My PMDD Story - BBC Interview with Daniela Relph
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- Опубликовано: 19 сен 2020
- See the full interview here.
In July I was interviewed by Daniela Relph from the BBC about my experience and journey with Premenstrual Dysphoric Disorder.
This is my journey and mine alone, told from my perspective, in my words.
For further info, advice and support please visit
National Association for Premenstrual Syndromes - www.pms.org.uk
International Association for Premenstrual Disorders - www.iapmd.org
Im 39 but was diagnosed with PMDD at 19. PMDD is a Nightmare! Feels like Im a 'Jekyl & Hyde'.. Mind you I already have Social Anxiety, PTSD & Major Depression. The Week before my menstrual feels like Im Losing my mind. I feel extremely aggressive full of Rage(thats not me), Anti-Social(I dont want to talk to nobody not even my family), Isolation, Crying Spells, Suicidal, Self Harm, Binging on Food or P.I.C.A(Chalk or Sandlike Substances) Obsessive thoughts of Death & other Bad things, Extremely Fatigued, Easily Confused, Memory Problems and so forth. I wouldn't wish this on my worst enemy! I don't recognize the person I am on PMDD, sort of like a stranger takes over my body. Its like temporary Bi-polar disorder. So glad people are talking about this because for a long time I felt all a lone and some Doctors aren't knowledgeable about PMDD so they brush it off like its nothing. Thank You for this!
You are so amazing for sharing this! We need PMDD to be made more researched and known among the medical professionals! So many just think it’s simply heightened pms, but it’s so much more and not so black and white! It’s awful to manage it!
I have only just seen this comment, but thank you so much. Awareness amongst the medical profession has come a long way since I was diagnosed in 2016, but unfortunately also still has a long way to go. This month the UKs first PMDD research agenda came out, so at least that's progress!
Extremely well done . Thank you .
It takes a lot of guts to openly talk about this. The US does not have support groups or an understanding like this so even though thankfully, I was diagnosed eventually, I have felt crazy and alone for years. I may have to do that procedure.
I am sooo proud of this lady for all she's come through and all the work she now does for other sufferers xx
Hi. I am seeing a gynea in 2 days. I need mine out. I am suicidal and I cant cope anymore.
35 years I’ve lived with pmdd to date now in perimenopause and it’s hell, I’m hoping when I hit full blown menopause it’s easier without pmdd, my gps are clueless about pmdd only a few weeks ago I asked my doctor if her knew what pmdd was he said no , only when you’ve mentioned it then went onto ask me which doctor diagnosed me , same surgery different doctor and he was lovely he actually looked my symptoms up and I was only diagnosed 8 years ago , I’ve kept a diary for years to track my symptoms it gives me a bit ease knowing I get same symptoms same times of the month
I talked about my pmdd to my gynecologist and she referred me to a psychologist. She didn't even consider to have my hormones checked.. It's really difficult to find a suitable doctor, that knows and understands.
I am so sorry you had this experience, but I unfortunately do have to agree that the awareness amongst the general public and also medical professionals isn't there. That is one of the main reasons why I chose to share my story, to help raise awareness and to let others know they are not alone. Have you managed to seek the correct support now? If not I would recommend checking out www.iapmd.org for further info and resources.... Did you know you can also request to speak with GP with special interest in women's health or ask for a second opinion from the Gynaecology perspective. Good luck x
@@pmdd-vlogger8873 this website doesn't show any homeopathic options un thr homeopathic category. I'm confused. Why is it just pharmaceutical options to masks the problem vs help heal ans get to the root cause
I’ve never felt so seen in my life!! I was misdiagnosed with bipolar over 12 years ago and have been silently suffering for years. After tracking my moods I finally realized what was really going on. I also suffered from self harm and overdosing :( . I’m so thankful that I found your channel!!
I've just been diagnosed with pmdd. It's like a bitter sweet relief to actually have a name for my inner monster. It got worse after having my son. I'm sorry to hear your journey hun. Thank you for posting this, your very brave to share your story ♡♡ xxx
Hi. My PMDD has gotten so severe after having my baby too. I really need help to cope. What are you doing to cope? Thank you xx
@@jjsita3879 hi Hun XX hope you are okay today XX I'm currently on setraline and the combination pill. They have put me on it for 63 days with no breaks and so far it's really helped xx instead of 5 bad days, I get 2 bad days xx if you have a doctor, or mental health nurse or even your health visitor, open up to them and tell them how bad you feel. They will definitely help you XX I really hope you are okay hunny xxx
Thank you for being brave and telling your story.
Wow. Very moved by so much I can relate to here; I also suffer with serious adverse psychological reactions to progesterone. Hysterectomy would be such a shame for me to have to choose but your words are my exact experience (not wanting to live as currently doing), therefore you have given me hope of the life I could have, even if with the surgery - so thank you so much for being so open and sharing so much. I am glad you are living the happier life you deserve
Wow
Watching this literally feels like I’m looking in the mirror. I’ve been through exactly the same experiences!
I am so sorry you can relate xx
So happy for you , you deserve the world and more . I’m forty and only getting answers now I also have adenomyosis and will be going for full hysterectomy when I can afford it
Thank you for sharing and raising awareness. #notalone #pmdd
Thanks for sharing. I am in hell week... sleeping for 3 days straight. I experience no happiness.
Sending love xxx
I am so sorry you are going through this too, I hope you have now found some comfort and healing. Please find the strength to keep going, it doe get better 💚
I'm getting my hysterectomy in 2 days to get away from my pmdd life.
Good luck, I hope all goes well for you. You might find it helpful to scroll back in my uploaded video and look at some of my initial post op video x
How are you going now post op?
Have any of you had complications with post-partum hysterectomies? I have PMDD and am cautious of ever having kids for the likened possibility of post-partum depression. So I was thinking if I do find I want a child, have a post-partum hysterectomy. Mostly so I can show up for my child 100%. Anyone have experience with that procedure? Thanks in advance
My nickname was melancholy...otherwise during ovulation week I was bubbly cheerful as hell
Thanks for the great video. I have a question, I have PMDD + adenomyosis… I’m having a total hysterectomy in the near future and keeping ovaries, this will cure my adenomyosis, I’m wondering if it will cure the pmdd also? If so I will be a new woman! Thanks for any advice :)
Did you find out?
Nope on the waiting list for hysterectomy and not sure if I’m still going to do it…
Unfortunately it's not a definite but many women experience 'ghost cycles' with their ovaries still in place with ongoing fluctuations, therefore symptoms. Good luck
Get your hormone levels tested before your period. Bio identical progesterone helped me.
Thanks, I tried bio-identical progesterone but unfortunately it didn't work for me. I was severely progesterone intolerant so it just made me really ill. I had my surgery in May 2019. It was difficult give up my fertility, but it was between my life and my fertility and surgery has honestly changed my life for the better more than I could have ever imagined x
Can I get this done on the Nhs?
Are u on HRT?
Yes - it's been quite a journey to get that right, with many of its own challenges, however for me personally, those challenges were still minor compared with my PMDD symptoms. X
So hard, as a Canadian, to understand the cockney accent