Day in the Life of my Baby with Special Needs
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- Опубликовано: 6 сен 2024
- Hello lovely people! I get the question a lot of why I say “special needs baby” or “baby with special needs” I feel if I use those term which are not negative terms then other people would feel more comfortable in come and asking me more about my baby. I get it! It’s hard to know how to ask questions feeling like you don’t know how to word something! Just know you can word it any way and I won’t be offended! Also happy Sunday! The day I’m posting this happens to be Sunday! If you weren’t able to make it to a church service go check out LWFKnoxville on youtube! They have amazing videos! Also I’ll drop the link to my merch in the comments! Thank you guys! God bless you!!
“And now these three remain: faith, hope, and love. But the greatest of these is love.”
1 Corinthians 13
facebook.com/raremamasandco/
she so cute
you are such an inspiration...love your vlogs.. and i love any kind the noise Kenndal makes..
I wish she would take one! To self soothe more but she refuses it we’ve tried and we are still trying !’
Will Kendall always have a G tube or will she be able to eat normally? By the way you're such a good mom, Kendall is really cute, and I LOVE Veggietales
Nikole Lilly Shes so cute! Awee Poor Kendal 😢 Hope She Feels Better ❤️
Isn’t it crazy how being a SN mom you go from knowing absolutely nothing of medicine, to basically being your child’s own nurse/doctor!! Bless both of you! Such a beautiful family.
Her little cry is so sweet please don’t feel weird about putting her cries in it’s a natural thing all babies do!!!!!!
I feel the same way, I dont mind hearing the cries( I dont want to hear her cries in the sense I don't like her being in pain or sad) , but I don't feel she needs to censor for us.
The other reason I don't mind hearing the cries is b/c they always get her calmed down and I love getting to see her all comfortable and calmed down after she was crying.so hard, like in this video. They are such great parents & it shows ❤
i felt the same... i love to hear noise from baby Kenndal....
I agree!! I love that she’s real about it. ❤️
Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body on tex
Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body on tex
Her curls are so beautiful she looks like mama with daddy’s hair. Too cute sending prayers as always
So true
I’m new to this channel can you tell me what is wrong with her baby and the tube?
There is nothing WRONG with her..She is still human just different from others.
ruclips.net/video/Ds99kfEgxMY/видео.html
its a sad story and she is never going to be cured.
Sunshine Nikki- Oh my heavens!! God has given you the patience of an angel, the voice of a cherub, the love of Mother Theresa, and the personality of a happy, loving wife and mother. I am in awe of you. You are a gift to your daughter and your husband; you take care of everyone.....who takes care of you? Blessings to all of you. You are an inspiration. 💕🍃🌹🍃
💞
زةوىزوازىزرمنةوؤاةرةرتمررناحتوفبرنىةضصو رزةننىمخن😥😬😥😠😠😠😠😠😠😕👸👸👸👵👵👵👵
You're doing so great especially considering how young you are, I think there's a stereotype that young parents are clueless or whatever but some older parents can't even provide the level of care and respect you provide baby Kenndal. I have different disabilities than Kenndal, but as a disabled child to two able-bodied parents who saw them advocate for my medical needs and all that stuff, I just wanted to say you're doing great :)
How sweet of you! 😍
Darling girl, you are such a good mama. My sister had a daughter with cerebral palsy and what you are going through just reminds me of her and her and her husband’s love and total care. Big love 💕
From one mama with a special needs child to another you are a rock star mom! Amazing amazing Mommy!
Carlos is a wonderful role model for young dads. His parents as well as he should be very proud.
You’re an amazing mom, I can’t believe how calm you are. I get stressed out by the littlest things. I love watching your videos 💗
Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body on tex
Play with your body down that Al the way for me all the time because I like when you play with it down that
Go to your room to play with your body down in bed
Sending you love from Cape Town, South Africa
Just came across your channel , you are so doting to your daughter and it’s just beautiful to see , you would cut an arm for her and that’s amazing , your baby girl was chosen ESPECIALLY FOR YOU !! keep up the good work mama , the lord is your strength ! Sending love your way xx 💋
Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body on tex
Kendall is the most precious little girl in the world, is her cry just touches my soul.
Nikki- I was remembering my own son and what I did to calm him down and I remembered I used to rub behind his ears and massage his head. Not with lotion or anything of course. lol The Dr said he probably gets a headache from crying so hard and the massage helps to relieve that pain. Maybe try it, you never know. You're doing an incredible job with her! I wanna kiss her chubby cheeks and run my fingers through her gorgeous curls!
her cry makes my eyes water. she is so precious!
I literally tear up watching your videos girl! You are SO beautiful, inside and out! You have become so knowledgeable and educated on your little ones medical needs and I can tell you are the best advocate for her! To make sure your medical team knows the needs of Kenndal not only medically but just as a baby as well, to be there every step to make sure she is getting everything she needs! It is so hard being a young mom, a first time mom, and a mom in general, the hardest most incredible journey ever and then with Kenndal’s unique needs as well, you just amaze me, with what you do every day for her. Kenndal is such a beautiful and unique baby, not just medically! I can see in her eyes how much she loves you back. She is straight from heaven and I see that Mommy and Daddy were picked by God to be this angels parents for a reason, I can tell it is in Gods purpose for you both to be her mom and a dad. The love in your little family is so beautiful, you guys are amazing people, amazing parents. God bless you guys, thank you for sharing your journey.
You are the best mom!! You work so hard to keep it all going. You really are a rare Mama!
You should do a video of frequently asked questions to inform and educate people more of her. You’re doing such an amazing job as her mama ❤️
I’m a stay at home mom to a special needs son who is 20 months old. I love watching your videos ❤️
I was in tears while watching her cry in the car. I don’t know why, I’ve been thinking about Kenndal and your family quite often even though I don’t know you personally. I wish I could do something to make her life easily. Your life and story has really touched me in both an emotional and happy way. God bless you
Love how she calms down a little when you hold those little hands. She is so beautiful. I just wanna kiss those chubby cheeks.
This baby has got my heart ❤ without a doubt it's hers!
Sending MUCH love, hugs, and kisses.......
Nikole I love your channel. It is such a joy to watch you all. You are teaching us all about special needs children and about parenting. Thank you and God Bless!
This is my first video I’ve seen of you.. I can just tell you’re an amazing mom for your little girl, she is so lucky to have you. I work with kids with special needs and it warms my heart to see parents who love and admire them so much. They deserve the best care in the world. 💗
I admire how you take such good care of the precious gift God gave you. I know what ever she goes through in her life , She Will Be Loved and treasured! May God bless this beautiful little girl and Grant her all the love in the world! She is a gift! Thank you for sharing her story may God bless you!
You're so dang strong like I can't imagine being a mom so young and a special needs mother at that. Nothing wrong with being a mother young, I'm just saying I'm older than you and less mature in this way and I'm blown away by you
God bless you! You are so amazing. You are amazing mom. And you are so strong too! I know it’s not easy to be a mom I have two but I’m sure it’s more harder on you when there are days that she just out of it and you have no idea what to do but you do it. You are amazing even if you don’t feel it some days. God is good and he knew you would be strong and able to take care of beautiful baby girl. Never feel bad or sorry about her cry. The people that really care and enjoy watching you guys will understand. ❤️🥰💕
I just saw the video and the description. I like what you wrote, I'm 29 and have special needs/disabilities and it happens a lot that people think is bad to tell that words but as much as you're more than a disability you have to put a name. Also I always say if you ask with respect There's nothing wrong about it. I have autism, a brain malformation, hearing impairment. Etc. And when someone look my hearing aids and make faces is not nice but if they ask in good ways is ok to want to know.
Hugs for your beautiful baby 😍😍
Her cry is so cute and sweet!! She is the most perfect little girl ever! And you are a great mom to her. She is so lucky!!
Look at this big eyes! She opened them so wide. So happy for her!
Kenndal is beautiful😍 Both of you are blessed with such a lovable and precious baby girl. Enjoy all the love, hugs, cuddling and special moments with Kenndal. I am a Nana blessed with 3 lovable grandsons with Autism. Prayer is powerful 🙏
I found your channel today and instantly fell in love with kenndal , your family and the love you have for Jesus.. You've got a new sub for life ❤.
I send you my love. You are an inspiration for all of us. Many many kisses to your beautiful baby. Eleni from Greece.
You always dress her so beautiful, you’re doing an amazing job. I look forward to your videos ❤️
I discovered your channel literally yesterday haha and ive already watched almost all of your videos(2 more to go 😆☺) and now u post this one☺About to watch,may God bless your beautiful family,have a great day! 💕💕💕 and Kendall is so adorable btw!
What's Kendall's diagnosis?
@@idab6864 she has made videos explaining all about kenndals diagnosis.
Same here
Oh my goodness. My daughter is extra needs as well. She is having her g tube operation in a couple of months. Awwww she’s so sweet. I’m so glad I have found this channel 💕
Good luck! I hope all goes well :)
She is so beautiful and that part of her crying made me so sad! She is such a blessing and thank you for sharing 😘
You’re such a good momma Nikole. I found you on tiktok awhile ago and recently found your RUclips channel. I love watching your videos. I am a new found lover of Christ and watching you and seeing your faith come out in every video proves to me God is good and God is real. Side note: I was BAWLING when I saw a tear roll down her cheek 😭😭❤️🥺
Aw the poor baby😞 she did not like getting cleaned.😭 she is so pretty.😍 LOVE HER CURLS ❤️❤️ !!
Don’t worry about posting her crying, my son always screams like someone murdering him when he’s in his pushchair but I know there’s nothing wrong with him, he’s fed, clean, had a nap etc... because I pick him up and he starts smiling 🙄
I’ve had people telling me what they think is wrong with my son out in public but in reality it’s just normal babies cry!
Kendall is gorgeous she’s so pretty 😍
Dear mama, you are a true hero! No wonder God gave you that angel because only you could take such good care of her. You are amazing!
your baby girl remindes me so much of my sister, she was a special kid too and i lost her on 2017, my heart is so warm that i actually discovered your channel, Kenndal is so precious and beautiful ! God bless your family ❤
So sorry for your loss. Nothing worse than losing a sibling. You never stop missing them.
Kenndal is just adorable !! She's so lucky to have you and your hubby for parents, God know just who to give her to!!
You are a wonderful Mum. She is so gorgeous. Big hugs to a lovely family. Xx
She's absolutely beautiful ❤ I fall in love with Kenndal all over again with every new video 🥰 I can't imagine how stunning she will grow up to be just seeing how amazingly beautiful she is now. Thank you for sharing your life and baby girl with the world. I appreciate your endeavor to help educate and inspire people who need to understand certain aspects of differently abled children. I also recognize how much dedication and loving hard work is put forth to the care of children with special needs watching your videos. Sending virtual hugs from Southern California 🤗🤗🤗
I want you to know that I'm praying for you every single day and your entire family I live with a disability every single day of my life and it's not easy but my support system and prayer it's what keeps me going hang in there God bless you
I had a 'special brother'. He was the most honest and friendliest person on earth. When someone was unkind he said: God does not like that. He was a peace maker. I miss him. I hope all mothers know: special kids can make the world a bit better! Some kids maybe can' t write or count: but you can count on their smiles and you can read love on their faces. (Thats what my mother always said).
Unf. my brother is in heaven now: his job there? might be sending Gods love to earth ;-)
You have a wonderfull child. And your child has lovely parents!
God has good plans for all of us. With or without handicap. Jer 29:11 bye from the Netherlands
You are a blessing she is the luckiest girl to have you as her mother and she is beautiful god bless ❤️🙏🏼❤️
Is amazing how she stop crying just with your beautiful hand, God bless
You are such an amazing Mom! You have incredible patience with that little angel baby! Carlos is also a wonderful father he works hard all day and then takes the baby God Bless you both you are doing such an incredible job with your beautiful baby girl!!!💗
Nice to find your channel ❤️ I also have a special need girl ❤️
God bless you and your husband for taking such great care of that sweet little girl ❤️
I had to see my favorite girlie beautiful Kenndal again🥰 She’s so precious and enjoys cuddling🤗 I’ve seen all your videos👏. I fell in love with your loving and caring family living life to the fullest. I am supporting your family with love, strong faith and spiritual uplifting through daily prayers. Blessings always for your family 🙌🙏
You are such a great mom. Doing amazing! God bless your sweet baby girl. Praying for you and your family! Strength, love, and laughter
Her little cries break my heart 😭🥺
God bless you nikole. We were parents of our special needs beautiful daughter Kirsten. We just lost her in February. And miss her dearly. She was twenty seven and the love and center of our life. Seizures every day, gtube, scoliosis surgery, non verbal. And it was an honor to care for her throughout her life. We would give anything to have her back with us. We are still in shock and lost without Kirsten in our life.
Bill B I am so very sorry for your lost.. sounds like she was just wonderful!! She’s now watching over you and your family smiling❤️
Nikole Lilly thank you Nikole.
Kenndal reminds me so much of Kirsten. Kirsten only got to 42 pounds. She was small her whole life. When we would go to Vegas, security was always quick to tell us to leave. They were amazed to find out that she was an adult. She was a beautiful young woman. You will always be in our prayers Nikole. We went through a lot with Kirsten but wouldn’t trade it for all the gold on earth. Jeanette and I were a team. A Groundhog Day(every day was the same routine)team but a team. Jeanette loved giving Kirsten a bath every day. And her long curly hair was her crown that Jeanette cared for and brushed after every bath.
Kirsten, like Kenndal, was lucky to have such wonderful, loving parents. I am so sorry for your loss.
It’s so cute how much you do!...your a great mom!..I know I’ve commented in the past but my girl is almost 17.all you need to clean her sight is saline...that’s it...you will see...my girl has never had an infection ever...just saline and air!...
I will pray for you and your family. I worked in special education and had two of my own children with special needs..
She looks so much like her daddy , but your colour hair .shes so beautiful . 🥰 I have 8 grandkids and one great granddaughter. We are so blessed to have these gorgeous babies .
You are just such a thoughtful and strong young mama!! You have devoted your life to your daughter, and you and your husband are just such good parents! You should do workshops for parents who know they are going to have a baby with similar needs to that of Kendal. I’m sure it must be extremely overwhelming finding out that your baby will have a life altering health condition. You are truly mother of the year in my book Nikole!!
You are an AMAZING MOTHER 👏🏾✨ keep up the great work
Such a BEAUTIFUL family - I thought about saying how blessed Kendall is to have you and Carlos as parents, but it's you and Carlos that's blessed to have Kendall! Love your videos - such an inspirational family- thanks for sharing!
She is a angel, you guys are such good parents!
Awwww...you two are really good parents and kenndal is so adorable! My heart was aching when I was hearing her crying Beautiful baby girl!
Such a beautiful sweet baby, and you are such a great momma. Sweet family. You are very blessed. ❤️
Your so a good lil mama!! I'm so proud of you on how good you take care of that beautiful baby girl!! You are so gentle with that baby !! You make my heart melt for the love you have for your baby. Keep it up and I pray she just ups and one day is over all that and until God delivers that blessing your doing the best for her and so is dad !! I much love your channel more than ace family that's to much for me but I love this !! Have a great day mom and babe
You have a beautiful daughter and you are a wonderful Mommy bless you both❤️
You are absolutely amazing!! Incredible mom, wonderful wife and so inspiring with your positive attitude. And I hope this won’t sound weird but I can’t get over how pretty you and Kenndal are!
i love watching your little family you guys are adorable! I work with special needs kids and adults and they are all the most amazing people i know!
12:57 that is the most precious thing I have ever seen🥺
That beauty baby is so lucky to have you as her mommy!❤️
You are a great mom! She is sooo lucky to have you!
You and your husband/man are very very lucky to have each other and your wonderful, beautiful lil baby girl...
Sweet
😁
I am a single mother with an autistic daughter.. I just want to know what is wrong with Kenndal.. she's like a cherub so pretty
You guys are so stinkin cute!! What an amazing momma and daddy. God bless you both for being so amazing. I am so impressed with you guys. Please keep posting....IM HOOKED!
You are such a great momma!! And I love that song you played for her when you were getting her ready! We sing it at my church!
Shes adorable ! Her hair reminds me of my baby daughters hair. Your agood mother. God bless you. I pray you have an easier time and strength when you are feeling weak
I have a special needs son. I'm young too! I love to watch kendall grow she is so adorable
So glad to see your video. I love to watch you with Kenndal. U have a beautiful family. Love, Pat from Pa.
First time watching you, and I am amazed at your strength and calmness, What a beautiful god blessed child u have!
Your child honestly looks like a doll , she is so beautiful
Sending 💜 from Eugene, Oregon.
I enjoy watching your videos!
We would be such great friends if I knew you!
Hey just found your channel...Absolutely love your family!! You both are awesome parents ❤. My kids where the same way after bad dr appointments (mostly shots for my babies). Glad to see she finally got calm and fell a sleep. Love yas!!!
You guys are so amazing!! God is so Good!! I hope you guys are staying safe and God Bless!! ❤️❤️❤️❤️❤️ she is so beautiful just like her mama!!
Her eyes are so beautiful
your doing a great job as a mom keep it up sending love ❤️
you are an amazing mummy and kenndal is the most beautiful little girl x your coffee looks lovely love the song big girls dont cry . her bunches in her hair are the sweetest xx so nie to see you s staf saf and take care
Just found your blog. Yeah! You guys are an absolutely beautiful family. Adorable Kendall
She’s so lucky to have you both and you guys are so lucky to have her!❤️
God be with you and your family.
Wow your such a strong &loving mother & kendal is such a beautiful baby girl❤God bless you always.. You give hope💜
Poor baby!!! She is such a cutie and you are one heck of a mother!!!💕💕
I love that you always have a smile on your face. I have 6 babies... 5..4..3. 2. 1.. and a 1 month old and im constantly doing something lol
That's a lot of babies so close together. You are one blessed mama with a full heart!! 💜
Incredible young mom ! You are gorgeous !
This is my first video i've watched of you, i just want to say how beautiful you and your daughter is. From just this video you are an amazing mother. Subscribing!
Goodness she is one perfect little angel! When she responded to you asking if she liked the song my heart melted!
I hate it when she crys she is just the cutest❤️✨
It's a hard job and I'm really proud that you are putting in this effort you have to do it every day even when you feel like absolute shit you still need to do it. Besides being a great parent you're a great human being, a lot of people aren't able to cope with special needs...
I would close the door too if I saw that creature 🤣 You are such a good mum, you and Karlos are both great parents. Loving Kenndals pigtails.. she is so beautiful ❤
I know I need a to write a chapter to upload online for my novel... but also I cannot help it but watch a Nikole and Kendal video :3
The novel will wait lol!
She is so cute and pretty
New subscriber!!!! You guys have been blessed with such an amazing little angel. Love you ❤️
bless your heart. you are amazing. what an amazing mommy you are to sweet kenndal
She has really cute cloths she is a little fashionista