I think I may have asked before, but what's the rescue med you take? Raelynn takes Diastat for seizures not slowing down after 5 minutes, and Clonazepam for many clusters of seizures that occur within an hour or two. Raelynn has many, many seizures in public (just this evening, actually). As her parent/caregiver, my experience is that it's more difficult to help her during a seizure in public. It usually means that she's in her wheelchair, which means that there's a higher chance of her injuring herself (as opposed to being in her soft bed).
I ave seizures in public itz not nice experience lukily am wit ma suport most tr tym but i ave had 1 on ma own like in asda & te staff ave luked afta me wich i rely appreciated & te ambulance pple. I feel scare wen i ave 1 in public even wen am wit suport but worse wen am on ma own.
I think I may have asked before, but what's the rescue med you take? Raelynn takes Diastat for seizures not slowing down after 5 minutes, and Clonazepam for many clusters of seizures that occur within an hour or two. Raelynn has many, many seizures in public (just this evening, actually). As her parent/caregiver, my experience is that it's more difficult to help her during a seizure in public. It usually means that she's in her wheelchair, which means that there's a higher chance of her injuring herself (as opposed to being in her soft bed).
So sorry to hear this! I hope she’s resting well ... I have the same medication for cluster seizures (clonazepam). Thank you for sharing your story 💜
I ave seizures in public itz not nice experience lukily am wit ma suport most tr tym but i ave had 1 on ma own like in asda & te staff ave luked afta me wich i rely appreciated & te ambulance pple. I feel scare wen i ave 1 in public even wen am wit suport but worse wen am on ma own.