I just finished your whole video. One of the best videos I've ever seen regarding prostate cancer.!!!! Especially the last thing you said. "Took hormone injections for one year and told him no more!" Excellent!!!! AND YOUR OKAY!!!!!!! It just proved to me that I am going to REFUSE ALL ADT treatments! I just don't believe that taking away testosterone does any good except make you sick! One of those shots cost around $4,000❤. THATS. why they want to give you these medications. Just my opinion. Please anyone don't get mad at me for saying this.
1:51 Nicolai, every patient is different and not completely predictable... to many factors. Do as your docs ask or instruct, be positive! There are many options and it's a great time to be alive.
Yo Steve.. I just got the same news.. Will do Radiation Therapy.. ...Great Video. Good to see you.. Michael .. This is common for Black Folks.. I knew you were Black.. Welcome to my hood.. ( Humor may help)
On July '23, i got PSA 2.6. On 8/28/23, i got MRI Prostate showing Pirad 4. On 9/7/23, i did biopsy. In 97 hrs i get results. Its been a whirlwind, terrifying few wks thats been harder to deal with trying to hide news from elderly mom with heart condition. I appreciate every moment like I've never had before... trying to take it all day by day....thank you for ur inspiring testimony...
Great attitude. We are able to exert enormous amounts of positive healing energy on our inner and outer environments. So just do it. When we take on an active role in our pathway we can shape our outcomes. So stay focused and intentional. I wish you the best.🙏🏻
Thank you so much! As a person who was diagnosed 3yrs again with Prostate cancer and I said, "What the heck! Just do your part, do what the doctor tells you and let God call the shot"! Hopefully not anytime soon 😊
I had a PSA test done back in 2017 with a result of 1.1 total. I’ll be 51 yrs old next month. Recently had another PSA test done about 2 weeks ago and the results came back as 5.83 total. My brain is working on overload trying to understand how it increased so much in 5 years. Now have my first appointment with a Urologist first week in August. Any advice?
@@Midnitexowboy I think that will be the next plan . I’ll be meeting up with my urologist again next week to go over some results of another PSA and an MRI I had done this past week. It was 3 part results. PSA total with Free PSA and % Free PSA/PSA ratio. PSA total 2.3, PSA free .2 and PSA % free 9 highlight in bold red. I read some information that states that PSA % free is supposed to be greater than 25% (which mine is at 8.695 but they rounded it up to 9%) and that the lower percent-free PSA means that chances of having prostate cancer is higher. My MRI results- FINDINGS: Multiparametric MR imaging of the prostate was performed on a 3 Tesla system before and after intravenous injection of Dotarem without reported complication. 3D reformatted images of the prostate gland were performed by myself on a separate workstation. PROSTATE SIZE: 5 x 3.5 x 4 cm for volume of 32 cc, top normal in size. PERIPHERAL ZONE: There are linear areas of T2 signal throughout the prostate gland. There is asymmetric low T2 signal in the posterolateral right mid gland through base prostate, for example 13 mm with a somewhat indistinct nodular appearance on series 4 image 21. This has faint (if any) asymmetric elevated DWI and low ADC map signal compared to the remaining peripheral zone, but does have mild asymmetric focal hyperenhancement (series 9 image 199). While it is more likely a focus of prostatitis to account for elevated PSA given lack of significant restricted diffusion, this could be considered indeterminate on baseline MRI (PIRADS 3); no extracapsular extension. Incidental note is made of a benign cyst or potentially ectopic cystic BPH nodule in the lateral anterior right apex (PI-RADS 1). TRANSITION ZONE: There are a few BPH nodules. No suspicious lesion. PI-RADS 2 ADDITIONAL FINDINGS: The seminal vesicles are normal. The bladder is underdistended which likely accounts for circumferential wall thickening. No suspicious osseous lesion. The partially imaged bowel is grossly unremarkable. No pathologically enlarged pelvic lymph nodes. No pelvic ascites. IMPRESSION: T2 hypointensity in the right mid gland to base peripheral zone, more likely sequela of prostatitis given lack of suspicious DWI signal but could be considered indeterminate for tumor on baseline imaging (PIRADS 3) given slightly nodular appearance and mild asymmetric enhancement. This can be followed with MRI surveillance in 6 months as well as continued PSA surveillance. This was marked on reconstruction software if the patient is planned for targeted biopsy.
PI-RADSTM v2.1Assessment Categories PIRADS 1 - Very low (clinically significant cancer is highly unlikely to be present) PIRADS 2 - Low (clinically significant cancer is unlikely to be present) PIRADS 3 - Intermediate (the presence of clinically significant cancer is equivocal) PIRADS 4 - High (clinically significant cancer is likely to be present) PIRADS 5 - Very high (clinically significant cancer is highly likely to be present)
Don’t do a biopsy immediately. Get the MRI done. If the MRI shows something, ask if you could have a PMSA done with MRI. If you’re going to have the biopsy done, go to a national institution. Don’t go to your local town doc. If your biopsy is 3+4 or lower, consider active surveillance. Remember, the “standard of care”, means very different things at different institutions. At some institutions., 3+4 means treat, at others it may means look at active surveillance or some type of ablation therapy. Hope this helps.
I just started watching your video and I have to make one comment. You said you opened up and told everybody about your prostate cancer. I totally disagree. You could tell a few people maybe your sons and daughters but to tell everybody?.... I beg to differ. 6 months ago I was diagnosed with prostate cancer. I told two or three people and told them not to tell anybody. Really nobody wants to hear about it unless they know or themselves are going through the same problem. And that's with any sickness. In fact most people don't want to hear about that stuff. Again this is just my opinion. And I talked to many people about this subject and they all agree. Most people feel uncomfortable while you talk about your problem. Now a few more people know about my prostate cancer in I could tell that they really don't want to ask me how I am doing. So I really try not to talk about it. Only a couple people I feel comfortable talking about it and they seem to be interested. So yes I have a very small support group.lol. now I am going to listen to the rest of your story.
When you were diagnosed didn't you find out what the Gleason score was the volume of the score your PSA very important questions. Cuz you didn't say that you had a PSA .....BEFORE The biopsy.
I'm a bit confused. If he removed his prostate after the first diagnosis, how did the can returned? I'm concerned because i just removed mine 2 weeks ago and now dealing with the side effects
“Removing “ the prostate is not the same concept as removing all of the cancer cells. Undetectable Cancer cells may have migrated from the prostate before surgery.
@@Malecare Ok, understandable. So when then cancer returned where did it returned, what parts of the body? Sorry for questions but I'm sure you understand why.
Boy I really hate to say this cuz you seem like a nice guy and I love your story but..... At 47 you look like you're close to 70 so I would think what 25 years ago maybe? Back then they didn't have their equipment to do it accurate specific test for this prostate cancer. You could have very well have been misdiagnosed. Overtreated. You never mentioned what your original Gleason scores were. How many cores they took with the biopsy and what was your PSA first! I know one dude that 30 YEARS years ago the only test he took was a digital! And a PSA test which was only four! And they did a prostatectomy immediately! He never had any reoccurrence.
What a great guy.
God bless.
Thank you for watching
I just finished your whole video. One of the best videos I've ever seen regarding prostate cancer.!!!! Especially the last thing you said. "Took hormone injections for one year and told him no more!" Excellent!!!! AND YOUR OKAY!!!!!!! It just proved to me that I am going to REFUSE ALL ADT treatments! I just don't believe that taking away testosterone does any good except make you sick! One of those shots cost around $4,000❤. THATS. why they want to give you these medications. Just my opinion. Please anyone don't get mad at me for saying this.
If only I had access to a PSMA earlier than I did. Hopefully those in front of us will have a better fight.
1:51 Nicolai, every patient is different and not completely predictable... to many factors. Do as your docs ask or instruct, be positive! There are many options and it's a great time to be alive.
Yo Steve.. I just got the same news.. Will do Radiation Therapy.. ...Great Video. Good to see you.. Michael .. This is common for Black Folks.. I knew you were Black.. Welcome to my hood.. ( Humor may help)
On July '23, i got PSA 2.6. On 8/28/23, i got MRI Prostate showing Pirad 4. On 9/7/23, i did biopsy. In 97 hrs i get results. Its been a whirlwind, terrifying few wks thats been harder to deal with trying to hide news from elderly mom with heart condition. I appreciate every moment like I've never had before... trying to take it all day by day....thank you for ur inspiring testimony...
Great attitude. We are able to exert enormous amounts of positive healing energy on our inner and outer environments. So just do it. When we take on an active role in our pathway we can shape our outcomes. So stay focused and intentional. I wish you the best.🙏🏻
Thanks for your supportive comment
Great soul , God may bless you with good health . Your journey is really inspiring and it instilled good hope and strength .
Thank you so much! As a person who was diagnosed 3yrs again with Prostate cancer and I said, "What the heck! Just do your part, do what the doctor tells you and let God call the shot"! Hopefully not anytime soon 😊
Thanks. It really gives you confidence and direction.
Good this inspired you
U are. Hero ❤
Awesome. Thanks. I am in the second round. Love your attitude. We will do it.
I don't think you should tell anybody I told a few people and I regret it to this day. They all look at you differently.
I had a PSA test done back in 2017 with a result of 1.1 total. I’ll be 51 yrs old next month. Recently had another PSA test done about 2 weeks ago and the results came back as 5.83 total. My brain is working on overload trying to understand how it increased so much in 5 years. Now have my first appointment with a Urologist first week in August. Any advice?
just follow doctor,s instructions!
Get ready for biopsy
@@Midnitexowboy I think that will be the next plan . I’ll be meeting up with my urologist again next week to go over some results of another PSA and an MRI I had done this past week.
It was 3 part results. PSA total with Free PSA and % Free PSA/PSA ratio.
PSA total 2.3, PSA free .2 and PSA % free 9 highlight in bold red. I read some information that states that PSA % free is supposed to be greater than 25% (which mine is at 8.695 but they rounded it up to 9%) and that the lower percent-free PSA means that chances of having prostate cancer is higher.
My MRI results-
FINDINGS: Multiparametric MR imaging of the prostate was performed on a 3 Tesla system before and after intravenous injection of Dotarem without reported complication. 3D reformatted images of the prostate gland were performed by myself on a separate workstation.
PROSTATE SIZE: 5 x 3.5 x 4 cm for volume of 32 cc, top normal in size.
PERIPHERAL ZONE:
There are linear areas of T2 signal throughout the prostate gland. There is asymmetric low T2 signal in the posterolateral right mid gland through base prostate, for example 13 mm with a somewhat indistinct nodular appearance on series 4 image 21. This has faint (if any) asymmetric elevated DWI and low ADC map signal compared to the remaining peripheral zone, but does have mild asymmetric focal hyperenhancement (series 9 image 199). While it is more likely a focus of prostatitis to account for elevated PSA given lack of significant restricted diffusion, this could be considered indeterminate on baseline MRI (PIRADS 3); no extracapsular extension.
Incidental note is made of a benign cyst or potentially ectopic cystic BPH nodule in the lateral anterior right apex (PI-RADS 1).
TRANSITION ZONE:
There are a few BPH nodules. No suspicious lesion. PI-RADS 2
ADDITIONAL FINDINGS:
The seminal vesicles are normal.
The bladder is underdistended which likely accounts for circumferential wall thickening.
No suspicious osseous lesion.
The partially imaged bowel is grossly unremarkable.
No pathologically enlarged pelvic lymph nodes.
No pelvic ascites.
IMPRESSION:
T2 hypointensity in the right mid gland to base peripheral zone, more likely sequela of prostatitis given lack of suspicious DWI signal but could be considered indeterminate for tumor on baseline imaging (PIRADS 3) given slightly nodular appearance and mild asymmetric enhancement. This can be followed with MRI surveillance in 6 months as well as continued PSA surveillance. This was marked on reconstruction software if the patient is planned for targeted biopsy.
PI-RADSTM v2.1Assessment Categories
PIRADS 1 - Very low (clinically significant cancer is highly unlikely to be present)
PIRADS 2 - Low (clinically significant cancer is unlikely to be present)
PIRADS 3 - Intermediate (the presence of clinically significant cancer is equivocal)
PIRADS 4 - High (clinically significant cancer is likely to be present)
PIRADS 5 - Very high (clinically significant cancer is highly likely to be present)
Don’t do a biopsy immediately. Get the MRI done. If the MRI shows something, ask if you could have a PMSA done with MRI. If you’re going to have the biopsy done, go to a national institution. Don’t go to your local town doc. If your biopsy is 3+4 or lower, consider active surveillance. Remember, the “standard of care”, means very different things at different institutions. At some institutions., 3+4 means treat, at others it may means look at active surveillance or some type of ablation therapy. Hope this helps.
I just started watching your video and I have to make one comment. You said you opened up and told everybody about your prostate cancer. I totally disagree. You could tell a few people maybe your sons and daughters but to tell everybody?.... I beg to differ. 6 months ago I was diagnosed with prostate cancer. I told two or three people and told them not to tell anybody. Really nobody wants to hear about it unless they know or themselves are going through the same problem. And that's with any sickness. In fact most people don't want to hear about that stuff. Again this is just my opinion. And I talked to many people about this subject and they all agree. Most people feel uncomfortable while you talk about your problem. Now a few more people know about my prostate cancer in I could tell that they really don't want to ask me how I am doing. So I really try not to talk about it. Only a couple people I feel comfortable talking about it and they seem to be interested. So yes I have a very small support group.lol. now I am going to listen to the rest of your story.
Time for a PSMA PET scan.
I'm sorry about the PSA score I just made a comment. He told me that he never knew. Didn't even know what that meant. PSA.
PSMA saved my life.
Good that you found something that worked for you
It seems here in the US we a were a bit late in having a widely available PSMA PET CT Scan. And it has been quite a game changer.
@@robertmonroe3678 Same here in Canada. I just don’t know why it isn’t part of standard care.
@@torontoross hi sr can i ask you where in the world you find PSMA please thanks
@@danielladrondeguevara4064 Here in Toronto.
When you were diagnosed didn't you find out what the Gleason score was the volume of the score your PSA very important questions. Cuz you didn't say that you had a PSA .....BEFORE The biopsy.
I'm a bit confused. If he removed his prostate after the first diagnosis, how did the can returned?
I'm concerned because i just removed mine 2 weeks ago and now dealing with the side effects
“Removing “ the prostate is not the same concept as removing all of the cancer cells. Undetectable Cancer cells may have migrated from the prostate before surgery.
@@Malecare Ok, understandable. So when then cancer returned where did it returned, what parts of the body?
Sorry for questions but I'm sure you understand why.
@@nikkolaicowan5442 Anywhere but most likely in the prostate bed or nearby lymph nodes.
Boy I really hate to say this cuz you seem like a nice guy and I love your story but..... At 47 you look like you're close to 70 so I would think what 25 years ago maybe? Back then they didn't have their equipment to do it accurate specific test for this prostate cancer. You could have very well have been misdiagnosed. Overtreated. You never mentioned what your original Gleason scores were. How many cores they took with the biopsy and what was your PSA first! I know one dude that 30 YEARS years ago the only test he took was a digital! And a PSA test which was only four! And they did a prostatectomy immediately! He never had any reoccurrence.