I am just so grateful to have become a recent patient of INIM and am just starting my journey to hopefully a better life. Local doctors dismissed my low immune numbers after several years of me telling them something is wrong with me suffering from PEM after minor activity. I was able to avoid covid until late 2022 but after that my symptoms worsened to the point where I could hardly get out bed for a year. I was lost until I finally saw doctors under Nancy’s group and now have some hope. So grateful for the institute’s work and everyone working on solving ME/CFS/long covid. They developed treatment for HIV, it’s time for us now.
ME/ CFS can come about with different viruses and bacteria infections, not just covid. I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.
I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.
Get ur vit D checked. Covid depletes D with every infection. They are finding that around 80ng/ml is optimal for health, as opposed to the standard 30 ng/ml.
what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.
@@god_king7440 It got better for me, incrementally, over the course of about 20 years. At this point it's maybe 10% of what it used to be at its worst, and still improves every year. How does this happen? Will it happen for most people? I have no idea, but it can happen at least for some.
Sign up for the COVID-UPP Study:
redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy
Donate to ME/CFS Research:
givecampus.com/b3yrwb
I am just so grateful to have become a recent patient of INIM and am just starting my journey to hopefully a better life. Local doctors dismissed my low immune numbers after several years of me telling them something is wrong with me suffering from PEM after minor activity. I was able to avoid covid until late 2022 but after that my symptoms worsened to the point where I could hardly get out bed for a year. I was lost until I finally saw doctors under Nancy’s group and now have some hope. So grateful for the institute’s work and everyone working on solving ME/CFS/long covid. They developed treatment for HIV, it’s time for us now.
ME/ CFS can come about with different viruses and bacteria infections, not just covid.
I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.
Have you teased out the stats between people with vaxxed long covid sufferers and non-vaxxed long covid sufferers?
I'm interested in this too.
Good question
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I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.
Get ur vit D checked. Covid depletes D with every infection. They are finding that around 80ng/ml is optimal for health, as opposed to the standard 30 ng/ml.
Did you try it?
What does ME/CSF stand for?
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
I just Googled it. Took me a few weeks.It's- Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
ME is inflammation of the brain and spinal cord.
what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.
Alot do get better..!
@@tanyawieczorek6603 actually the recovery rate from long covid is much better than the recovery rate from me /Cfs /pots .
@@tanyawieczorek6603do get better or recover 100% ? And for howlong ?
@@god_king7440 It got better for me, incrementally, over the course of about 20 years. At this point it's maybe 10% of what it used to be at its worst, and still improves every year. How does this happen? Will it happen for most people? I have no idea, but it can happen at least for some.