Irlen Syndrome
HTML-код
- Опубликовано: 25 дек 2024
- Have you ever heard that dyslexia is "when you see words moving on a page"? Did that ever really make sense to you?
Do you want to know what "moving words" is really about?
In this video, we discuss "Irlen Syndrome", a visual processing condition frequently confused for #dyslexia.
Want high quality, internationally recognised training, keynotes and consultancy on dyslexia and related issues? Please contact us here and we'll be happy to oblige: dyslexiabytes....
And for more free video content, please visit us at:
/ @dyslexiabytes
I have Irlen syndrome and I work at a grocery store. One day I had a costumer walk past me wearing what I would call a shirt with bad stripes. It was very uncomfortable to look at so I averted my eyes, but the costumer noticed and I think she was offended. She asked me in an annoyed voice "are you feeling a bit tired?" I started to panic a little and started trying to explain Irlen syndrome. Then she gets a smile on her face and says "I'm sorry, you don't have to explain, I'm a school teacher and have students with Irlen syndrome. Now I know you have it I will try to remember not to wear this shirt when I shop here." She is the only person I have come across who knew about it.
Oh that was so lovely and understanding of her. And I'm always amazed when people are so clued-up, as well as being kind.
But having to go through that is itself a bit of a trial. It must have been really uncomfortable, I'm really sorry. x
That was so kind of her!
I'd forgotten what a brilliant speaker you are!
Thank you Paul, that's such a lovely thing to hear.
I also have adhd and as a 51yo female I have not been diagnosed with any neurodivergence but I live with it every day of my life and I'm thankful to be me.
Nazareth, you've probably had to put up with so much. It's the failure to assess properly that means so many people get left behind in schools. I'm so happy that you have such a positive attitude - thank you, and keep the faith.❤️
@@DyslexiaBytes I must say living with my awesome weird brain has helped me develop a wild sense of humor and I'm very creative innovative and great at problem solving. I'm also very much awake to the mass deception from the media and the elite. It's so important for us ND's to utilize our super powers.
I never fitted all the box’s for dyslexia I got tested for years. It wasn’t until I was 18 and out of school that I finally found out what I had and finally had a name irlens and why I struggled so much. more awareness need to be made about the difference of irlens and dyslexia
It always breaks my heart when I hear people saying how they never fitted in. I was just the same. At its worst, it can be a childhood robbed. 💔
Thank you for this wonderful presentation and information! Children and adults are being misdiagnosed because of this important distinction, and they are suffering physically and academically because of it. We were blessed to learn that our daughter had Irlen Syndrome when she was only nine years old. She is 29 now and thriving. Getting the glasses for her back then changed her life!
I'm so, so pleased for her. She must have really suffered without them - the headaches, the nausea, the eye-strain. And the barriers to learning for people with Irlens are so frustrating. So happy she's thriving. ❤
I'm 66 and only just finding out what I've had all my life. I've always been told I'm dyslexic
God, it's so frustrating when people who've heard "just a little" think they know such a lot. I'm so glad you've finally found out what's going on... and I hope it helps. ❤
nice content
Thank you
Recently got diagnosed with dyslexia a few months ago and now have also been diagnosed with Irlen's Syndrome too (which I had no idea what it was). I now have vivid red tinted glasses and I'm reading up on it as much as possible to explain to people why I have them (the bright red glasses)
It's that requirement that they put on us to "constantly justify ourselves" that still keeps most neurodivergent modalities on the sidelines of "what's acceptable". I'm sorry you need to keep explaining to people, it's so frustrating!
@@DyslexiaBytes Ah it's okay and I'm sorry you have to deal with justifying yourself too, I just received the glasses earlier today and so I was pre-planning for the comments when I turn up with the glasses.
Unfortunately when the tests were done, I was just told there would be a slight tint to help me read but I wasn't specifically told that it was unrelated to Dyslexia.
Just wish there was more awareness for this, keep doing what your doing :))
I was diagnosed with dyslexia in the mid-1970s and I'm pretty sure that I have Irlen Syndrome also
It's a very common overlap. A good optometrist might be able to give you a better idea if there's one that does free tests?
@@DyslexiaBytes I have not had luck with eye doctors in my area in the past is this week I called a dyslexic tutor to see if she knew of it she hadn't even heard of the condition she was retired teacher and her defense and my local hospital mind you I'm in the United States thought that what I was looking for was speech therapy...
Oh@@registromalplena2514 - that's so disheartening. Have you tried the Dyslexia Map? I've been creating it so that people can (hopefully) find provision in their regions for whichever neurotypes they may be. You might find something here, I don't know.
www.TheDyslexiaMap.com
I am dyslexic, and I definitely see words moving around on the page when I read. It doesn't do it if I'm reading something that is only one sentence. It happens when I read paragraphs of text. I sometimes see lines running down the page. All the words look crowded sometimes and run together with no spaces. For years I thought this was what everyone else sees. I trained my eye to stay on one word at a time, and as long as I'm focused on the one word then thar word does not move around like all the other words on the page. Adding color to the background most of the time seems to slow it down/stop.
Yes, there's a huge co-occurrence between dyslexia and Irlen's Syndrome. Have you seen this video? It's very good, and seems to describe a lot of what you mention.
ruclips.net/video/FARizLljRkc/видео.html
I have severe irlen syndrome. I only learned about it in my early 20's while going to college to become an optician, coincidentally!
It all makes sense now though!! Growing up, no one was ever able to point out my exact learning disability. I self diagnosed myself with dyslexia in high school to normalize my horrendous reading/whiting. mM handwriting is so inconsistent in its size and shape. Not to mention my words and sentences slope up and down on a page. I hated going to the movies cuz the screen would shake, bop, jump around which never allowed me to enjoy the movie... I hated reading and writing because of how long it would take me to do it. Reading the same line 3 times in a row, not remember what you just read because you're trying to follow where you are on the page.. Microsoft Excel is my worst nightmare!!! I see illusions in patterns and in my general life all day, everyday. It's very exhausting/draining... ahh! But I am waiting for my irlen lenses to come in!!! Hopefully I will have them within another 2-3 weeks!!!
Thank you for spreading the awareness of irlen syndrome!!!❤
That sounds dreadful to live with, I really feel for you. Have you tried coloured lenses or experimenting with the brightness of your environment? I'm sorry - I don't mean to "tell you what you already know", but I do want to thank you for writing. You're bringing a sense of togetherness to everyone else who experiences this. ❤
I definitely have both dyslexia and irlens and yes I know the difference. With dyslexia I do literally everything backwards at some point each week and I do something backwards each day like sorting laundry or dressing in layers and I mix up the order and fix it. With irlens I always notice white rivers on a page or a screen and I'm literally blind in the sun with a hat and shades. They both effect reading but for different reasons.
I noticed only today (and it's something I've long been conscious of) that I see lines underneath text that "aren't there". I get shimmering too, a little like the faint tinnitus in my ears. It doesn't generally bother me, but I am aware of it sometimes.
I really hope it hasn't caused too much trouble for you...
Pen15 brought me here. I am stunned...after 34 years it all makes sense.
I'm so happy. It's that moment when things make sense that can open up a world of possibilities and opportunities. I really hope it's helped. Thank you so much. ❤️
I have been diagnosed with Irlens, and coloured lenses are like a miracle. Your video definitely helped to understand it. I have been assessed for sensory issues (suspected autism) too, although it is not in the diagnostic manual so can't be diagnosed. Do you know how they link? It is not just my visual sense affected, but even sensory assessor couldn't figure it out, and I'd like to find out more about how they link. It is helpful to wear my glasses all the time, is that something that is common? I guess if there's a lot of patterns in everyday life, it makes sense. I am trying to create awareness of it myself, and I am so grateful to see your video, thank you.
Hi M.
So first of all, a lot of people with Irlens do indeed wear their lenses all the time, but this is always going to be a matter of personal circumstance. It may not help you, but in general, people say it does help, rather than simply putting coloured overlays on text.
The interesting thing is that at present, no one seems to know why there's a co-occurrence between Irlens and neurodivergence types. To be honest, this is because Irlens isn't as deeply studied as it could be, and some people (you'll be frustrated to hear) even deny its very existence.
Is it neurological? Is it to do with the eyes? Is it something else?
The truth is there still needs to be research done on this. Until there is, it's always going to be difficult to understand the reasons for the co-occurences. But they're certainly there.
I read a study recently that indicated many diagnosticians (for ASD) are actually looking for particular things when they diagnose, and so they risk mis-diagnosing Developmental Coordination Disorder (DCD). A lot of the reason people don't know why there's co-occurrence between Irlens and (other) neurodivergences, is that diagnostic criteria for most NDs are "unsettled".
But good luck. I understand how hard Irlens can be for people. You might want to talk to one of the volunteers at your local autism association. They'll know Irlens specialists (not opticians, I'd advise avoiding them) who might be able to tell you more. ❤
Is that why I see neon patterns of all colors in the dark as well and closing my eyes (similar to DMT)???
(I was diagnosed with ASD in 2018)
Ooh, really interesting question. To be honest I don't know - have you spoken to anyone about this? It sounds fascinating!
This has GOT to be me. Unfortunately, I don’t if it’s because I’m from the South and the stigma down here for mental health is chaos right now, but I got whacked with the, “Ah, you don’t look autistic, so if this isn’t for attention, you’re all good!” Talk.
No one is actually interested in exploring this idea and confirming it or not. 🤷♀️
Thankful for this video. At least I know I’m not crazy.
You're definitely not crazy, Alexander. And I can only sympathise about the stigma for mental health issues. You probably know, but autistic people often feel things quite deeply, but (a) find it difficult to articulate that to others, and (b) find it difficult to regulate their emotions, meaning that it can gnaw away at you and make your emotional life really difficult.
I feel for you, and can only hope people start recognising you for who you are, rather than what they think you are. ❤❤🩹❤
@@DyslexiaBytes it’s as if you knew I’ve been in therapy 7+ years trying to get this same point across and having to figure it out all on my own after many misguided attempts from professionals. Thank you for showing me a moment of support, I wasn’t expecting how much better it can make one feel to hear and how great the effect.
Keep making reliable content. ❤️
Thank you so much for this I have irlen syndrome and my friends and teachers don't understand it much.
I also get vary dizzy randomly under bright lights.
Oh, that sounds awful. I really sympathise - and to have people not understand, the danger is that they end up dismissing some of the problems. Do coloured lenses help?
@@DyslexiaBytes In school I use green colored paper, and blue overlays for text books.
But some of my teachers don't care and print my papers on white anyways.
It's quite frustating.
@@ameliahorne6282 It's that attitude - "some of my teachers don't care". I still hear that. It drives me mad! (but at least I'm glad you came through the other side x)
@@DyslexiaBytes I'v leaarned to help myself useing diffrent ways.
Any time you feel comfortable sharing those, it would be fascinating to hear. ❤
I have just learned today at the age of 42 that this is what I have been struggling with all of my life 😅
🤗
I just tell people im Dyslexic, as most people don't know who irlens is
Actually, it can be a simple explanation, I agree. I think here, in the background, I was worried about "experts", assessors, monetising quacks, or even SENCOs, misunderstanding one thing for another. In your case, saying dyslexia rather than Irlen's can be a really effective and simple way of explaining stuff, you have a good point.
I have scotopic sensitivity syndrome and when I wear my purple glasses people assume I am dyslexic and dumb...it even happens at work. However it is so far from the truth. Even with that disability I achieved HDs at University.
Zalia, that's horrendous - the fact that you've achieved what you've achieved, and still people assume you're "dumb" just boils my blood. But sadly, it's not uncommon. I'm with you - and if you ever need an ally to point them towards, I'm here.
ps - I just checked out your channel. Terrific voice!
@@DyslexiaBytes Thank-you and I appreciate your offer of support 🙏 I think in Australia we are a bit behind as most people do not even acknowledge the difference let alone that it exists. Throw in ADHD into the mix....your boxed in as a certain type of person regardless of the fact you show zero aggression and a very high IQ. Plus, I think because it is not a physical disability, organisations and companies can get away with overlooking you for career development, whereas a physical impairment is seen. So giving them progression is seen as 'look at how we support those with disabilities, we are all for equal opportunity and complying with legislation' At the moment I am in the interview process for a new role where I am guaranteed training and progression. Fingers 🤞 I get through. At least with this role I am acknowledged for my experience and education. I am sitting exams during the interview process. At least this organisation appreciates neurodivergent people for their super powers.
Thank-you for your compliments too...... I am happy you enjoyed my vocals. I miss singing in a band and performing on stage. 🙏😊
Wow this might be why I hate reading. It takes me forever and hurts. I need to be screened, it’s all adding up!
I'm so happy for you. 💓 Try this map - The Dyslexia Map - and you might find an Irlen's Syndrome screener near you. And good luck!
www.TheDyslexiaMap.com
This is awesome! Yes i however think i have a combination of them.
That's really common. I'm so glad you recognised yourself in this, please feel free to let me know how you get on and what you find that helps. ❤
@@DyslexiaBytes yaaaas is there a way to message you or do i have to comment back here 😂?
@@Rajaas_Reading_Corner Great question! I'd normally just pop you my email address, but I'm a little nervous about doing that on such a public and open forum.
Do you have Twitter? You can find me on there as @BytesDyslexia, and drop me a message; or LinkedIn? We can message there too, if you find "Martin Bloomfield" (I'm the "relentless optimist"😉)
@@DyslexiaBytes ummm i have snapchat? Facebook and Instagram.
@@DyslexiaBytes i understand. It's alright.
i wonder if there’s a link to this with my ASD. i thought I had bad eyes and leftovers from ingesting a psychedelic years ago…
Britain's National Autism Society (The National Autistic Society) says that Irlen Syndrome affects "well over half" of autistic individuals. It might be worth your while getting it checked out. If you have a local branch of the NAS, or a local Irlen's practitioner (you can find one here: www.google.com/maps/d/viewer?mid=1PiCs2_O4LOnJw7eBqLZivmiZLwB1AJVb&ll=57.10411190355692%2C27.358761181359554&z=6 - just open the map, unroll the bit that says "Dyslexia Associations" on the left, and crtl+f6 "Irlen". You'll find nearly 60 qualified practitioners around the world), maybe could could contact them?
And good luck
❤
I find that white walls wiggle aswell I hate white rooms it makes me very dizzy. :)
God, that sounds awful ❤💔❤🩹💔❤
Yup, me too!
In bright rooms, the edges of white door & window frames can also bend and shimmy.
Hello, I'm sorry its not exactly on the topic, but I have a question - Is there any correlation between dyslexia and ocular migraine?
I have both
I hope the combination doesn't put too much stress on you Moss... How do you deal with it, if I may ask?
I have Irlen syndrome
It can be pretty challenging can't it. I only hope I've done the syndrome - and you - some kind of justice with this short video. ❤️
I took acid and had a solid 5-hr bout of Irlen Syndrome lol