I am just so grateful to have become a recent patient of INIM and am just starting my journey to hopefully a better life. Local doctors dismissed my low immune numbers after several years of me telling them something is wrong with me suffering from PEM after minor activity. I was able to avoid covid until late 2022 but after that my symptoms worsened to the point where I could hardly get out bed for a year. I was lost until I finally saw doctors under Nancy’s group and now have some hope. So grateful for the institute’s work and everyone working on solving ME/CFS/long covid. They developed treatment for HIV, it’s time for us now.
ME/ CFS can come about with different viruses and bacteria infections, not just covid. I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.
I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.
Get ur vit D checked. Covid depletes D with every infection. They are finding that around 80ng/ml is optimal for health, as opposed to the standard 30 ng/ml.
what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.
@@god_king7440 It got better for me, incrementally, over the course of about 20 years. At this point it's maybe 10% of what it used to be at its worst, and still improves every year. How does this happen? Will it happen for most people? I have no idea, but it can happen at least for some.
Sign up for the COVID-UPP Study:
redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy
Donate to ME/CFS Research:
givecampus.com/b3yrwb
I am just so grateful to have become a recent patient of INIM and am just starting my journey to hopefully a better life. Local doctors dismissed my low immune numbers after several years of me telling them something is wrong with me suffering from PEM after minor activity. I was able to avoid covid until late 2022 but after that my symptoms worsened to the point where I could hardly get out bed for a year. I was lost until I finally saw doctors under Nancy’s group and now have some hope. So grateful for the institute’s work and everyone working on solving ME/CFS/long covid. They developed treatment for HIV, it’s time for us now.
ME/ CFS can come about with different viruses and bacteria infections, not just covid.
I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.
Lyme disease and co infection for example
Is there any studies in Chicago or Indiana ?
Have you teased out the stats between people with vaxxed long covid sufferers and non-vaxxed long covid sufferers?
I'm interested in this too.
Good question
I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.
Get ur vit D checked. Covid depletes D with every infection. They are finding that around 80ng/ml is optimal for health, as opposed to the standard 30 ng/ml.
Did you try it?
What does ME/CSF stand for?
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
I just Googled it. Took me a few weeks.It's- Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
ME is inflammation of the brain and spinal cord.
focus on the triggers ,.. the cause the hidden causes..
what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.
Alot do get better..!
@@tanyawieczorek6603 actually the recovery rate from long covid is much better than the recovery rate from me /Cfs /pots .
@@tanyawieczorek6603do get better or recover 100% ? And for howlong ?
@@god_king7440 It got better for me, incrementally, over the course of about 20 years. At this point it's maybe 10% of what it used to be at its worst, and still improves every year. How does this happen? Will it happen for most people? I have no idea, but it can happen at least for some.
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