The Importance of SMA Newborn Screening

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  • Опубликовано: 19 сен 2018
  • www.curesma.org

Комментарии • 6

  • @awaitingaugust1681
    @awaitingaugust1681 5 лет назад +1

    This is amazing. Why is this not a Superbowl commercial?!

  • @jeannieves6275
    @jeannieves6275 10 месяцев назад

    🙏🏽

  • @ngolwenanyangwe9314
    @ngolwenanyangwe9314 3 года назад +3

    Please help me my baby is 9 months has sma 1 he is using feeding tube now . There’s no treatment in our country.

  • @janmac218
    @janmac218 Год назад

    What happens to children born with SMA whose parents are poor and have no health coverage. The drug for this costs two million $$$$. What do they do?

    • @petergriffiinbirdistheword
      @petergriffiinbirdistheword 7 месяцев назад

      Probably depends on where you live but in my state they'd be cared for.

    • @petergriffiinbirdistheword
      @petergriffiinbirdistheword 7 месяцев назад

      Also, parents who cannot afford much are usually on Medicaid - which would cover care. As long as the parents are proactive and take advantage of these things, it wouldn't be an issue. If not, they'd just get a huge bill in the mail every month.