Excellent report. As a recently diagnosed 62 year old, I thank the producers at 60 MINUTES for bringing to light a little known disorder, that is often overlooked.
Glad you found it helpful. I was the one who brought this story to CBS News 60 Minutes and set them up with the patients, the doctors, the research... The producer said that this story received the most feedback than any other story they've ever done.
Glad to hear your primary care doc recognized the symptoms and you were able to be helped. Many primary care docs are quick to diagnose Alzhiemers, Parkinson's, or some other form of dementia.
It's good that hydrocephalus has better exposure in the USA. Here in Australia, the medical profession know but mention it to others and it's "What does that do?". I had 2 subarachnoid haemorrhages in 2018. It wasn't until I had the MRIs that it was discovered I had NPH but was asymptomatic as I didn't have the usual side effects which is apparently quite rare. I don't have a shunt and I'm nearly 61 years old. I'm glad that the people in this story have been given a better lease of life. Cheers.
It has been my experience from working on media campaigns about NPH, that you need to find a neurosurgeon who "knows" NPH and "knows what to look for" in order to properly diagnose it. So many people get misdiagnosed because their doctors miss it. The MRI will show the enlarged ventricles in the brain -- then a spinal tap / lumbar puncture is another key test. If you remove spinal fluid, which is produced in the brain, and then your symptoms dramatically improve, then you know you can be treated -- that a shunt will/may work. That spinal tap "return to normalcy" is only temporary because your body is still producing the cerebral spinal fluid, and your brain ventricles will start expanding again. (I am not a doctor/medical professional, I just did media outreach on this condition for 10 years, worked with a lot of neurosurgeons, and met a lot of patients who were returned to normal with the implantation of a shunt to regulate their fluid flow.)
@KTaylorTV1 thanks for that post. Yes, I did have a CSF study flow that was a lumbar puncture and radioactive dye was injected into my spinal cord, then scans (not MRI, I can't remember the name of the machine they used) were performed for the next three days. A year later, I had a cognitive test, another lumbar puncture and this time about 40 mls of CSF removed then another cognitive test. The result? No difference at all. So a shunt won't help me at all and that's why no one ever knew I had hydrocephalus all my life.
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Excellent report. As a recently diagnosed 62 year old, I thank the producers at 60 MINUTES for bringing to light a little known disorder, that is often overlooked.
Glad you found it helpful. I was the one who brought this story to CBS News 60 Minutes and set them up with the patients, the doctors, the research... The producer said that this story received the most feedback than any other story they've ever done.
Thank you - my amazing primary care diagnosed this last fall and I now have a shunt ( call her Nessie) ❤
Glad to hear your primary care doc recognized the symptoms and you were able to be helped. Many primary care docs are quick to diagnose Alzhiemers, Parkinson's, or some other form of dementia.
It's good that hydrocephalus has better exposure in the USA. Here in Australia, the medical profession know but mention it to others and it's "What does that do?". I had 2 subarachnoid haemorrhages in 2018. It wasn't until I had the MRIs that it was discovered I had NPH but was asymptomatic as I didn't have the usual side effects which is apparently quite rare. I don't have a shunt and I'm nearly 61 years old. I'm glad that the people in this story have been given a better lease of life. Cheers.
It has been my experience from working on media campaigns about NPH, that you need to find a neurosurgeon who "knows" NPH and "knows what to look for" in order to properly diagnose it. So many people get misdiagnosed because their doctors miss it. The MRI will show the enlarged ventricles in the brain -- then a spinal tap / lumbar puncture is another key test. If you remove spinal fluid, which is produced in the brain, and then your symptoms dramatically improve, then you know you can be treated -- that a shunt will/may work. That spinal tap "return to normalcy" is only temporary because your body is still producing the cerebral spinal fluid, and your brain ventricles will start expanding again. (I am not a doctor/medical professional, I just did media outreach on this condition for 10 years, worked with a lot of neurosurgeons, and met a lot of patients who were returned to normal with the implantation of a shunt to regulate their fluid flow.)
@KTaylorTV1 thanks for that post. Yes, I did have a CSF study flow that was a lumbar puncture and radioactive dye was injected into my spinal cord, then scans (not MRI, I can't remember the name of the machine they used) were performed for the next three days. A year later, I had a cognitive test, another lumbar puncture and this time about 40 mls of CSF removed then another cognitive test. The result? No difference at all. So a shunt won't help me at all and that's why no one ever knew I had hydrocephalus all my life.
Thank you!!
Hope this story is helpful.
Wow!
Yeah... I was amazed that so many doctors miss this diagnosis.