Thank you for sharing. I'm wondering if my baby might be experiencing repeated dystonic storms. She has symptoms which our professionals have never seen before. They are calling her episodes "paroxysmal events". She experiences hypertonic states for a total of 6-8 hours each day. They are not seizures. I'm curious to know your thoughts? Here is a video of her episodes: ruclips.net/video/2KXNMaWJqiM/видео.html They were originally thought to be hyperekplexia. I found that the episodes happened regardless of stimulus.
Great explanation
The video is great 👍🏼 you are very beautiful btw 🌷
Thank you for sharing. I'm wondering if my baby might be experiencing repeated dystonic storms. She has symptoms which our professionals have never seen before. They are calling her episodes "paroxysmal events". She experiences hypertonic states for a total of 6-8 hours each day. They are not seizures. I'm curious to know your thoughts?
Here is a video of her episodes: ruclips.net/video/2KXNMaWJqiM/видео.html
They were originally thought to be hyperekplexia. I found that the episodes happened regardless of stimulus.