Very helpful thanks..I have been in treatment for MS for the past 4 years but always with the doubt of having ADEM and finally my MS doctors came to the conclusion I never had MS after compering my MRIs and monitoring my disorder. I'm left with problems at walking and leg weakness. I'm about to start physical therapy. Hoping for the best.
My son was diagnosed with ADEM right after school ended. It started as pounding headaches and vomiting. Because of the flu like symptoms it took my a while to realize he had stopping using the bathroom. He had a botched Spinal tap in the ER and was sleeping too much and I was told it was a noro virus and to let it go away on its own but I knew something was wrong and couldn't let it go. He had never been sick that long and the dizziness was really bad. Oaklands Children's Hospital suspected ADEM right away and was able to start the steroids before Hallucinations started. He was not able to stay awake, use the bathroom, walk, think clearly and all of this happened a week after flu symptoms. It was crazy. He is great now. He finished his tapper and has been playing sports again and doing wonderfully. I had not heard of ADEM before that.
gayatri automotives WOW!!! Your story sounds scary similar to my son after starting kindergarten. He received his MMR and DTap and IPv vaccinations ruclips.net/video/i_ecNQjfkfk/видео.html
wow great video. my 10 year old son was diagnosed last November. out of textbook symptoms. more like encephalitis but told that's a negative. did the IV and taper. he has non EEG seizures. told to wait on him getting better and follow up with another MRI in one year. so left with my son having problems day to day activities, he see's psychiatrist and social worker.....that's it...no other help..
Thanks for your comment. We're sorry to hear about your son's diagnosis. You can find more information about ADEM in our resource library here: myelitis.org/living-with-myelitis/resources/resource-library/?fwp_disorders=adem. For more information about rare neuro-immune disorders, including ADEM, please visit our website: myelitis.org.
Keep with the therapist. It was too late for me. The idiot therapist that I was sent to said "it's normal nothing to worry about" regarding bloody gore and violence that I began continuously drawing. Never went to therapy after throughout my childhood and since then the problems continued to stack up, the therapy I went in adulthood was too late too little to fix the problem when it should have been addressed early on. It's a different journey now.
my niece was also diagnosed last july 23, 2019..the medication is so expenssive so we are seeking help to defray the cost of it..to everyone who has a good heart and wants to extend their help please visit.. www.gofundme.com/f/wake-up-lois-andrea
Very helpful thanks..I have been in treatment for MS for the past 4 years but always with the doubt of having ADEM and finally my MS doctors came to the conclusion I never had MS after compering my MRIs and monitoring my disorder. I'm left with problems at walking and leg weakness. I'm about to start physical therapy. Hoping for the best.
Hoping for the best for you
Great video. I was diagnosed with ADEM March 2017 and spent a month in the hospital. Currently doing physical therapy and on medical leave.
I have adem i dont know how long it will last
Hopefully it will go
My son was diagnosed with ADEM right after school ended. It started as pounding headaches and vomiting. Because of the flu like symptoms it took my a while to realize he had stopping using the bathroom. He had a botched Spinal tap in the ER and was sleeping too much and I was told it was a noro virus and to let it go away on its own but I knew something was wrong and couldn't let it go. He had never been sick that long and the dizziness was really bad. Oaklands Children's Hospital suspected ADEM right away and was able to start the steroids before Hallucinations started. He was not able to stay awake, use the bathroom, walk, think clearly and all of this happened a week after flu symptoms. It was crazy. He is great now. He finished his tapper and has been playing sports again and doing wonderfully. I had not heard of ADEM before that.
Shauntel Frazier-Owens brother same problem my son
gayatri automotives WOW!!! Your story sounds scary similar to my son after starting kindergarten. He received his MMR and DTap and IPv vaccinations
ruclips.net/video/i_ecNQjfkfk/видео.html
Telli F Very similar to my so. After receiving kindergarten vaccinations DTap MMR and ipv.
ruclips.net/video/i_ecNQjfkfk/видео.html
wow great video. my 10 year old son was diagnosed last November. out of textbook symptoms. more like encephalitis but told that's a negative. did the IV and taper. he has non EEG seizures. told to wait on him getting better and follow up with another MRI in one year. so left with my son having problems day to day activities, he see's psychiatrist and social worker.....that's it...no other help..
Thanks for your comment. We're sorry to hear about your son's diagnosis. You can find more information about ADEM in our resource library here: myelitis.org/living-with-myelitis/resources/resource-library/?fwp_disorders=adem. For more information about rare neuro-immune disorders, including ADEM, please visit our website: myelitis.org.
Keep with the therapist. It was too late for me. The idiot therapist that I was sent to said "it's normal nothing to worry about" regarding bloody gore and violence that I began continuously drawing. Never went to therapy after throughout my childhood and since then the problems continued to stack up, the therapy I went in adulthood was too late too little to fix the problem when it should have been addressed early on. It's a different journey now.
my niece was also diagnosed last july 23, 2019..the medication is so expenssive so we are seeking help to defray the cost of it..to everyone who has a good heart and wants to extend their help please visit.. www.gofundme.com/f/wake-up-lois-andrea