Dr. Lawrence Afrin presents “Mast Cell Activation Syndrome”
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- Опубликовано: 21 июн 2016
- Dr. Afrin has served on national panels on oncology education and quality care and speaks widely in his areas of focus. Learn more at: www.chronicpainpartners.com/fr...
I am seriously crying right now because this is the only thing that I have found that explains ALL my symptoms! I have spent 17 years being told I'm nuts and not taken seriously! Thank you SO much for this!
we know how you feel.. my family has alot of food allergies and our baby has mast cell disorder and FPIES where he cant eat anything and we're documenting our food reactions through youtube but we also show fun side of our family! if anyone wants to follow please hit a sub :)
Chelsea Franklin I know how you feel
You are not alone, I'm 34 and have been inexplicably sick since I was 12. Stay strong and fight for the treatment you deserve. I finally see an immunologist Monday after my prostaglandin was over 3700. If there's no test for it they treat us like we're crazy, So sad.
Chole Wesson wv
God help the females of an emerging new diagnosis. The first thing I get asked is about my psychology then upon this failure the next question is about hormones. I wonder if in the same scenario and I were a male the American medical community would or has ever asked what a man's testosterone levels where or if he felt anxious or moody right before or during passing out or just before the Epi injection and ambulance ride?
Thank you for maintaining this posting. It’s as relative today in Nov 2023 as it was in Jun 2016!
#MCAS #MCD #Ehlers #EDS #Chronic
Thank you so much. I've had this my whole life - never diagnosed until I figured it out myself in 2010 (that is, that it IS a mast cell disease at the ground level). Struggled to find an allergist that understood the problems (hiving since 1997) and finally a primary that is learning and cares (major life long GI issues and gyn issues). Gut issues took me out of the workforce at 57... this has impacted my whole life miserably. I also have suffered from life long insomnia, which is exacerbated by extreme GI pain (GERD and severe diverticular disease) - and then compounded by extreme itching and burning hives.
Thank you Dr. Afrin! Thank you to the organizers who made it possible for us all to hear this.
Excellent. Learned and confirmed so much. Thank you.
Very much looking forward to the new video by wonderful Dr Afrin!! Merry Christmas.
He has agreed to do another one in 2020!
Thank you so much for this talk and making it available.
For example, Chlordane, a Pesticide termiticide manf by Genovique Specialties/Kodack is well documented to cause Mast Cell Activation, it was commonly used to treat under homes. Mold and Trichothecene have also been implicated.
JW, that's what caused my MCAS. Our home was treated when I was in high school - pressure injected into the foundation and it broke through the tiles in a bathroom and flooded our home. I'd never had allergies before that, but immediately developed severe neurological and immunological problems that have affected me for 40 years. Do you have any links?
Thank YOU!
What is EDS? While acronyms are convenient, there should be the full meaning somewhere for people who are new.
Bobbie Ingersoll Ehlers-Danlos syndrome. It is a connective tissue disease. People with EDS often have cooccurring MCAS.
@Bobbie Ingersoll true ... cuz ED stands for erectile dysfunction
Thank you 😢❤
Personal will to survive and positive thinking has been my prescription.. Nice to know that someone like you understand my journey. I believe that it would be cheaper to do it right. God bless you.
What a great presentation! Thank you so much.
I am so grateful for this. Thank you!
Hey Ronnie! This is lengthy but worth the time. Rose
lightbulb moment! It was shortly after going off the Gleevac that In started having problems. Was just recently diagnosed with MCAS.
Can you advise where you got the diagnosis, please?
Thank you! I need help in Michigan. My son is in extreme pain and has all the symptoms!
Thank you for your research Dr. Afrin. My symptoms began after receiving an anthrax vaccination in 2010. I had so many autoimmune manifestations and ER visits with no explanations for systemic pain/swelling/itching/fainting etc. I was eventually diagnosed with chronic urticaria, dermographia... I tested positive for an antigen (against LgE) making me allergic to my mast cells... crazy stuff. I even had anaphylactic reactions, but blood work would turn up normal other than slightly elevated lymph %, D-dimer, TSH.... then everything would normalize... A HR of upper 20's and low BP! No one knew what in the world was wrong with me! So I was prescribed salt tablets, entertained a pacemaker (palpitations and all kinds of stuff before getting a better hold on MCAS. Anyhow, I'm on H1, H2, inhaler and epi. They meds somewhat help for superficial stuff... making them nearly useless, but helps with the urticaria and a little with heartburn. MCAS turned my life upside down. I'm still healthy, but I use to be world-class athlete performance (benching 400+ lbs, running sub 5 minute miles, etc); Then the health tanked. I don't think I'd still be alive if my health wasn't so good because Dr's / people were dumbfounded that I was still even allert with low BP and HR and still maintain a within range ejection fracture... although I'd still feel like I was not getting full breaths of air. I'm still healthy overall and maintain my health, but aging and this condition makes it very challenging to stay active.
How are you doing today? My symptoms, although not as profound as yours, started after a recent company-mandated medication. It has been a challenge finding a doctor to help me. Someone educated in these issues. How were you able to successfully get help? Any advice is appreciated!
Your videos need captioning for the deaf and hard of hearing pls :(
on youtube click CC for closed caption
Does Dr. Afrin also treat dysautonomic issues?
I have EDS hyper mobility type and I am getting tested for MCAD. I would very much be willing to be a part of a study cuz I need answers. They are doing a blood test, but I think its not for the right type, we'll see. I just want answers for the huge, wide range of symptoms I have and wide range of triggers.
Dr. Paul Ehrlich had mentioned the word “mast cells” in 1878.
The number of mast cells has found to increase during liver diseases.
If you are passionate about liver research and are looking at studying mast cells of the liver, Kosheeka supplies these cells at high quality to contribute to research.
kosheeka.com/why-liver-mast-cell-cultures-are-needed-kosheeka-is-your-answer/
Interesting about chemo. My eyes were not their ordinary red and blood shot while in chemo.
Wow i was just diagnosed with dysautonamia and im listenjng to this while trying to figure out why my immune system is bad when ive never worked so hard ti get healthey sometning always fets in the way INFLAMMATION n histamine reaction i will have to ask my functional neurologist
Had terrible hives from iron supplements when pregnant
I stopped walking last year amd was in hospital almost 3 months after having iron infusion drip
I have this of course mcas and Lyme it has been heel on earth. I have tried so much.