Harlow is amazing. Even though you were making her food she's like "Hey, take a break." Good dog! You should get a barstool tall enough that your hips are at the same hight they are when you're standing. That way you can prep while sitting. That or prep at the dinner table.
Again, thank you so much for sharing your life here. You have inspired me to find a pain management doctor. I saw her the first time Tuesday. She is wonderful, and she has given me so much hope for having less pain in the future. I have to see an EDS safe neurosurgeon next week about my neck, and I've seen an oral surgeon to help with my jaw. I am optimistic for the first time in a very long time. Thank you, thank you, thank you!
Cindy Hayes how did things go with your pain doctor? I had a great one, but then had to switch to a different insurance and all new doctors... and they’re insanely against opioid pain medication. I want my other doctors back; they aren’t paranoid. They have empathy. The so-called “opioid crisis” is just punishing people with actual pain.
I'm so glad you're pain free! I've had multiple injections to try and alleviate my chronic pain (specifically my right hip) and none of them worked. However I've also had multiple hip surgeries which could be why the pain in that joint is much worse than all of the others. It also takes me roughly two hours to fall asleep at night due to unbearable joint pain so I'm happy that you slept well. The life of a chronic illness warrior, we just gotta take things day by day and appreciate any relief we can get, even if other symptoms are having a flare up.
Jaquie, I don't know how you do it. You are so brave and so strong you never give up no matter how many setbacks, pain or the difficulty of your life is. You are such a positive inspiration! I pray for you everyday. God Bless you. Respectfully Mrs. Mary Vu (O.F.S.) Order Franciscan Secular
So happy to learn you are having less pain. I love when Harlow tries to show you she can bark and she makes the cutest face and her ear's flop and the look on her face is adorable. What a sweet girl to remind you about your POTS and that Harlow is always aware of your medical needs to the best of her ability. What a love bug and dedicated pup.
So glad that your pain is allieviated using this treatment. I know what its like to be given something that helps your pain or another symptom but also having or forgetting to be mindful that doing a lot can have its repercussions when battling several illnesses.
Hey Jaquie! I've been watching your videos for awhile but I think this is the first time I've actually commented. I just want to say that I love watching your videos, because your positive attitude and determination really inspires me. I am not a chronic illness warrior myself, but I do have depression and anxiety so some days are definitely worse than others! I have also learned so much about service dogs and the proper etiquette of being around them! Thanks for making such awesome daily vlogs :)
Yes, depression and anxiety are chronic illnesses. They are long term and life altering. So falls under the definition. I suffer with both as well. Stay strong. Spoons to you💗
Thank you to both of you for educating me on that! I thought that the term "chronic illness" only referred to physical ailments, but I definitely can see now that depression and anxiety are chronic illnesses. So I guess I am also a chronic illness warrior because I've had depression and anxiety for almost seven years now.
Chronic illness are more often than not invisible by just looking at someone. And your brain is an organ just like your heart and liver are, and with a mental illness that organ is sick, it has a lack of dopamine and serotonin. Both real Chemicals that that organ needs to function properly. Just like other organs missing something to function, it can mess up any and all of your bodies systems. It’s mental but as an organ that’s lacking something it needs, that’s physical.
I have a chronic disease I’m getting better through diet and supplements but you taught me on how to manage a chronic issues. I had no idea no one educated me and after ten years of suffering your help on how to manage pain, on how to do what’s possible and be okay and happy with it! And also how to educate people about it, people though I was lazy! So thank you💙 I’m a happier person now :)
I am so glad you're having such a great relief. It's so good to see you moving around smiling wanting to get things done. I really related to what you said about even when you're in pain and you're not feeling good you're still happy it's just that your body isn't happy which affects your mind. I'll see you next time
Its so nice to see you having a pain free day. I like to take advantage of better days too, even if I should rest up really. I think its part of taking care of my mental health, and balancing that with my physical health can be tricky. I just love feeling productive! I hope you have plenty more pain free days to come :)
Yes! I had one, in former times. Now l 've 2 matrix plasters with 150 and 50 ug Fentanyl, every third day new. Since l have got them l'm so much better than before! In former times l needed 5 times a day 4 to 5 capsules with my drugs. Now it's so much easier! But l now how you feel, in every single part! I'm chronicly asthmatic, fibomyalgia very strong, and so many others! But l never give up and sometimes l give all my pain to jesus, and it really works! Not allways the same, but it works. Be blessed every day and nights, too!
I know how you feel about the chronic pain. We're finally getting answers about my chronic pain. I had my first injection in my hip today and so far, so good. So I totally relate. I'm always thankful and happy, but when the pain is gone, it's even better! 😊
I get it totally. I am the same way. If I am having an awesomely good day like you just had (and it has bbeen a very long time or me) it isn;t about being unhappy on those other days, although sometimes I am, it is almost a giddy euphoric feeling to feel normal for a moment!
Its so great to see that you had a great day! You seem so bright! I have so much respect for you, you always find the positive even when things are so hard! You really deserve the best and hopefully you'll have more good days like this! Thank you for sharing your life, it really helps me when I'm having a hard time - you remind me fo find the positives and remember that I have alot to be grateful for. Love you lots💜💜
I can't watch yesterdays video, I've tried on at least five different occasions both yesterday and today. It's not that I have bad internet because I can watch your other videos and other youtubers videos. It makes me a bit sad because I really like your channel, you're truly an inspiration and I really admire your positivity. Love from Sweden 🇸🇪❤️
It's so great to see so happy and mostly pain free! I take advantage of my low pain days too, but my pots gives me reality checks...lol. sometimes it's so worth it to push yourself . Just always be aware of your limits.
Hey Jaquie, I'm sure you've heard this before but because I've been there, I wanted to mention that literally all your issues are symptoms of Lyme Disease. Also the test for Lyme are extremely inaccurate so many people get misdiagnosed with other illnesses. Pots, pain, fatigue, irregular heart rate, balance issues and on and on are Lyme related. I was ill for years and finally found a LLMD(Lyme literate medical doctor). After 4 years of treatment I was cured. Just couldn't not mention it. You are so inspiring with you're positive attitude and how you deal with chronic illness. I hope that one day you can find answers for a cure.
Such an amazing day for you, Jaquie. The content, happy look on your face at 11:20 was beautiful to see. I wish you had more days like this, but I can relate. I have horrible 24/7, 365 chronic pain and what I would give for an hour of painfree time! Nice to see your mom - I feel like it's been a while. Haha, I love watching how bouncy Harlow got when she was supposed to 'speak'. She looked like she was part kangaroo! She was all over you when you were on the floor because you were on her turf. My dog is the same way. You do not dare sit on the floor in our house without the understanding that you will be forced to give tummy rubs and be on the receiving end of many, many puppy kisses. xoxox Heather🇨🇦
Have you considered getting a small chest freezer for Harlows meals? They're about the size of 2 mini fridges placed side by side and only cost around $80-100 at Sams/Costco
I am so excited that Janiece got you hooked on Glee! I love that show! I started to watch it when it went into syndication on the Oxygen network a few years ago and fell in love with it. There are so many big star cameos in it you are gonna freak. I made a 20 song CD of all my favorite Christmas songs and listen to it every year at Christmas time. Also, if your interested , and if it is on Netflix, check out Smash. It was on NBC for a season or two and was kind of a more grown up version of Glee. Anyway, I am babbling. I hope you enjoy and wish you, Judd and Harlow all the best.
Jackie I'm so happy to see that you're doing well today. I am a chronic pain sufferer also I get a lot of migraines more often than not so I know what it's like to have a good day and want to utilize every second of it
Totally agree how amazing it is when you are pain free. I think my dog senses when I am not in pain when I am more active. He tends to disappear more knowing he will be getting a bath. Very happy you are enjoying pain free days. For me, its like days of dark clouds and the sun rays come out.
Good job Harlow! I've been having knee problems and i totally understand how you feel good so you want to push yourself more, i always end up rehurting myself and i finally had to go to the dr this time because my knee kept me dowm for a full week and a half and i keep trying to do more but my leg reminds me i can't.. I even get frustrated myself because growing up with my knee problems i had to basically act like nothing was wrong because my mom would shame me for being sick or in pain and i have to teach myself to stop that and let my body actually tell me what it needs not the other way around lol
I forgot we had trouble at our house so when I saw you playing it a few vlogs ago I pulled it out when I was home for college and we all played as a fam !
I had a major crush on Neil Patrick Harris back in high school when he starred in Doogie Howser MD. I actually bought all the seasons on DVD so I could watch them again, lol. Love that show!
I have to say that every time you make that chicken, it looks so yummy. I wanted to make it but I forgot what you used and I couldn't find a video when you made it - so I am so happy you made it in this video!
I understand what you mean even when you’re hurting you are still happ because of what and who you have in your life. You have a wonderful husband and so do I.
Its so easy to overdo when you have been in pain and tben feel better.Always a balance between rest and activity.I'm close to tears from pain today.Just hoping for a better day kepts me going.You are blessed to have the support system you have
Aww bless you hippo!!! (Harlow) your such a clever girl !!! I hope you had a great xmas and new year !!!! N glad ur not in so much pain atm . Happy new year !! Looking forward to more of your vlogs this year !!! Xx
i was recently diagnosed with fibromyalgia due to my chronic pain, however after watching your vlogs I relate so much to your EDS symptoms I wonder if maybe that fits my symptoms better. I have hypermobile joints and alot of dizziness as well as other symptoms but I wonder if its worth checking out as for me I had too fight to get any sort of diagnosis I am so glad that you are pain free and found good management! I would love to have a few pain free days! xx
Hey Jaquie! I was diagnosed with Dysautonomia when I was 4. I've had every aspect of Dysautonomia. From seizures to syncope. I was just diagnosed with Ehrlers Danlos last week. I'm pretty sure I have Gastroperesis as well, but won't know until after January 2018 (thats the closest date I can get into the GI doctor). I haven't been able to eat anything at all in a like a week, and every time I do eat, I throw it back up. I'm losing weight like wildfire spreads. I've lost 5lbs in less than a week, and 25-30lbs in less than a month. Any suggestions? Thank you!
I am so sorry you are struggling! GP seems to go with Dysautonomia. The vagus nerve is the largest nerve in the ANS, and a damaged/faulty Vagus nerve can cause GP. I personally wish you could be seen sooner because you will need testing to confirm or rule out GP, which will take time. In the mean time, try finding your safe foods. For me, that is bread. I also use Kate Farms oral nutritional shakes. They may not work for you, but they help me. That is what I sip on when my tube kinks. There are other types of shakes out there too though.
Chronically Jaquie thank you for replying so quickly! I'm only 16 and I really don't think this is the way for 16 year olds (or anyone for that matter) to live. I have some nutritional shakes called Pedisure. I got them from the PICU a few months back. But they feel too heavy on my stomach (idk if that makes sense), and it comes right back up. Even with a few sips. Water does the same thing. And you know, with POTS, drinking lots of water and staying hydrated is key. But i cant! Ugh it's extremely discouraging and upsetting. I just wanna be normal! Sorry for this (I hate complaining but sometimes I just need to talk about it)! Thank you for replying so quickly!
I'm so glad you're feeling better 😊.Jaquie even though I'm 58 years old I Love, Love Love NPH also. He's got the most adorable twins. Love and Belly Rubs
It’s so funny how much more sensitive different peoples bodies are! I have orthostatic hypo tension (which some docs say is the same as POTS and POTS is just a fancy name for it!!!!!).... most often anytime I stand, my blood pressure is not measureable by an electronic cuff and my HR is well into the 130.... although I get dizzy most days, I feel like my body has totally adapted....my heart rate goes into the 200’s with any brisk walking or anything. I get exhausted....but I never faint (I do fall at times) but I work full time as a nurse and I scare my colleagues when they take my BP at work....but my body has totally figured out how to work with it!!!!
Dara Baird I’m picking up my Weimaraner puppy in 2 days to train as a service dog! I’m so happy for you! That’s great that you’re getting the help you need!
TC I am super excited and happy but also really nervous....my immediate family knows how hard my health has been but my extended family doesn’t really understand...they already make comments about my health...but I have my parents, siblings, and grandparents support so that’s all that maters :). The doctors still don’t know what’s wrong with me so I don’t have any doctors to have support from...but I’m keeping good spirits :)
In my country (holland) we have troubled too but here it's called 'mensen erger je niet' transleted it means 'human don't get so agetated'😂. My dad, me and my niece of 7 were playing it a while ago. My dad and i were really serious about it and my niece barley payed any attention and she won!!! Aaaargh! We were so frustrated but it was fun. Just wanted to share that family moment with you.😋
I'm SO happy that you've found a great dr who has helped u get ur pain down!! 🙌🙌 Im 32 n have lived with chronic pain and illnesses since my teens so I def understand how huge that is!! I'm curious do you have any tips or suggestions for someone that might be thinking abt talking to their dr or researching doing the treatments that have helped you? Obsv the injections would be more person specific. Just curious if you have any advice ect.
Hi Jaquie! I've been meaning to ask, how does your roomba (?) handle all of Harlow's fur? Does it ever have problems with picking up dog hair or getting clogged or anything? I've been considering getting one to help me keep up with cleaning my SDiT's fur, since vacuuming can be hard for me, but he's a rough collie so he's very furry like Harlow! 🐶Thanks! Also, super glad you're having less pain! That's amazing! 😊💜
Morgin and Baymax you should check out the video where she gets the roomba. She praises how well it deals with Harlow’s fur and kinda goes over how it works and setting up
Ahhh Neil Patrick Harris is AWESOME!!! That is so cool you use one of Barney's catch phrases from HIMYM! Have you watched Netflick's 'A Series of Unfortunate Events' yet? NPH has to be one of my favorite celebrities =)
I think you need a bigger house where you can use your power assist wheel chair around the house, I know you don't wanna depend on it entirely for everything but maybe you can use it to do house chores to get and keep your energy level up a bit. Thank god your dog was there when your blood pressure dropped - it's nice she's always with you. Well get well soon.
Im so glad you are feeling better! Glad that Harlow alerted you :) Ever thought of getting an Apple Watch? You can constantly monitor your heart rate and it also alerts when your heart rate is up
I am not a fan of apple lol but my doctor told me those watches really are not as accurate as a PulseOx. Janiece had a fitbit that worked for a while but now it is totally off. So it is not worth the money in my opinion, I just keep my PulseOx nearby. And Harlow lol
I totally understand being really excited to do things because of better symptom management but then the POTS being like "oh don't do to much please" lol Its tough to find that balance sometimes. I also use my walker in the kitchen to sit when I need to. Your luck to have Harlow to alert to you! That's part of the reason I hope to have an SD that can alert some day because sometimes I just need someone there to say "hey, sit down a minute!" when I am on a roll lol
You can tell you are feeling good. You look awesome. I just wish there was a way to keep pain away most of the time. I know what it is like being in pain 24/7. Take the good days when you can get them.
super late in the day watching this video, but it bring up 2 questions I have- first, ever been to the Candlelight Processional to see NPH? I’d love to go, but the timing never works out.. kids and school and such. Second, when you go to Disney, with the new stricter security, so they ever ask to check Harlow’s packs? So glad you are feeling better!
You need to use fresh parmesan cheese. There is a reason it tastes like sawdust! They use sawdust as a filler in the dried stuff. You can get fresh shredded at the store. It doesn't keep as long, but it tastes SO much better.
It's nice hearing what Harlow sounds like barking. She's such a quiet pup.
OMG, she cracks me up how she was jumping and pouncing around just to get those quiet little 'woofs' out. She's so cute.
Wow, you seemed really energized and happy in this. I'm so glad you got some nice pain relief!
Harlow is amazing. Even though you were making her food she's like "Hey, take a break."
Good dog!
You should get a barstool tall enough that your hips are at the same hight they are when you're standing. That way you can prep while sitting.
That or prep at the dinner table.
Again, thank you so much for sharing your life here. You have inspired me to find a pain management doctor. I saw her the first time Tuesday. She is wonderful, and she has given me so much hope for having less pain in the future. I have to see an EDS safe neurosurgeon next week about my neck, and I've seen an oral surgeon to help with my jaw. I am optimistic for the first time in a very long time. Thank you, thank you, thank you!
Cindy Hayes how did things go with your pain doctor? I had a great one, but then had to switch to a different insurance and all new doctors... and they’re insanely against opioid pain medication. I want my other doctors back; they aren’t paranoid. They have empathy. The so-called “opioid crisis” is just punishing people with actual pain.
You can really see on your face when you are in less pain. I totally understand and hope you have many more days like this.
I'm so glad you're pain free! I've had multiple injections to try and alleviate my chronic pain (specifically my right hip) and none of them worked. However I've also had multiple hip surgeries which could be why the pain in that joint is much worse than all of the others. It also takes me roughly two hours to fall asleep at night due to unbearable joint pain so I'm happy that you slept well. The life of a chronic illness warrior, we just gotta take things day by day and appreciate any relief we can get, even if other symptoms are having a flare up.
Harlow be like: ok since you’re on the floor, my territory, you need to play with me! What no not move your legs! PLAY :D
Lol every time!
Vee :3 All bets are off when your on the floor and ok😂❤️
It's amazing how smart Harlow is! Glad you are in less pain, I can imagine it's such a relief!
Jaquie, I don't know how you do it. You are so brave and so strong you never give up no matter how many setbacks, pain or the difficulty of your life is. You are such a positive inspiration!
I pray for you everyday. God Bless you. Respectfully Mrs. Mary Vu (O.F.S.) Order Franciscan Secular
Seeing Harlow smile makes my day! She's such a good dog! God bless!
So happy to learn you are having less pain. I love when Harlow tries to show you she can bark and she makes the cutest face and her ear's flop and the look on her face is adorable. What a sweet girl to remind you about your POTS and that Harlow is always aware of your medical needs to the best of her ability. What a love bug and dedicated pup.
It truly amazes me that dogs can tell when something is wrong and alert you. Thank god you have Harlow!
So glad that your pain is allieviated using this treatment. I know what its like to be given something that helps your pain or another symptom but also having or forgetting to be mindful that doing a lot can have its repercussions when battling several illnesses.
Hey Jaquie! I've been watching your videos for awhile but I think this is the first time I've actually commented. I just want to say that I love watching your videos, because your positive attitude and determination really inspires me. I am not a chronic illness warrior myself, but I do have depression and anxiety so some days are definitely worse than others! I have also learned so much about service dogs and the proper etiquette of being around them! Thanks for making such awesome daily vlogs :)
Depression and anxiety definitely qualify as chronic illnesses. I have them myself. :-)
Yes, depression and anxiety are chronic illnesses. They are long term and life altering. So falls under the definition. I suffer with both as well. Stay strong. Spoons to you💗
Thank you to both of you for educating me on that! I thought that the term "chronic illness" only referred to physical ailments, but I definitely can see now that depression and anxiety are chronic illnesses. So I guess I am also a chronic illness warrior because I've had depression and anxiety for almost seven years now.
Chronic illness are more often than not invisible by just looking at someone. And your brain is an organ just like your heart and liver are, and with a mental illness that organ is sick, it has a lack of dopamine and serotonin. Both real Chemicals that that organ needs to function properly. Just like other organs missing something to function, it can mess up any and all of your bodies systems. It’s mental but as an organ that’s lacking something it needs, that’s physical.
Abby Gambrel ^^^
I have a chronic disease I’m getting better through diet and supplements but you taught me on how to manage a chronic issues.
I had no idea no one educated me and after ten years of suffering your help on how to manage pain, on how to do what’s possible and be okay and happy with it!
And also how to educate people about it, people though I was lazy!
So thank you💙 I’m a happier person now :)
I am so glad you're having such a great relief. It's so good to see you moving around smiling wanting to get things done. I really related to what you said about even when you're in pain and you're not feeling good you're still happy it's just that your body isn't happy which affects your mind. I'll see you next time
Its so nice to see you having a pain free day. I like to take advantage of better days too, even if I should rest up really. I think its part of taking care of my mental health, and balancing that with my physical health can be tricky. I just love feeling productive! I hope you have plenty more pain free days to come :)
It's so nice to see you feeling good! I hope you have many more days like this!!
Woohoo - So glad you had such a great day! Yay for a great pain management plan! :)
Yes! I had one, in former times. Now l 've 2 matrix plasters with 150 and 50 ug Fentanyl, every third day new. Since l have got them l'm so much better than before! In former times l needed 5 times a day 4 to 5 capsules with my drugs. Now it's so much easier! But l now how you feel, in every single part! I'm chronicly asthmatic, fibomyalgia very strong, and so many others! But l never give up and sometimes l give all my pain to jesus, and it really works! Not allways the same, but it works. Be blessed every day and nights, too!
I'm so glad you have found a good pain management plan good luck with your other symtoms. Other potsie here
I'm so glad you had a terrific day! I can totally relatable! When the pain retreats, life is fantastic.
I love seeing you happy and energized!
I know how you feel about the chronic pain. We're finally getting answers about my chronic pain. I had my first injection in my hip today and so far, so good. So I totally relate. I'm always thankful and happy, but when the pain is gone, it's even better! 😊
Glad to hear how happy you are Jaquie! God Bless you and yours!!
Your positive outlook on life is amazing
I get it totally. I am the same way. If I am having an awesomely good day like you just had (and it has bbeen a very long time or me) it isn;t about being unhappy on those other days, although sometimes I am, it is almost a giddy euphoric feeling to feel normal for a moment!
So glad you have pain relief. Love Harlow!
Its so great to see that you had a great day! You seem so bright! I have so much respect for you, you always find the positive even when things are so hard! You really deserve the best and hopefully you'll have more good days like this! Thank you for sharing your life, it really helps me when I'm having a hard time - you remind me fo find the positives and remember that I have alot to be grateful for. Love you lots💜💜
It’s very nice to see you so happy. Enjoy those pain free days girl :)
I hate and love days when I have so much to do but am productive and get things done. It makes me feel good.
I can't watch yesterdays video, I've tried on at least five different occasions both yesterday and today. It's not that I have bad internet because I can watch your other videos and other youtubers videos. It makes me a bit sad because I really like your channel, you're truly an inspiration and I really admire your positivity. Love from Sweden 🇸🇪❤️
Glad that you had a great day. Hopefully that will continue. Nice seeing mom again. Sending prayers. ❤️
It's so great to see so happy and mostly pain free! I take advantage of my low pain days too, but my pots gives me reality checks...lol. sometimes it's so worth it to push yourself . Just always be aware of your limits.
Nothing like mom and daughter time! Also, Glee is SO GOOD!!! I love singing along to all the songs
Hey Jaquie, I'm sure you've heard this before but because I've been there, I wanted to mention that literally all your issues are symptoms of Lyme Disease. Also the test for Lyme are extremely inaccurate so many people get misdiagnosed with other illnesses. Pots, pain, fatigue, irregular heart rate, balance issues and on and on are Lyme related. I was ill for years and finally found a LLMD(Lyme literate medical doctor). After 4 years of treatment I was cured. Just couldn't not mention it. You are so inspiring with you're positive attitude and how you deal with chronic illness. I hope that one day you can find answers for a cure.
Such an amazing day for you, Jaquie. The content, happy look on your face at 11:20 was beautiful to see. I wish you had more days like this, but I can relate. I have horrible 24/7, 365 chronic pain and what I would give for an hour of painfree time! Nice to see your mom - I feel like it's been a while. Haha, I love watching how bouncy Harlow got when she was supposed to 'speak'. She looked like she was part kangaroo! She was all over you when you were on the floor because you were on her turf. My dog is the same way. You do not dare sit on the floor in our house without the understanding that you will be forced to give tummy rubs and be on the receiving end of many, many puppy kisses. xoxox Heather🇨🇦
So glad you had a great day!! It's the googly eyes! It has given the roomba life!!
So glad to see you so happy and it was nice to see your mom.
So glad you have relief, praying that it lasts a while ❤️
Have you considered getting a small chest freezer for Harlows meals? They're about the size of 2 mini fridges placed side by side and only cost around $80-100 at Sams/Costco
So glad you feel so much better! I hope it lasts, and you feel great!
Also I swear I have those same leggings!
I am so excited that Janiece got you hooked on Glee! I love that show! I started to watch it when it went into syndication on the Oxygen network a few years ago and fell in love with it. There are so many big star cameos in it you are gonna freak. I made a 20 song CD of all my favorite Christmas songs and listen to it every year at Christmas time. Also, if your interested , and if it is on Netflix, check out Smash. It was on NBC for a season or two and was kind of a more grown up version of Glee. Anyway, I am babbling. I hope you enjoy and wish you, Judd and Harlow all the best.
Jackie I'm so happy to see that you're doing well today. I am a chronic pain sufferer also I get a lot of migraines more often than not so I know what it's like to have a good day and want to utilize every second of it
Totally agree how amazing it is when you are pain free. I think my dog senses when I am not in pain when I am more active. He tends to disappear more knowing he will be getting a bath. Very happy you are enjoying pain free days. For me, its like days of dark clouds and the sun rays come out.
I love you and your mom together! Neil Patrick Harris is awesome, Glad you're having relief and enjoying it.
SO happy that you had such a great day!
It's great to see you feel better
I love NPH also!! And good job Harlow for alerting you. You look great and glad you are happy!
Good job Harlow! I've been having knee problems and i totally understand how you feel good so you want to push yourself more, i always end up rehurting myself and i finally had to go to the dr this time because my knee kept me dowm for a full week and a half and i keep trying to do more but my leg reminds me i can't.. I even get frustrated myself because growing up with my knee problems i had to basically act like nothing was wrong because my mom would shame me for being sick or in pain and i have to teach myself to stop that and let my body actually tell me what it needs not the other way around lol
I forgot we had trouble at our house so when I saw you playing it a few vlogs ago I pulled it out when I was home for college and we all played as a fam !
DoubleEmA love that game. It was my fav growing up, i can't wait for my kids to be old enough to teach them lol
So happy you're happy! Excellent!❤️
I had a major crush on Neil Patrick Harris back in high school when he starred in Doogie Howser MD. I actually bought all the seasons on DVD so I could watch them again, lol. Love that show!
Marieke D meee toooooo!
Omg I loved hearing you talk about your love for NPH!
Glad you had such a good day! Nice to see Mama too! Hope you have more good days and thanks for your awesome vlog!
Ugh. Now I'm very curious about that chicken recipe too! I want to try it so bad! Hahaha Cheers, Jacquie! 😄😆
Oh Jaquie I just remembered this game you played with your mom... I loved to play this as a child!
You looked amazing today!! Nice to see your free of most of the pain for the time being!! Hope you slept wonderful as well!! :)
Have you ever thought of doing a time lapse of you prepping her meals? I love to watch it.
I have to say that every time you make that chicken, it looks so yummy. I wanted to make it but I forgot what you used and I couldn't find a video when you made it - so I am so happy you made it in this video!
I understand what you mean even when you’re hurting you are still happ because of what and who you have in your life. You have a wonderful husband and so do I.
You manage to get more done than I do and there’s virtually nothing wrong with me physically
Its so easy to overdo when you have been in pain and tben feel better.Always a balance between rest and activity.I'm close to tears from pain today.Just hoping for a better day kepts me going.You are blessed to have the support system you have
I hope there are easier days for you soon!
Aww bless you hippo!!! (Harlow) your such a clever girl !!! I hope you had a great xmas and new year !!!! N glad ur not in so much pain atm . Happy new year !! Looking forward to more of your vlogs this year !!! Xx
Your mom is so cute. I miss my mamita. She lives in Costa Rica. I'm glad you felt good and your day was productive😍💗👍💥
Love your videos! Always get excited for the next! :) x
I’m so happy for you cariad! xxxx
i was recently diagnosed with fibromyalgia due to my chronic pain, however after watching your vlogs I relate so much to your EDS symptoms I wonder if maybe that fits my symptoms better. I have hypermobile joints and alot of dizziness as well as other symptoms but I wonder if its worth checking out as for me I had too fight to get any sort of diagnosis
I am so glad that you are pain free and found good management! I would love to have a few pain free days! xx
I'm so glad your feeling better😊
Hey Jaquie I am glad you feel better love ya girl
Hey Jaquie! I was diagnosed with Dysautonomia when I was 4. I've had every aspect of Dysautonomia. From seizures to syncope. I was just diagnosed with Ehrlers Danlos last week. I'm pretty sure I have Gastroperesis as well, but won't know until after January 2018 (thats the closest date I can get into the GI doctor). I haven't been able to eat anything at all in a like a week, and every time I do eat, I throw it back up. I'm losing weight like wildfire spreads. I've lost 5lbs in less than a week, and 25-30lbs in less than a month. Any suggestions? Thank you!
I am so sorry you are struggling! GP seems to go with Dysautonomia. The vagus nerve is the largest nerve in the ANS, and a damaged/faulty Vagus nerve can cause GP. I personally wish you could be seen sooner because you will need testing to confirm or rule out GP, which will take time. In the mean time, try finding your safe foods. For me, that is bread. I also use Kate Farms oral nutritional shakes. They may not work for you, but they help me. That is what I sip on when my tube kinks. There are other types of shakes out there too though.
Chronically Jaquie thank you for replying so quickly! I'm only 16 and I really don't think this is the way for 16 year olds (or anyone for that matter) to live. I have some nutritional shakes called Pedisure. I got them from the PICU a few months back. But they feel too heavy on my stomach (idk if that makes sense), and it comes right back up. Even with a few sips. Water does the same thing. And you know, with POTS, drinking lots of water and staying hydrated is key. But i cant! Ugh it's extremely discouraging and upsetting. I just wanna be normal! Sorry for this (I hate complaining but sometimes I just need to talk about it)! Thank you for replying so quickly!
sydthekid22 venting hard feelings is better than keeping them in! Prayers are going up for you!
I hope you feel better!!!😃❤️ Harlow is so cute
I’m so glad you had a good day! 💛
So glad your feeling better
So glad you had a good day. Watson and I use "suit up" to put gear on too! :)
Harlow is such a good girl. You are so great with her 😍
I'm so glad you're feeling better 😊.Jaquie even though I'm 58 years old I Love, Love Love NPH also. He's got the most adorable twins.
Love and Belly Rubs
It’s so funny how much more sensitive different peoples bodies are! I have orthostatic hypo tension (which some docs say is the same as POTS and POTS is just a fancy name for it!!!!!).... most often anytime I stand, my blood pressure is not measureable by an electronic cuff and my HR is well into the 130.... although I get dizzy most days, I feel like my body has totally adapted....my heart rate goes into the 200’s with any brisk walking or anything. I get exhausted....but I never faint (I do fall at times) but I work full time as a nurse and I scare my colleagues when they take my BP at work....but my body has totally figured out how to work with it!!!!
Harlow always knows!! 💕👍🏻🐶
Getting my SDit in a few moths! Love your videos!
Dara Baird I’m picking up my Weimaraner puppy in 2 days to train as a service dog! I’m so happy for you! That’s great that you’re getting the help you need!
Harlequin 9 that’s so exciting congrats are you excited
TC I am super excited and happy but also really nervous....my immediate family knows how hard my health has been but my extended family doesn’t really understand...they already make comments about my health...but I have my parents, siblings, and grandparents support so that’s all that maters :). The doctors still don’t know what’s wrong with me so I don’t have any doctors to have support from...but I’m keeping good spirits :)
Harlequin 9 that’s awesome that you are finding something that works and have people that support your decision I will keep you in my thoughts
Dara Baird same mine will be a golden retriever because they are one of the best service dog breeds
In my country (holland) we have troubled too but here it's called 'mensen erger je niet' transleted it means 'human don't get so agetated'😂. My dad, me and my niece of 7 were playing it a while ago. My dad and i were really serious about it and my niece barley payed any attention and she won!!! Aaaargh! We were so frustrated but it was fun. Just wanted to share that family moment with you.😋
I'm SO happy that you've found a great dr who has helped u get ur pain down!! 🙌🙌 Im 32 n have lived with chronic pain and illnesses since my teens so I def understand how huge that is!!
I'm curious do you have any tips or suggestions for someone that might be thinking abt talking to their dr or researching doing the treatments that have helped you? Obsv the injections would be more person specific. Just curious if you have any advice ect.
Watch the first and second section of my "how to get answers when you're chronically ill" video (:
Watch the first and second section of my "how to get answers when you're chronically ill" video (:
Chronically Jaquie thanks! :)
Hi Jaquie! I've been meaning to ask, how does your roomba (?) handle all of Harlow's fur? Does it ever have problems with picking up dog hair or getting clogged or anything? I've been considering getting one to help me keep up with cleaning my SDiT's fur, since vacuuming can be hard for me, but he's a rough collie so he's very furry like Harlow! 🐶Thanks! Also, super glad you're having less pain! That's amazing! 😊💜
Morgin and Baymax you should check out the video where she gets the roomba. She praises how well it deals with Harlow’s fur and kinda goes over how it works and setting up
wow I didn't even know she made one! I'll check it out asap! Thank you!
I love how Harlow goes for the veggie pop first😂
Ahhh Neil Patrick Harris is AWESOME!!! That is so cool you use one of Barney's catch phrases from HIMYM! Have you watched Netflick's 'A Series of Unfortunate Events' yet? NPH has to be one of my favorite celebrities =)
Glee is such an awesome show!!!!! I bet you watch the whole series!
I plan to! (:
Harlow is such a sweet and cute dog i think its funny how Harlow never lets you do exercises in peace its so cute
I think you need a bigger house where you can use your power assist wheel chair around the house, I know you don't wanna depend on it entirely for everything but maybe you can use it to do house chores to get and keep your energy level up a bit. Thank god your dog was there when your blood pressure dropped - it's nice she's always with you. Well get well soon.
wow! Jaquie how amazing on how your feeling!
You made me so happy today seeing how well you did today! " Supper chilly? let me check my phone... Hmmmmm, 38 here, not to bad really". ; - )
Im so glad you are feeling better! Glad that Harlow alerted you :) Ever thought of getting an Apple Watch? You can constantly monitor your heart rate and it also alerts when your heart rate is up
Gabriela Guardia Wow that's a great idea! I hope she sees this!!
I am not a fan of apple lol but my doctor told me those watches really are not as accurate as a PulseOx. Janiece had a fitbit that worked for a while but now it is totally off. So it is not worth the money in my opinion, I just keep my PulseOx nearby. And Harlow lol
Chronically Jaquie Should have known you already thought about that! Lol Harlow is way cuter than an Apple watch anyway!
So true
I accessed my port all on my own, I been telling everyone!
I totally understand being really excited to do things because of better symptom management but then the POTS being like "oh don't do to much please" lol Its tough to find that balance sometimes. I also use my walker in the kitchen to sit when I need to. Your luck to have Harlow to alert to you! That's part of the reason I hope to have an SD that can alert some day because sometimes I just need someone there to say "hey, sit down a minute!" when I am on a roll lol
This may not seem like a big deal, but in South Texas RIGHT NOW it is SNOWING! OMG!!!!!!
You can tell you are feeling good. You look awesome. I just wish there was a way to keep pain away most of the time. I know what it is like being in pain 24/7. Take the good days when you can get them.
super late in the day watching this video, but it bring up 2 questions I have- first, ever been to the Candlelight Processional to see NPH? I’d love to go, but the timing never works out.. kids and school and such. Second, when you go to Disney, with the new stricter security, so they ever ask to check Harlow’s packs?
So glad you are feeling better!
OMG Harlow went down the stairs normally!
Wow! Jaq. You had a great day!
I am SO happy for you ❤💪
1:08 “Just let me eat woman!”😂😂
You need to use fresh parmesan cheese. There is a reason it tastes like sawdust! They use sawdust as a filler in the dried stuff. You can get fresh shredded at the store. It doesn't keep as long, but it tastes SO much better.