It has been interesting because the NT ones have had a taste of our life . In fact they have been overloaded with anxiety, forced to make changes, and think twice about risk before they do anything. I have benefited from the social rest.I still found ways to show love to people, without the touching, social gathering ect. My home is my happy place. Thank you Sarah for your time and effort. I wish you calm and happiness. (from one who you diagnosed. Which has made a wonderful difference to my life. thank you.)
I'm loving being at home all the time, no social invitations to agonise over, no incredibly loud underground annoncements to wince through...and many other little but big things. I also really appreciate the message at the end about making use of your autism diagnosis...definitely my newest special project and perhaps the best yet.
I am really struggling with returning at all to any normality. My tolerance for office life is at an all time low, and I feel guilty for hoping the new variant causes us all to lockdown again.
Yes indeed. Work is stressful, and pressure to perform in a non-autistic way too. Lockdowns were a true blessing. I could follow my own rhythm and just do the things I never have time for. And there was no pressure, no exposure to the noise at work, almost no interaction with people. HOWEVER! Recently I had to out myself as autistic, when suddenly my company decided, NOW, during the rest of the lockdown, we workers had to gather at 8:00 in the MORNING (not a morning person) and exercise in the group. FUCK: I have a histamine intolerance and fibromyalgia tendencies when stressed, in addition to autism. There is that well studied phenomenon of EXERCISE INTOLERANCE.. which actually is part of autoimmune related HEAT INTOLERANCE - your body feels stressed and you experience various symptoms through that heat stress, such as: - Myofascial Pain - Migraines - Feeling drained - Anxiety - digestive issues meaning: the typical exercise is NOT beneficial for my (autoimune compromised) system, but rather stressful. Nor do I enjoy group hopping as an autistic. I follow MY OWN exercise routine. Which is: taking walks. Doing gentle Qi Gong movements. No sweating and therefore NO pain. SO NOW I Got so stressed and had to hunt down my doctor to get a sport exempt during lockdown. Seriously. Can't they just leave you alone. I don't need structure by my company. I have MY VERY OWN STRUCTURE.
@@strawsofftheneurodivergent4221 I guess POTS and Mast Cell Activation Syndrome have a lot of the same symptoms then. I will have to learn more about MCAS.
@@Catlily5 yes actually yes, it can. MCAS has a wide variety of symptoms, and may manifest differently in every person, some have more skin issues and asthma, others suffer more from muscular pain and migraines, but generally one has a lot of allergic reactions to foods and other stuff, and is also sensitive to odours (which can also trigger symptoms) as well as STRESS. Similar to Fibromyalgia and Chronic Fatigue.
@@strawsofftheneurodivergent4221I am sorry your work is making you exercise at 8 am. I would hate that also. I am not a morning person either. I have chronic fatigue like symptoms, exercise intolerance, dizziness and balance problems, Irritable Bowel Syndrome, muscle pain, migraines, overly flexible, etc. The reason I thought I might have MCAS is the allergy doctor said I am not allergic to any regular plants and other allergens after a skin test. He said I was allergic to too much pollen despite which plant it came from. I don't know if that is a symptom of MCAS. The doctors suspect POTS and EDS right now. I am already diagnosed with Autism.
Lol, I'm probs autistic, and lockdown did a pretty big number on my mental health. But then it was a massive change, so much unsurity. I'm a nurse, who was shielding, and relied heavily on rugby and exercise to make up my identity and feel good about myself, and keep anxiety low. So I immediately had all my identities taken away, without an end date, no idea if i would be able to work again, where I could work again or when. And when I went back to work, there was the constant worry that it could in an instant be taken all away again. Which it was. I was moved into 4 different roles in the hospital in four months, based on what was considered 'safe'. When I was shielding, I couldn't do my own shopping! So much lack of control over what I could eat or how often shopping. I rely so heavily on normal patterns in my life, time I get up for work, how i get to work, what I eat and when. All of it was messed with. I'm so so glad to be back into some kind of structure, which probably won't be changed so drastically without my consent any time soon.
It has been interesting because the NT ones have had a taste of our life . In fact they have been overloaded with anxiety, forced to make changes, and think twice about risk before they do anything. I have benefited from the social rest.I still found ways to show love to people, without the touching, social gathering ect. My home is my happy place. Thank you Sarah for your time and effort. I wish you calm and happiness. (from one who you diagnosed. Which has made a wonderful difference to my life. thank you.)
I'm loving being at home all the time, no social invitations to agonise over, no incredibly loud underground annoncements to wince through...and many other little but big things. I also really appreciate the message at the end about making use of your autism diagnosis...definitely my newest special project and perhaps the best yet.
I am really struggling with returning at all to any normality. My tolerance for office life is at an all time low, and I feel guilty for hoping the new variant causes us all to lockdown again.
Yes indeed.
Work is stressful, and pressure to perform in a non-autistic way too.
Lockdowns were a true blessing.
I could follow my own rhythm and just do the things I never have time for. And there was no pressure, no exposure to the noise at work, almost no interaction with people.
HOWEVER!
Recently I had to out myself as autistic, when suddenly my company decided, NOW, during the rest of the lockdown, we workers had to gather at 8:00 in the MORNING (not a morning person) and exercise in the group.
FUCK:
I have a histamine intolerance and fibromyalgia tendencies when stressed, in addition to autism.
There is that well studied phenomenon of EXERCISE INTOLERANCE.. which actually is part of autoimmune related HEAT INTOLERANCE - your body feels stressed and you experience various symptoms through that heat stress, such as:
- Myofascial Pain
- Migraines
- Feeling drained
- Anxiety
- digestive issues
meaning: the typical exercise is NOT beneficial for my (autoimune compromised) system, but rather stressful. Nor do I enjoy group hopping as an autistic.
I follow MY OWN exercise routine. Which is: taking walks. Doing gentle Qi Gong movements. No sweating and therefore NO pain.
SO NOW I Got so stressed and had to hunt down my doctor to get a sport exempt during lockdown.
Seriously. Can't they just leave you alone. I don't need structure by my company. I have MY VERY OWN STRUCTURE.
The physical problems sound like POTS maybe.
@@Catlily5 no they sound like Mast Cell Activation Syndrome. I have nothing like Pots.. Not at all
@@strawsofftheneurodivergent4221 I guess POTS and Mast Cell Activation Syndrome have a lot of the same symptoms then. I will have to learn more about MCAS.
@@Catlily5 yes actually yes, it can. MCAS has a wide variety of symptoms, and may manifest differently in every person, some have more skin issues and asthma, others suffer more from muscular pain and migraines, but generally one has a lot of allergic reactions to foods and other stuff, and is also sensitive to odours (which can also trigger symptoms) as well as STRESS.
Similar to Fibromyalgia and Chronic Fatigue.
@@strawsofftheneurodivergent4221I am sorry your work is making you exercise at 8 am. I would hate that also. I am not a morning person either. I have chronic fatigue like symptoms, exercise intolerance, dizziness and balance problems, Irritable Bowel Syndrome, muscle pain, migraines, overly flexible, etc. The reason I thought I might have MCAS is the allergy doctor said I am not allergic to any regular plants and other allergens after a skin test. He said I was allergic to too much pollen despite which plant it came from. I don't know if that is a symptom of MCAS. The doctors suspect POTS and EDS right now. I am already diagnosed with Autism.
Lol, I'm probs autistic, and lockdown did a pretty big number on my mental health. But then it was a massive change, so much unsurity. I'm a nurse, who was shielding, and relied heavily on rugby and exercise to make up my identity and feel good about myself, and keep anxiety low. So I immediately had all my identities taken away, without an end date, no idea if i would be able to work again, where I could work again or when. And when I went back to work, there was the constant worry that it could in an instant be taken all away again. Which it was. I was moved into 4 different roles in the hospital in four months, based on what was considered 'safe'. When I was shielding, I couldn't do my own shopping! So much lack of control over what I could eat or how often shopping. I rely so heavily on normal patterns in my life, time I get up for work, how i get to work, what I eat and when. All of it was messed with. I'm so so glad to be back into some kind of structure, which probably won't be changed so drastically without my consent any time soon.
Put the comments back on the Bill Hicks interview.