Brady the Brave

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  • Опубликовано: 11 дек 2018
  • Brady and his Parents tackle life with a condition called EB. Please see the below links to follow Brady's progress and to see more about the current cures in development.
    / bradythebrave
    www.ebresearch.org/
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Комментарии • 107

  • @river8760
    @river8760 2 года назад +13

    I think this is one of the cruelest conditions to experience, it hurts my heart to see these kids cry in pain. Brady is a beautiful kiddo
    Hoping for a cure as soon as possible!

  • @n1neteeninty947
    @n1neteeninty947 4 года назад +39

    I saw this a year ago, and I always remembered his beautiful smile and I will always pray for him

  • @sueorth6467
    @sueorth6467 3 года назад +15

    Such beautiful sweet boy😭I wish him the best bless him I wish I could help him

  • @mitzimeyer2928
    @mitzimeyer2928 2 года назад +4

    This mom seems to really see Brady and not just his disease. Such a sweet gift you are giving him.

  • @Marissa_loves_Jesus
    @Marissa_loves_Jesus 2 года назад +5

    God bless this little boy and his parents. I’ve been learning more and more about the EB condition and I pray for a cure to help these people and future children born with it. Brady is absolutely adorable, he shines from within and I can see he’s strong and determined. He had such an amazing support system and team it appears. God bless them all. 🙏💗

  • @deeann424
    @deeann424 2 года назад

    We take so much for granted. Just look at this brave little boy. Bless you sweetheart. Mom and Dad you are the best.

  • @maineahnorth4047
    @maineahnorth4047 4 года назад +8

    Little boy should be a model he is so beautiful

  • @tristanmason7405
    @tristanmason7405 2 года назад +2

    Brady is absolutely adorable and I am praying for him!

    • @marge423
      @marge423  2 года назад

      All prayers are so appreciated. Here is how Brady is doing now if you'd like to catch up with his progress: : facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/ Every person who sees this is further awareness and a step closer to finding a cure, so please share :)!

  • @dkg249
    @dkg249 4 года назад +5

    Such a sweet and absolutely beautiful boy!
    l

  • @ms.miraclewalking982
    @ms.miraclewalking982 2 года назад +3

    God bless Brady. Prayers for healing and a cure.

  • @theflowerinthegardenbeauti9393
    @theflowerinthegardenbeauti9393 2 года назад +7

    Such a beautiful child, i hope that he will always be healthy and happy with his family💟💟💟

  • @savagebeast2538
    @savagebeast2538 2 года назад +6

    I can’t wait until they find a cure for this. Hurts my heart seeing these children or people in general suffered with such a horrible condition.

  • @vivianunger9123
    @vivianunger9123 2 года назад

    G-d bless Brady & this family - EB is the most brutal & painful disease & I am humbled by what they have to endure. Prayers & LOVE from North NJ.

    • @marge423
      @marge423  2 года назад

      Thank you for your prayers for Brady! Here is a link to see Brady's progress, plus another link to follow the possible cures in the pipes for EB. We need prayers and to build awareness for EB children:)
      facebook.com/bradythebrave/
      www.ebresearch.org/

  • @Ingrafre
    @Ingrafre 2 года назад +2

    The most beauuuutiful boy in the world! 🎶

    • @marge423
      @marge423  2 года назад

      Agreed :) Thank you!

  • @helenaguilar4138
    @helenaguilar4138 2 года назад

    thanks for sharing what a brave young baby may god continue to bless you and your family

    • @marge423
      @marge423  2 года назад

      Thank you for praying for Brady:) Here is a link to follow Brady, plus a link to see the possible cures which are being pursued. Please keep praying and keep spreading the word about Brady.
      facebook.com/bradythebrave/
      www.ebresearch.org

  • @Angel-hx6ih
    @Angel-hx6ih 2 года назад +2

    He's precious.

  • @thomasplouffe1363
    @thomasplouffe1363 2 года назад +2

    good god, i hope the new treatments that have developed are helping his little body heal better

    • @marge423
      @marge423  2 года назад

      Thank you for all of your comments, prayers and well wishes. Brady's parents keep a Facebook page for people to see how Brady is doing and to raise awareness about his condition, EB. Found here: facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/

  • @thedarkside7508
    @thedarkside7508 2 года назад

    They're all brave. My heart goes out to this wonderful family.

    • @marge423
      @marge423  2 года назад

      Thank you:) Here is a link to see Brady's progress if you'd like. And another link to the organization working to find a cure for EB.
      facebook.com/bradythebrave/
      www.ebresearch.org/

  • @roviannematovu3756
    @roviannematovu3756 Год назад

    These EB sufferers are superheroes. All their stories humble me. Their parents are extraordinary. They must have been 'chosen' for their indomitable strength in order to be ambassadors of this terrible disease to find a cure. Otherwise how can you justify such unjust suffering of an innocent child?

  • @rjules1083
    @rjules1083 2 года назад +1

    God bless this sweet little child ❤️

    • @marge423
      @marge423  2 года назад

      Thank you :) facebook.com/bradythebrave. www.ebresearch.org/

  • @warialdasue
    @warialdasue 2 года назад +6

    I would give money for research to find a cure for this hideous condition, if I had money. Brady is a beautiful boy, bless him and his family.

    • @Khatoon170
      @Khatoon170 2 года назад

      There are American RUclips channel called team have twin toddlers girl have diabetes ihope scientists find remedy for children diabetes too because their right to play enjoy not suffering from lifelong chronic disease may god grant every patient young or old health amen

    • @marge423
      @marge423  2 года назад +1

      Thank you:) Forwarding on the info about Brady to people you know, and all prayers are such helpful ways to help too. facebook.com/bradythebrave. www.ebresearch.org/

    • @CupCake-sc9eb
      @CupCake-sc9eb 2 года назад

      you can donate 5$, there is a research for medicine, hope the cure will be there soon

  • @reema9169
    @reema9169 2 года назад

    God bless you and your family ♥️♥️♥️♥️♥️♥️

  • @ginaandseason2774
    @ginaandseason2774 2 года назад +1

    Brady the brave is a perfect name for your amazing boy

    • @marge423
      @marge423  2 года назад

      Thank you:) He is my cousin, but I agree, perfect name. He is the bravest person I've ever met. If you'd like to keep up with Brady, you can find him here :) Please forward to your friends and family. Awareness is so very helpful facebook.com/bradythebrave. www.ebresearch.org/

  • @pattysuechandler-lindquist3159
    @pattysuechandler-lindquist3159 2 года назад +3

    5/14/22: 🙏❤️Brady's a Beautiful BABY/Person. My girlfriend KATHY in WA contracted this Skin Disease after giving birth to 2 twin daughters in 1985, then early 1990's this "EB" Disease came out of nowhere. She had it very tough for 2 yrs, everything she touched her skin would brake open. Kathy had no feeling in her hands with this Disease. Back in the 90's they put her in a bubble at St Jude's for 6 mos, then she passed. Hoping for Brady and all others with EB, medicine has come a long ways for "EB" and a CURE may begin. I think and believe that chewable Vitamin C and RAW Aloe Vera and Lavender eaten, I wonder if RAW Aloe Vera would be soothing to the Skin Sounds of "EB" May GOD always hold you in his ARMS and may you sleep in PEACE.
    Patty Sue age 63 in MARYLAND

    • @marge423
      @marge423  2 года назад +1

      Thank you Patty Sue:) i am so sorry about your friend. It is indescribably awful. Please share Bradys story with anyone you can. Each person who knows may bring us closer to a cure.
      facebook.com/bradythebrave/
      www.ebresearch.org/

  • @thegrumpyhorticulturist
    @thegrumpyhorticulturist 2 года назад

    Such a beautiful little boy. I hope he's doing well 💗

    • @marge423
      @marge423  2 года назад

      Thank you for all of your comments, prayers and well wishes. Brady's parents keep a Facebook page for people to see how Brady is doing and to raise awareness about his condition, EB. Found here: facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/

  • @lorrisabarozzo6936
    @lorrisabarozzo6936 2 года назад

    Brady you are a truly amazing brave young boy keep fighting

  • @sarahawkinsliepke4908
    @sarahawkinsliepke4908 2 года назад

    Omg poor kid!! We Need to find something to help this poor kid....

  • @melisaquiroga255
    @melisaquiroga255 2 года назад +2

    Rezo por el bebe! Y por la fortaleza de los papis! Saludos desde Argentina!🙏❤

    • @marge423
      @marge423  2 года назад

      Saludos Melisa, y gracias por tus oraciones! Brady ya crecio. Mida lo aqui:) facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/

  • @fabiennesanna8949
    @fabiennesanna8949 2 года назад

    Que de souffrances pour un si petit bonhomme... et pour les parents aussi...
    Courage à vous dans ce terrible combat 🍀🙏

  • @vcassol6989
    @vcassol6989 2 года назад +3

    There is a treatment for these kids. It consists on a marrow bone transplant from someone who is genetically compatible with him. It has had amazing results.

    • @Bicth97
      @Bicth97 2 года назад

      No it isn't or they would do it. Bone marrow has nothing to do with how your skin functions nor will it proliferate and replace ALL defective dna in your body.

  • @mohammedaslam2912
    @mohammedaslam2912 2 года назад +17

    more research needs to be done in the field of genetic engineering.

    • @marge423
      @marge423  2 года назад +3

      Right you are, Mohammed, thank you. Actually, the science for a cure is available. But we are steps away from bringing it to fruition. These are the people at the forefront of a cure. And interestingly, what they are working on applies to over 10,000 other rare diseases. So a cure for EB children is a cure for so many others in their illnesses as well. www.ebresearch.org/

  • @vickihildred8548
    @vickihildred8548 2 года назад +1

    I just watched a movie the other day about a man named Jonny Kennedy that had EB and started a foundation called Debra…so people would know more about EB.

    • @marge423
      @marge423  2 года назад

      Yes! I've heard about Debra. I think Debra may have joined forced with EBRP. www.ebresearch.org/ They are making advances. They have the science but more work to do and further to go. Please share to further awareness.

  • @suziedebolt6619
    @suziedebolt6619 2 года назад

    Precious angel

  • @jasminefrichtl806
    @jasminefrichtl806 2 года назад +1

    Praying for a cure for your cute baby 💐🙏🎀

    • @marge423
      @marge423  2 года назад

      Thank you Jasmine. All prayers are so appreciated. Here is how Brady is doing now if you'd like to catch up with his progress: : facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/ Every person who sees this is further awareness and a step closer to finding a cure, so please share :)!

  • @rachaelduardo1923
    @rachaelduardo1923 2 года назад +1

    🙏🏻🙏🏻🙏🏻🙏🏻🥰🥰🥰🥰🥰

  • @spotlessmind7681
    @spotlessmind7681 2 года назад

    it must be horrible to watch your child suffer daily. bless his heart 🙏

  • @Khatoon170
    @Khatoon170 2 года назад

    Iam awfully sorry guys for your son may god grant him health prosperity although idont have kids I considered all children as my own happy mother day to you best gift for you ask god to protect your son and scientists find remedy for his illness you became proud of him amen best wishes for you your family friends

    • @marge423
      @marge423  2 года назад

      Thank you for your prayers and good wishes :) facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/

  • @rosimeiremoriggi9340
    @rosimeiremoriggi9340 2 года назад +1

    Boa noite. Que Deus abençoe e fortaleça . Com muita fé e saúde . Que a imunidade fique bem alta pra não sentir dor. Dói.no coração. ❤🙏🙏

    • @marge423
      @marge423  2 года назад

      Thank you.!!! facebook.com/bradythebrave. www.ebresearch.org/

  • @hosineharbal9847
    @hosineharbal9847 3 года назад +4

    كم أنت جميل ايه صغير أسأل الله ان يشفيك انه على كل شيء قدير

    • @juicebox464
      @juicebox464 2 года назад

      I god was so special this kid or kids, in general, wouldn't have to deal with this torture their whole life

  • @conniegatlin3987
    @conniegatlin3987 2 года назад +6

    Would love to get a update on how he’s doing

    • @marge423
      @marge423  2 года назад +1

      Hi Connie, thank you so much for asking. Here are a couple of links to follow Brady, and the current state of the cures that are being pursued for EB (and other rare illnesses): facebook.com/bradythebrave/, www.ebresearch.org

  • @shirleycosby6908
    @shirleycosby6908 2 года назад

    My heart hurts for you 💔 If I could make his illness mine would 😪😪

  • @LinhLe-gu2tc
    @LinhLe-gu2tc 2 года назад +1

    Em bé xinh quá , mình không hiểu em bệnh gì , nhưng cố gắng lên nhé bé yêu 🥰

    • @marge423
      @marge423  2 года назад

      facebook.com/bradythebrave. www.ebresearch.org/

  • @luvliving5621
    @luvliving5621 2 года назад

    Brady reminds me of the little prince

  • @baldbankruptson7533
    @baldbankruptson7533 2 года назад +1

    How he's doing now??
    We need an update on this cute little hero .

    • @marge423
      @marge423  2 года назад +1

      Thank you for asking!! Brady is my cousin's son. His life is painful but he is so full of life. He's sassy and clever and so loved. He's here on facebook. Please share it so the world learns about this disease. We know awareness leads to cures. facebook.com/bradythebrave/
      And Here is the organziation working on EB cures atm. www.ebresearch.org/

    • @marge423
      @marge423  2 года назад

      Brady is in the hospital atm, unfortunately.. Please see his updates here .facebook.com/bradythebrave/

  • @user-ot5fb3qe9g
    @user-ot5fb3qe9g 2 года назад

    السلام عليكم انا من تونس . الله يشفيه يا رب

  • @rahulbhat5923
    @rahulbhat5923 2 года назад +1

    God bless little wonder.

  • @carmenrojas1262
    @carmenrojas1262 2 года назад

    Hermoso este anjelito dios mio no lo avandones esperemos que la ciencia encuentre un medicamento para tener cura su piel solo verlo se me parte el corazon bendiciones saludos soy peruana

  • @oiskipoiski85
    @oiskipoiski85 2 года назад

    Ich wünsche Brady von Herzen alles Liebe ♡ du tapferer kleiner Mann

  • @marge423
    @marge423  2 года назад

    Thank you for all of your comments, prayers and well wishes. Brady's parents keep a Facebook page for people to see how Brady is doing and to raise awareness about his condition, EB. Found here: facebook.com/bradythebrave. There is also a way to keep up with the pursuit of a cure, which is here: www.ebresearch.org/

  • @annakidd7852
    @annakidd7852 2 года назад

    Poor baby😭😭😭😭😭😭

  • @carlaalmane3497
    @carlaalmane3497 2 года назад

    The doctor and thE nurSE
    ArE important

  • @LuckLuck-qp8mz
    @LuckLuck-qp8mz 2 года назад

    I am sorry for you guys=_=:'(

  • @musicis4you888
    @musicis4you888 2 года назад +1

    I promise one day I will get enough money to find a cure to this disease

  • @MrRhb7711
    @MrRhb7711 2 года назад

    l wish I could do something...🇬🇧

  • @geekworthy7938
    @geekworthy7938 2 года назад +1

    Stanford has a new gene therapy!

  • @anneliesmaes5135
    @anneliesmaes5135 2 года назад

    Veel beterschap

  • @vikthor9089
    @vikthor9089 2 года назад +1

    No more

  • @yusifyusifov3914
    @yusifyusifov3914 2 года назад +1

    Təsüf ki başa düşmədim nə olduğunu. Yanıb bu uşaq ?

    • @laurenevan9866
      @laurenevan9866 2 года назад +1

      He has a medical condition that affects his skin and makes it very fragile.

    • @marge423
      @marge423  2 года назад

      www.ebresearch.org/what-is-eb.html

  • @MrRhb7711
    @MrRhb7711 2 года назад

    l wist i can do something

  • @Khatoon170
    @Khatoon170 2 года назад

    Iam new subscriber Arabic lady citizen since Christmas 2019 I began to subscribe British and American RUclips channels we are as foreigners subscribers as overseas students want to increase our cultural level improve our English language as well first of all make friendships with people from different countries ihope we became intimate friends from now on

  • @kusaldanushka6128
    @kusaldanushka6128 3 года назад +1

    Detal plz bulosa

  • @gabriellamariotti3333
    @gabriellamariotti3333 11 месяцев назад

    Povera piccolina la patologia già in stato avanzato
    Speriamo Dio

  • @donhilker1
    @donhilker1 2 года назад

    What happened to her son is hot out his skin is red?! 😬

    • @marge423
      @marge423  2 года назад +1

      Brady is in the hospital atm, unfortunately.. Please see his updates here .facebook.com/bradythebrave/

  • @vipersb1
    @vipersb1 2 года назад

    Praying won't do anything. A bone marrow transplant can help as it's worked in other patients. Go science!

  • @Salem_Wolf1107
    @Salem_Wolf1107 2 года назад

    Ppl don't know or realize that others have it good. Others aren't so lucky parents of a sick child ....

    • @marge423
      @marge423  2 года назад +1

      It's true. Brady's family's experience is beyond imagination. facebook.com/bradythebrave/

  • @kusaldanushka6128
    @kusaldanushka6128 3 года назад

    Dental plz

  • @JojoSonnier
    @JojoSonnier 2 года назад

    Oh my god that’s not good

  • @tmfromdenmark9158
    @tmfromdenmark9158 2 года назад

    Shame on Usa not to give money to sick people.
    And a lot of people in the Usa talking about God and calls themselfes Kristian …Really 😡

    • @Bicth97
      @Bicth97 2 года назад

      Yeah, our society sucks.

  • @geekworthy7938
    @geekworthy7938 2 года назад +1

    Stanford has a new gene therapy!