I am so glad you have received positive results from this treatment! I was a clinical trial participant in the 2021 Portland Oregon site. I was so very excited and a lifetime of waiting and hope kept me super positive during the process. I was very committed and was one of the only people to be excepted for the first half of the year. The technically surgery went well and was successful, my results were not noticeable at all. I became depressed very quickly and by about the sixth or seventh month I could not handle the rigorous testing and even thought it might be contributing to damaging the very little eyesight I had left. I have been extremely depressed for the last couple of months over this, but I keep telling myself this can’t be it there has to be more ideas and treatments for this disease that are more efficient and more permanent and more dramatic. Like you, I enjoy putting on make up but I have not been able to see my face in the mirror hardly at all over the last year. I’m also a visual artist by trade. My world is shrinking fast. It is very encouraging though to hear that someone out there has at least had a good experience. And I know things don’t work for everyone. I wish you all the best :-)
@@nelsoncasallas8993 it is very difficult, but I am learning adaptive skills. I use special software technology to operate my phone/Internet. I’m trying to use different devices/magnifiers/etc. to help with my work and general lifestyle. still hopeful that there can be some thing done before all my site is gone. Thank you for asking :-)
What is the current status of the treatment? Has the method or application changed, improved or evolved from a seemingly barbaric needle to the back of the eye?
I am so happy to hear that stem cells are working for people, I hope that research and tests continue with stem cells for vision and anything that it could help like dentistry, or organ transplant...anyways this is very encouraging. I had congenital cataracts in both eyes, had them removed at 16, had YAG laser procedure to remove secondary cataracts at around 23 years old, then an injury to one eye (the distance view eye) with a guitar string snapping off a guitar and hitting my eye, likely piecing it or hitting it hard enough to create a hole, left a scar and a scotoma, but I can see. Hopefully, one day stem cells will be able to give me a natural lens, and get rid of the scar and all of these floaters from the laser and, now at 34 starting to age and get more floaters, but at least I get free eye checkups with an ophthalmologist. recently found out that the artificial lens is smaller than a natural lens which leaves room for retinal detachment, as there's more space for the vitreous fluid to expand. Oh well, hopefully they can make something like this work, or maybe begin able to grow a whole new eye and miraculously attach it.
Thank you for your video it's really informative and I want to thank the woman the who was the very kind to share a story and apparently does that made that a part of her life I have RP I was diagnosed at the age of 27 in 19 guess it was 87 somewhere around there I was still able to drive for many years but my night vision is what you know started to go at first my dad had it too although my dad was actually still driving in his 60s early to mid 60s but probably a really shouldn't have been I've been you know I've heard about the the stem cell and j Street and all that stuff many years back I guess you know it you kind of gave an idea of how long this has been in the pike you know you waited 10 years since your first trials and I'm 61 I'm going to be 62 in a couple of months and I guess I'm going to start putting an effort into looking into this again and maybe there are some trials I live in New York City area well about 80 miles outside of New York City grew up there but I had a really good doctor specialist at Columbia Presbyterian his name was Peter goris who so did research into RP and other diseases similar had retinograms done in the '80s maybe early '90s also I moved overseas to Israel and I picked the opthamologist I'm sorry a retinal specialist out of a book in the insurance company had in a book of doctors you can pick from specialist I just picked her out of the book basically you know stick your thumb down there it was and when she was asking me about my background and I mentioned Dr garis it was funny because she had did her internship or maybe it might have been her PhD under him it was something like that she spent years working on to him a studying unto him so that was pretty weird to move 8,000 miles away to a whole other country and there's a woman who decided to go to the states for her medical degrees and she actually was studied under the specialist you were seeing in New York City pretty crazy right anyway I am going to look into this further again so thank you very much I've watched enough of these videos today just had an urge all the sudden to do a search see what's happening with that and seems they've made some headway so everyone stay safe and see what you was, above the blind bedroom guitarist
How can a person afford this . If Insurance dosent cover it. ? Your a brave person . God bless you . My friend has glucoma , I feel helpless to help him. Will this work for glucoma also .
Any hope for Crvo...dead nerves, due to lack of b.flow ,in central-retinal-vein-occlusion..(still have pher)tho....1 eye ,ok After 3 weeks cataract surgery this happened, I'm scared
During the past 2-3 years stem cell research with regards to the restoration of a dying optical nerve seems to have gone off track or, at least, in a number of different directions. Its being this way makes it difficult to find a specialist interested in the optical nerve while there seems to be plenty involved with glaucoma and diebetes induced vision loss. It is true one has to be a pathfinder or a trailblazer, and have a lot of patience. Bevause getting in to see someone who seems to care feels impossible. An update to thos story would be great, as well as giving more deacription of what had technically gone wrong with the vision to begin with. In the situation i am working with, inflammation and an immune system that is attacking the myelin appears to be the culprit.
I was going to say it's funny how you know those who few who commented on this you know apparently have our fee like I do and you know most of us I like how can we be part of the trial and it's not funny it's sad and I'm not saying that to pity anyone or anything because I've got our piano going to be 62 in a couple of months and it's progressed pretty far and I want to be part of those trials too so I guess we all have to put in the foot of work and see what we can do to try and be part of it or if not part of it in the beginning once it becomes a treatment I wish everybody including myself the best of of Hope and stay positive I know it's hard to tell myself that too sincerely was, Bob's a blind bedroom guitars
I have a rare eye condition that I have been diagnosed with called choroideremia. I'm told that stem cell is my only hope and that trials for that will not begin for at least 5 to 10 years from now. Which,is not true. I need help now. Can someone with the knowledge please help me find the proper help.... please
I have found some clinic in India which have been doing stem cell treatment for a long time now. I am not sure about the genuinity but they claim they have been doing it and having positive results. I myself am in Australia and been looking about it for now. Hope it helps.
I'm 30 years old and I fear I'm going blind, just a matter of time they say 10 or 7 days food fast no food just salts and water activates stem cells I let you know tommarow I may start my fast or snake diet
I am so glad you have received positive results from this treatment! I was a clinical trial participant in the 2021 Portland Oregon site. I was so very excited and a lifetime of waiting and hope kept me super positive during the process. I was very committed and was one of the only people to be excepted for the first half of the year. The technically surgery went well and was successful, my results were not noticeable at all. I became depressed very quickly and by about the sixth or seventh month I could not handle the rigorous testing and even thought it might be contributing to damaging the very little eyesight I had left. I have been extremely depressed for the last couple of months over this, but I keep telling myself this can’t be it there has to be more ideas and treatments for this disease that are more efficient and more permanent and more dramatic. Like you, I enjoy putting on make up but I have not been able to see my face in the mirror hardly at all over the last year. I’m also a visual artist by trade. My world is shrinking fast. It is very encouraging though to hear that someone out there has at least had a good experience. And I know things don’t work for everyone. I wish you all the best :-)
God bless you! Never quit, you will win.
Cleaning colon and alkaline diet helps
How your condition is going?
@@seanelliott2858 Thank you so very much❤️
@@nelsoncasallas8993 it is very difficult, but I am learning adaptive skills. I use special software technology to operate my phone/Internet. I’m trying to use different devices/magnifiers/etc. to help with my work and general lifestyle. still hopeful that there can be some thing done before all my site is gone. Thank you for asking :-)
Very encouraging to hear Kristen talk about the improvement in her sight. STEM cells to do the work its amazing. Giving me hope for the future.
Thanks to everyone of the team for research.Very exciting....!!!
Can it also help u vities
What is the current status of the treatment? Has the method or application changed, improved or evolved from a seemingly barbaric needle to the back of the eye?
When will we get FDA approval?
I am so happy to hear that stem cells are working for people, I hope that research and tests continue with stem cells for vision and anything that it could help like dentistry, or organ transplant...anyways this is very encouraging.
I had congenital cataracts in both eyes, had them removed at 16, had YAG laser procedure to remove secondary cataracts at around 23 years old, then an injury to one eye (the distance view eye) with a guitar string snapping off a guitar and hitting my eye, likely piecing it or hitting it hard enough to create a hole, left a scar and a scotoma, but I can see. Hopefully, one day stem cells will be able to give me a natural lens, and get rid of the scar and all of these floaters from the laser and, now at 34 starting to age and get more floaters, but at least I get free eye checkups with an ophthalmologist. recently found out that the artificial lens is smaller than a natural lens which leaves room for retinal detachment, as there's more space for the vitreous fluid to expand. Oh well, hopefully they can make something like this work, or maybe begin able to grow a whole new eye and miraculously attach it.
Thank you for your video it's really informative and I want to thank the woman the who was the very kind to share a story and apparently does that made that a part of her life I have RP I was diagnosed at the age of 27 in 19 guess it was 87 somewhere around there I was still able to drive for many years but my night vision is what you know started to go at first my dad had it too although my dad was actually still driving in his 60s early to mid 60s but probably a really shouldn't have been I've been you know I've heard about the the stem cell and j Street and all that stuff many years back I guess you know it you kind of gave an idea of how long this has been in the pike you know you waited 10 years since your first trials and I'm 61 I'm going to be 62 in a couple of months and I guess I'm going to start putting an effort into looking into this again and maybe there are some trials I live in New York City area well about 80 miles outside of New York City grew up there but I had a really good doctor specialist at Columbia Presbyterian his name was Peter goris who so did research into RP and other diseases similar had retinograms done in the '80s maybe early '90s also I moved overseas to Israel and I picked the opthamologist I'm sorry a retinal specialist out of a book in the insurance company had in a book of doctors you can pick from specialist I just picked her out of the book basically you know stick your thumb down there it was and when she was asking me about my background and I mentioned Dr garis it was funny because she had did her internship or maybe it might have been her PhD under him it was something like that she spent years working on to him a studying unto him so that was pretty weird to move 8,000 miles away to a whole other country and there's a woman who decided to go to the states for her medical degrees and she actually was studied under the specialist you were seeing in New York City pretty crazy right anyway I am going to look into this further again so thank you very much I've watched enough of these videos today just had an urge all the sudden to do a search see what's happening with that and seems they've made some headway so everyone stay safe and see what you was, above the blind bedroom guitarist
How can I be a part of the clinical trials?
How can a person afford this . If Insurance dosent cover it. ? Your a brave person . God bless you . My friend has glucoma , I feel helpless to help him. Will this work for glucoma also .
Any hope for
Crvo...dead nerves, due to lack of b.flow ,in central-retinal-vein-occlusion..(still have pher)tho....1 eye ,ok
After 3 weeks cataract surgery this happened, I'm scared
Please help suffering from Rp...how to contact u
Hello I am a retina patient there is any treatment for my condition in India
During the past 2-3 years stem cell research with regards to the restoration of a dying optical nerve seems to have gone off track or, at least, in a number of different directions. Its being this way makes it difficult to find a specialist interested in the optical nerve while there seems to be plenty involved with glaucoma and diebetes induced vision loss. It is true one has to be a pathfinder or a trailblazer, and have a lot of patience. Bevause getting in to see someone who seems to care feels impossible.
An update to thos story would be great, as well as giving more deacription of what had technically gone wrong with the vision to begin with. In the situation i am working with, inflammation and an immune system that is attacking the myelin appears to be the culprit.
In Thailand been treatment for many already
Pls can anybody help me in Egypt I need this
I’m suffering from optic atrophy due to optic neuritis in One eye Vision is only 20% Is there a hope and is it possible to have a treatment from you
I was going to say it's funny how you know those who few who commented on this you know apparently have our fee like I do and you know most of us I like how can we be part of the trial and it's not funny it's sad and I'm not saying that to pity anyone or anything because I've got our piano going to be 62 in a couple of months and it's progressed pretty far and I want to be part of those trials too so I guess we all have to put in the foot of work and see what we can do to try and be part of it or if not part of it in the beginning once it becomes a treatment I wish everybody including myself the best of of Hope and stay positive I know it's hard to tell myself that too sincerely was, Bob's a blind bedroom guitars
Great hope . I am also RP patient .how can I contact you ?
How can i be part of this trial or treatment? I am desperate to cure my eyes
@Rylan Thiago you trying what? You also part of this clinical trials?
I hv lost centeral vision how will be a part of the triail plz iam from pakistan
Can this help unities and Glucoma
I have a rare eye condition that I have been diagnosed with called choroideremia. I'm told that stem cell is my only hope and that trials for that will not begin for at least 5 to 10 years from now. Which,is not true. I need help now. Can someone with the knowledge please help me find the proper help.... please
I have found some clinic in India which have been doing stem cell treatment for a long time now. I am not sure about the genuinity but they claim they have been doing it and having positive results. I myself am in Australia and been looking about it for now. Hope it helps.
How can i contact you
Hii bro you from
I was in California from 2023 till 2019 i wish i knew about it... leaving Cali is like existing with no breathing o2
I'm 30 years old and I fear I'm going blind, just a matter of time they say 10 or 7 days food fast no food just salts and water activates stem cells I let you know tommarow I may start my fast or snake diet
How it's going? I'm also 30 yo. Same condition.
So many people living with rp and then to see other people saying there getting is this only for some people
Pliz halp me I am indian treatment ha