RARE DISEASE DAY: Noella's Journey with 18q-

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  • Опубликовано: 7 янв 2025

Комментарии • 10

  • @TraversyMedia
    @TraversyMedia Год назад +1

    Your daughter is beautiful. My son has Chromosome 18q deletion syndrome. He is 14 now and still does not talk and is maybe the size of a 6 year old. It's tough, but he is the most adorable, happy and loving kid that I have ever met. I couldn't imaging him any other way. There is a special place in heaven for these kids ❤❤

    • @aliyeerbey4708
      @aliyeerbey4708 3 месяца назад

      Mrb benmde oğlum 18q delezyon nasıl bi süreç yaşadınız bana ulaşırmışsınız

  • @makenziewagner5023
    @makenziewagner5023 2 года назад +1

    My daughter is 15 months and was diagnosed on November 14th 2022 with Chromosome 18q deletion syndrome 🥰

  • @murchlk
    @murchlk 2 года назад

    My daughter just turned 9 and also has 18q-. We are in Michigan

  • @sarahmorton1699
    @sarahmorton1699 2 года назад

    Do you have any more of this merch available. My 2 month old daughter was just diagnosed with 22q deletion. Your story and your beautiful daughter resonate with me 💜

  • @beckycotton8671
    @beckycotton8671 2 года назад

    Great video our girlie noe

  • @robalaniz8905
    @robalaniz8905 2 года назад +1

    Lets goooooo

  • @brendanfairfield6448
    @brendanfairfield6448 Год назад

    I have 18q deletion syndrome and I am 31 Years Old and I am also Autist :) in Canada

    • @aliyeerbey4708
      @aliyeerbey4708 3 месяца назад

      Mrb benm oğlumda da var 😢 nasıl bi süreç yaşadınız bana cvp alabilirmiyim

  • @brendanfairfield6448
    @brendanfairfield6448 Год назад

    By the Way 18q deletion Syndrome is Random and Only 1 in 55,000 Births have this syndrome :)