MySCS Month 7 Update | How things are going for me now 🤔
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- Опубликовано: 22 авг 2024
- Friends and family, greetings 🖖🏽 welcome back to the channel and welcome back to another video. Here I am at month 7. I wanted to chime in to let you guys know how I am doing with MySCS
If you like this video, please give it a thumbs up. If you’re new to the channel, consider subscribing so you’ll know when i post another update.
Also: check out my “Spinal Cord Stimulator Patient” playlist as it has all of my videos, from the time of my trial, to my permanent and to this point; moving forward.
• Spinal Cord Stimulator...
#spinalcordstimulator #update #painmanagement #recovery
![[TF2] The Russian Bear Trap](http://i.ytimg.com/vi/YFNSwz2_rOA/mqdefault.jpg)
Programs, programs and more programs. 3.5 years out and I still get reprogrammed.
As you wisely pointed out, scar tissue affects it, weight gain, weight loss (including muscle mass) it all affects our programs. I will say this far out my reprogramming is more far and fewer in between now a days.
Keep the faith man! Sounds like things are moving right along. Be safe and be well!
That you so much for bringing the gems with you 🍻 I kinda figured that it was scar tissue forming & causing my therapy to increase. I did not know that weight gain/loss could also be a factor. Very wise words & I truly appreciate it. Thanks for pointing it out and thanks for watching, my friend. Take care and be blessed
I'm having my trial implant on Fri 7/23. Treating post mastectomy pain syndrome. I can't thank you enough for sharing. With covid, the education was NONE. Patient advocate I've had to be. Praying that you continue to have good results.
Hi Angie, thank you for watching. You are very welcome. It’s been a pleasure making these videos to help you all get a better understanding of the healing process and what to expect. If you haven’t already, please check out my spinal cord stimulator patient playlist. It has all my videos on there 😃
I love your videos. I have found them very informative. They are very helpful for people deciding to get a scs
Hello Jamie, I could have sworn that I have responded to this post. But to reiterate: thank you so much for watching my journey. I’m very happy to know that my videos helped people better understand how this system works.
I am getting the permanent Metronic installed on June 29th... Thanks for taking your time to share with us whom suffer from spinal issues. You're a good man, hope your recovery continues to improve over time.
Hello Dale, thanks for watching and hanging out with me. I deeply appreciate your kind words and special thanks. It’s been a pleasure making these videos. Reading all these comments helps with my depression because I feel like I’ve done something that have made a difference for so many people who were looking to better understand this treatment from a real person. You just don’t understand how hopeless I’ve been feeling since my back injury 😔 but all the comments on my videos seriously make my day on the bad days 😃 I hope that all is well with your recovery ❤️🩹 my friend. Please keep in touch, we’re all are going to get through this together 🍻
I had my Medtronic implant done on June 16th. It has been a life changer for me. My pain has decreased about 70%. Definitely happy I did it.
@@nicholasguillory3354 I’m so happy for you my friend. Thank you so much for watching.
@@MySCSStory thank you for what you do. I watched all your videos before I had mine done. It helped me prepare for what I was gonna go through.
@@nicholasguillory3354 here’s to a healthy recovery ❤️🩹 my friend
Your videos have been so helpful. I get my neuro psych evaluation towards the end of July. I have some anxiety about how to navigate the pain, the time off from work needed for the trial, and then the permanent. But this constant pain is no way to live.
My3B’s thanks for watching and welcome to the channel. You are 100% right. No one deserves to be in so much pain. I was miserable 😖 miserable. My wife is a trooper having to put up with my painful morning antics. I truly hope that you get the relief that you’ve sought after for so long
This process can be very nerve racking but it’s worth it in the end. I can relate to the stress relating to being out of work. It’s not fun but it will be worth it in the end if you have a successful trial. I had my permanent placed on June 16th and it’s been life changing. I’m actually starting to live again. My pain has decreased by about 75% and I’ve cut my pain meds in half already. I hope everything works out for you so you can get pain relief
thank you for posting these updates, i almost had this done but i decided not to because i can but up with the pain i have for now and the cost of it and healing time, keep up the posts i would like to see how u do after one year of this,
Hello Thomas thanks for watching. I can truly understand you reason for opting out of this procedure. It is pretty expensive. I have a mound of Dr. bills 😐 but for me it was worth every dime. The recovery time is a slow process that requires patience and time off work. Many of us don’t have that luxury. In about 3 more months I’ll be at the 1 year mark. I will be posting more videos between now and then.
I’m 3 weeks post surgery on Friday. Your videos have really helped me and have helped validate some things for me. I have the Abbot Proclaim XR that doesn’t require charging.
Hello Nea thanks for watching and welcome to the channel. First of all, I’m so jealous that I have to charge up and you don’t 😆 just kidding but seriously tho, how’s things going for you so far?
@@MySCSStory yea I agree charging can be an pain in the butt especially keeping the charger in the right spot the entire time.
How are you doing since your implant? Hope all is going well and that you are getting pain relief
@@nicholasguillory3354 thanks for asking! I’m doing much better, especially when walking further distances. There’s still some pain, which is to be expected, but I can finally WALK now! How are YOU doing?
@@neaneaster7572 I’m doing great. 4 weeks out and back to light duty at work
Hi, I have had 2 trials for my lumbar and my neck. I had great relief from the nerve pain in both. My question is do you have two stimulator spots and if so how does the dual stimulation help?
Also before I had the trials I have had 3 fusions 2 in my neck and one in my lumbar. You stated that you are considering having a fusion done. I would definitely talk to your surgeon a lot! Due to all of my fusions, the area above and below the fusion have worn out and that was the reason I had to have the second fusion in my neck. They still wanted to do another fusion in my neck and that would have been 3 and my mobility in my neck would be a fracture at that point. Make sure you are asking a lot of questions and I would write them down talk to other people just to make sure it is right for you because once the fusion is done it is not changeable. Thank you for your videos you actually have helped me make my decision to have the surgery done.
Hi Russ, thanks for watching and welcome to the channel 🖖🏽 in regards to MySCS locations. During the trial I had the external box. With my permanent, I have two sites. One is where my pulse generator is located and the second is on my spine. That’s where my leads are. Right now I am dodging the fusion for as long as I can stomach it. You would be the third viewer who’s encouraging me to not do it, rethink it and or talk to my surgeon. I already have 15% whole body impairment. A fusion would probably make it worse. If you haven’t seen it yet, take a look at MySCS scar reveal video. In that video, I show what the scars from my permanent looks like
I go this Friday June 25th for my trial and I am praying it helps me.
Thanks for watching Pamela. I hope that you have a good recovery ❤️🩹
Was your trial a success? Praying it went well for you.
@@nicholasguillory3354 yes it was a success for me and I can't wait till I get my implant
@@pamelafreeman2865 so glad to hear it was a success. The permanent will improve your life so much. Let us know when you will be having your permanent implanted.
@@nicholasguillory3354 I sure will I'm in the process of getting everything done to schedule it now. I am from Alabama and mine will be done at Grandview hospital in Birmingham Alabama
I'm 2 weeks post surgery 🙏🏾🙏🏾
Hello Dedria, thanks for watching 😀 how’s things been coming along so far with your recovery ❤️🩹
@@MySCSStory this surgery was much better than my 1st scs. Thanks for sharing your experience with us
@@deedeeg.7519 that’s great to hear. You’re absolutely welcome, it’s a pleasure to help everyone get a good idea of what to expect
I’ll make a month on Friday with my spinal cord stimulator
Hello Jesse thanks for watching 😃 if you don’t mind me asking, how’s things been going for you so far.
@@MySCSStory Na thank you for the videos, My lower back pain that I’ve had for 6 years went from a pain level of 10 and now I’m at like 4….but I’m super tight and stiff so I’m constantly crack my back and I’ve been getting a lot of muscle spasms
@@Spotty2Hotty1 sounds like you’re on the road to a great recovery ❤️🩹 what ever you do, continue to adhere to your doctors orders. Before and after your follow up. As long as you’re patient and don’t try to defy the odds, you’re going to be just fine. Some days I feel no pain until I move/reach/bend a certain way. On today I’m a 2. I require no narcos & I can live with it
@@MySCSStory yea it’s just a learning process because I’m my head I think the pain is there, same here I have good and bad days but what bothers the most is where my device is at but other than that everything’s good
@@Spotty2Hotty1 awesome 🤩 🥳
I have a question how long did it take for the psychologist to get in contact with you?
Hello Thomas thanks for watching. It took nearly 3 months for me to get my appt. My intake got tangled up during the shutdown. I had to a zoom conference with PM & Reps during the mid Summer 2020. Had teleconference with Psychologist in Sept. Had Trial around the end of Oct 2020 & got my permanent in November 2020. That was then but things are more relaxed now so the time table could be quicker, depending on your location & how “things” are there.
Would you do this again....Im doing the trail on Aug 6th
Yes ma’am I would do it all over to feel like I’m feeling right now
@@MySCSStory so it took 7months to heal
@@kathywhitaker1042 no ma’am, typical recovery time is 8-12wks. I have other lingering issues going on. That’s the reason why I am having so much turbulence during my recovery. I feel much better pain wise but I still have physical impairments
@@MySCSStory oh....I have arachnoiditis from T1 to S2....with this the pain in my legs is so I want to cut them off ...I also have back pain...the pain patch give me bad headaches so hope with this I won't need them anymore...thank for sharing your journey
@@kathywhitaker1042 8 times out of 10 I feel zero nerve pain. This past Independence Day weekend was pain free for the first time in 3 years