Debra's presentation at Oireachtas Health Committee

On the eve of #RareDiseaseDay2024, Debra’s Head of Advocacy, Research and Policy, Sinead Hickey, along with Deirdre Callis, Head of Family Support Services, and Dr Rosemarie Watson, Debra Board member and former Director of EB Services in Ireland, presented the need for access to health services for people impacted by EB to the Oireachtas Committee on Health.
They were also joined by Casey Connors (who lives with EB) and her mum Rachel.

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