Living With Inappropriate Sinus Tachycardia: Being Your Own Advocate
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- Опубликовано: 4 сен 2024
- Hey y’all! 💛 Thanks for stopping by! I hope this video bring some guidance and peace to whoever is watching. You’re not alone in this isolated world of chronic illness. Love you!
I don't know anyone else who has IST, so thank you for making this video. It's so easy to get discouraged when it seems like no one is taking me seriously. My pediatric cardiologist diagnosed me with IST when I was 16; he told me to cut back on caffeine and salt and to come back if my heart rate went over 200. At that point, it was completely manageable and more of a nuscience than a concern, so I never went back and aged out of his office. It stayed manageable until right before I turned 20, but I was 12 hours away from home at college. I ended up going to the ER when my heart had been fluttering for about 3 hours; they did an x-ray and my heart was fine, so I was referred to the in-hospital cardiologist. Went to that cardiologist who said my heart was fine, so when summer came I went to my GP. She put me on 25mg of beta blocker that we ended up changing to 50mg when the 25 hardly helped. 50mg was a miracle for two weeks, but everything slowly started coming back. Now, it's worse than ever before and I'm seeing an electrophysiologist to figure out what to do. I'm halfway into a 30 day heart monitor and the highest it's gotten was 160 after two flights of stairs, but it gets into the 120s almost everyday just from walking around campus. I've been losing my breath more frequently as well and am constantly tired. It doesn't help that I have anxiety and have been under extreme stress due to a family member's health problems for almost a year now.
Any updates? Please do provide as i have same condition.. I'm 20
I also get out of breath what should we do then 😭😭
Cbs
CbD
low iron
hey im 23 as well and i just recently got diagnosed with sinus tachycardia as well as bradycardia, all of these symptoms were triggered by a really bad accidental caffeine overdose i had! i think the reason why these symptoms are so bad for me is because of POTS i was previously unaware of but that remains to be diagnosed. thanks for putting this video out there its given me a little hope. when i first started getting symptoms really bad they said that i had anxiety and psychosis and threw me in a mental hospital where they accused me of lying for attention and diagnosed me with bpd. im incredibly frustrated and hurt because ive run into the same bullshit from doctors claiming that just because im young there cant be anything wrong when my pulse can go from anywhere between 40 and 146 for practically no reason. ive been dealing with this for three months and really hope i find some answers and help soon. i hope youre getting better with your IST! thank you again for posting this. its nice to see someone else my age talking about this!
omg I didn’t realize how many other people have this I got diagnosed in 1st grade! I’ve always felt so alone bc I never knew anyone! Much love to all you guys!
I totally agree 100 percent about being your own advocate! I’ve had doctors tell me that further tests aren’t needed when I wanted to take a few different ones.
Thank you for this video.. I don’t feel alone.. I just got diagnosed 3 days ago. Dealing with this problem for 3 months. 8 times to the ER all the doctors kept saying is anxiety go home. I finally got diagnosed..it’s pretty scary to deal with this.
3 months here too! did your condition end up improving? i got put on beta blockers
@@bunnybabe3601 I have my days that I improve and my days that I don’t. But COMPRESSION STOCKINGS have help me. My doctor did give me Midodraine.. but I’m not taking it yet.. I want to do it all natural. But I have my days that I just want to take it
Jearing this gives me confidence. Ive always just listened to the drs and it ended up in me being misdiagnosed for 2 yeara as only having anxiety. I didnt understand because yes it causes anxiety ive alwats had anxiety and i also had panic disorder that i beat. It all cam back with a wide variety of symptoms ive never had and weird stuff with my heart. Like PVCs and days where my heart wakes me from sleeping and is stuck in the 130 range all day sitting and moving jumps it up to 160. My symptoms arent always that bad. My last e.r. trip kept me all day almost fainted going in. They actially listened and tested everything and said POTS and IST. And now my new cardiologist actually listened to me. I am so thanful. I am not gpod with people and just go with what drs say. I never get sick so ive never gone to the dr tp see other causes for my anxiety and panic until it got rwally really bad. Healthcare should ve better. And any young women they always go straight to anxiety. My pcp i could walk in with my arm cut off and shed tell me its anxiety as if i dont know what anxiety and panic feels luke living with for 10 years.
completely feel you on that :(
Thank you for making this video!!!! I just got diagnosed with IST 3 weeks ago and it's been crazy. Literally my heart was always at 120 and my doctors never bothered looking into it until I was having episodes in the 180s. It's crazy.
Thank you for posting your videos they has truly helped and encourage me. Ventricular fibrillation and ventricular tachycardia. I also have been diagnosed with congestive heart failure its been 7 years now. I ended up getting a defibrillator 2 years ago. I haven't had any problems. It was weird at first being inside my body then, I got used to it. I used to drink a ton of coffee. My defibrillator has gone off once last year 7 times in one day.
I haven't had any problems with it. Although it was weird at first being inside my body then I got used to it.I spent 3 months in a cardiac rehab program that was the best support I've ever had I recommend going to cardiac rehab if you ever have a chance they saved my life and so did my defibrillator .
Thank you for this! I got diagnosed with IST a couple months ago aswell as Rheumatoid arthritis. Doctors will look a you like your crazy but you are right when you say that we know our bodies more than our doctors do.❤ Sending love ❤
how are you doing ! just got diagnosed
Hey Alyssa I wanted to say good job keeping on keeping on! It’s awesome to see you offering advice and comfort to those who also suffer some similar condition. God bless you and I will be praying for strength and peace and a cure for you!
Thank you for sharing this.I have got a similar issue at your age &you are absolutely right on advocating yourself.
My friend I mentioned before is 24, similar age to you and I shared her your video !
I have anxiety, bad... and recently it's been feeling different. I told my primary care, and he wrote it off as anxiety (like he tries to do everything else) hell NO, I demanded to see a cardiologist, I'll be taking a echo test soon. I know my body and I know something isn't right hospital told me Inappropriate Sinus Tachycardia. And nothing else... that's not good English for me. I don't want to go the beta blocker route. I'd like to deal with this naturally...
Do you have chronic chest pain? Sigh I have it with the sinus tachycardia
@@jodyjae it just feels like there is something heavy on my chest and I hate it. Or I'll have sharp pains on my chest.
When they told me I have sinus tachycardia, they say it could be anxiety related. They gave me beta blockers but I've chosen not to take them
@@jacksonstar92 jeez same here my chest pain has been on me since a month now.. It's basically right in the center of my chest but I can also feel it on the right side too... My doctor said it's because of my intense anxiety and fast heart rates which are over 100 at times.
@@jacksonstar92 I hate this for us.. It's like a living nightmare.. I can't remember when I actually had a normal day.
Took three years to get my diagnosis- on after I flipped out I was referred to a md who specializes in it and has IST to been on propanol and Zoloft (as I have depression)it works kind of the fatigue is so bad and I’m over the sweating only way to describe it is intense fight or flight mode
R u still having Tachycardia now ? I also diagnosed with this
I was diagnosed yesterday. I am doing research now and I am feeling kind of scared. I want to learn more. Hoping that I don't have anything else that comes along with it. I would love to talk with you about it If you are willing. Thank you for this video
Same and im 12 yrs old it sucks
Hey I just got diagnosed 3 days ago.. dealing with these symptoms for 3 months. I am also scared..
@@denisemoctezuma8632 hi! I have IST myself, had it for 7 years now, don’t be afraid.. come to terms with that first, you need to be tough and just learn from your body. It’s a very uncomfortable lifestyle due to symptoms but if you learn what helps it’ll become second nature, I have gone through 4 different beta blockers and am allergic to calcium channel blockers so can’t take those either and now maybe be having an ablation or pacemaker put in. I have my days where I feel worse than other but don’t be scared!!
@@nataliamorales9367 thank you for replying back to me.. how do you deal with it every day?
@@denisemoctezuma8632 well I take my metoprolol 100mg in the morning, my pulse seems to respond well some days to the medication but the days it doesn’t I feel tachycardia all day long and it’s horrible, distract yourself and don’t think about it, if your blood pressure can tolerate it I take a bit more medication and it usually helps, I like to do a carotid massage too, seems to help and calm me down! Sit and take Deep breaths! It sounds easier than it is but you’ll learn what calms you! Are you on medications yet?
Hi! Thank you for this video. I was diagnosed with ist today! I know nothing about it so I'm just trying to be more knowledgeable about my condition. I've been having episodes for about a year and have fainted 3 times! Is ist a chronic condition or is it curable? I've been doing research but I'd like to get any information from people who actually have it. Any information would be greatly appreciated!
You also don't have to self medicate. There's effects and things with every medication.
What help I am also suffering and I feel I will die
How are you now?
I got paralyzed due to sinus tachycardia 144bpm did u got paralysis?
How are you doing now ?
What helps with this sweetie