The best way I could describe this to my loved ones is that “it feels like my body is scared to do anything and wants me to just stay here and do nothing”
Thank you Miguel, this brought tears to my eyes. Thank you for validating everyone going through this. You have a fantastic way of describing and explaining everything. The way you explain it is perfect. Yes it is a full time job busy fighting this every second internally. And ita hard af. Thank you for this video.
I have to say, although I have been patiently waiting for Miguel to make a video like this for a long time - and although I do appreciate him making this - I found it disappointing, because it is not something I would ever share with my husband. He is unfortunately not supportive, he does not appreciate what I have gone through with CFS, what I am still going through. He does not help me with my chores or encourage me to rest no matter how totally exhausted I am or how badly my symptoms are flaring up. Rather, he just expects me to keep pushing myself no matter what, because I need to "pull my weight." The last thing I would want to tell him is that I need him to give me space - space is pretty much all he gives me, when what I need is help and support and understanding. I was hoping the video would explain to family members that the CFS sufferer needs to rest sometimes, and may need support and help with chores, etc, that they aren't lazy but that they need to rest to calm down their nervous systems. My husband doesn't understand this at all. He knows I get tired, but he really doesn't understand at all how tired, he thinks I can just live life like he does, if I would just stop complaining about being tired.
some days there is nog enough energy at all, so being snappy is not what you want but can happen on the worst days. At the same moment you hate yourself for doing it to the person who also is in the "prison of longcovid" with you. So thank you for this video !
Awesome that you brought up that topic 🙏 at some state I was barely able to talk & to express myself properly so this video is really helpful to give everyone else an idea what having ME/CFS means & how they can support ❤
Can you do an in-depth video on nightmares. I have nightmares a lot which I think are caused by fears. If I do have an activity scheduled I might dream about missing the plane or something going wrong. As I been understanding how emotions influence our nervous system I been trying to change my attitude.
One of the coaches in Miguel's program shows us that it is just our brain trying to process fears. He suggests not to try to work out what our nightmares are about or worry about them, but to give yourself grace in understanding that its working through this stuff as we make our way through recovery.
Hey! Thank you for your videos, this is a key one! Just have a quetsion: I was slowly doing much better and for the past month I've dealt with far worse pain and fatigue than ever before... Can a flare up, an extinction burst last this long? Thank you.
Yes it can. It will vary from one person to another. Please check this link. I hope it helps! ruclips.net/video/r93hU0aJWV0/видео.htmlsi=2vz09UaI_obYsKx9
hi Miguel can brain retraining be effective with chronic back pain too, had it for 7 months and it doesnt seem to go away. I've done physical therapy and and all but to no avail.
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The best way I could describe this to my loved ones is that “it feels like my body is scared to do anything and wants me to just stay here and do nothing”
Thank you Miguel, this brought tears to my eyes. Thank you for validating everyone going through this. You have a fantastic way of describing and explaining everything. The way you explain it is perfect. Yes it is a full time job busy fighting this every second internally. And ita hard af. Thank you for this video.
You're most welcome ❤️
I have to say, although I have been patiently waiting for Miguel to make a video like this for a long time - and although I do appreciate him making this - I found it disappointing, because it is not something I would ever share with my husband. He is unfortunately not supportive, he does not appreciate what I have gone through with CFS, what I am still going through. He does not help me with my chores or encourage me to rest no matter how totally exhausted I am or how badly my symptoms are flaring up. Rather, he just expects me to keep pushing myself no matter what, because I need to "pull my weight."
The last thing I would want to tell him is that I need him to give me space - space is pretty much all he gives me, when what I need is help and support and understanding. I was hoping the video would explain to family members that the CFS sufferer needs to rest sometimes, and may need support and help with chores, etc, that they aren't lazy but that they need to rest to calm down their nervous systems. My husband doesn't understand this at all. He knows I get tired, but he really doesn't understand at all how tired, he thinks I can just live life like he does, if I would just stop complaining about being tired.
some days there is nog enough energy at all, so being snappy is not what you want but can happen on the worst days. At the same moment you hate yourself for doing it to the person who also is in the "prison of longcovid" with you. So thank you for this video !
You’re very welcome 😊
Glad you're still doing so much helpful content for free Miguel. You're an inspiration to us all.
I appreciate that!
Awesome that you brought up that topic 🙏 at some state I was barely able to talk & to express myself properly so this video is really helpful to give everyone else an idea what having ME/CFS means & how they can support ❤
thank you Miguel, this is so needed. This will be such a comfort and help to so many.
You are so welcome.
❤❤❤ thank you Miguel
You're most welcome ❤️
Can you do an in-depth video on nightmares. I have nightmares a lot which I think are caused by fears. If I do have an activity scheduled I might dream about missing the plane or something going wrong. As I been understanding how emotions influence our nervous system I been trying to change my attitude.
One of the coaches in Miguel's program shows us that it is just our brain trying to process fears. He suggests not to try to work out what our nightmares are about or worry about them, but to give yourself grace in understanding that its working through this stuff as we make our way through recovery.
Hey Miguel, what doctor exactly helped you RECOVER?
I feel weak after the CoVid vax. It has been 3 1/2 years. I’m 59 yo female
Do you have pain?
Hey! Thank you for your videos, this is a key one! Just have a quetsion: I was slowly doing much better and for the past month I've dealt with far worse pain and fatigue than ever before... Can a flare up, an extinction burst last this long? Thank you.
Yes it can. It will vary from one person to another.
Please check this link. I hope it helps!
ruclips.net/video/r93hU0aJWV0/видео.htmlsi=2vz09UaI_obYsKx9
hi Miguel can brain retraining be effective with chronic back pain too, had it for 7 months and it doesnt seem to go away. I've done physical therapy and and all but to no avail.
You should check out the channel Pain Free You. The guy's name is Dan. He cured his own chronic back pain with brain retraining.
Most peoole with cfs fybromyalgia have it in the family or chronic migraines
I hate how irritable I am now.
I get you. It's not our personality, it's just our nervous system. It will improve.
Please check this link. I hope it helps!
ruclips.net/video/9B8UkfP_ZgY/видео.htmlsi=nD53A9zljUYVzdl-