Love this video Dom! It's great to hear a professional like Klaus put to words my thoughts. I just can't fathom that so many neurologists are still practicing the escalation model and allowing their patients to get unrepairable neurological damage first. (And so many patients choosing this themselves) Of course, as Klaus said, these DMTs aren't an option for everyone I understand. But if you can, why not give it a try? As you know I'm so happy to have been able to start Mavenclad 2 years ago. I experienced hardly any side effects and my MS has actually diminished a tiny bit. It's the best choice I've ever made and I'll tell everyone who wants to hear it. 😉
@MichelleSearsMinistries I am a lemtrada guy. My 5th DMT. A neuro - not mine - intimated that if I ever had an issue with Lem then I could take Cladribine! Good luck. Go hard, go early. Time is brain.
Absolutely fabulous and informative video. Fantastic job with interviewing and Klaus did a wonderful job of explaining IRTs. I learn something new everyday. 🧡
Imteresting that Cladribine is being trialed by Klaus for people with advanced MS to see if inflamation is significanly reduced. The trial is MS CHARIOT
Thank you for this video. I’m debating between the two IRTs discussed here currently. Im still not sure which is the most advanced but I am looking forward to following for more!
I'm about to start Alemtuzumab. I'll make videos following my journey once a start is confirmed. It has been a real 'on again' and 'off again' thing but, fingers crossed, it ought to be in March. I think it is a good way to put it to the neurologist. I'd like either A or B (don't mention C - H) and ask them to guide that choice and not make them choose from a long list. Good luck and keep us updated.
Will treating quickly like that ever actually happen? I couldn't even get steroids during my fifth relapse, after I had been diagnosed "probable MS" a couple of months earlier (my GP couldn't refer me to a hospital that treats MS so I had to then get an onward referral from the hospital I was seen at). I was offered a steroid drug trial after my second relapse but by the time I saw the consultant I was almost better and he said I could do it for science but it probably wouldn't help me
I'm not sure I understand. The NHS Choices states: You can: decide which NHS organisation you would like to receive care from as an outpatient choose the clinical team who will be in charge of your care within an organisation These choices only apply at the point of referral. Ask to be re-referred by your GP to Dr. A.N.Other as you are not satisfied with the care you are receiving at present. in practise I do this far more pleasantly. It is phrased in 2nd opinion terms. providing you don't march in armed with Dr Google and start telling your GP what's what they usually like to facilitate an informed and polite patient. After all, happy patients are the best kind to have as a GP!
This was purely an explanatory video about IRTs. Would I take it if I could turn the clock back 20y (I’ve had MS for 31y), yes. Did I take it? No. Circs are different now. I’ve had 5 DMTs to date. I know many people that have and they are doing well and it is very well tolerated. Were it to have been offered to me I would have jumped at it.
Found it!
Thanks Dom.
I'm preparing to onboatd to Mavenclad after several years of Mayzent (with no complaints)
Perfect
Love this video Dom! It's great to hear a professional like Klaus put to words my thoughts. I just can't fathom that so many neurologists are still practicing the escalation model and allowing their patients to get unrepairable neurological damage first. (And so many patients choosing this themselves) Of course, as Klaus said, these DMTs aren't an option for everyone I understand. But if you can, why not give it a try?
As you know I'm so happy to have been able to start Mavenclad 2 years ago. I experienced hardly any side effects and my MS has actually diminished a tiny bit. It's the best choice I've ever made and I'll tell everyone who wants to hear it. 😉
How are you feeling now? Can you please give us an update?
Are you asking Marieke? Is so I’ll let her know. She is a friend.
@@theMSguide Yes I was. Did you take Mavenclad yourself? I'm meeting with my neurologist today to discuss taking it.
@MichelleSearsMinistries I am a lemtrada guy. My 5th DMT. A neuro - not mine - intimated that if I ever had an issue with Lem then I could take Cladribine!
Good luck. Go hard, go early. Time is brain.
@@theMSguide thanks for the info and this great video
I love your interview style, Dom. Very much like me when I’m chatting to someone. I must get this in now or my MS will make me forget 😝
Thank you ;)
Absolutely fabulous and informative video. Fantastic job with interviewing and Klaus did a wonderful job of explaining IRTs. I learn something new everyday. 🧡
Thanks for the video, really informative piece.
I'll be asking if I can switch to Mavenclad from Ocrevus. I think the Covid vaccines will be more effective. I Need to do more research though.
Imteresting that Cladribine is being trialed by Klaus for people with advanced MS to see if inflamation is significanly reduced. The trial is MS CHARIOT
Thank you for this video. I’m debating between the two IRTs discussed here currently. Im still not sure which is the most advanced but I am looking forward to following for more!
I'm about to start Alemtuzumab. I'll make videos following my journey once a start is confirmed. It has been a real 'on again' and 'off again' thing but, fingers crossed, it ought to be in March.
I think it is a good way to put it to the neurologist. I'd like either A or B (don't mention C - H) and ask them to guide that choice and not make them choose from a long list.
Good luck and keep us updated.
Will treating quickly like that ever actually happen? I couldn't even get steroids during my fifth relapse, after I had been diagnosed "probable MS" a couple of months earlier (my GP couldn't refer me to a hospital that treats MS so I had to then get an onward referral from the hospital I was seen at). I was offered a steroid drug trial after my second relapse but by the time I saw the consultant I was almost better and he said I could do it for science but it probably wouldn't help me
@@sarahdotcom Sadly, it is a much about where you are treated and by whom.
It shouldn’t be like that but it is.
@@theMSguide and NHS Choices meant I couldn't choose to be referred to the correct hospital!
I'm not sure I understand. The NHS Choices states:
You can:
decide which NHS organisation you would like to receive care from as an outpatient
choose the clinical team who will be in charge of your care within an organisation
These choices only apply at the point of referral.
Ask to be re-referred by your GP to Dr. A.N.Other as you are not satisfied with the care you are receiving at present. in practise I do this far more pleasantly. It is phrased in 2nd opinion terms. providing you don't march in armed with Dr Google and start telling your GP what's what they usually like to facilitate an informed and polite patient. After all, happy patients are the best kind to have as a GP!
GREAT VIDEO. How has the study in London been going?
SIZOMUS is great. Nothing to do with all the crappy relapse stuff. Thankfully.
Thanx
Hello from Texas. How is your progression and did you wind up taking Mavenclad? If so, how is that going?
This was purely an explanatory video about IRTs.
Would I take it if I could turn the clock back 20y (I’ve had MS for 31y), yes.
Did I take it? No. Circs are different now. I’ve had 5 DMTs to date.
I know many people that have and they are doing well and it is very well tolerated.
Were it to have been offered to me I would have jumped at it.
sign me up for the hSCT clinical trial please 😁
Are you in the UK or US?
@@theMSguide I'm in Lithuania but I also have US citizenship so I could be anywhere
In the US it is BEAT-MS and in the UK it is Star-MS. Google either to see the entrance requirements.
#StemCells #HSCT How do you get it? Dr Turner explains
ruclips.net/video/bhh-I2LUVhs/видео.html
Klaus is definitely German. Not English.
He is a German who has lived and practiced in England for the last 20+ years.