now I am SO ready for my appointment this week ... having MRCP ... CT scan found 2 cm cyst on my pancreas at the head ... I'm 77 ... just want a diagnosis ... no treatment plan needed ... my daughter died 10 yrs ago of breast cancer and it wasn't the disease that killed her, it was the treatment ... I appreciate all the information (for sure!)
Sorry to hear about your daughter. If you have a cyst and not a mass you might have an IPMN. I have a video on IPMNs titled IPMNs and pancreas cysts which talks about this. Either way I hope you are well and wish you the best.
Going through a IPMN that was found to only need to be watched for now after my MRI 6 months ago. I am very active in my own care and have learned a lot about the pancreas. I had my gallbladder removed almost a year ago after being rushed to the hospital and that's when I was told I had precancer. Let me tell you the weight loss is crazy, I've changed my diet and eating better. I feel good and in control mentally about what might be ahead of me. Thank you for you talks and great details. Be well
Yeap an IPMN is not easy to live with. The unknown future leads to the anxiety. In the end the future is not promised to anybody so we need to live our life. I also have an IPMN so I know all about it. All the best to you!
Thank you for this. I am part way through all these investigations after a lesion was recently found on my head of pancreas during a CT. So helpful to know that my doctor is doing all these tests. Pain, fatigue, weight loss, aversion to eating.
Had Palliative chemo since May 2023. Folfirinox did not work although lung nodules responded. Gemcitabin then tried and 1st scan showed shrinkage. 2nd scan no growth. Been off chemo for 2 months starting again August. Tip 1 have a port not pic line (you can swim) Tip 2 ask for CA levels so you can monitor. Tip 3 Loperamide does work for diarrhoea but much better sis Sauerkraut with all food! I’m on Bile binding meds and Enzymes. I can eat most things now and have reduced the meds by eating a couple of tablespoons of Sauerkraut with everything. I can eat it by itself without enzymes. Going to start making my own live one and will keep shop bought as back up. Scan results on 26/7 so fingers crossed.
I just got diagnosed with IPMN after an MRCP with contrast, there are multiple 5mm tumors which are communicating with the main pancreatic duct. No enlargement of the duct. My symptoms were pain under my left ribs, early satiety, nausea and vomiting if i eat more than 6 bites. I've lost 16lbs without trying. The tail is atrophied. Waiting for the EUS to be ordered. The radiologist didn't give a number, he just said multiple tumors. Didn't give a location of them, either. Interestingly enough, my pancreatic enzymes are very low, I've never had pancreatitis. Never smoked or drank, but I've got NASH, No markers have been done yet, just had the MRCP on Wed. I've learned a lot from your videos, i was scared when they
I am glad my videos have helped you in some way. It really sucks to have IPMNs. The pancreas is a hard organ to do studies on. The EUS should provide good info. Well I wish you the very best. I will have some more videos coming soon about IPMNs. I am asked so many questions about this so I'm thinking about answering most of these questions in a detailed video. Let me see when I have some free time to get it done. Take care!
me too im going true al most the same mri next Month dit get a ct with contrast its in the tail and in the side branch several 5mm yes im learing im just 56 female
Thanks for the info. I would only add that chronic pancreatitis can also cause midback pain and epigastric pain. When I have to go in for an MRI, it is literally hellish, not because of the feeling confined and noises, but because of the pain caused by having to lie still on my back. It is very difficult to lie still in that position for any amount of time. Also, if you already have pancreas damage, the blood amylase and lipase levels may not be reliable. Mine are typically well below the lowest reference range level although I did have a dramatic rise in these levels when I was hospitalized for acute pancreatitis.
You are correct. I wanted to add more info but also wanted to keep it under 30 min and that was impossible. I wanted to touch on CP, IPMN and get into genetic testing and hereditary pancreatitis but it was too much for 1 video I think. CP is no joke. Well thanks for the input and all the best to you.
@@talkingcancer155 It makes sense to keep the videos short and on topic. The information was excellent. I just wanted to throw that out there because the symptoms of CP can be similar to those which you describe for pancreatic cancer, especially the epigastric and midback pain.
Hello doctor Roman, thank you so much for this excellent and informative video!! my mother was diagnosed 6 weeks ago with panceatric cancer, and they put in the stent, but unfortunately it didn't help, so at this very moment she is having the bypass surgery, so she will be able to eat more, not feeling any nausia, her tumor is in the head of the pancreas and the doctors in the Sahlgrenska University Hospital in Gothenburg said it was not possible to operate, but I must ask you why it would not be possible to radiate it and then surgery if possible? The doctors haven't told me yet which stage she's in, but they want to start chemo as soon as she's gaining weight a bit. Could you also explain why the stent didn't work? Is that common?
Most pancreas cancer are not resectable due to blood vessel invasion. There are other reasons but new literature suggests patients do better if they receive chemo before surgery. A Stent can fail due to several reasons. It can move, the tumor is large, location, etc. Every case is different but this is truly a hard disease to treat. Radiation is a problem because it is not extremely helpful in my opinion in a large tumor and there are so many surrounding organs that the radiation can hurt that makes radiation a bit problematic. I really hope your mom does better. Ask the oncologist to answer all your questions since they have all the details of her case. Be patient because as I said before this is a hard disease to treat.
Sir my father has a tumor in Ampulla of Vater And it was written in the report that it was Periampullary AdenoCarcinoma, so that it is not pancreas cancer?
It could be pancreas cancer if it started in the head of the pancreas and is invading the surrounding tissue including the ampulla. Most likely it originated in the ampulla or duodenum. Ask your oncologist since there are pathologic findings under the microscope and imaging findings which can help you tell. If the pancreas looks clean on imaging then it likely started in the ampulla. All the best.
yes it is started in ampulla of vater and limited to ampulla of vater and it spread to 2 lymph node. so sir what is the cure rate in this? @@talkingcancer155
My GI doctor refused to write a lab order for me to test CA19-9 and CEA. Can you write a lab order for me? I have IPMN in the uncinate process. I am willing to pay out of pocket.
Remember you can always obtain a second opinion. Please remember that I am not your doctor and my video's are for education only. You can also speak to your primary care physician. I sincerely wish you the very best with your health.
Very helpful video. Many thanks for taking time to explain. I’d like to know which treatments/surgery are available when the mass is in the neck of pancreas? Would a Whipple be an option? I realise you cannot comment on specific cases. Husband is Awaiting the EUS biopsy in 15 days time.
Good to hear my video helped you. If needed find a good surgeon and leave it to them. They will usually remove it using the least invasive procedure possible. The neck is so close to the head that a whipple is usually the best and only option but if they can remove it with a less aggressive surgery then they will. They are getting really good at these surgeries. Like I said just concentrate on finding a trusted surgeon. All the best.
@@talkingcancer155 Thank you, we have what we believe to be an excellent surgeon. He specialises in the upper GI area. We do believe that he has a plan. Just waiting on the specifics after the EUS/biopsy is completed on 17th July. We are in the UK where things tend to happen more slowly. The waiting is hard, we’re scared things are getting worse with each day.
@alisonmacaskill4620 as you know time is important but having a good surgeon and plan are also very important so it sounds like you are doing things correctly.
@@talkingcancer155 I’ll let you know what transpires after the biopsy. My husband is 63 years old and physically fit. Non smoker/social drinker, mild hypertension and a small hiatus hernia. I think he’d be ok for a Whipple if that’s the course of action taken.
I got shot 5 times last year resulting in the whipple procedure because of the damage done. Its the most slow and brutal , uncomfortable recovery ever.
Wow. Glad you made it. I have heard it does take time to recover. This surgery has gotten better with time. In your case, the fact you got shot likely made recovery worse.
now I am SO ready for my appointment this week ... having MRCP ... CT scan found 2 cm cyst on my pancreas at the head ... I'm 77 ... just want a diagnosis ... no treatment plan needed ... my daughter died 10 yrs ago of breast cancer and it wasn't the disease that killed her, it was the treatment ... I appreciate all the information (for sure!)
Sorry to hear about your daughter. If you have a cyst and not a mass you might have an IPMN. I have a video on IPMNs titled IPMNs and pancreas cysts which talks about this. Either way I hope you are well and wish you the best.
@@talkingcancer155 I've watched every video and absorbed every word you've said ... yes to the IPMN
@@JoyceJune-q6c awesome. Your doctor will be impressed because most patients have no clue what is going on!
@@talkingcancer155 An IPMN will eventually turn cancerous, at this point he will likely get the Whipple Procedure because of the IPMN.
Going through a IPMN that was found to only need to be watched for now after my MRI 6 months ago. I am very active in my own care and have learned a lot about the pancreas. I had my gallbladder removed almost a year ago after being rushed to the hospital and that's when I was told I had precancer. Let me tell you the weight loss is crazy, I've changed my diet and eating better. I feel good and in control mentally about what might be ahead of me. Thank you for you talks and great details. Be well
Yeap an IPMN is not easy to live with. The unknown future leads to the anxiety. In the end the future is not promised to anybody so we need to live our life. I also have an IPMN so I know all about it. All the best to you!
How r u now? What are the treatment ur taking now?
Thanks for all your information. 😊
You are welcome. All the best.
Thank you for this. I am part way through all these investigations after a lesion was recently found on my head of pancreas during a CT. So helpful to know that my doctor is doing all these tests. Pain, fatigue, weight loss, aversion to eating.
You are welcome. I hope everything turns out well for you. All the best.
Had Palliative chemo since May 2023. Folfirinox did not work although lung nodules responded. Gemcitabin then tried and 1st scan showed shrinkage. 2nd scan no growth. Been off chemo for 2 months starting again August. Tip 1 have a port not pic line (you can swim) Tip 2 ask for CA levels so you can monitor. Tip 3 Loperamide does work for diarrhoea but much better sis Sauerkraut with all food! I’m on Bile binding meds and Enzymes. I can eat most things now and have reduced the meds by eating a couple of tablespoons of Sauerkraut with everything. I can eat it by itself without enzymes. Going to start making my own live one and will keep shop bought as back up. Scan results on 26/7 so fingers crossed.
I wish you all the best, and it sounds like you found what seems to be working for you.
Superb and extremely helpful video - thank you for taking the time Dr Roman.
It is my pleasure. I hope it helps you out! All the best to you.
I just got diagnosed with IPMN after an MRCP with contrast, there are multiple 5mm tumors which are communicating with the main pancreatic duct. No enlargement of the duct. My symptoms were pain under my left ribs, early satiety, nausea and vomiting if i eat more than 6 bites. I've lost 16lbs without trying. The tail is atrophied. Waiting for the EUS to be ordered. The radiologist didn't give a number, he just said multiple tumors. Didn't give a location of them, either.
Interestingly enough, my pancreatic enzymes are very low, I've never had pancreatitis. Never smoked or drank, but I've got NASH, No markers have been done yet, just had the MRCP on Wed. I've learned a lot from your videos, i was scared when they
I am glad my videos have helped you in some way. It really sucks to have IPMNs. The pancreas is a hard organ to do studies on. The EUS should provide good info. Well I wish you the very best. I will have some more videos coming soon about IPMNs. I am asked so many questions about this so I'm thinking about answering most of these questions in a detailed video. Let me see when I have some free time to get it done. Take care!
me too im going true al most the same mri next Month dit get a ct with contrast its in the tail and in the side branch several 5mm yes im learing im just 56 female
@@soze1078hi
Any updates?
Thank you veryyy useful information.
You're welcome. Glad you found it useful.
Thank you for the informative video. I'm yet to find out what's wrong, a PET scan and consultation are due this week.
I hope your scan is normal and that all goes well for you. All the best.
Thanks for the info. I would only add that chronic pancreatitis can also cause midback pain and epigastric pain. When I have to go in for an MRI, it is literally hellish, not because of the feeling confined and noises, but because of the pain caused by having to lie still on my back. It is very difficult to lie still in that position for any amount of time. Also, if you already have pancreas damage, the blood amylase and lipase levels may not be reliable. Mine are typically well below the lowest reference range level although I did have a dramatic rise in these levels when I was hospitalized for acute pancreatitis.
You are correct. I wanted to add more info but also wanted to keep it under 30 min and that was impossible. I wanted to touch on CP, IPMN and get into genetic testing and hereditary pancreatitis but it was too much for 1 video I think. CP is no joke. Well thanks for the input and all the best to you.
@@talkingcancer155 It makes sense to keep the videos short and on topic. The information was excellent. I just wanted to throw that out there because the symptoms of CP can be similar to those which you describe for pancreatic cancer, especially the epigastric and midback pain.
Thank you!
Thank you doctor!
You are very welcome.
Thank you for taking the time to explain this.
You are welcome. Thank you and all the best.
Super video! Thank you for making this. So informative and well explained.
Thank you. I hope this helps you, and I wish you the best!
Hello doctor Roman, thank you so much for this excellent and informative video!! my mother was diagnosed 6 weeks ago with panceatric cancer, and they put in the stent, but unfortunately it didn't help, so at this very moment she is having the bypass surgery, so she will be able to eat more, not feeling any nausia, her tumor is in the head of the pancreas and the doctors in the Sahlgrenska University Hospital in Gothenburg said it was not possible to operate, but I must ask you why it would not be possible to radiate it and then surgery if possible? The doctors haven't told me yet which stage she's in, but they want to start chemo as soon as she's gaining weight a bit. Could you also explain why the stent didn't work? Is that common?
Most pancreas cancer are not resectable due to blood vessel invasion. There are other reasons but new literature suggests patients do better if they receive chemo before surgery. A Stent can fail due to several reasons. It can move, the tumor is large, location, etc. Every case is different but this is truly a hard disease to treat. Radiation is a problem because it is not extremely helpful in my opinion in a large tumor and there are so many surrounding organs that the radiation can hurt that makes radiation a bit problematic. I really hope your mom does better. Ask the oncologist to answer all your questions since they have all the details of her case. Be patient because as I said before this is a hard disease to treat.
Thank you so very much, these videos are very helpful
I am glad they are helping you.
Thank you for sharing this information sir!🙏
You are very welcome
Thank you Doctor for the video. it's very informative.
You are welcome.
Sir my father has a tumor in Ampulla of Vater And it was written in the report that it was Periampullary AdenoCarcinoma, so that it is not pancreas cancer?
It could be pancreas cancer if it started in the head of the pancreas and is invading the surrounding tissue including the ampulla. Most likely it originated in the ampulla or duodenum. Ask your oncologist since there are pathologic findings under the microscope and imaging findings which can help you tell. If the pancreas looks clean on imaging then it likely started in the ampulla. All the best.
yes it is started in ampulla of vater and limited to ampulla of vater and it spread to 2 lymph node.
so sir what is the cure rate in this?
@@talkingcancer155
Thank you
You're welcome
My GI doctor refused to write a lab order for me to test CA19-9 and CEA. Can you write a lab order for me? I have IPMN in the uncinate process. I am willing to pay out of pocket.
Remember you can always obtain a second opinion. Please remember that I am not your doctor and my video's are for education only. You can also speak to your primary care physician. I sincerely wish you the very best with your health.
Very helpful video. Many thanks for taking time to explain.
I’d like to know which treatments/surgery are available when the mass is in the neck of pancreas?
Would a Whipple be an option? I realise you cannot comment on specific cases.
Husband is Awaiting the EUS biopsy in 15 days time.
Good to hear my video helped you. If needed find a good surgeon and leave it to them. They will usually remove it using the least invasive procedure possible. The neck is so close to the head that a whipple is usually the best and only option but if they can remove it with a less aggressive surgery then they will. They are getting really good at these surgeries. Like I said just concentrate on finding a trusted surgeon. All the best.
@@talkingcancer155 Thank you, we have what we believe to be an excellent surgeon.
He specialises in the upper GI area. We do believe that he has a plan.
Just waiting on the specifics after the EUS/biopsy is completed on 17th July.
We are in the UK where things tend to happen more slowly.
The waiting is hard, we’re scared things are getting worse with each day.
@alisonmacaskill4620 as you know time is important but having a good surgeon and plan are also very important so it sounds like you are doing things correctly.
@@talkingcancer155
I’ll let you know what transpires after the biopsy.
My husband is 63 years old and physically fit. Non smoker/social drinker, mild hypertension and a small hiatus hernia.
I think he’d be ok for a Whipple if that’s the course of action taken.
I got shot 5 times last year resulting in the whipple procedure because of the damage done. Its the most slow and brutal , uncomfortable recovery ever.
Wow. Glad you made it. I have heard it does take time to recover. This surgery has gotten better with time. In your case, the fact you got shot likely made recovery worse.
Shot?