Aseptic Meningitis?! IVIG Week 1 | Chronic Illness Vlog
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- Опубликовано: 8 сен 2024
- I have a PO box!
Hannah Ritchie
PO Box 103
Huron, OH 44839
Instagram: hannahr916
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Canon g7x mark II
Welcome to my channel! My name is Hannah and I live with a couple of chronic illnesses. I also love traveling and beauty. Thank you for supporting my channel!
For Business Inquiries ONLY: hannah-elizabeth98@hotmail.com
Hey Hanna, don’t worry about any haters, no matter what you do or say, there will always be someone that has to put there two pence in, just delete and take it with a pinch of salt. I know it’s easy said than done but stay strong and I am keeping my fingers crossed 🤞 for you that the IVIG gives you some relief and better quality of life ❤️
I've gotten the aseptic meningitis from IVIG, makes the migraine seem like a headache... Praying for you! IV benadryl helped me a lot and now we always premedicate and run it EXTREEMLY slow. Recently started iv phenagren at home and hoping that will help with follow up. For me the follow up doses, which were smaller, were not as bad and I could function after a couple days. For me the couple days of pain a month is worth enduring because it improves the rest of the days. Of someone had told me about aseptic meningitis being so common with IVIG BEFORE I started the first time I don't know if I could have gone through It but looking back I'm so glad I did! Hooe today is a little better for you!
I'm really glad that you make these videos. I know it's hard to ignore the hate but it really helps as another young woman with POTS to see these videos. I'm doing better since a surgery I had to close a hole in my heart, but my doctor and I aren't ruling out IVIG as an option. I'm able to work online after the surgery and generally feel better so now that I've seen this, I'm going to think twice before doing IVIG. Even just the hangover symptoms that are common with IVIG sound awful. There really wasn't any information online about potential consequences or side effects, just people saying how much it helped them. So I really appreciate you being so candid and honest about what you're going through. I can't even imagine what that kind of pain is like. I really hope that things turn around for you soon. You've had way more than your fair share of medical complications, so I hope your doctors are able to find some solutions that work for you and you're able to pursue all of those things you want to do.
Please ramble away! I'm so glad to hear of your hopes and dreams, and you should feel free to vlog about any aspect of your life in your own channel. I know it's hard to put a positive spin og "hate". And yet, if you can think of hateful comments as coming from people who are just projecting, and don't know how to be real, that may help. They're just cowards. I continue to pray for you, and I admire you for keeping the faith alive.
I love when you talk about anything. You're very real and I appreciate you sharing these moments.
Don’t let the hate get to you! Just delete the BS and ignore these people, they are terrible. You’re doing great.
The haters are ridiculous. You don’t have to prove how sick you are or apologize for trying to enjoy your life while managing chronic illness. IVIG doesn’t get approved by insurance for someone faking. Insurance pays I think hundreds of thousands a year for ivig. That’s why it’s so dang hard to get approved bc they fight it no matter how sick someone is. So sorry you have to deal with those people. They are probably narcissists and get a rise out of reactions so just ignore them. Hugs Hannah. I enjoy your vlogs. Don’t apologize for venting or rambling, your supporters care for you and relate.
Currently recovering from Aseptic meningitis from ivig for common variable immunodeficiency. I also have hyper pots, mcas and cEDS. OMG it is so painful. Thanks for this video, I realize I am 3 years late but this is still helpful for me while recovering. Iv Benadryl helps because its an allergic type reaction. All the best.
Hey Hannah you would make an Awesome Cinderella at disney! We all Love your videos rambling or not don't change a thing. :-)
Darling, just be you let the haters hate if they want to. You’re a genuine soul and those of us with EDS understand what you’re trying to do xxxxxxxxx
You are an inspiration to me. I've had POTS less than a year and I want my life back. I think of all you endure and you are always so upbeat. It can be such a drag when you are sick all the time. I appreciate your humor, too.
Awww you’re such a sweetheart. There’s always going to be haters complaining about anything and everything but that’s because they are unhappy with their own life so just remember that. You’re beautiful and stronger than that and that just means you have something they are envious of. You’re real, transparent yet positive. You’re beautiful inside and out and so strong. Keep on fighting beautiful girl! You’re amazing and inspiring. From one survivor/fighter to another ❤️❤️💪💜
I’m glad the IV Benadryl is helping. For some odd reason opiates don’t really help my headaches no matter the type. Benadryl is my go to at this point sometimes with an NSAID. Head pain is so amazingly awful.
I hope you are doing much better and feeling better
I feel this in my soul. I'm not directly in your shoes, but I'm also chronically ill. Luckily, my third attempted treatment is working very well, so I'm just waiting for my next treatment. You are amazing, you rock, And I hope you're well enough to travel soon!
You are so precious!! I’m late watching this. I do hope you’re adjusting better to infusions! Oh! I don’t watch scary movies or shows either. If something doesn’t bring glory to God, I steer away from it.
Did you do better with your other infusion? I hope so!
Thank you for sharing your videos with us!
Love & prayers! ❤️😘❤️
Hannah, I’m concerned about your having diarrhea. I had C Diff last year but am in remission now, but hoping the doctor will test you for C Diff. I’m not trying to scare you, but I remembered you’ve had it before. ❤️🙏🏻❤️
This is what happend to me during IVIG too.
I passed out each time.
And was hospitalized each time after for aseptic meningitis.
Drink lottttts of water to semi help the headache.
We are pretty sure ive got Pots too.
When I was in ER they put this med in my arm and I screamed, I'm not a screamer but it hurt soooo bad and It sucks to be in that much pain :( I'm sorry girly
"I will not be defined by my illness" x 3. "I won't be defined by others" x infinity. I can't imagine a fraction of what you've endured lately. I can only take Tylenol or Zofran since my illness occured. The thought of even taking Benadryl scares the mess out of me. Praying this all clears up soon!
You’ve got my prayers & love!
You are such a strong young woman!! I love watching your videos and praying for you 💗
Peo are unreal!! I have some autoimmune diseases and some other stuff and some days I get sick & cant work. It’s def something some look down on me about, they do not understand! Screw them your one tough cookie and making the best of what you can! Your AMAZING!!!! So much love to you doll
Hi Hannah! :) I just want to applaud you for being such a fighter and staying strong through all the pain and suffering. I hope things are only going to get better for you from now on and you can start doing the things you're dreaming of, you truly deserve it. Sending you lots of love! ❤️❤️❤️
Hannah stay strong and a amazing woman you are block out hate
So sorry to see u suffering and don't worry you DO make sense!
I'm literally crying watching your videos. I wish I could help you Hannah. I would love nothing more to help ya. It's so hard to sit back and see someone struggling so hard. I've went threw a lot of hardships and pain in my life so I'm very sympathetic to what your going threw. I'm a recovering addict. I'm going on 8 years clean. I have Crohn's disease and IBS but it's nothing compared to what your going threw. I. The past I had to have my gallbladder taken out. I was going threw so much problems with my stomach and I couldn't figure out the cause. We'll come to find out it was because my gallbladder was three times the size and had thousands of gallstones. They ended up spilling gallstones in my stomach cavity. Then I ended up getting a horrible infection. I ended up healing up when I was hit with one of the hardest times of my life. I was taking testosterone pills and all of a sudden my doc took me off them. It was horrible Hannah. I had full on panic attacks that lasted for day. My BP was so high it would set the alarms off at the hospital. For 4 months I suffered from being super sick and having horrible anxiety where I didn't know what to do with myself. I have went threw some very tough times in my life but this is up there. I can't tell you how bad it was. No words could explain it. I felt like my body was betraying me and I was trapped. When I would have to go to the ER because I was so sick I didn't know what to do they would put me in a room 3 doors down from where I lost my little sister to herion. It made it worse going to the hospital having to relive that horrible day of seeing my sister dead in a hospital gown. The reason why I am telling you all this is to tell you that your not alone in your suffering. My heart really goes out to you Hannah. You're such a sweetheart. Your so beautiful inside and out and it's horrible you have to go threw this. I'm rambling on. I'm sorry! God bless Hannah!
We are here for you Hannah. 💕
I’m so sorry about all of this!! Praying for you. ❤️❤️ Thanks for being real.
Hi Hannah I just wanted to say I think your beautiful and strong and that your videos definitely helped me when I had c.diff thank you for just being you 💜💜💜
Love you're videos
Geez... The same darn thing happened to me. I'm a big 54 yr old male who's worked in construction my whole life and have had my share of bad injuries. Nothing brought me down like aseptic meningitis did.
Praying 🙏 for you! I love your videos 💗
It’s okay I have migraines too. I feel bad for you that you have to go through all of these pains in your body but you are a fighter.
I'm so sorry, hun! It's all so frustrating! I'm praying for you to have some relief soon. 🙏❤️
Am here as your number 1 fan
Because you are the bravest person in the whole world
You are in my and my family’s prayers
Stay strong Hanna , I know it’s hard but we’re all here to support you .❤️🙃
Hey Hannah I saw your story in inside edition I was really amaze and found you very strong women. Don't let any haters get in your way keep on being stronger and don't listen to them cause they are not as strong as you are
Gö. Gïřl❤💕✌
God is good keep praying he's always with you!
I just had IVIG and had horrible reaction. I was so close to calling 911 in agony. The doctor said it was aseptic meningitis on my follow up, no test. Extreme chills, nausea, sensitive to light and agony pain in head throbbing splitting pain.
The plan was to try again but only get one day IVIG per week. But, now after 4 days of the symptoms going away they have partially come back! Now I may not try IVIG for a while. I'm being treated for CIDP.
Hi Hannah, I'm new to your channel and I admire your strength. You are in my thoughts. I'm sorry you are going through this. As well as my physical disability I do have stomach issues. I got an ulcer in my esophagus last year I feel nauseated more often than not. My physical disability is called cerebral palsy. I am confined to a wheelchair, but I do army crawl to get around. Most days are difficult, but I find peace in helping people feel better.
I don’t understand how people can send hate, you’re such a lovely person.
I love your rambling vlogs, I think it’s so nice to hear what’s on your heart without all the ‘fakery’ that RUclips seems to be full of.
I hope the symptoms of your IVIG, is just it helping your immune system to grow stronger, and everything settles down soon.
I used to donate ‘blood products’ before I was on so many medications, I’m not allowed anymore. I always had a really high white blood cell count (thanks EDS!), and would be in and out in a third of the time of ordinary people!
I wish I could come over and give you a hug.
(I hope that doesn’t sound weirdly stalker-ish)
Don’t feel any pressure to vlog if you’re still feeling horrible, I’ll be happy to just send you and your family good vibes and best wishes until I hear from you again.
Your such a great person don’t let anyone get you down
Sending prayers.
Continuing to pray for you! 💕
Bless you Hannah, sending love and hope you feel better soon 💕💕💕
For IVIG videos you can check out Mary from the Frey Life.
Hannah, we care about you and pray for you. Please just let us know how you are when you can, even just a brief comment. You stay in my prayers. I am a fellow GP sufferer and know the struggle is brutal.
Love you Hannah keep being the strong woman we all know and love❤
Zofran causes TERRIBLE rebound migraines and there’s a limit on triptans saying no more than 4 doses in two weeks. If you take it more than that, you’ll get rebound migraines. And even with that much Dilaudid...rebound migraines that feel worse than the original one. I’m sorry you were in such bad pain
Holy crap you've been through it, hope you are feeling a bit better. I have been shocked by the hate towards people with chronic illness but we should feel sorry for these people who get their kicks from spending time trolling chronic illness, what a sad and pathetic existence. Sending love x
Here’s some good news I’m a kid I’m 11 and sure it might seem hard sometimes but you gotta push through it k and you stand out in the darkness you’re so happy and I like how you are and that’s the best
Literally in the hospital 12 hours after IVIG day two with aseptic meningitis
God bless you, stay strong.
Hey don’t worry about all them stupid haters your going through a lot and you don’t need to worry about anyone else hopefully you feel better and fight through this disease.
Hugs and prayers. You’re beautiful and REAL!! 💕
definitely should watch Outlander !! very historically accurate
I feel ya on the being more afraid the test will come back normal. I have symptoms of multiple sclerosis and lesions on my brain but they don't wanna diagnose me just yet but my speech is getting worse so I feel ya being in medical limbo it sucks
@Senpais favorite yesss! I am going through the same thing! I will push harder. My mom really wants me to start a dmt cause my symptoms have seemed to worsen over the year. Prayers for you.
Im going through the same thing!!!!! Demylenation in my spine and then transverse myelitis in the same area of my spine....2 events! Still no MS diagnosis but they put me on copaxone! Makes no sense and super frustrating!
@@shellcshells2902 yes! So frustrating I am going to demand to be put on meds I don't want what's happening to me to get any worse. It's scary when I can't walk right or talk. Prayers for you
My daughter was just diagnosed with PNH. She goes through treatment every week with weekly blood tests. I know it's tough.
I had meningitis in '88, SJS in '84 but I just learned that it was all due to Sjogren's Syndrome. I have been taking Low Dose Naltrexone (LDN) which is helping the symptoms of my autoimmunes. LDN is a compounded prescription that is an antagonist that helps your body to become balanced.❤️from West by-God Virginia
There will always be hater. Just ignore them. I’ve had my plenty share of them
Ohh a new video I love this I love you and your channel hope your doing better
Keep fighting sweetheart love from another spoonie with GP and multiple illnesses one is SFN and IVIG is treatment in USA & EU but no treatment in uk at all just left :( and 36 surgeries later Much Love from the uk 🇬🇧♥️🙏♥️xxxx
Hi Hannah 😊 I don't know if it is available on Hulu, but I really liked Turn. It is about Washington's spies. Keep up the good work you are doing! You always make my day with your videos. Greetings from Austria ☺
I was also scared that my GES would come back normal. It did. My symptoms are worse than ever but my doctor thinks I am fine because my scan looks normal. What happens with my stomach is food will stay in for multiple days then empty all at once, and that is what happened in the scan.
Hey Hannah I hope everything goes ok I’m praying for you I know how it feels to be sick I have spinabifida it’s not so bad but I’ve had surgery for it around 10 surgeries and it’s life long
Kim’s Convenience is funny & cute! One of my faves
Alright I'm texting you a show list stay tuned, it's long. I LOVE YOU
I am praying for you and researching to find help and any doctors that can turn things around. You look better which is great 👍 I just saw your story in the news feed on RUclips. 💜 U👑😊 FRIEND/ Young Lady keep focus on your journalism degree you’re great intelligent speaker
Have you watch Anne with an E on Netflix? It's a new Anne of Green Gables series and it's SO good!!
Yes! My mom and I LOVED it!!
I'm going to start season 2 tonight and am really looking forward to to it. I love historical type shows too! Hope you are feeling better now, I'm catching up on your vids ❤
Omg headakes no fun😢😢 i get them almost every day.😢
My son just got IVIG yesterday and today has aseptic meningitis. Hes 2
I feel frustrated with my illnesses too. I need surgery but can’t until I completely stop fainting. I have NCS. The surgery is to help my CP.
Prayers sent hun hugs sent xx
You are so strong!
I start mine this week. But home health is doing it in my house.
U should have a service dog. Mine is amazing ( his and my photo r my profile picture), he’s also my best friend.
I hope the doctors can find a cure
Do not stop hopping
You are so brave
Get better
Parks and rec is fo funny!
love you babe!! ❤
Hey I feel really sad that your not feeling good I really feel sad I hope that you get to feel better soon I am going to pray a lot so you can get better I really care a lot
I hope you feel better Hannah. I'm praying for you. ☺😍 ....Netflix....give Maniac (2018) a try
I am scared of throwing up and I have IVIG tomorrow. I’m taking premeds like zofran and stuff. They are supposed to go very slow but I’m still scared. Pls help.
U got it cause they ran your IVIG too fast. I am a Nurse and we have strick rate policy for first time infusions for this reason 🤦♀️ that super sucks for u :(((
Also check out chronicallyjaquie and the fry life. They have done IVIG on RUclips. @chronicallyjaquie also got aseptic meningitis on her first infusion :@
Kate Weaver I miss Jaquie so much 😭😭😭
I had ITP and had to do IVIG because of a GI bleed. I ended up with aseptic meningitis as well.
Mine is over 7 hours including time for pre-meds.
Hugs. You deserve such a huge break.
Hey Hanna I have to have a feeding tube too! I know it’s sucks 😕 stay strong! You’ll make it through this! Do you have any ideas of what can help the feeding tube?
Be strong hope u get better btw i love ur videos
So sorry hun ❤️❤️
Handmaids Tale on Hulu but it’s VERY intense
The Goldbergs or Superstore on Hulu are some comedies you might like. I hope you get to feeling better soon!
Sorry to hear that the ivig caused you meningitis. That must have been terrifying! Hopefully by infusing much slower when you start back will help avoid any future issues! ❤️
Hey hannah I have been watching catfish on Hulu it’s really good idk if u would wanna watch that other ones are the resident and the good doctor
I pray you feel better! Get some rest, love
Stay strong girl.
Amazon Prime has some good movies. 1. Six Dance Lessons in Six Weeks. 2. Railway Children.
I love your videos. Ramble on
When I got ivig my headaches were bad so they slowed drip and much better. Always got premeds from day one. I don’t know why they didn’t do this for u
hope you feel better
Never give up!! Keep going!! ❤❤❤😁😁😀😀😀🤗🤗
OMG I feel so bad no one should ever experience this I hope you get better
The act is is amazing
1:12 "Yay?" About a headache?
8:35 That's OK. You needed to get something off your chest.
10:02 Here at least here you can block people.
10:20 You show us some of the bad times. Kind of like what (Chronically) Jaquie did.
11:22 That's all anyone could ask.
13:55 That might not be as bad as you think, because I can understand you.
17:39 We're just happy to hear from you, never mind the angle or how you sound. We understand you and that's what counts.
Oh, and don't worry about the notifications.
I think the "yay" was sarcastic.
St. Padre Pio, I am asking for your intercession to heal this woman. Amen
If you were supposed to run ivig in the beginning over a longer span and that didn't happen I'd be seriously questioning the health team you're under! That's a serious oversight and it seems that's not the first time. Im worried for you!
Mine is 7 hour infusion which includes the pre-meds.