My son, 23 weeker, has ROP. He had Avastin injections, laser surgery and a vitrectomy for retinal detachment. A week ago, we learned his retinas have detached again. Already severely visually impaired, and expected to lose all vision in early adolescence. I will be reaching out to lighthouse after this video and hearing about them from John Hopkins all children’s hospital. Thank you
I am a mother of a blind baby .. People in Florida are so lucky to have you. I really wish if we have somewhere to help us to deal with our babies like you do in our country 😞.
You might not be in Florida, but you still have somebody that can help He is the holy Eternal one, Son of Man, Son of God, The Redeemer Jesus Christ Our Lord and Saviour for when there hung Jesus Christ to the Cross, his last words were Father it is Finished, Yes indeed it is finished the plots of the devil are done, Our God is an Awesome God, our God died for us, now It doesn't matter if you're Muslim It's not Shirk to believe in the truth Jesus Christ is Lord Confess with your mouth and you will be Saved there is power in the name Jesus Christ, He heals Sickness, Blindness and right now I pray in Jesus Name that your Baby is Healed in the mighty name of our LORD and Saviour Jesus Christ
me to.. my daughter..she was born at 6 month but she's wasn't blind ,due was neglected to the point that her retina tore from the back she's 3 now and God has been wonderful to use
I am visually impaired myself from glaucoma, aphakia, nystagmus, microcornea, and I was born with a damaged optic nerve. I was also born with cataracts as well.
I hope this message finds you well. My name is Abbas Ismail, and I am writing to you from Zaria, Kaduna State. I work as an admin assistant at the Distance Learning Centre, Ahmadu Bello University. I am visually impaired and have very low vision, which significantly impacts my ability to read writings on paper, even with reading glasses. Currently, the only way I can manage to read is by taking pictures of documents with my phone and zooming in on them. This workaround is far from ideal and has become increasingly challenging and psychologically taxing. I am reaching out to you to request any assistance or recommendations you may have to help improve my situation. Any support, whether technological or otherwise, would be greatly appreciated and would make a substantial difference in both my professional and personal life. Thank you very much for your time and consideration. Sincerely, Abbas Ismail
Depends on the child. Attach the visual stimuli to specific musics enjoyed by the bairn. Obviously one visual stimulation is the face of the parent so as to correlate with the particualr tune. However, then have a different tune per other picture such as a bun to rhyme with the number1 or a shoe to rhyme with the number2 and a tree to rhyme with the number3 whilst saying it and showing it, such that counting 1-2-3 is learned eventually by means of repetition and partial reinforcement reward schedule _(and feeding, since it is to form "healthy addiction" to knowledge and sensory improvement)._ This is information to help people, so their bairns can learn counting and objects visualised. Use gaming graphics to reduce pain (if any). Optic nerve damage in conjunction with an implant could further develop this where the eyeball is ok but the signals to the brain are impaired. Thereby machine-learning can be deployed. Then somewhat fund it by selling the tunes. My comment has no hate in it and I do no harm. I am not appalled or afraid, boasting or envying or complaining... Just saying. Psalms23: Giving thanks and praise to the Lord and peace and love. Also, I'd say Matthew6.
I'm mother for baby with cortical visual important. She is one year old and I know about her diagnosis only befor tow days and I don't know how can I help her .I need more information about CVI Plz .
My baby Antony is 2 years old & he is blind because of retinopathy of prematurity grade 5 . Can some one help me how can I learn him how to eat & speak
+Bilal Khan It's a spin light toy--you can find them at Kings Dominion or other theme parks. Feel free to google it; here's one link that came up: www.amazon.com/Flashing-Panda-Changing-Pattern-Spinner/dp/B002GEJYHI
I hope this message finds you well. My name is Abbas Ismail, and I am writing to you from Zaria, Kaduna State. I work as an admin assistant at the Distance Learning Centre, Ahmadu Bello University. I am visually impaired and have very low vision, which significantly impacts my ability to read writings on paper, even with reading glasses. Currently, the only way I can manage to read is by taking pictures of documents with my phone and zooming in on them. This workaround is far from ideal and has become increasingly challenging and psychologically taxing. I am reaching out to you to request any assistance or recommendations you may have to help improve my situation. Any support, whether technological or otherwise, would be greatly appreciated and would make a substantial difference in both my professional and personal life. Thank you very much for your time and consideration. Sincerely, Abbas Ismail
I don’t know my stage of ROP. I am 13 (almost 14) and I am legally blind. I was born at 25 weeks gestational age, but have decent vision for being severely vision impaired.
They actually thought I was dead. My mother had preeclampsia. I was born in 79. They had already told my mother I’ve had died. I was born alive when one pound 8 oz. they told my father not to tell my mother. I was alive because I wouldn’t live after three days, he told my mother then told him I would be blind because I had written off the prematurity back then babies were given 100% oxygen, it basically was a guaranteed blindness . I was probably five before I saw anything I had very little in terms of intervention nothing except special Parag glasses into this day. I don’t understand why I can remember in high school and having no books because I couldn’t read them eventually the school was able to get me two books, two books 4 was computer class taken out I was blind and couldn’t see the screen so they put me in staple papers, the school system completely failed me. I was getting no blind straining because I was also learning to disabled. It was just a total wash as far as they were concerned. I still was never trying to use jaws. During my high school years I actually found out about program paper for the first time was to do an assignment with my friends price ever finding out that I could’ve gone to the blind school I live 10 minutes away from the school 10 minutes. I could’ve been trained instead. My father was looking up to be able to afford a month and a blind school so I could get basic training to get a guy dog. My own state did not want to help me because of my learning disabilities. It was found out while I was there amazingly I could actually type for some reason I’m able to understand the letters and type keyboards are never understood. The school had severe learning disabilities in charge of me. I remember the teacher sliding the broke keyboard in front of me and telling me what’s right I can’t spell but he made a very simple sentence blown away. I just feel so sad that I was never given the opportunity to even try and was given no help. If I had then I wonder where I would be.. There’s also balls that have bells in them and beeping sounds one of the kids fathers was talking about playing ball. He can still can, but you can buy from a company called Maxi aids so everything blindness related..
Mainstreaming kids and regular classrooms is not the best thing and I’m a blind adult who was a blind child who got no services and I’m telling you these kids would be so much better off if they were in school so much better off I received no help whatsoever granted this was years ago, but Still the fact that my life would’ve been 100% different and I would’ve graduated with the training I needed would’ve made a huge difference. You have to understand that they’re in there with regular kids. They’re not special they need even if they’re in special ed because they’re in special ed and school Considered how do I put this nicely not enough to do shit in our classroom or books only went to fourth grade even though kids like me could do more in free algebra the other kids couldn’t so what that means is that everybody does fifth grade math, whether your higher or not and you do it for four years straight you don’t ever get new stuff so that means if you have a child that is blind, but has no learning disabilities you’re making them have learning disabilities. People do not seem to understand this concept at all a friend of mine was what was self-contained there was a kid there who was blind well visually impaired, but nothing else was wrong with him really But he was treated like all the other kids in the classroom who watched Disney and eventually did a few math problems of 2+2 is streaming trust me you do not come out better off
I pray in the Spirit to the almighty one Jesus Christ of Nazareth Immanuel God with us, El Shaddai the Most High, I speak in authrority in the name of Jesus Christ And Every Sickness, Every Illness, Diease, Blindness The Devil has upon these little ones I break the Curse in the name of Jesus Christ, Let them be healed in the name of Jesus Christ The Will is Done
My son, 23 weeker, has ROP. He had Avastin injections, laser surgery and a vitrectomy for retinal detachment. A week ago, we learned his retinas have detached again. Already severely visually impaired, and expected to lose all vision in early adolescence. I will be reaching out to lighthouse after this video and hearing about them from John Hopkins all children’s hospital. Thank you
Any updates
I was diagnosed with retina detachment at 4 months old and completely blind in one eye. Life is difficult, but, just keep pushing ❤
I am a mother of a blind baby .. People in Florida are so lucky to have you. I really wish if we have somewhere to help us to deal with our babies like you do in our country 😞.
You might not be in Florida, but you still have somebody that can help He is the holy Eternal one, Son of Man, Son of God, The Redeemer Jesus Christ Our Lord and Saviour for when there hung Jesus Christ to the Cross, his last words were Father it is Finished, Yes indeed it is finished the plots of the devil are done, Our God is an Awesome God, our God died for us, now It doesn't matter if you're Muslim It's not Shirk to believe in the truth Jesus Christ is Lord Confess with your mouth and you will be Saved there is power in the name Jesus Christ, He heals Sickness, Blindness and right now I pray in Jesus Name that your Baby is Healed in the mighty name of our LORD and Saviour Jesus Christ
ايش عملتي الان
me to..
my daughter..she was born at 6 month but she's wasn't blind ,due was neglected to the point that her retina tore from the back
she's 3 now and God has been wonderful to use
Amen God bless you I have a daughter too who is blind but I believe that the almighty God will do his wonders because is is God and he never fails
🎉get together with others in the same situation! & start a 'charity foundation' people will donate❤
Thank you for this, I'm motivated to go on with my major Special Needs Education. 🥺❤️
❤
❤good luck is wished for your future!🎉
Thank you for this video we just had our baby that was born blind , and looking for any info and help ❤
I am visually impaired myself from glaucoma, aphakia, nystagmus, microcornea, and I was born with a damaged optic nerve. I was also born with cataracts as well.
I hope this message finds you well. My name is Abbas Ismail, and I am writing to you from Zaria, Kaduna State. I work as an admin assistant at the Distance Learning Centre, Ahmadu Bello University.
I am visually impaired and have very low vision, which significantly impacts my ability to read writings on paper, even with reading glasses. Currently, the only way I can manage to read is by taking pictures of documents with my phone and zooming in on them. This workaround is far from ideal and has become increasingly challenging and psychologically taxing.
I am reaching out to you to request any assistance or recommendations you may have to help improve my situation. Any support, whether technological or otherwise, would be greatly appreciated and would make a substantial difference in both my professional and personal life.
Thank you very much for your time and consideration.
Sincerely, Abbas Ismail
Depends on the child. Attach the visual stimuli to specific musics enjoyed by the bairn. Obviously one visual stimulation is the face of the parent so as to correlate with the particualr tune. However, then have a different tune per other picture such as a bun to rhyme with the number1 or a shoe to rhyme with the number2 and a tree to rhyme with the number3 whilst saying it and showing it, such that counting 1-2-3 is learned eventually by means of repetition and partial reinforcement reward schedule _(and feeding, since it is to form "healthy addiction" to knowledge and sensory improvement)._ This is information to help people, so their bairns can learn counting and objects visualised. Use gaming graphics to reduce pain (if any).
Optic nerve damage in conjunction with an implant could further develop this where the eyeball is ok but the signals to the brain are impaired. Thereby machine-learning can be deployed. Then somewhat fund it by selling the tunes.
My comment has no hate in it and I do no harm. I am not appalled or afraid, boasting or envying or complaining... Just saying. Psalms23: Giving thanks and praise to the Lord and peace and love. Also, I'd say Matthew6.
My daughter was born with cystic kidneys and visual impairment. Would love to connect with Graces mom and see how she’s doing. Xoxo
I'm mother for baby with cortical visual important.
She is one year old and I know about her diagnosis only befor tow days and I don't know how can I help her .I need more information about CVI
Plz .
ساره طمنينا كيف عملتي . انا ابني عمره ٥ شهور واكتشفت الان انه يحتاج عمليه في عيونه
ردي ساره بليز
عند انهي دكتور رحتي
My baby has vision problem. Tomorrow going for MRI. Can someone share about better treatment place. Is it curable normally?
How is your baby
I was born with congenital nystagmus, ocular albinism and strabismus. I had a great childhood and they learn to accommodate.
Well we two are same!!!
My baby Antony is 2 years old & he is blind because of retinopathy of prematurity grade 5 . Can some one help me how can I learn him how to eat & speak
Wish I could get the help also with so many things😔
@@worshippingandpraisinggod5626 thanks a lot for your comment but can I ask you about your nationality
I was wondering if your baby got his surgery at bascom Palmer eye insitute because my baby got her eye surgery their too
what is the name of the toy with yellow handle in the video at 08.21?
+Bilal Khan It's a spin light toy--you can find them at Kings Dominion or other theme parks. Feel free to google it; here's one link that came up: www.amazon.com/Flashing-Panda-Changing-Pattern-Spinner/dp/B002GEJYHI
I hope this message finds you well. My name is Abbas Ismail, and I am writing to you from Zaria, Kaduna State. I work as an admin assistant at the Distance Learning Centre, Ahmadu Bello University.
I am visually impaired and have very low vision, which significantly impacts my ability to read writings on paper, even with reading glasses. Currently, the only way I can manage to read is by taking pictures of documents with my phone and zooming in on them. This workaround is far from ideal and has become increasingly challenging and psychologically taxing.
I am reaching out to you to request any assistance or recommendations you may have to help improve my situation. Any support, whether technological or otherwise, would be greatly appreciated and would make a substantial difference in both my professional and personal life.
Thank you very much for your time and consideration.
Sincerely, Abbas Ismail
I have Retinopathy of prematurity and Uveitis and a long history of medical problems.
I have ROP as well and Glaucoma in my good eye
Kayla Johnson
🖤❤️🖤❤️🖤❤️
In 2005 I was diagnosed with Juvenile Rheumatoid Arthritis and Uveitis and I have been through an Iritis.
My son also have rop stage 5, hope i can find someone to help my son.
I don’t know my stage of ROP. I am 13 (almost 14) and I am legally blind. I was born at 25 weeks gestational age, but have decent vision for being severely vision impaired.
They actually thought I was dead. My mother had preeclampsia. I was born in 79. They had already told my mother I’ve had died. I was born alive when one pound 8 oz. they told my father not to tell my mother. I was alive because I wouldn’t live after three days, he told my mother then told him I would be blind because I had written off the prematurity back then babies were given 100% oxygen, it basically was a guaranteed blindness .
I was probably five before I saw anything I had very little in terms of intervention nothing except special Parag glasses into this day. I don’t understand why I can remember in high school and having no books because I couldn’t read them eventually the school was able to get me two books, two books 4 was computer class taken out I was blind and couldn’t see the screen so they put me in staple papers, the school system completely failed me. I was getting no blind straining because I was also learning to disabled. It was just a total wash as far as they were concerned. I still was never trying to use jaws. During my high school years I actually found out about program paper for the first time was to do an assignment with my friends price ever finding out that I could’ve gone to the blind school I live 10 minutes away from the school 10 minutes. I could’ve been trained instead. My father was looking up to be able to afford a month and a blind school so I could get basic training to get a guy dog. My own state did not want to help me because of my learning disabilities. It was found out while I was there amazingly I could actually type for some reason I’m able to understand the letters and type keyboards are never understood. The school had severe learning disabilities in charge of me. I remember the teacher sliding the broke keyboard in front of me and telling me what’s right I can’t spell but he made a very simple sentence blown away.
I just feel so sad that I was never given the opportunity to even try and was given no help. If I had then I wonder where I would be.. There’s also balls that have bells in them and beeping sounds one of the kids fathers was talking about playing ball. He can still can, but you can buy from a company called Maxi aids so everything blindness related..
🎉I love your information at the end of your message about the MAXI company❤
Mainstreaming kids and regular classrooms is not the best thing and I’m a blind adult who was a blind child who got no services and I’m telling you these kids would be so much better off if they were in school so much better off I received no help whatsoever granted this was years ago, but Still the fact that my life would’ve been 100% different and I would’ve graduated with the training I needed would’ve made a huge difference. You have to understand that they’re in there with regular kids. They’re not special they need even if they’re in special ed because they’re in special ed and school Considered how do I put this nicely not enough to do shit in our classroom or books only went to fourth grade even though kids like me could do more in free algebra the other kids couldn’t so what that means is that everybody does fifth grade math, whether your higher or not and you do it for four years straight you don’t ever get new stuff so that means if you have a child that is blind, but has no learning disabilities you’re making them have learning disabilities. People do not seem to understand this concept at all a friend of mine was what was self-contained there was a kid there who was blind well visually impaired, but nothing else was wrong with him really But he was treated like all the other kids in the classroom who watched Disney and eventually did a few math problems of 2+2 is streaming trust me you do not come out better off
Sir, my child has cvi problem how do recover from it sir
You need to do vision therapy and physio therapy for that
Have you started your child's treatment?
I pray in the Spirit to the almighty one Jesus Christ of Nazareth
Immanuel God with us, El Shaddai the Most High, I speak in authrority in the name of Jesus Christ
And Every Sickness, Every Illness, Diease, Blindness The Devil has upon these little ones
I break the Curse in the name of Jesus Christ, Let them be healed in the name of Jesus Christ
The Will is Done
Evangelist Netasyahu Miller
I 💜 you and that was beautiful. I'm Visually Impaired and you just made my day.
Amen
I am 24, and i am suffering from retinoschisis :(
Jasper Lim oof as a 30 year old are you better now
How are you now?
Fransisco's mom looks remarkably like Erin Cahill.