7 Months Post Laparoscopic Splenectomy for SAA
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- Опубликовано: 5 сен 2024
- Just a final update on my spleen removal 7 months ago. I had a laparoscopic splenectomy to remove 5 splenic artery aneurysms. I have had problems with recurrent strep and tonsillitis and a weakened immune system.
Day after surgery
• I survived!
4 Days Post Opt
• 4 days post splenectomy
6 days post opt
• 6 days of healing
2 weeks post opt
• 2 weeks post splenectomy
Hi, my Name is Drew. My Neice went in the hospital had surgery around 4 am ish just last night after a fall. She is fourteen I feel so badly for her and scared at the same time. My brother and his wife are extremely worried, then the doctor came out and told them that surgery went well, she's now in ICU recovering. Listening to your story comfort me, and I'm just an Uncle. They're very far away, which makes it difficult to just jump in the car and stand with my brother and his family. Listening to your story makes me feel a little more at ease. Thank you for your experience.
DW DW I just made a fb group for people with out a spleen just look for spleenectomy support group on fb. I had mine out march 29th 2017 I'm almost 4months post op.
What caused your blood pressure to rise? Just had my spleen taken out the other day and every time I walk my heart beats rappidly
I just came across your videos which gave me hope. My 2 and a half year old daughter is having surgery right now due to her having Sickle Cells disease and found out that she has an enlarged spleen. I am so scared what is coming and to be honest I am not ready for that.
Thanks a lot for your videos, they are helping me not to cry and worry while waiting for her to come out of surgery.
I just wanted to let you know how helpful and reassuring your videos have been. I'm currently 7 days post op and, while I'm trying to stay positive, I find myself very sad sometimes. I had a splenectomy due to the enlargement of the spleen. It was causing excruciating pain that has been going on for about 20 years. The pathology did come back with an abnormality that was most likely caused by multiple mono infections. Basically, I can not wait to feel like myself and am praying the spleen was the only factor causing the pain. Thanks so much for sharing your journey!
Jennifer Sekorky I am about a month post op and I am feeling the same sadness, sugrery can be taxinf both physically and emotionally. I hope your feel better soon!
Good video. I was actually researching "dog spleen removal" because I'm anticipating one in my job as a vet. Nevertheless I can add something to this: REDUCE STRESS. Looking for the answer to your immune system problems can easily take over your life. Remember to breathe, smell the flowers, meditate, get colour in the dead of winter (if you live in a cold climate), pamper yourself with things that you love etc etc. That's all. Thanks for the vid.
Thank you for the video. I just had my spleen and part of my pancreas removed on Sept. 28th. I'm still in hospital now as I type this message scheduled to be released Oct. 4th.
Thanks for all your videos on your splenectomy! I have painful, large complex cystic lesions on my spleen, so they're removing mine in two months. My surgeon said I have a 1 in 3 odds of having to switch from laparoscopic to open once he's started, so that's unnerving. Thanks for all the insight!
Hello!! I wish I had seen your videos when you put them out. I could have given you tons of information. I'm not sure if they told you or if you did it, but once your spleen is removed your immune system is compromised, so you need to get the pneumonia shot. I believe it is every 4 or 5 years. My spleen was removed due to spherocytosis. That is where your red blood cells are round instead of oval and they get destroyed trying to go into the spleen. I was lucky that I had my tonsils out when I was a child but I always got colds, fevers, sore throat, etc. Once my spleen was removed and I got the shot, I didn't get even a cold for the first 4 years. It happens every time I get the shot. As far as eating foods, you can eat whatever you want, as long as your blood work is fine. If anything eating certain things which help in gaining red blood cells may be important. I also have a pacemaker that runs my stomach and I also had my gallbladder removed. Both were done open procedure. There really isn't much to it once the spleen is removed. Just eat good. I would get the tonsils removed. You will be happier in the long run. If you are still experiencing other issues, it probably doesn't have to do with the removal of the spleen. DO NOT GET A FLU SHOT. All you need is the pneumonia shot, very important to have when the spleen is removed. No other vaccines are needed. If you keep keeping sick, you may have other issues. I had stomach issues for 5 years and went through 9 doctors before they figured out there was something wrong. So, if you feel a certain way that isn't normal, go see a doctor. If you don't like or believe their answer, go to someone else. Doctors, I found out only know certain things when it comes down to it. Unless they are a specialist. Trust yourself before trusting a doctor with a diagnosis. Always get as many opinions as you need, to make sure you get the right answer. It's not easy, but it's worth it in the end.
The funny thing is, I tarted going to doctors with a stomach issue and ended up having gallbladder removal, spleen removal, brain surgery, which was all found when looking my a stomach problem. After 9 gastro doctors and 5 years, they determined my stomach wasn't working.
Good luck with your health and I hope everything goes well for you. Most of those shots aren't good for you, especially now since you have a low immune system without a spleen.
Hey if you don't mind me asking why did you say DO NOT GET A FLU SHOT?
I redo my vaccines every 5-10 years depending on the vaccine. I did get pneumonia (during the 5 year window of the first vaccine) and ended up in the hospital very quickly and took weeks to resume normal activity after finishing the course of IV meds etc. I just redid my HIB and got the pneumovax 23 shot. I get a flu shot every year, but every body and every doctor is different. I mostly see my specialist because I have other issues to control. I never did get my tonsils out but boy did I want to the first year! It was horrible! Other than high platelet count my lbs are pretty stable 5 1/2 years later.
Thank you for the video, my wife ruptured hers due to fainting/fall, she was bleeding internal and it was removed, she has a large scar, a small hole in her neck from the blood transfusion, your video has calmed us both. Thank you. 🙏
I’d love to see an update after your 2014’s splenectomy. Best wishes.
I had multiple cysts on my spleen they didn't want to remove anything for years Finally had spleen removed in march of 2017 Cysts measured at 14cm
Yo whays Poppin. My name is Jackson, I'm 16, I get my spleen out in a month. I have hereditary spherocytosis and am anemic so they wanna chop out my spleen. And your videos helped a lot. Thanks.
Jackson Jacoy good luck! You’ll be great! After the first 6-10 post op I️ was fine, and you’re much younger, you’ll bounce back fast
Hi! Jackson, i hope you feel better. My wife has the same condition as you "hereditary spherocytosis" then this causes that his platelets goes down, so down, 11,000 to 30,000 units, and in some cases suffer anemic, the hematologist says that the splenectomy is the best option for his health, so, we are a little nervous about that.
how do you feel? how is your blood?
Francisco Dubon I saw a hematologist, rheumatologist and an oncologist to do several months of testing when my splenic artery aneurysms were found and all my tests were normal. After having my spleen removed I routinely have high platelets in all my blood draws, but nothing that can hurt me. My biggest issues since removal almost 4 years ago are with my immune system. I get sick more, stay sick longer, and have trouble battling small infections without antibiotics
ya, mmm, i see, the hematologist says that she (my wife) has to take antibiotics vaccines every 4 monts for some time, we think that is for that you says, an the immune system turns less effective.
thanks for your video and for your answer, now we know more about this secundary effects.
Francisco Dubon some physicians do put patients on antibiotics for months afterwards. I think that is more common for children to do that. I did not do long-term antibiotics but I did update all my vaccines two weeks prior to surgery and re-do them every 5 years. I also get a flu shot every year. I did get the flu last year even with the vaccine and I was very ill compared to my husband and kids hat got it. But I survived it!
HI there! Great video! Now that 4 years have past since you posted this video how have you been health wise post splenectomy? I'm having my spleen removed in a few days and was a little worried.
J. Martino that’s a great question. Any problems I’ve had medically related to my spleen really have to do will how my body handles the routine illnesses I’m exposed to mostly from my three kids. I tend to get more sick with the same visit than the rest of the family (more severe symptoms that persist longer) and stay sick a little longer than anyone else. The first year throat infections were a big issue but no so much after that first year. I had very high platelet counts in my last pregnancy but nothing that worries my docs. It would just get flagged on all my blood work. Nothing else comes to mind. I work really hard at taking care of myself and have a few other health issues that are unrelated. All in pretty lucky all things considered.
My husband underwent an open splenectomy ten years ago. The surgery went well. After four days post the surgery, he had complications and was put on life support for 12 days. On the same wound, he was opened 3 times. For 12 days, he could not speak and was drugged. Later, I was told that nothing more could be done and I watched my husband die. I still need answers
I can’t find anything and I’m having mine tomorrow 😢
How was your surgery? How you feel now
9 YEARS LATTER HOW ARE YOU DOING,WONDERING IF I SHOULD HAVE IT REMOVED
Hello. I hope you are good now.
I have a question, what's your platelets count now, how long it takes to decrease
Hey , I had my spleen remove 4 years ago and my health has change some much for the worse . I have had strep throat 5 times and suffer from yeast . It’s always like a wining battle with my heath . When it’s not one thing it’s an other . I would love to know how are you now ? I been looking for someone without a spleen . Would love to hear from you
You can join Splenectomy Support Group on Facebook.
Nice to see your video.. my mother s 58 and Dr suggested to under go this removal of spleen. So I m worried but after watching your video I m feeling little better.. but how do you keep your self away from infections.. plz give us some tips
I had my spleen removed in august after a severe car accident where i got tboned rolled the vehicle was thrown and the vehicle rolled over me and crushed me pretty good lol lots of other stuff but anyways crushed my spleen i bled out twice in the hospital before they opened me up to fix all kinds of crap but anyway i have a huge nasty scar down my stomach but so far no difference since healing up but im only in now 3 months lol but no sickness yet n i got two little 2 year olds runnin around lol but hopefuly all goes well
I just want to know. How are you now? My friend is undergoing the operation with in a month or two. Cam you please share you experience.
@@shinyrashmitha8846 its been two years now and really no difference besides getting sick now all the time if someone around me has a cold i catch it by the end of the day i use to never get sick and if i did it went away quick now its like i have to get antibiotics to get over it
@@TattooedNSnappedBack really thanks a lot. Is there any pain? Or something like that? I am really really worried about my friend. 😰
@@shinyrashmitha8846 no pain just get sick easy and high level of platelets other than that i havent noticed
Please make another recent video😮
Thank you for posting your experience with your splenectomy. I just had mine a week ago. Unfortunately mine was so big it was not laparoscopic. How long did you feel distended after surgery?
Hye. How are you now
Is your platelets count are normal now . What medication do you taking
@@kingrahulforyou9755 I'm still feeling very distended. My white blood cells and platelet counts are still very high. It's hard to believe it's been 5 years since my post and they still haven't gotten a straight answer as to why my spleen was so enlarged. I feel they're still something wrong but I've given up. I'm routinely fighting bacterial infections ever since the surgery.
What vaccine did you take before your splenectomy
Hib, meningitis, Mmr, tdap, and pneumonia
Hi mam ...u lost weight after laparoscopy?
Hema latha I lost about 10 lbs total within a week of thesurgery but mostly because it was very painful to eat
Hello, Dear. Great video. I request you to please reply to my query. I just had my splenectomy done last week. I just want to know if you got pregnant after your surgery. If yes, was it a normal delivery? Please reply
Yes, I had a third child after my spleen removal. About 2 years later. I did have many complications, but none directly linked to my spleen being removed. I did have abnormally high platelets my entire pregnancy, they said it was due to my lack of spleen. Delivered him at 31 weeks, he’s a healthy happy 7 year old now.
Omg! I am so blessed and happy that you replied. Thank you so so much for this info. I was really worried about a couple of things about my spleen removal. However, your videos and replies helped me out very nicely. Thanks, thanks a lot!!! Just one last thing if you could please reply. Can we really live a normal life without a spleen? Like Going to the office, school, malls or rest of the public places at least after a couple of years post-surgery? Please reply
Dear, please reply
I do have questions.... :( ! What did your spleen symtpoms first feel like ??
Christina V I had no symptoms. My doctors found 3 splenic artery aneurisms when they were scanning my kidneys for a different issue.
How are you doing today? I have a possibly enlarged spleen and I'm so afraid
Kaitlyn Curran don’t be afraid. My surgery recovery was normal. I have gotten the flu and pneumonia since I’ve had mine removed 6 years ago and I survived both. I keep track of my vaccines, get boosters when indicated, I take vitamins, I’m active. I do get sick often and it takes me longer to get better, but their could be other factors contributing to that. I’m sending positive vibes your way!
Hi, i am dhiraj. I just had laparoscopic splenectomy 7 days back. Currently i am suffering from stomach pain after eating small amount of food. Is this common?
Seems to be very common. Also seems like patients tend to have a "full" feeling after eating only a small amount of food, too.
How long was the down time? And how big was your actual spleen before it was removed?
it took me about 7 to 10 days to feel okay after I had the surgery. My spleen was four and a half pounds.
+Jlk6532 omg! Bless you! Mine is 14cm I'm freaked out and I want it out now I'm fearful it will erupt. Did you have any symptoms? I didn't even know I had tumors in it I feel nothing the catscan is how I knew and I got it not spleen related
I had no symptoms. Mine were aneurysms and I guess are pretty fatal if they ruptured. I was pretty sick with colds and tonsil issues the first year but it has gotten a little better. good luck!
+Jlk6532 thanks
It has been one and half months, iam living with out Spleen in emergency cases they removed. Now how could be my life and what problems i need to face mam and my age was just 20(male)
I just want to know. How are you now? My friend is undergoing the operation with in a month or two. Cam you please share you experience.
I have don’t have a spleen and I don’t have any tonsils
Bah. I have no spleen, tonsils or appendix.
Same here brother
Mam you have any complication after laparoscopy???
I had trapped gas in my clavicle area that felt like I had broken shoulders. I also got sick SO MUCH the first year post op.
My spleen is remove
Please help me
Ankush Dethe just follow your doctors advice and take good care of yourself. Most asplenic people tend to be immunosuppressed and get ill much easier than before. I try to keep up on my vitamins and current on my vaccines. I did end up with pneumonia in my 5th year post splenectomy and that was brutal, even with the pneumonia vaccine. Good luck my friend!
What was the cause of your bp rising?
Nathaniel Taylor I don't know. I have Iga kidney disease. It could be a side effect of that. My nephrologist is unsure.
Doctors must love you ,the avrage american who keep them in bussiness,wonder if you even thought of eltarnative option or you just complitly trusted your drug seller i mean your doctor ?