My RLS Journey: Lori's Story
HTML-код
- Опубликовано: 9 сен 2024
- Restless Legs Syndrome (RLS) Foundation presents the 'My RLS Journey' series.
In this video, we highlight Lori''s RLS story. Lori discusses her diagnosis, symptoms and coping strategies.
For more information about RLS and the Foundation please visit www.rls.org
'My RLS Journey' Series © RLS Foundation 2016
Not tolerable. That's it, you nailed it! I've had doctors ask me what happens when I can't move my legs. I tell them there is no option. I must move them. I am completely unable to keep them still!! I am lucky, meds keep my RLS pretty well controlled but when I am in a phase (if, for example, I am an hour late taking meds), "not tolerable" is exactly how I feel. Best of luck to you Lori, thanks for sharing your story.
I've got rls my dr remembered I had low iron levels 12 months ago and he said start taking iron again and it fixed my rls thank goodness
I feel you. I, too, have restless legs syndrome. You have described it like I haven't been able to. I have noticed lately that I have been having trouble occasionally holding a pencil ( I love to colour in) I never would have put imthat down to RLS. I have noticed some of the same sensations in my arm of late. Thanks for sharing your story.
i have it in my arms also. great description. before I knew about RLS I just called it having jumpy legs. years ago I saw the first RLS commercial I called my mom crying we're not alone and there might be relief. if I do not take my medication before even the first twitch then I still suffer for most of the night.
bruh SAME!!! I called it jumpy legs too! and then i decided to search it up one day and found out what it is!! I have it in my entire body.... arms, legs, wrists, ankles, neck, back.... all day. Im constantly stretching everywhere and its awful.
Medicinal Cannabis works a treat for me. About an hour before bed and some Magnesium Powder.
Try pot.. It works
not for me, it just make it worse
I ve had since childhood, 44 now and been on requip ever since it was approved for treatment of rls. It gets worse as you age, if I am not able to take my medicine for this, I feel like I'm going insane, really like I just want these sensations to stop so bad I would want to just kill myself.
Hi Friends who are suffering from RLS.. I rub a dry soap on both my legs and this has brought me relief.. I don't usually post comments.. But thought if this helps some one like me...
@@shortwavefan2487 Hello Friends, I am a sufferer of RLS.. I want to let you know what worked for me.. There are many Facebook groups just search restless legs syndrome on Facebook and join those groups.. For some ppl iron supplement, magnesium supplement, B12 supplements work, compression socks.. I got beneffited and I hope some one reads this post and gets benefitted hence I am posting this to many RLS video.. So that some one can get relief
I have heard that the soap works really well..I am going to try this tonight...I am getting soooo tired ...I have had it for years...every night !! Magnesium cream works for a while then becomes ineffective.. wish me luck !!
I wish they would rename it because, to the people who dont have it, it just sounds kind of silly. It's a very serious issue.
the only time it moves to my arms is when I don't have my mirapex..my dosage has been the same for 30 yrs..once n a blue moon I'll have to take one n the afternoon but she is spot on describing mine to a T.....
Yes not tolerable is the best word. I feel there is an answer just not discovered. In my opinion. Its horrible.
Please try Magnesium Glycinate it helps to relax your muscles and with insomnia to stay asleep through the night as well with the RLS. It is very effective.
RLS is NOT MUSCULAR, it is neurological
If it is in your arms you're probably augmenting on a dopamine agonists. look up the videos on rls by one of very few rls specialist Dr Early from JHI. There can be a natural progression to the disease but if you ate taking more of your rls medicines and your symptoms are getting worse and moving from your legs to other places you really need to see these videos.
In my family our mother, my sisters one more than the other and myself suffer from restless legs. I am 72. I use to get it 3 or 4 times a month. Then I was put on Tramadol and I had it 24 hrs a day, seven days a week. It took a long time before the doctors started me on carbidopa-levodopa and then we all know what happens with that. Later they tried me on all other drugs for RLS and my body retained fluid to a dangerous degree even with the patch which also made me itch all over. So now I have no choice but to be back on carbidopa/levodopa 25-100 mg. on good days, 3 times a day. It by itself does not help me. After two other drugs which I had to quit wore off - forteo and neupro patch (two months for that to happen) the carbidopa/levodopa kicked in after 40 days but not to give relief for me to sleep. At the same time I was starting a new way of eating healthier, and because I have fibromyalgia along with rheumatoid and osteoarthritis I need to be careful how I exercised. I started with Mary Wilson who is on the PBS channel and on You Tube. She knows how to work with people like me. I started to notice that with the exercises done well but calmly and the sound of her voice and the music that was played - my legs would calm down after taking the pill followed by the exercises. I now may have to get up at 3 a.m., 5 a.m. or on a good day only at 5 a.m., 3 p.m. and 11 p.m. and do my exercises with her which I record every day so I have a variety and then I can go back to sleep for two or three hours. I also take clonazepam, a tablet of calcium, magnesium and zinc (4 times a day) and stay totally away from any caffeine (chocolates, coffee, pop, etc.) On days that I do too much (exercise with the seniors for an hour and a half or run a lot of errands or have a tremendous amount of stress) - well I might just as well resign myself to staying up. I drink tonic water (not diet) for the quinine twice a day with two meals, and I use Hyland tabs for leg cramps which also has quinine in it. I try to quiet myself at night and not get on the computer, etc. Just read or watch a quiet movie in my recliner after my pill follwed by the exercises. I usually have my yogart and a small banana around 9:30-10:30 p.m. and they also help me rest. I know its crazy, but I have finally found some relief. Being on carbidopa/levodopa will come back to bite me, but I will have to meet that when it comes. Being my age even if a new drug came out I could not get it because it would be a brand drug and put me in the "donut hole" so fast", but for our children and other future generations I pray they will find an answer. If we go for a drive that is over an hour, when I get to someone's place I take another pill, and ask to play my dvd in private so I can do Mary Ann Wilson's video (I only do with famly). But then I have to drive back home and I know that night will be hard. I have heard so many of your stories and some are far worse than mine, but the hardest for me was the 3 mos of 6 hours of sleep in a week with no relief for my legs and sitting in tears in the doctors office begging him to help me. I have a neurologist and he is good but he is not God. Just sharing what works for me for now. Hope it helps someone.
Put icy hot on your legs it’s soothing
a naturopath put me on to oak pine tree bark extract or grape seed extract. i use the gse. its the cheapest.