My First Adrenal Crisis Experience - Addison's Disease | Part Three |
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- Опубликовано: 1 май 2024
- Hello friends,
First things first, I am the furthest thing from an expert on any aspect of anyone’s else. I just have an intense internal dialogue always running about my own health issues that is borderline impossible to escape 🫠
Still, maybe I’m hoping that someday, someone who is also feeling like they’re doing something wrong with every choice they make with their bodies will see this and feel less alone. Or mostly I’m hoping that one day I’ll look back and realise I wasn’t doing anything wrong at all and life was just hard.
Either way, I hope this video impacts you only positively.
Jens x
I can relate to many things you mentioned. I have been diagnosed since 12/1999 after many years of being unwell. The one thing you said at the end is key “take one day at a time” . It’s a lot to manage and sometimes one moment at a time is needed. ❤ Your videos are helping others ❤️
thank you Jeninifer, beautifully put into the words I could not find. A fellow Addison. impossible to advocate for oneself in a crisis. I wish you love, peace and happiness always and will check in from time to time. big hugs
I wish you peace too. May we both have only contented days ahead, we deserve no less.
Hello and my wifee has addison too. I just figured out when it's hot... aka the summer... go to the urgent care and ask for saltine bag before the storm comes but pay attention to your body because it will give you alot of signs before dehydration comes...thanks for your story and stay strong
Thank you so much for commenting this. I am trying to become more conscious of what a dehydration sign is versus what a sign of low cortisol is - it's tough!
Such a hard road you are on. I have secondary adrenal insufficiency due to a pituitary tumor. Tumor was diagnosed then a few months later i ended up in the emergency department where they discovered how low my cortisol was. I have never felt that bad in my life (age 70). Had the tumor removed in 2018 and just had a second surgery 2 weeks ago since tumor grew back. So have been on the adrenal insufficiency path over 5 years now. Sending all the positive energy i can you way from the west coast USA.
Thank you so much for commenting 💛 This whole experience can be quite isolating so it is nice to know that across and ocean someone feels the same. I hope you are doing the very best you can be!
Thank you for sharing this. I have complex heath problems in addition to Addison’s. It is overwhelming at times. Being ok with not-knowing, it is something I am trying to get comfortable with.
I too am 'trying' to get used to this everyday, and it's a real work in progress!
I wish I could hug you, it's important that you're sharing this important information 🧡 x
Thank you sweat pea, you're the kindest soul x
@jenniferpoyntz thank you, I love you soo much Jen 🩷
Love you❤❤. Let's zoom soon. I'm still getting knee replacement two under control. All is good g as it should. I'm sorry you had this experience.
Please! I've missed you so much x
I'm so glad you shared this. Thank you so much! It sounds like such a harrowing experience. I'm glad you're okay. You're a brave one.
Thank you so much for commenting this. It was a kindness I needed to see, and I am very grateful.
❤❤❤
Do a raw vegan diet
My husband and I were raw vegan for quite a while and it’s honestly the healthiest I had ever been in my life. I recently switched to meat out of feeling desperate. What are your thoughts on Addisons and how raw vegan could help?
@@myflourishingfam I’ve no idea. Speak to a carnivore person. I don’t see any benefits myself but they swear by it. 🤷♂️