prayers!
Prayers ❤️
hope your friend anna is doing great now xxxx
I hope someday I have a relationship like you two, you're always just so happy to be around each other and so supportive it's amazing and makes me smile when I watch ❤❤❤
I'm an Australian pharmacist and out of curiosity looked up the Australian pulmozyme availability on our "pharmaceutical benefits scheme" (pbs) the standard allowance being 60 ampoules per dispensing with 5repeat/refills allowed per doctors prescription... So Aussie standard is a 2/day dose... In some cases your doctor is allowed to ask for special consideration for an increased quantity but that's a case by case basis so they don't put that on the pbs website, however there's no minimum dispense time listed so while 1 prescription is usually supposed to last you 6 months there's nothing to say you can't get it filled every 2 weeks so you could have a 4/day dose
so we recommend move here to Australia!
"We gardened! We're a GARDENER!" 😂😂😂
Hello today is my 20th birthday, made it through with a chronic illness. Celebrating the small victories today. Have a wonderful day
Yay one year till alcohol 🍺. Happy birthday
Shelbi Jackson Thank you! In my country (Canada) I'm all good!
Erin Despas Thank you so much
Happy Birthday - celebrate 20 wonderful years of success in fighitng!
Happy Birthday Abby
Mary, you always know the right things to say in the right way. Past few mornings I've been waking up, looking around at all the syringes supplies, pills ECT and justing crying it's to much. I don't want to anymore. But we still do it and keeping going. You make it a lil less lonely. Thank you
You are definitely not alone!
"We gardened!"
Im happy about Peter being happy about those little plants.
Sitting on that yoga wheel with your knees up looked so cool! You are such a yogi, Mary!! :)
Mary, thank you for the small insight into American insurances and the struggle behind insurances and chronic illnesses in general.
Even though the german insurance system is really good, I also had to fight to get certain medications (calcium) because for me it is not just a food supplement but a medication and I also had to fight to get prescribed 2 packages of other medication instead of just one because that would only last me 3 weeks as I am on the max dose. Luckily everything I need is paid for.
I am crossing my fingers that you win your many fights!
Ollie's little trot across the camera was SOOO CUTE!!!😍😍😍 I love him with his little doggy and trying to get his ball from under the seat! .....okay I might have a tiny little baby obsession with Ollie....
Mary I now understand what you go through on those days when you have low energy. Today I spent most of my day out of the house with my mom. I started my day out with an 11:30am doctor appointment to pickup my new brace for my left leg. Then, my mom had some errands to run so I joined her. We were out until almost 6pm As we were doing those errands, I felt myself getting weaker and weaker, so I kept singing your song,"Do what you think you can't do!"in my head and I made it to my ultimate goal for the day which was a candy run at Walmart! My mom let me pick out any two bags of candy that I wanted! Thanks for cheering me on without even knowing it! You guys are amazing and I look forward to watching your videos every day! I am so happy to be a part of the Frey Life family!
Whoa, that's a lot of boxes! You could build a 2 store play fort with all that! Ollie says "Mary's Yoga time is Ollie's play time!" Lol. Oh my Gosh, the footage of Ollie and Peter from under the furniture was took cute! Our younger dog ALWAYS loses her tennis balls (and we have over 2 dozen in the house) under the furniture. It's torture for her lol. Mary, the insurance struggle sucks sometimes when you have a medical condition, but, as you are, I'm just thankful to have insurance period because there are so many out there who don't have any at all. Also, that's a good way to look at things you deal with everyday. It may not be a glamorous life, but it's your life and you're okay with that. And at the end of the day, that's what matters.
i also agree with you with the insurance issues! i'm having a major problem with scandishakes because i desperately need to gain weight, but they keep denying it because of me not having a feeding tube. it is very stressful, but i am thankful for everything else they help provide us with what i need
I would encourage you to check out health well. They might help cover Scandishakes! Hang in there!
Jenny perez keep researching! because there were a couple of meds my husband needed last year that our insurance didn't pay for when he was in the hospital, but submitting claim receipts afterwards - were were reimbursed by the insurance! so the upfront cost was annoying but in the end - it was covered (in a roundabout way). so I hope you're able to find some way or process that helps you out :)
You guys are a breath of fresh air! It's lovely to see how positive you are living with this chronic illness! Most would be so optimistic and happy with life! Thank you for sharing your life with us all 💖
Through this rainy day in Indiana, I wish you a sunny day!
You guys are so inspirational. I love your vlogs.I've learned so much about what cystic fibrosis is.Much love from California❤
Have you had some mean comments? If so please don't be upset- your such a delightful, courageous young woman & I'm
so positive the Fry life helps many people around the world!
Lots of love to the three of you from Australia!
Love the good attitude regarding every day life . From a Vlogger in WA
I'm an intermittent watcher. I just want to say that I really admire the message that you put out into the world, and how you portray yourselves. It's so great to see someone battling chronic illness remain positive, as well as having a partner that is so supportive.
Thank you for raising awareness for CF and for invisible illnesses in general. The strength and grace you show is so amazing. You are so articulate. Thank you for always making me smile! Your strength inspires me to be strong in my fight against late stage neurological Lyme disease and chronic fatigue syndrome. I am looking for an hypoallergenic service dog for myself. Ollie seems quite wonderful. Would it be possible to private message me the name of his breeder? :) thanks a million! Blessings!
Peter is so funny. Congratulations on being "Gardeners" Love you guys!!!
So so thankful for our Medicare system in Australia..
I love this channel/community. I'm living a lot of my life in the land of the undiagnosed right now. I'm struggling today, but I find solace here.
I'm so glad we can all cheer each other here. I hope that soon you can find a diagnosis and maybe some good treatments! Hang in there!
The Frey Life thank you so much :)
Don't mind Me I'm in the land of the unknown too. Never stop fighting or searching for answers. We got this.
Thank you for the encouragement 😊
Don't mind Me 😊
You guys should make a book about the Frey Life and being a CF patient
Mary, I must tell you that your yawning has come in super helpful to me. sometimes my jaw jumps out of place. when I'm out and about and can't get it back in right away. I pull up one of your vlogs and go to you yawning 80% of the time it works. I'm bookmarking this one because it right at the end. So keep yawning
I like your little corner of organization! I bet it felt good to organize that a bit to what you need! Thanks for the vlog😊
LOVE! We're a Gardener!
Related to your insurance appeals: Post deductible, I've had numerous diagnostics and treatments denied by insurance. Offering to pay as a cash patient has greatly cut costs, as well as contacting pharmaceutical manufacturers regarding discount programs. Doctors fill out applications with me, sign off on what I need, and often I get approved for various medication programs, especially inhalers, nasal meds, and oral meds not covered "enough" or at all by insurance.
Love y'all guys so much!!!! You are amazing!
RUclips showed me this video as a suggestion today and I can’t get over how young you guys look ❤
I am early for the first time! Medicine tends to take over. Here we have 5 people that take meds 2 with mental illnesses, 1 with minor health issues, 1 with cancer and complex medical issue and me with complex medical issue. We have medicine everywhere!
Hi everyone xx hope everyone is having a good day xx lets support and encourage each other 😘
Woohoo! I agree! Let's spread encouragement in a very sad and broken world!
That's so nice, i had a great day today!
Since you guys have such an enormous platform you guys should share more about your faith in GOD and in Christ. It is such an incredible platform that you have that most don't. Just like you said the world is broken... share the light of the LORD. I know Peter has his preaching channel but I know that most wont take the time to go there. So many people walk in this world without having heard the word of GOD.... that is why the world is so broken. Maybe share some scriptures daily or witness GODS glory. So many starving souls and spirits.
Hey Mary, don't worry about your medical supplies overtaking your house - that means they're doing what they suppose to do., I'm a sufferer with diabetes and my friend if it's gotten to the point of doing what's best for me I would, I always told myself if whatever time it is during my life I have to have medical equipments in order to keep me alive I would, and recently I bought a diabetic meter to aid in my blood glucose measuring, so don't worry you're not alone, it just means that you're taking command of the situation and not the other way around, so continue getting those boxes for they're all part of your survival. Keep up the good work.
I understand about insurance's idea of what we do and don't need. Our insurance introduced me to their formulary almost immediately after we started with them. The problem is they keep changing it but, like you, I'm thankful to have insurance that will pay for the almost all of my meds and equipment. Love your vlogs.
I would suggreat writing up a petition in change.com. I have signed many petitions written to insurance companies that have been successful. You'd be able to get a ton of signatures by mentioning it in your videos and linking it in the description box. You should be getting every medication you need in the correct dose, Mary.
I found out this week that knitting gives me awful toothache as referred neck pain. I won't be defeated, though. My little grandson WILL get his knitted toy, even if it takes me months! xxxx
I'm 20. I almost died on multiple occasions a few months after I turned 20 due to chronic illness. Mary and Peter, I love how supportive you are of each other and how you push through the hard days. Do what you think you can't do!
How is Ollie just so CUTE? :-)
Oh my gosh, so much cuteness trying to get his ball from under the chair.
i relate so much to medicines taking over and i love your videos so much. im no where near as sick as you but i am also chronically ill, i have neurological problems not CF, but i still love your channel so much. You guys are always here for me on bad days and you guys are so inspiring. Im really glad Marys health is a better, I remember earlier this year you were in the hospital a lot.
love you all - ♡ from Kansas
good afternoon! so excited that I got my bag today! that was so quick!!! Also, since all the med supplies seem to be overtaking the house, just for now use the room that is supposed to be Peters office and just have it somewhat out of sight and mind seeing as its always all in your face! I just had 3 new drugs added fo my pulmonary hypertension, Drs say it will.help my heart which is now struggling....i understand stuff all over to try to make a bit invisable!
I have the same cart too. I have one shelf dedicated to coloring books to combat the medical stuff.
We love watching your videos.
Today did go. Another surgery that I mentally and emotionally wasn't prepared for, but when you must have a surgery you must. All my years, 21 seems to be "put M to sleep" year while testing me with a psychiatrist who dealt with me in such a manner that I now had a form of PTSD(Yes, from the PhD weirder himself!) I haven't felt more used to hospitals and yet, absolutely terrified of almost each doctor and nurse... Do what you think you can't do, eh?
Yep, that's all we can do...keep on doing what you think you can't do! Hang in there!
Thank you for sharing the ups and downs of your lives - I love your channel. You're doing a great job of educating people about cf and about chronic illness in general. I have a question. Does your insurance require you to pay co-pay amounts on everything? It seems like the cost would be overwhelming.
Peter, you and Ollie were hilarious! I hope you washed that tennis ball. 😊 Poor Mary, those back spasms are torture! It's so good to see you guys loving and enjoying life and now you are Gardeners!! ❤🙏
I love you lady and I'm so proud of you! we are always rooting for you and keep you and the family in our prayers! keep on keeping on your doing great😁
You guys are so awesome! You guys as a couple give me hope that I might find somebody like Peter! I am visually impaired and often wonder if anybodywill love me. But you guys give me hope! You also inspire me to make a RUclips channel of my own to talk about my disability and help give more information about my disability! I don't really have a set in stone diagnosis all I know is is that I had to have 25 I surgeries because of corneal problems and I want to share my story thanks for giving me the encouragement to think about starting my own channel! You guys rock
Aww, Oliver's fluffy paws are so cute!! :)
13:37 Front PAAAWWWWWWW! SOOOO adorbs!!
I just found your vlogs. Girl, you are awesome! Praying for you!
I'm having a RUclips catching up party tonight! Wheeee!!! :D
Try some coffee in your plants! Black coffee lol it helps my client I take care of(I'm a caregiver) she "waters" her green beans with coffee at night time and then the morning she waters them and they grew over night!!!
You are both precious and adorable. I love your vlogs! -Lisa
aww - Ollie brought you his stuffed buddy to make you feel better!!!! :). you made me hurt when you got onto the wheel! lol!
Hey Mary & Peter! It's so good to see you being so kind, with your natural beauty! I love that you're here to brighten up the world & be unique! Never stop knowing, that! Have an amazing day! 💝😊⭐🙌 You're a huge inspiration to me! You have a spirit that glows, from the inside all of your advice, kindness, makes me so happy! You're special & awesome! 😃💖 Thank you for being real, sharing your knowledge & loving life, being one of a kind, with a smile on your faces, which makes me, smile! ! :)👍💞 thank you, for being so kind & being, you & just being strong & awesome, everyday! I'm a type 1 diabetic & I'm doing my best, of course, there are moment's I feel weak but, my friends & superstar's like you, who know what strength is, are the beautiful reason I have, to keep, going! Your positivity makes a difference! 😄💖😘
Mary, this could be camera angles tricking me. But is your hair healthier since getting the feeding tube? It makes sense to be a bonus effect of extra and enough nutrients.
Mary, Peter and Ollie, I love your video's and watch you everyday! Love to all three of you!
Peter saying "WE'RE A GARDENER" cracked me up
Neat idea for you.... Get a little hanging organizer to hang off of the headboard for your supplies. (:
totally understand the morning thing Mary my mornings are the same way
@Mary do u have any recording of when u used to do gymnastics. I think ppl should like this comment and get Mary to show us her old gymnastics meets or training sessions. x
Hello from Iowa!!! :D I always watch your videos when I'm feeling down.
Some times the manufacturer will pay for costly drugs too. I'm sure you've checked that all out though.
After over 14 hours of driving, I finally get to get caught up with the Frey Life family. 😃
You should have a good case for getting twice a day Pulmozyme covered because it says right on the drug company website that's it's FDA approved for once or TWICE daily dosing, and specifies "CF patients 21 and older may benefit from twice daily dosing". FIGHT ON! (you probably already know (!!), but I find that if you just keep asking, eventually you may find just the right person to finally give you an approval)
Make sure to put a trellis up for your beans and peas to climb on!!
Have y'all ever thought about making a room or area just for treatment and meds? Like a chill area with a lounge chair or love seat and storage.
Mary I know you just bought fabric bins at Target but if you need more check the Dollar Tree. I found some there and you can't beat $1
I really liked the part where Ollie is trying to get the ball that's under the couch! :)< ^,,^ ~
I hear ya on the insurance woes! Mind you, mine are minor. Mine will not pay for my asthma medication. They will cover my inhalers but not the pills that work for me. Two doctors and my pharmacist have fought to get it covered but no such luck. Thankfully there is now a generic brand of it so instead of paying $150-$200 a month I only pay around $60. I need it so I don't really have a choice!
You guys should put some of your feeding tube videos with the other "Watch more from the Frey Life" videos. I haven't been keeping up with the daily vlogs that much because I got super duper busy, and finding the videos about why you got a feeding tube took a bit of looking. Still, I love you guys, keep on making the great content!
Hi to Ollie from Orlando ;)
He's my yellow lab service dog
Here in the netherlands there's a thing about orkambi recently. The insurance companies won't add it to their basic insurance because it's to expensive and it doesn't work for all people with cf. So stupid.
Thank you for speaking honestly about the UK healthcare system...people with chronic illness requiring expensive medications are often even more screwed here. Too many people in your comments always assuming that everything would be better for you in a country with "universal" healthcare...
I think it's definitely important to remember there is no perfect healthcare system. there are benefits and downfalls to each system.
Happy Cystic Fibrosis day here in Australia. 🌹
Keep on fighting 🥊
You guys are the best.
Would you ever do a full video on how you organize all your medications? I would love to see that mine are all over the place right now😂
can u send to dubia..would love to have some🤗
The RAMQ (Québec, Canada) would pay for Pulmozyme twice a day when I used to take it. I don't know about more. They do pay for continuous Cayston though.
I know all about expensive medicine too. My medication for my intrathecal pump is $3,000.00 a month and insurance doesn't cover it. I've done a lot of gofundme pages for people to help me. I've been blessed with great friends.
Oliver, sooo cuutttteeee
Ollie's so cute in this vidoe! Well, he's extra cute.
My niece worked with a lot of CP patInts at her freshman job in a hospital. She checked pulmonary parents in.
oooh . . . little sproutlets! :)
Last summer I went home post op cervical fusion with picc line. Insurance wouldn't cover home IV antibiotics. But would cover me if in rehab /nursing home. Thankfully we had the funds for me to do it at home
Super!
That's a shame about the Pulmozyme :( Canada has a bit of an odd system - hospital admissions, doctor visits, tests and procedures are all covered by the government - but prescription drugs are not. A lot of people have drug benefits through their employers, but not everyone.
Not to get too political, but could the AHCA affect your insurance coverage if it gets passed?
I just bought more storage containers to corral all of my meds 😂👍🏻 those bottles are super unruly!
They just wander everywhere! It just somehow happens!
Hi your exercises inspire my. But I'm having a very hard time doing even one sit up and I only have a pooch tummy.
I went swimming today for the first time in ages! I know I will pay for it tomorrow but it was so worth it.