I got diagnosed this year with fibromyalgia and its not very nice been a mum it so hard to get out of bed and keep going so glad that my husband is a fab support to me and some days also feel so guilty that I have to give in to the pain and just rest I so feel for anyone fighting fibro it's horrible thing
I was diagnosed 8 years ago and it’s the absolute most painful thing ever I also have arthritis, there are days I cannot get out of bed. It’s the most debilitating disease ever and I would love them too find a cure. Not having one day free of pain it destroys your life, I wish more people understood what it’s like.
I do believe it has a lot to do with emotional trauma. And yes it’s an every day pain, some days are worse than others. Over the years I’ve tolerated pain very well, I’ve had a number of procedures done, and I’ve been told I’m a very good patient, but this pain takes you to another level. I feel lucky as I was diagnosed in my early 70, I can only imagine how bad it would be to have it at a very young age. My thoughts are with all you brave people, suffering from fibromyalgia. 🙏
Hi James so glad that some men are finally willing to talk about fibro! It's such a crippling illness and so very hard to understand ,accept it,and then try and exsplain to others who don't have ot it's real and very unfortunate for those who have it .myself I have had it for 8 yrs and its got worse ! But men find its nit the thing to complain about ailments but we allmneed to learn from each other male or female. So come on guys come and support us all and speak out. Weldone James for vloging this .👍brilliant mate 👏 👌
Watch this video, and all of his 1500 videos.... This is mind/body, tms, neuroplastic pain, percievied danger pain, etc. Fibro doesn't exist.... It's al medical label given by doctors who don't understand the brain.
Great explanation of Fibromyalgia! Thank you, it’s so misunderstood. And, it is nice to hear a physically fit man talk about it because people don’t understand that you can look fit and still be in a lot of pain. Also, I have a rare autoimmune disease called Sarcoidosis and Fibromyalgia can be a feature of the disease! Thanks again and be well! ❤
Thank you for raising awareness for this condition! I am currently going through the process of getting diagnosed for fibro (at 16) and it hasn't been the easiest so I really appreciate your channel :)
I was diagnosed in 2006, after having the start of septic blood poisoning after 8 hysterectomy surgeries gone wrong and 23 yr s emotional abuse marriage.....I understand mine came from all 3 reasons, drs don't need to tell me...after all these years I still have tell my loved repeatedly things I can not do when asked. Everyone knows but unless you are the sufferer know one will truly understand and many doubt us...thankyou for your videos!💐
I’m 48 and have been diagnosed for many years, but I’ve had this condition since I was a little boy. I could talk for hours about this. This hardest part is being believed. I have so much to share about my life and living with this condition. I know there are people suffering just like me.
Same here. I'm 62 now. After I grew up, my mother told me that I cried my head off every morning my family sent me to daycare before I was 5. My mom said I was such a headache every morning for my family and the daycare. I don't remember it myself. I think the reason is I already had fibromyalgia back then. My conditions in elementary school suggest this too.
My childhood trauma was the fear of not being believed that I was being sexually abused. At 40 I spoke out to my family, they didn't believe me. Fibro diagnosis was 12 years back, the flares occur when I don't feel believed, supported and understood leaving me feeling helpless and in pain. The connection has only recently become apparent, perhaps the pain is the attempt to understand and to heal, I'm not sure. This last flare has been the worse, 2 weeks in and zero relief. I'd like to offer something positive, a tip maybe? Can't bring to mind anything in a fog.
Very nice to meet you James. My little girl was diagnosed with Fibromyalgia at the age of ten but felt symptoms three years before. I have both Polymialgia and Fibromyalgia. This is double trouble. I heard there are like 13 different versions of Fibromyalgia. A friend told me about this but I haven't done the research. Fibromyalgia is the destruction of the nervous system due to trauma. I hope and pray your body may naturally heal from this cruel disease.
I am a 32y male and have been diagnosed for 1 year. I am working full time but have had the pain/fibro since being 12 year old. I have researched the life out of it. I have read something interesting that our brain does not produce enough dopamine. I have never really met a man who has it so thank you for sharing as this illness when it is at its worse is heartbreaking. Can't lift your kids up for a hug you can't chase them playing games. Others around you think your a "pussy" or making it up to get out of the heavy tasks at work.
Hi James, I'm so pleased to have found your new channel. I'm in the US in Northern California in the SF Bay area. I'm comforted by this video, I'm a fibromyalgia sufferer as well. I was diagnosed in 2002 or 2003...I honestly can't remember how long it's been i've been living with this for so long. My poor son William had it as well... he passed away at only age 27 3/22/2021 in his sleep due to heart problems and sleep apnea. I think his doctor and I were his only support system. He didn't know any other young men battling this horrible illness. So I'm battling deep grief on top of Fibro. By the way, I finally tested positive in both in a urine DNA test and Lyme's blood test (Western Blot?) for Lyme's disease. Have you done any research on how Lyme's disease can mimic fibromyalgia symptoms or vice versa ? God bless you and yours!
Man I can see the disease by the way you act...touch your body (arms, shoulders) all the time ! That's exactly how I act on a normal "low pain" day😢 I'm a 42yo male diagnosed 4years ago but had my first symptoms more than 10 years ago...Fibro really is a long lonely and painful journey!
Hi James, thank you for bringing awareness to this. I'm 64 female who was diagnosed 20 years ago but had symptoms about 7 years prior when no one would listen to me when I described my array of symptoms. Having the diagnosis was a miracle for me but not much progress in research to help me over 20 years and I'm just so much worse since having covid last summer. And my current doctors in small town haven't a clue and have been diagnosed with chronic kidney disease in 2020 my pain relief options are almost non existent. I believe nutrition may be the key to much illness, especially staying away from sugar and processed foods. Do your own research and educate yourself a such as you can. Be well.
Hey another man here with fibromyalgia from Wales. I find there are very few people in social circles that understand this condition or the suffering involved. I have kids now and struggle the most at the moment attempting to be a full time dad, supporting a stay at home mum whilst in this turmoil.
Good work James. I was diagnosed just over a year ago and some 6 years after symptoms appeared. At one point a Neurologist looked at my list of 78 symptoms and basically told me I was imagining some of it. The rest he put down to arthritis. Will be happy to join your fight. Though the word "fight" makes me feel exhausted. Happy to chat, I'm in the UK too (Essex, for my sins).
Hi James, Thankyou for your video on Fibro. I have suffered with this 10 years now, not knowing at first what I had and lots of different specialists, been a long forward struggle , good to be able to talk with people that understand what we go though each day.
HI James, I think you're going to be a great spokesman, particularly for men that are under reporting or suffering in silence. I'm a physiotherapist that works with persistent pain on a daily basis. I'd be happy to help the channel as and where I can. Josh
James, Thank you for sharing your journey. I also have Fibromyalgia and many of the other related syndromes. I also wish every day that doctors would discover more ways to help.
I had a crush on a girl long distant. But today she told me about her Fybromyalgia condition. And now I am skeptical should I really carry forward with this relationship. I also don’t want her to feel that I left her because of her condition. It’s just that I have had enough pain during my childhood so I don’t know whether I will be able to take care of her.
I so gald I’ve seen this James ,I’ve got it chronic every hr of every day ,I tryed loads of meds reacted to all of them ,do you burn so bad like sun stroke ,it’s horrible and pain is unbearable ,😢I seen you said about the meds gabapenten and pregabin 😢I got terrabile nerve damage was going to try pregabin but seeing your advice I’m not going to ask dr to try it again ,as I no it’s a waste of time dude just can’t stand much more of the horrible illness thanks dude for sharing what you’ve tryed and I’m so gald I came on here as I was going to ask to try them again ,no way I’ve seen this today cheers dude 😢
Wow !!! 😵 In 1990 my dear friend was murdered. It was 1995 by the time she went missing, the perp was arrested, and the trial took place. By 1997 i was so weak and tired i could not even clean my house. Came down with bronchitis that winter, and was basically bed ridden from weakness and fatigue. Diagnosis came in 1998. Thirty years later, there has been no let up. Every single day -- a FIGHT to get up and face the day ... to shower, wash my hair, brush my teeth, fix something to eat ... do laundry ... go to work ... routine chores ... to shop ... run errands ... Keep my house clean ???? Forget about it ☹️☹️
I'm a man with fibromyalgia too. I know what you talk about and so I'm not going to watch this. But I'm leaving a comment and giving a like to show support.
Great description I have fibro and M E.pain us my constant companion. I als have the itching and another major one being fatigue. Thank you for raising awareness of this horrid condition.
Thank you. I'm suffering for past 6 years from fibromyalgia. I also MS. I've had multiple sclerosis for 16 years. They are very similar. But I don't have any good days. I have not seen my mother for 5 years. It's painful to ride in car. I'm in wheelchair, but my husband and son take fantastic care. No cure for either. I have heard of one man but none
Hi there, I’m really sorry to hear about your diagnosis and your experience. I also have MS ( about fifteen years since my diagnosis) and ten years since my fibro. I had glandular fever at 17 then my appendix burst just after that. I had to have a blood transfusion. This was at the back end of the eighties and the NHS, here in the UK were buying blood from the US and ( they think) I contracted Hepatitis C from that. But who knows ? I was on an extremely nasty drug called Peg interferon, which has left me Hep C free, which is great but I was in bed for a whole year and recovering from that drug regime has taken a long time. In September ‘99 I lost my fiancée in a car accident and that was it. I spiralled down from there. I’m picking up now in some ways (sort of ?). CBT has helped but people don’t understand the Fibromyalgia . They “get” the MS , obviously but fibro is just an unknown to most people. Getting both is a nightmare. I think half the problem is that I look fine ( other than looking knackered all the time 😂) and you’d never really know unless I get extreme pain, which is pretty obvious when it hits. I hide for the most part and build up to going out anywhere. I just noticed that you you had both MS and FM, like myself, and I just thought I’d reach out and say that I hope today was as good as a day gets for you, and if it wasn’t, then I hope tomorrow is. Really pleased to hear that you have someone in your life who is there for you. Take care of yourself from someone who understands. X
@@chrismurray3224 Thank you. My pain as you know is unbelievable. I tell everyone to watch Cake with Jennifer Aniston. It's a good movie and so true. My family is just now getting an idea of what I deal with. I have a large family and 3 of us have MS.
@@chrismurray3224 l hurt so bad all day but I'm going to get my hair done. It's a huge deal. But I could write a book about this unbelievable pain. Blah blah lol
Hi! Thank you for speaking out about this. ❤ I have fibromyalgia and I feel like I'm in prison sometimes. I'm trapped in my own personal hell that nobody understands.
Hi James, nice to see your video, does it effect your speech, ie, trying to get words out, it has really effected my heart, nice to see a video on this illness...
Just received this diagnosis yesterday. Still resisting believing it, but a lot of my symptoms match. Fatigue, brainfog, muscle and peri-articular pain started after Covid, and articular pain started several months after that. Tests showed no inflammation and no Rheumatoid factor, so when I finally got to see a rheumatologist 6 months later, he hit me with this. I thought it would take a lot more tests to rule out other conditions first, like the brain injury I have from cardiac arrest 4 years earlier.
My rheumatologist mentioned I could have fibromyalgia. My joint pain comes from eating any kind of carb or sugar. I also have a redness, low itch rash spreading all over, especially on my arms/legs and face. Do any of you with accurately diagnosed fibro experience only joint pain specifically after eating? Thanks so much. Grateful we have each other to learn from. Blessings
I'm not sure what I have. The VA said I had arthritis and now they say it's not arthritis because my counts came back normal. I have pain from my neck to my shoulders on both sides. I also have pain on both my elbows but not in the joint but up and down the side where my arm bends. My wrist and hands both sides + my 1 hand is quite swollen. Pain on both my hips as well as the back side of my knees, in the same manner as my elbows. I'm also finding my skin feels tender now. I can't sleep, but mainly because of the pain. I don't seem to have brain fog or fatigue or anxiety, but I've been in pain for 3 months now. It came on as my lower back and hips and got progressively worse over the 3 months. I have no strength in my hands or lifting power with my arms. I do have blood tests out for Lyme disease & Rocky Mountain. I'm not sure about the results yet. The pain level is from 4/5 when I'm standing but sitting, laying down, stepping up to get into my truck, or sitting on or getting up off the throne the pain is between 8-10. Oh I got covid and had a fever and sick for 3 days and all my symptoms went away for the 3 days, Odd.
Thank you for your story. I noticed your itching while talking. It’s nice to see fit man talking about it because it’s not just a issues for overweight crazy women. I was diagnosed yesterday and have been suffering for years. The pain and itching has gotten worse these last two years. Caused severe depression and more anxiety. Well who’s going be happy when you use to run and use to be active and now can’t walk for days and bones feels like it’s crumpling into little pieces. Oh not to mention it feels like your rolling around fiberglass everyday.
I'm having terrible pain everywhere among so many other symptoms James. I have an appointment on 3 January. What should I tell the doctor so I can get some help? On top of that I have degenerative disc disease, sciatica and severe lumber spinal stenosis. All of this combined is debilitating. Any tips would be appreciated. I hope your well and in as little pain as possible. Thank you for making this channel
Both my daughters and my grandson have it. I had a benign spinal removed and have damaged nerves and pretty sure I have it. I have pain every day. It’s debilitating.
Im 32 from Scotland im getting tested for fibromyalgia and MS, been getting terrible brain fog, dizziness, most of my bones & muscles are sore on a daily basis, extreme fatigue (unable to work now as in a bricklayer and was going hime to nap I was so done in) I have headache, anxiety and depression is through the roof! its fucking horrible whatever it is and to be told its a made up lazy disease is bullshit we don’t make these symptoms up 😢 hope you get a bit of relief m8 🤝
I had chronic fibromyalgia and Myalgia Encephalitis (CFS/ME) FND, hyperacusis, Pots. Cause all of these conditions can stem from Fibromyalgia and ME for some people.
Mate, you look so physically fit. I was diagnosed 3 years ago and would love to be able to build back some muscle and strength I've lost but I just flare up from light weights. Do you have any content on exercise routines?
I've been doing light weights since September. I have to be very careful as overdoing it will wipe me out for 4 days. I'm making progress but it's slow. Everything with fibro is a stress response so I have to do just 2 sets of 15 reps for each muscle group with just enough resistance to grow the muscles. Also deep breathing and making sure it's enjoyable (trick the brain into thinking it's not stress - smile a lot, listen to music etc) Then resting is key. Just 2 workouts per week with lots of stretching and light cardio. Even though it hurts it's the best thing to do with fibromyalgia because the flare ups and symptoms gradually get better. The best advice I've heard is recovery depends on how well you respond to the symptoms.@@mindcry777
Hi James, fibro sucks , I see you work out, does that help or make it worse,? I'm really feeling it this winter west Yorkshire has really been cold,also does anyone else suffer with back stiffness first think in the morning ? Feels like you're body will crack if you move? I know it sounds crazy but us fibro people will understand what I mean,what is annoying is that if you are in pain people around you can't see any physical problems and say it's all-in the head.
I’m curious to know how you’ve managed to have all your tattoo’s, my skin is usually so tender to touch, and sometimes even my clothes make my skin sore some days. Thank you.
I’ve had this dreadful condition for years and now it’s felt worse since the passing of my Mum to Pancreatic Cancer. I feel in a very dark place right now and the cost of living crisis and changes to the benefits system aren’t helping.
My pain dont go as deep as yours but i am also in an extremely dark place right now with the way i think, and the moment i started thinking the way i do for specific reasons this shit started happening...
I can't understand how it can be diagnosed when Doctor's do not recognise it as a medical condition, I was only first aware I might have it when I made a visit to a physiotherapist to help me with shoulder and neck issues where I would have discomfort and need some sort of relief it was brought up in a conversation. I do suffer from Health Anxiety which does not help and only recently in the last 4 weeks have been suffering with consistent headaches some days excruciating, when just touching the side of my head it is painful. I am due to see a Neurologist hopefully to cross that off the list and go from there.
Ive recently been diagnosed 3 years ago.. i lived in thr tropics in Australia and unfortunately the heat almost kills me as my pain is insane... i also have alot of other components that co-insude with fibro... I fucking hate this shit... My worse flare lasted 11months... i slept for 9 months straight. Th3 only thing that helps me is ICE BATHS & cannabis oil
I have fibromyalgia I trying find a good doctor that will understand I am in pain every day the medication really does help at all we all need to come together help
James, I do believe fibromialgia has a root. After having a fall in my steep driveway falling backward, I bounced my head on cement, To prevent injury to my head, I put the fall weight on my left hand. I wore a splint on my hand for a couple of months, and things got worse. Pain ran from my hand to my neck and from my neck to my head. Then, all my body from head to toes, I experienced neuropathic pain, etc. My first neurologist diagnosed me with fibromialgia. After asking him for a 2nd opinion with his refusal came a battle that involved the State Board. I now have another neurologist. No longer do they call my illness fybromyalgia. A neck MRI had "noted" a PERINEURAL cyst on my c6 & c7. These Cyst form anywhere in the spinal cord, and certain drama to our bodies causes them to become symptomatic. Perineural Cysts are overlooked. These cysts in the spine are also known as TARLOV CYST DISEASE. I'm a 57 year old lady who has used muscle in life and in my emotions. NERVES all begin in the brain. You work out ! I'm sure it's to keep healthy, but I believe that causes our CSF to flow with force to the point where these cysts form and potentially become symptomatic and labeled FIBROMIALGIA. Dr's are encouraged by the "State Board" men's systems to White wash many roots in there diagnosis by labeling FYBROMYALGIA that way you are a number and not a personal patient. BEEN THERE DONE THAT, TRUST NO MAN BUT CHRIST'S SPIRIT IN YOU. HE LIVES IN OUR BODY, MIND, and SOUL. "GUT" Blossom in HIM.......
I was diagnosed 3 months after traumatic C-section with my second baby at the age of 26. I was very stressed and traumatised by that experience and the first fibro symptoms came only 3 weeks after surgery.
@@davidschick4729There are plenty things women deal with that majority of men cant and same goes for women they cant deal with certain stuff that men can deal with
Inflammation is the body’s immune response when it receives messages from the nervous system. I tied keto and there was some reduction in inflammation but inflammation in my body was low level and the least of my worries and diet it doesn’t fix the root cause just some of the symptoms. A total lifestyle change and change of thought patterns is needed which majority of people aren’t prepared too do hence continue to suffer - diet alone isn’t enough for some people. A rewire and retrain the mind is needed which in turn will reset the nervous system and this takes some commitment.
I have chronic arthritis and 4 years of Keto keeps inflammation at bay. Drugs just mask and numb the pain, does not deal with the root cause of eating carbs, fructose & sugar damage. Eliminate the cause of inflammation is not genius assumption.
I got diagnosed this year with fibromyalgia and its not very nice been a mum it so hard to get out of bed and keep going so glad that my husband is a fab support to me and some days also feel so guilty that I have to give in to the pain and just rest I so feel for anyone fighting fibro it's horrible thing
Yes exactly! 🙏🏼💪🏼🙏🏼
I was diagnosed 8 years ago and it’s the absolute most painful thing ever I also have arthritis, there are days I cannot get out of bed. It’s the most debilitating disease ever and I would love them too find a cure. Not having one day free of pain it destroys your life, I wish more people understood what it’s like.
yandex - CDS
Hydroxiclorquin helped with my joints.
I do believe it has a lot to do with emotional trauma. And yes it’s an every day pain, some days are worse than others. Over the years I’ve tolerated pain very well, I’ve had a number of procedures done, and I’ve been told I’m a very good patient, but this pain takes you to another level. I feel lucky as I was diagnosed in my early 70, I can only imagine how bad it would be to have it at a very young age. My thoughts are with all you brave people, suffering from fibromyalgia. 🙏
Hi James so glad that some men are finally willing to talk about fibro!
It's such a crippling illness and so very hard to understand ,accept it,and then try and exsplain to others who don't have ot it's real and very unfortunate for those who have it .myself I have had it for 8 yrs and its got worse !
But men find its nit the thing to complain about ailments but we allmneed to learn from each other male or female.
So come on guys come and support us all and speak out.
Weldone James for vloging this .👍brilliant mate 👏 👌
m.ruclips.net/video/p2IGVCFh_qI/видео.html
Watch this video, and all of his 1500 videos.... This is mind/body, tms, neuroplastic pain, percievied danger pain, etc. Fibro doesn't exist.... It's al medical label given by doctors who don't understand the brain.
Great explanation of Fibromyalgia! Thank you, it’s so misunderstood. And, it is nice to hear a physically fit man talk about it because people don’t understand that you can look fit and still be in a lot of pain. Also, I have a rare autoimmune disease called Sarcoidosis and Fibromyalgia can be a feature of the disease! Thanks again and be well! ❤
Sarcoidosis is inflammatory autoimmune disease caused by MCAS. Fibromyalgia is caused by MCAS.
Thanks for vid. and sharing your story James, I have fibromyalgia and
polymyalgia. Feels horrible not to be the person you know you should be.
Thank you for raising awareness for this condition! I am currently going through the process of getting diagnosed for fibro (at 16) and it hasn't been the easiest so I really appreciate your channel :)
I was diagnosed in 2006, after having the start of septic blood poisoning after 8 hysterectomy surgeries gone wrong and 23 yr s emotional abuse marriage.....I understand mine came from all 3 reasons, drs don't need to tell me...after all these years I still have tell my loved repeatedly things I can not do when asked. Everyone knows but unless you are the sufferer know one will truly understand and many doubt us...thankyou for your videos!💐
I’m 48 and have been diagnosed for many years, but I’ve had this condition since I was a little boy. I could talk for hours about this. This hardest part is being believed. I have so much to share about my life and living with this condition. I know there are people suffering just like me.
Same here. I'm 62 now. After I grew up, my mother told me that I cried my head off every morning my family sent me to daycare before I was 5. My mom said I was such a headache every morning for my family and the daycare. I don't remember it myself. I think the reason is I already had fibromyalgia back then. My conditions in elementary school suggest this too.
My childhood trauma was the fear of not being believed that I was being sexually abused. At 40 I spoke out to my family, they didn't believe me. Fibro diagnosis was 12 years back, the flares occur when I don't feel believed, supported and understood leaving me feeling helpless and in pain. The connection has only recently become apparent, perhaps the pain is the attempt to understand and to heal, I'm not sure. This last flare has been the worse, 2 weeks in and zero relief. I'd like to offer something positive, a tip maybe? Can't bring to mind anything in a fog.
Very nice to meet you James. My little girl was diagnosed with Fibromyalgia at the age of ten but felt symptoms three years before. I have both Polymialgia and Fibromyalgia. This is double trouble. I heard there are like 13 different versions of Fibromyalgia. A friend told me about this but I haven't done the research. Fibromyalgia is the destruction of the nervous system due to trauma. I hope and pray your body may naturally heal from this cruel disease.
It's linked to SPD what are the 13 different aspects
I am a 32y male and have been diagnosed for 1 year. I am working full time but have had the pain/fibro since being 12 year old. I have researched the life out of it. I have read something interesting that our brain does not produce enough dopamine. I have never really met a man who has it so thank you for sharing as this illness when it is at its worse is heartbreaking. Can't lift your kids up for a hug you can't chase them playing games. Others around you think your a "pussy" or making it up to get out of the heavy tasks at work.
I have had CFS before fybromyalgia b26 years yes it's related to ADHD autism heds for which I've fought diagnosed and sleep apnea test awaiting
Hello James. Thank you for this channel. I am in my 33rd YEAR post diagnosis. It is hell. 😮
CDS
Hi James,
I'm so pleased to have found your new channel. I'm in the US in Northern California in the SF Bay area.
I'm comforted by this video, I'm a fibromyalgia sufferer as well. I was diagnosed in 2002 or 2003...I honestly can't remember how long it's been i've been living with this for so long. My poor son William had it as well... he passed away at only age 27 3/22/2021 in his sleep due to heart problems and sleep apnea.
I think his doctor and I were his only support system. He didn't know any other young men battling this horrible illness. So I'm battling deep grief on top of Fibro.
By the way, I finally tested positive in both in a urine DNA test and Lyme's blood test (Western Blot?) for Lyme's disease. Have you done any research on how Lyme's disease can mimic fibromyalgia symptoms or vice versa ? God bless you and yours!
I’m so sorry for your loss and send my condolences. God bless you 🤗🇬🇧
❤
Man I can see the disease by the way you act...touch your body (arms, shoulders) all the time ! That's exactly how I act on a normal "low pain" day😢 I'm a 42yo male diagnosed 4years ago but had my first symptoms more than 10 years ago...Fibro really is a long lonely and painful journey!
I have fibro and I am a bodybuilder and honestly is very hard. Sometimes I can’t even walk. I still train as much as I can and as hard as as I can.
Got any tips?
Hi James, thank you for bringing awareness to this. I'm 64 female who was diagnosed 20 years ago but had symptoms about 7 years prior when no one would listen to me when I described my array of symptoms. Having the diagnosis was a miracle for me but not much progress in research to help me over 20 years and I'm just so much worse since having covid last summer. And my current doctors in small town haven't a clue and have been diagnosed with chronic kidney disease in 2020 my pain relief options are almost non existent. I believe nutrition may be the key to much illness, especially staying away from sugar and processed foods. Do your own research and educate yourself a such as you can. Be well.
Hey another man here with fibromyalgia from Wales. I find there are very few people in social circles that understand this condition or the suffering involved. I have kids now and struggle the most at the moment attempting to be a full time dad, supporting a stay at home mum whilst in this turmoil.
I was diagnosed in July. I am still learning what to expect each day and I have learned that you never know what to expect each day.
Thank you for your passing awareness of this terrible illness may there be a cure soon.
Good work James. I was diagnosed just over a year ago and some 6 years after symptoms appeared. At one point a Neurologist looked at my list of 78 symptoms and basically told me I was imagining some of it. The rest he put down to arthritis. Will be happy to join your fight. Though the word "fight" makes me feel exhausted. Happy to chat, I'm in the UK too (Essex, for my sins).
Fibro here saying hello from Australia look forward to seeing your videos mate x
Hi James, Thankyou for your video on Fibro. I have suffered with this 10 years now, not knowing at first what I had and lots of different specialists, been a long forward struggle , good to be able to talk with people that understand what we go though each day.
So sad. I wish you the best
HI JAMES, Fantastic to see you on RUclips, I to have Fibromyalga
❤❤❤ Thsnk you for making this channel and talking about this. 😓
HI James,
I think you're going to be a great spokesman, particularly for men that are under reporting or suffering in silence. I'm a physiotherapist that works with persistent pain on a daily basis. I'd be happy to help the channel as and where I can.
Josh
Means a lot mate. Hopefully we can collaborate in the future to help people 🙌🏼
James, Thank you for sharing your journey. I also have Fibromyalgia and many of the other related syndromes. I also wish every day that doctors would discover more ways to help.
Thank you James.
Thank you James. I’ve subscribed.
I had a crush on a girl long distant. But today she told me about her Fybromyalgia condition. And now I am skeptical should I really carry forward with this relationship. I also don’t want her to feel that I left her because of her condition. It’s just that I have had enough pain during my childhood so I don’t know whether I will be able to take care of her.
Thank you, for sharing. I'm a 54 male just diagnosed with fibromyalgia and it sucks. Trying to get as much information as possible.
Thanks for speaking out James. I’ve had Fibro for a couple of years
I so gald I’ve seen this James ,I’ve got it chronic every hr of every day ,I tryed loads of meds reacted to all of them ,do you burn so bad like sun stroke ,it’s horrible and pain is unbearable ,😢I seen you said about the meds gabapenten and pregabin 😢I got terrabile nerve damage was going to try pregabin but seeing your advice I’m not going to ask dr to try it again ,as I no it’s a waste of time dude just can’t stand much more of the horrible illness thanks dude for sharing what you’ve tryed and I’m so gald I came on here as I was going to ask to try them again ,no way I’ve seen this today cheers dude 😢
Me too Jackie! I'm about to l lose my mind! My husband is so patient but he has moments, coz of me!!!
Great to see your videos on here buddy ✌️❤️👊
Wow !!! 😵 In 1990 my dear friend was murdered. It was 1995 by the time she went missing, the perp was arrested, and the trial took place. By 1997 i was so weak and tired i could not even clean my house. Came down with bronchitis that winter, and was basically bed ridden from weakness and fatigue. Diagnosis came in 1998. Thirty years later, there has been no let up. Every single day -- a FIGHT to get up and face the day ... to shower, wash my hair, brush my teeth, fix something to eat ... do laundry ... go to work ... routine chores ... to shop ... run errands ... Keep my house clean ???? Forget about it ☹️☹️
I'm a man with fibromyalgia too. I know what you talk about and so I'm not going to watch this. But I'm leaving a comment and giving a like to show support.
Hi thank you for your information on fibromyalgia. I too have fibromyalgia. I was diagnosed last year . Take care . Best wishes
Great description I have fibro and M E.pain us my constant companion. I als have the itching and another major one being fatigue. Thank you for raising awareness of this horrid condition.
Great update James
Thank you. I'm suffering for past 6 years from fibromyalgia. I also MS. I've had multiple sclerosis for 16 years. They are very similar. But I don't have any good days. I have not seen my mother for 5 years. It's painful to ride in car. I'm in wheelchair, but my husband and son take fantastic care. No cure for either. I have heard of one man but none
Unfortunately understands. Thank you
Hi there, I’m really sorry to hear about your diagnosis and your experience. I also have MS ( about fifteen years since my diagnosis) and ten years since my fibro.
I had glandular fever at 17 then my appendix burst just after that. I had to have a blood transfusion. This was at the back end of the eighties and the NHS, here in the UK were buying blood from the US and ( they think) I contracted Hepatitis C from that. But who knows ?
I was on an extremely nasty drug called Peg interferon, which has left me Hep C free, which is great but I was in bed for a whole year and recovering from that drug regime has taken a long time.
In September ‘99 I lost my fiancée in a car accident and that was it. I spiralled down from there.
I’m picking up now in some ways (sort of ?). CBT has helped but people don’t understand the Fibromyalgia . They “get” the MS , obviously but fibro is just an unknown to most people. Getting both is a nightmare. I think half the problem is that I look fine ( other than looking knackered all the time 😂) and you’d never really know unless I get extreme pain, which is pretty obvious when it hits. I hide for the most part and build up to going out anywhere.
I just noticed that you you had both MS and FM, like myself, and I just thought I’d reach out and say that I hope today was as good as a day gets for you, and if it wasn’t, then I hope tomorrow is.
Really pleased to hear that you have someone in your life who is there for you.
Take care of yourself from someone who understands. X
@@chrismurray3224 Thank you. My pain as you know is unbelievable. I tell everyone to watch Cake with Jennifer Aniston. It's a good movie and so true. My family is just now getting an idea of what I deal with. I have a large family and 3 of us have MS.
@@chrismurray3224 l hurt so bad all day but I'm going to get my hair done. It's a huge deal. But I could write a book about this unbelievable pain. Blah blah lol
Lost my mum last year to severe ms I have fybromyalgia CFS father has CFS found the link autism ADHD heds causation
Thank you SO much x
I have fibro and lupus. Thank you for sharing your story
Hi! Thank you for speaking out about this. ❤ I have fibromyalgia and I feel like I'm in prison sometimes. I'm trapped in my own personal hell that nobody understands.
Thanks. Exactly it.
I have researched that the cell mitochondria is damaged so I found natural supplements to repair mitochondria. Natural health stores sell them.
I have had Fibro for 15 years. My Son died 2 yrs ago and my Fibro went to a 10 in pain. It didnt stop for 6 months I was losing my mind.
This is so sad😔
Also genes can influence, genetic predisposition can contribute.
Hi James, nice to see your video, does it effect your speech, ie, trying to get words out, it has really effected my heart, nice to see a video on this illness...
Just received this diagnosis yesterday. Still resisting believing it, but a lot of my symptoms match. Fatigue, brainfog, muscle and peri-articular pain started after Covid, and articular pain started several months after that. Tests showed no inflammation and no Rheumatoid factor, so when I finally got to see a rheumatologist 6 months later, he hit me with this. I thought it would take a lot more tests to rule out other conditions first, like the brain injury I have from cardiac arrest 4 years earlier.
My rheumatologist mentioned I could have fibromyalgia. My joint pain comes from eating any kind of carb or sugar. I also have a redness, low itch rash spreading all over, especially on my arms/legs and face. Do any of you with accurately diagnosed fibro experience only joint pain specifically after eating? Thanks so much. Grateful we have each other to learn from. Blessings
Hello James follow you on other socials I too have fibro and lymphodema and lots of other things too thank you for all the information you share x
James i will pray for you. I have it and it really hurts. Sleep and eating right and maybe food sensitivity may cause it.
I'm not sure what I have. The VA said I had arthritis and now they say it's not arthritis because my counts came back normal. I have pain from my neck to my shoulders on both sides. I also have pain on both my elbows but not in the joint but up and down the side where my arm bends. My wrist and hands both sides + my 1 hand is quite swollen. Pain on both my hips as well as the back side of my knees, in the same manner as my elbows. I'm also finding my skin feels tender now. I can't sleep, but mainly because of the pain. I don't seem to have brain fog or fatigue or anxiety, but I've been in pain for 3 months now. It came on as my lower back and hips and got progressively worse over the 3 months. I have no strength in my hands or lifting power with my arms. I do have blood tests out for Lyme disease & Rocky Mountain. I'm not sure about the results yet. The pain level is from 4/5 when I'm standing but sitting, laying down, stepping up to get into my truck, or sitting on or getting up off the throne the pain is between 8-10. Oh I got covid and had a fever and sick for 3 days and all my symptoms went away for the 3 days, Odd.
Thank you for your story. I noticed your itching while talking. It’s nice to see fit man talking about it because it’s not just a issues for overweight crazy women. I was diagnosed yesterday and have been suffering for years. The pain and itching has gotten worse these last two years. Caused severe depression and more anxiety. Well who’s going be happy when you use to run and use to be active and now can’t walk for days and bones feels like it’s crumpling into little pieces. Oh not to mention it feels like your rolling around fiberglass everyday.
I'm having terrible pain everywhere among so many other symptoms James. I have an appointment on 3 January. What should I tell the doctor so I can get some help? On top of that I have degenerative disc disease, sciatica and severe lumber spinal stenosis. All of this combined is debilitating. Any tips would be appreciated. I hope your well and in as little pain as possible. Thank you for making this channel
Both my daughters and my grandson have it. I had a benign spinal removed and have damaged nerves and pretty sure I have it. I have pain every day. It’s debilitating.
Im 32 from Scotland im getting tested for fibromyalgia and MS, been getting terrible brain fog, dizziness, most of my bones & muscles are sore on a daily basis, extreme fatigue (unable to work now as in a bricklayer and was going hime to nap I was so done in) I have headache, anxiety and depression is through the roof! its fucking horrible whatever it is and to be told its a made up lazy disease is bullshit we don’t make these symptoms up 😢 hope you get a bit of relief m8 🤝
Hey James, subscribed. I have a channel too. I keep it real about fibro too! Thanks
I had chronic fibromyalgia and Myalgia Encephalitis (CFS/ME)
FND, hyperacusis,
Pots.
Cause all of these conditions can stem from Fibromyalgia and ME for some people.
Mate, you look so physically fit. I was diagnosed 3 years ago and would love to be able to build back some muscle and strength I've lost but I just flare up from light weights. Do you have any content on exercise routines?
i get wrecked when i workout.. its like i can only do stretching or bike rides
I've been doing light weights since September. I have to be very careful as overdoing it will wipe me out for 4 days. I'm making progress but it's slow. Everything with fibro is a stress response so I have to do just 2 sets of 15 reps for each muscle group with just enough resistance to grow the muscles. Also deep breathing and making sure it's enjoyable (trick the brain into thinking it's not stress - smile a lot, listen to music etc) Then resting is key. Just 2 workouts per week with lots of stretching and light cardio. Even though it hurts it's the best thing to do with fibromyalgia because the flare ups and symptoms gradually get better. The best advice I've heard is recovery depends on how well you respond to the symptoms.@@mindcry777
Hi James, fibro sucks , I see you work out, does that help or make it worse,? I'm really feeling it this winter west Yorkshire has really been cold,also does anyone else suffer with back stiffness first think in the morning ? Feels like you're body will crack if you move? I know it sounds crazy but us fibro people will understand what I mean,what is annoying is that if you are in pain people around you can't see any physical problems and say it's all-in the head.
I am a man with fibromyalgia- it’s a living hell. I was diagnosed in 2012.
I was told I have fibromyalgia 9 years ago I just found out I have nerve damage after all these years.
I’m curious to know how you’ve managed to have all your tattoo’s, my skin is usually so tender to touch, and sometimes even my clothes make my skin sore some days. Thank you.
I’ve had this dreadful condition for years and now it’s felt worse since the passing of my Mum to Pancreatic Cancer. I feel in a very dark place right now and the cost of living crisis and changes to the benefits system aren’t helping.
My pain dont go as deep as yours but i am also in an extremely dark place right now with the way i think, and the moment i started thinking the way i do for specific reasons this shit started happening...
I can't understand how it can be diagnosed when Doctor's do not recognise it as a medical condition, I was only first aware I might have it when I made a visit to a physiotherapist to help me with shoulder and neck issues where I would have discomfort and need some sort of relief it was brought up in a conversation. I do suffer from Health Anxiety which does not help and only recently in the last 4 weeks have been suffering with consistent headaches some days excruciating, when just touching the side of my head it is painful. I am due to see a Neurologist hopefully to cross that off the list and go from there.
In pain for 20 years with fibromyalgia and polymyagia .Also arthritis need knee replacement.Nobody can take my pain away .
Great video will check your tick tock too
I’m on opioids and 3000 cbd oil.
Many have sensory processing disorder before cfs fybromyalgia diagnosis caused by Autism ADHD hypomobility.
Ive recently been diagnosed 3 years ago.. i lived in thr tropics in Australia and unfortunately the heat almost kills me as my pain is insane... i also have alot of other components that co-insude with fibro...
I fucking hate this shit...
My worse flare lasted 11months... i slept for 9 months straight. Th3 only thing that helps me is ICE BATHS & cannabis oil
Hi i am a 40 year young fibro Male. I am intressting how you ceep fit, and ceep muscle. Whats your training strategy? Diet? Rest and recovery?
❤❤❤
Hi what test did you have to diagnose
there's no test for it nor a cure x
I have fibromyalgia I trying find a good doctor that will understand I am in pain every day the medication really does help at all we all need to come together help
I have it to With cvs i know how you feel we are one on a few men
So basically a nervous breakdown.
James, I do believe fibromialgia has a root. After having a fall in my steep driveway falling backward, I bounced my head on cement, To prevent injury to my head, I put the fall weight on my left hand.
I wore a splint on my hand for a couple of months, and things got worse. Pain ran from my hand to my neck and from my neck to my head. Then, all my body from head to toes, I experienced neuropathic pain, etc.
My first neurologist diagnosed me with fibromialgia. After asking him for a 2nd opinion with his refusal came a battle that involved the State Board. I now have another neurologist. No longer do they call my illness fybromyalgia. A neck MRI had "noted" a PERINEURAL cyst on my c6 & c7. These Cyst form anywhere in the spinal cord, and certain drama to our bodies causes them to become symptomatic. Perineural Cysts are overlooked. These cysts in the spine are also known as TARLOV CYST DISEASE.
I'm a 57 year old lady who has used muscle in life and in my emotions. NERVES all begin in the brain. You work out ! I'm sure it's to keep healthy, but I believe that causes our CSF to flow with force to the point where these cysts form and potentially become symptomatic and labeled FIBROMIALGIA.
Dr's are encouraged by the "State Board" men's systems to White wash many roots in there diagnosis by labeling FYBROMYALGIA that way you are a number and not a personal patient. BEEN THERE DONE THAT, TRUST NO MAN BUT CHRIST'S SPIRIT IN YOU. HE LIVES IN OUR BODY, MIND, and SOUL. "GUT"
Blossom in HIM.......
Hey, I'd love to chat with you. What's the best way to reach you?
My Instagram is James fighting Fibro. Dm me there mate
This is Polymyalgia getting fixed using this approach: ruclips.net/video/ptksH-nb_qA/видео.html
I have Fibromyalgia also for 7 years but diagnosed two years ago.
Another fibro one here. Dx was in 2009 after domestic violence.
I have Nero fibromatosis can bring fibromyalgia on I have it
I was diagnosed 3 months after traumatic C-section with my second baby at the age of 26. I was very stressed and traumatised by that experience and the first fibro symptoms came only 3 weeks after surgery.
Canibis with thc helps also magic mushroom can help with pain depression and addiction... Do your homework
Have you suffers noticed your symptoms have worsened if you caught long COVID...my son has
Yes men do get it but its probably about one in ten men get it as it's more likely woman giving birth as it can be a traumatic experience
who knows, I guess women are stronger and meybe able to live with this, but meybe men more often comit suicide
@@davidschick4729There are plenty things women deal with that majority of men cant and same goes for women they cant deal with certain stuff that men can deal with
and or Statines
You have an allergic reaction to glyphosate
It's inflammation which can be cured by Keto diet, no sugar, no carbs, no fructose.
Inflammation is the body’s immune response when it receives messages from the nervous system. I tied keto and there was some reduction in inflammation but inflammation in my body was low level and the least of my worries and diet it doesn’t fix the root cause just some of the symptoms. A total lifestyle change and change of thought patterns is needed which majority of people aren’t prepared too do hence continue to suffer - diet alone isn’t enough for some people. A rewire and retrain the mind is needed which in turn will reset the nervous system and this takes some commitment.
I have chronic arthritis and 4 years of Keto keeps inflammation at bay.
Drugs just mask and numb the pain, does not deal with the root cause of eating carbs, fructose & sugar damage. Eliminate the cause of inflammation is not genius assumption.
Sucks, doesn't it.
I'm 21 and due too various sports injuries have a neuralgia and fibro , fucking sucks that's all I know
Thank you James 😊