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- Просмотров 477 816
theMSguide
Великобритания
Добавлен 29 дек 2009
Please support my efforts for less than a cup of coffee a month: patreon.com/theMSguide
Empowering patients through knowledge to achieve the best outcomes possible with their MS. The aim is to educate and inform, not persuade. I was diagnosed in 1994, am on my fifth DMT and talk with many different MS patients from around the world about their MS experiences. I'll also talk to experts to get understandable and relatable information for us, the patient community.
Empowering patients through knowledge to achieve the best outcomes possible with their MS. The aim is to educate and inform, not persuade. I was diagnosed in 1994, am on my fifth DMT and talk with many different MS patients from around the world about their MS experiences. I'll also talk to experts to get understandable and relatable information for us, the patient community.
SPEED!!! The Sprint-X is frighteningly fast downhill.
Flying down to road on the new Sprint-X from @Icetrikes
Training for #RiodeCanada4MS. This was previously put up in a Short but I think it is fun.
Training for #RiodeCanada4MS. This was previously put up in a Short but I think it is fun.
Просмотров: 66
Видео
ASTONISHING TRANSFORMATION - 2 years after HSCT! We Catch Up With Hamish
Просмотров 18728 дней назад
It was 2 years ago that Hamish took us inside Clinica Ruiz in Mexico for his HSCT (stem cells) treatment for his MS. Hamish joins us for a catch up and it is SUCH an inspiring video. Listening to Hamish you'll understand the importance of treating MS hard and early. I run this channel single handed and it is a lot of work and expense. For less than a cup of coffee a month you can support the ch...
Groundbreaking MS Clinical Trial: A New Hope in Add-On Therapy! #clinicaltrials #multiplesclerosis
Просмотров 380Месяц назад
The SIZOMUS trial is all about testing an add-in (adjunct) therapy for MS. It is still recruiting. I have just finished it. If you are in or near to London you may be eligible to take part. The weird thing is that so many other conditions have more than one medicine involved to treat different parts of the disease and yet this is a new thing in MS. Go figure? It is happening at the Royal London...
Incredible gifts from the 🚴 #RideCanada4MS sponsor #canyon #shoes #cyclinggear #GCN
Просмотров 62Месяц назад
Incredible gifts from the 🚴 #RideCanada4MS sponsor #canyon #shoes #cyclinggear #GCN
Welcome To theMSguide.com 🚴 #RideCanada4MS #cycling #training #heartrate #strava #weightlifting
Просмотров 138Месяц назад
Welcome To theMSguide.com 🚴 #RideCanada4MS #cycling #training #heartrate #strava #weightlifting
Phytaphix MS Supplements Helps with My Training for the Ultimate Challenge🚴 #RideCanada4MS
Просмотров 92Месяц назад
Phytaphix MS Supplements Helps with My Training for the Ultimate Challenge🚴 #RideCanada4MS
TAKE CONTROL Of Your MS! Expert MS Neurologist Explains Brain Health Hacks #RideCanada4MS
Просмотров 3852 месяца назад
TAKE CONTROL Of Your MS! Expert MS Neurologist Explains Brain Health Hacks #RideCanada4MS
Why I’m Cycling 8000 km Across Canada for MS Brain Health - The Mission Behind #RideCanada4MS
Просмотров 1532 месяца назад
Why I’m Cycling 8000 km Across Canada for MS Brain Health - The Mission Behind #RideCanada4MS
Kate's Amazing Story of #weightloss and MS #transformation through #exercise #RideCanadaForMS
Просмотров 3612 месяца назад
Kate's Amazing Story of #weightloss and MS #transformation through #exercise #RideCanadaForMS
A slightly #nerdy video about rotational mass of bicycle wheels & #tubolito tubes #RideCanadaForMS
Просмотров 742 месяца назад
A slightly #nerdy video about rotational mass of bicycle wheels & #tubolito tubes #RideCanadaForMS
Announcing a $1 Million Fundraising Ride Across Canada for MS! 🚴🇨🇦 #RideCanadaForMS #TimeIsBrain
Просмотров 1893 месяца назад
Announcing a $1 Million Fundraising Ride Across Canada for MS! 🚴🇨🇦 #RideCanadaForMS #TimeIsBrain
It Was Crazy #Cornwall Rain_ Testing Ice Trike Options #RideCanadaForMS #challenge #exercise #shorts
Просмотров 533 месяца назад
It Was Crazy #Cornwall Rain_ Testing Ice Trike Options #RideCanadaForMS #challenge #exercise #shorts
We Are Getting Closer AND Closer To The BIG Announcement #riding #trikes #canada #multiplesclerosis
Просмотров 1943 месяца назад
We Are Getting Closer AND Closer To The BIG Announcement #riding #trikes #canada #multiplesclerosis
Things They DIDN'T TELL YOU At Diagnosis... (P3) #msdiagnosis #choices #standard #healthcare
Просмотров 4144 месяца назад
Things They DIDN'T TELL YOU At Diagnosis... (P3) #msdiagnosis #choices #standard #healthcare
How AI is changing #MultipleSclerosis care. The ASSIST-MS trial is at the cutting edge #ai #mri
Просмотров 8144 месяца назад
How AI is changing #MultipleSclerosis care. The ASSIST-MS trial is at the cutting edge #ai #mri
What Is Happening? #multiplesclerosis #brainhealth #epic #surprise #resilience
Просмотров 2814 месяца назад
What Is Happening? #multiplesclerosis #brainhealth #epic #surprise #resilience
DEFINITIVE GUIDE For Getting PAXLOVID At Home From a Specialist Nurse_ #immunocompromised #covid
Просмотров 1095 месяцев назад
DEFINITIVE GUIDE For Getting PAXLOVID At Home From a Specialist Nurse_ #immunocompromised #covid
Getting PAXLOVID If You Are IMMUNOSUPPRESSED_ My Tortured Experiences #multiplesclerosis
Просмотров 2455 месяцев назад
Getting PAXLOVID If You Are IMMUNOSUPPRESSED_ My Tortured Experiences #multiplesclerosis
Things They Didn't Tell You At Diagnosis... (P2) #msdiagnosis
Просмотров 5016 месяцев назад
Things They Didn't Tell You At Diagnosis... (P2) #msdiagnosis
Things They Didn't Tell You At Diagnosis...
Просмотров 7466 месяцев назад
Things They Didn't Tell You At Diagnosis...
Revolutionary AI Powered Insoles That Track Your MS Better Than Any Neurologist.
Просмотров 2007 месяцев назад
Revolutionary AI Powered Insoles That Track Your MS Better Than Any Neurologist.
Unlock A Secret With Me: This Is A Way You Can Walk Better with Multiple Sclerosis
Просмотров 7257 месяцев назад
Unlock A Secret With Me: This Is A Way You Can Walk Better with Multiple Sclerosis
Solutions From An Expert: The 3 Biggest Sexual Challenges Faced By MS Patients - Ep 2
Просмотров 2147 месяцев назад
Solutions From An Expert: The 3 Biggest Sexual Challenges Faced By MS Patients - Ep 2
Unlocking The Truth: The 3 Biggest Sexual Challenges Faced By MS Patients - Episode 1
Просмотров 3688 месяцев назад
Unlocking The Truth: The 3 Biggest Sexual Challenges Faced By MS Patients - Episode 1
Hear George's Inspiring MS Story That Impacted The Digital Space With The Launch Of shift.ms In 2009
Просмотров 4458 месяцев назад
Hear George's Inspiring MS Story That Impacted The Digital Space With The Launch Of shift.ms In 2009
Females get WORSE Multiple Sclerosis CARE than Men... #multiplesclerosis
Просмотров 4228 месяцев назад
Females get WORSE Multiple Sclerosis CARE than Men... #multiplesclerosis
London Marathon 2024 - Joe is supporting MS Research_ One Marathon At A Time
Просмотров 1078 месяцев назад
London Marathon 2024 - Joe is supporting MS Research_ One Marathon At A Time
#Multiplesclerosis Is One Joy after another_ the #Steroid Comedown hits
Просмотров 3569 месяцев назад
#Multiplesclerosis Is One Joy after another_ the #Steroid Comedown hits
PODCAST - Wherever you live, MS-UK can help your MS Journey with their incredible resources.
Просмотров 2129 месяцев назад
PODCAST - Wherever you live, MS-UK can help your MS Journey with their incredible resources.
Here you go: Status Update: December 17, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Efforts to Outcomes: As of December 17, 2024, I no longer require the cane I have used since Summer, 2019 to walk and function, as I went to Walmart this evening [without the cane], did my shopping, paid for groceries, visited with store checkers as necessary, walked out, stepped up and into the truck, went home, brought groceries in, and appreciated the way [Everybody Began Treating Me Normally Once again Finally after [5 years of MS Onset of Symptoms]. Though my vision could be better, I can now see at around 20/20 20/40 Vision, as the Clemestine and Berberine appear to have made a substantial difference. I can see again, walk again, though some more physical therapy will be needed to improve and rebuild physical strength due to long periods of sitting due to MS, and am [feeling normal enough] once again as of December 18, 2024. Excelsior! :) An excellent video. I learned a lot, though I and many MS Sufferers, "did in-fact come to the very same conclusions, and have developed their own PIPE type Intervention in order to save Years possibly in long-term studies and focus groups, ... natural based solutions that [ Essentially does the exact same thing], that more and more people can actually afford in order to recover. MS, so sorry, is no longer the Diseased White Elephant in the room it once was... ' * Don't ask Me how I know it actually works. (Smile / Grin) * Here, I was diagnosed in 2016, began seeing visual symptoms in, say 2019, went to work on learning who to mitigate and reverse MS symptoms, and yes, in 2024, I developed an augmented tincture that does the exact same thing, and it Does In-Fact work, at least for me. * - Key Words: [ Quinine, {Antiviral}, Clemestine, {Meyelin Regeneration} , and Berberine], [Method: 26 Week Proposed Program: Step 1: Comprehensive Anti-Parasitic Mitigation/Abatement Treatment [26 weeks] Step 2: Introduction and Maintenance Diet; Whal's or Swank Diet [26 Weeks and Continue] Step 3: Introduction to Understanding Balance Systems within the Body [1-26 Weeks and Forward]; Vestibular, Cerebellum, Vision, Extremities; How Each and All Systems work to establish and maintain balance, and what to do when they don't. Step 4: Introduction to Anti-Parasitic Homepathic and Over the Counter medicines. How they work, where to find them, how they are typically taken for improving microbiome health, and how to develop a [Comprehensive Augmented Tincture, which can be taken daily to mitigae and abate the ongoing presence of Biologics and Viral Agents which are common and known to be responsible for Neurological Degeneration in the Body. Step 5: Understanding The Importance of Early Disease Treatment Through Key Homeopathics people buy commonly and over the counter, but become quite adept at the mitigation; -even the potential abatement of the Signs and Symptoms of disease we call / called Multiple Sclerosis. Step 6: Discovering Early Treatment Mitigation Strategies: Why Early Detection and Aggressive Treatment of Viruses and Biologics in the form of blood bourne parasitic infection, [is only now becoming the preferred method of treatment by more and more doctors in 2020-2024-Present, - and why. {Helps To Restore Microbiome and can Improve Balance Problems slowly over time}. Hope this Helps. MDM, JD Candidate.
Stopped the video at 18:36 to leave a quick opinion comment. "Yes, NOTHING BETTER, than ""People treating me like Shit Once Again, Now that I No Longer am using a Cane any longer, while I shop, walk about, pay for things, do my banking, etc.. I'm So Very Happy Now and Once Again..! ! ** Yes, [Recovery] from a disease such as MS is a total shocker for most..., because they expected to see me as a cripple for the rest of my life.. Well, Boo FRikkity Whooo....LOL.
I love this video and what it represents. Yes, I too was diagnosed in 2016, and I can tell you this: Everybody kept automatically turning me into a Crippled Man. I refused that idea and began looking for both answers and cures, as I am quite bright. And So: As my friend and mentor, Gilbert, who himself was diagnosed with MS back in the 90's before he passed in November, 2017 from his own MS complications, sigh..., - I quickened my pace to find my answers. That way, I would not Decompensate and Progress with MS. By 2022, I began having the typical problems with Optic Neuritis in addition to the loss of strength in my legs. Yes, it began, and it sucked, but as I read and viewed videos, I noticed, some folks were having hope with the use of Sasparilla bark and Liquid Stevia. I found some liquid Stevia. The stuff actually helped on evening, and from that point, I knew my research abilities had substantial merit. By 2023-2024, I found that the Whal's Protocol Diet actually was helping get a bit better, so I incorporated it's principles along with the development of my Augmented Tincture, to address the root [Cause in-fact], and not just try to slow the decline, with Disease Modifying Therapies that I in no way could or would want to afford. I just could not spend the rest of my life with my crappy balance, my weakening legs, the walker they issued me in April, 2016 upon my exit post diagnosis of MS. I would not accept that as my future, so when I finished my Augmented Tincture, I decided to Guniea Pig myself and try it, track the progress and outcomes, then if it worked, I would then share it with everybody, once I was satisfied, that the process could be replicated, and prove Helpful in order to either improve and maybe restore function. Excelsior.. The Tincture does appear to be [Quite Helpful]. Fore more information, please see Pam on her YT Channel, Live Disease Free, where I have provided the formula I am using for myself. All the best, MDM, JD Candidate. \\//
STATUS UPDATE; Today, is Sunday, December 01, 2024 Efforts to Outcomes: Research In-The Field Analysis in Real-Time: Here, After 26 Weeks of making use of the methods and the homeopathic, I did and am experiencing [Substantial and Ongoing Efficacy via the use of the Augmented Tincture. Yes, I did progress from the Initial 'Spider Man Effect I was feeling during Early Through Late Fall, 2024. I am noticing [General improvement] with 1.) General Balance, 2.) legs appear firmer than before the study since this Spring, 2024, and 23.), - "it would appear, so as long as I [Continuously take the Tincture Solution, 3 x's Daily, it does appear to be more of an ongoing therapy than a one time approach. The outcomes continue to tell Me, [Improvement Takes Place so long as the the approach is maintained, but I have noticed, that the General Effects slowly return, shortly after I discontinue the Tincture(s) In-depth analysis and initial conclusions: This tends to tell Me, that MS; more and more appears to be a [difficult to detect and to eradicate, parasitic biologic], which can be mitigated thru homeopathic, but a full eradication will [Require a Comprehensive and Valid Confirmation of either, [The Cause or Causes in Combination, if such a Condition is Established as the Cause In-Fact. In the meantime, the 'Over The Counter, Allergy Clemestine is normal at 10 mg in capsule or liquid form anybody can take for Allergies, lol. " Didn't know that until just this Fall, and it does seem to actually work, just as they said it might. Second: Pam, The Balance problem, though mild, ...Is Ongoing, so I went to work on finding out what I think will work.. Below is my research for last week, this week. If I take it, I'll let you know if the Balance and Dizziness Improves...I think it just might.. Okay. My Research notes below from what others are saying. Best, MDM, JD Candidate \\//
Status Update: December 17, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Efforts to Outcomes: As of December 17, 2024, I no longer require the cane I have used since Summer, 2019 to walk and function, as I went to Walmart this evening [without the cane], did my shopping, paid for groceries, visited with store checkers as necessary, walked out, stepped up and into the truck, went home, brought groceries in, and appreciated the way [Everybody Began Treating Me Normally Once again Finally after [5 years of MS Onset of Symptoms]. Though my vision could be better, I can now see at around 20/20 20/40 Vision, as the Clemestine and Berberine appear to have made a substantial difference. I can see again, walk again, though some more physical therapy will be needed to improve and rebuild physical strength due to long periods of sitting due to MS, and am [feeling normal enough] once again as of December 18, 2024. Excelsior! :) An excellent video. I learned a lot, though I and many MS Sufferers, "did in-fact come to the very same conclusions, and have developed their own PIPE type Intervention in order to save Years possibly in long-term studies and focus groups, ... natural based solutions that [ Essentially does the exact same thing], that more and more people can actually afford in order to recover. MS, so sorry, is no longer the Diseased White Elephant in the room it once was... ' * Don't ask Me how I know it actually works. (Smile / Grin) * Here, I was diagnosed in 2016, began seeing visual symptoms in, say 2019, went to work on learning who to mitigate and reverse MS symptoms, and yes, in 2024, I developed an augmented tincture that does the exact same thing, and it Does In-Fact work, at least for me. * - Key Words: [ Quinine, {Antiviral}, Clemestine, {Meyelin Regeneration} , and Berberine], [Method: 26 Week Proposed Program: Step 1: Comprehensive Anti-Parasitic Mitigation/Abatement Treatment [26 weeks] Step 2: Introduction and Maintenance Diet; Whal's or Swank Diet [26 Weeks and Continue] Step 3: Introduction to Understanding Balance Systems within the Body [1-26 Weeks and Forward]; Vestibular, Cerebellum, Vision, Extremities; How Each and All Systems work to establish and maintain balance, and what to do when they don't. Step 4: Introduction to Anti-Parasitic Homepathic and Over the Counter medicines. How they work, where to find them, how they are typically taken for improving microbiome health, and how to develop a [Comprehensive Augmented Tincture, which can be taken daily to mitigae and abate the ongoing presence of Biologics and Viral Agents which are common and known to be responsible for Neurological Degeneration in the Body. Step 5: Understanding The Importance of Early Disease Treatment Through Key Homeopathics people buy commonly and over the counter, but become quite adept at the mitigation; -even the potential abatement of the Signs and Symptoms of disease we call / called Mutiple Sclerosis. Step 6: Discovering Early Treatment Mitigation Strategies: Why Early Detection and Aggressive Treatment of Viruses and Biologics in the form of blood bourne parastic infection, [is only now becoming the preferred method of treatment by more and more doctors in 2020-2024-Present, - and why. {Helps To Restore Microbiome and can Improve Balance Problems slowly over time}. Hope this Helps. MDM, JD Candidate. Status Update: December 17, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Efforts to Outcomes: As of December 17, 2024, I no longer require the cane I have used since Summer, 2019 to walk and function, as I went to Walmart this evening [without the cane], did my shopping, paid for groceries, visited with store checkers as necessary, walked out, stepped up and into the truck, went home, brought groceries in, and appreciated the way [Everybody Began Treating Me Normally Once again Finally after [5 years of MS Onset of Symptoms]. Though my vision could be better, I can now see at around 20/20 20/40 Vision, as the Clemesting and Berberine appear to have made a substantial difference. I can see again, walk again, though some more physical therapy will be needed to improve and rebuild physical strength due to long periods of sitting due to MS, and am [feeling normal enough] once again as of December 18, 2024. Excelsior! :) An excellent video. I learned a lot, though I and many MS Sufferers, "did in-fact come to the very same conclusions, and have developed their own PIPE type Intervention in order to save Years possibly in long-term studies and focus groups, ... natural based solutions that [ Essentially does the exact same thing], that more and more people can actually afford in order to recover. MS, so sorry, is no longer the Diseased White Elephant in the room it once was... ' * Don't ask Me how I know it actually works. (Smile / Grin) * Here, I was diagnosed in 2016, began seeing visual symptoms in, say 2019, went to work on learning who to mitigate and reverse MS symptoms, and yes, in 2024, I developed an augmented tincture that does the exact same thing, and it Does In-Fact work, at least for me. * - Key Words: [ Quinine, {Antiviral}, Clemestine, {Meylin Regeneration} , and Berberine], [Method: 26 Week Proposed Program: Step 1: Comprehensive Anti-Parasitic Mitigation/Abatement Treatment [26 weeks] Step 2: Introduction and Maintenance Diet; Whal's or Swank Diet [26 Weeks and Continue] Step 3: Introduction to Understanding Balance Systems within the Body [1-26 Weeks and Forward]; Vestibular, Cerebellum, Vision, Extremities; How Each and All Systems work to establish and maintain balance, and what to do when they don't. Step 4: Introduction to Anti-Parasitic Homepathic and Over the Counter medicines. How they work, where to find them, how they are typically taken for improving microbiome health, and how to develop a [Comprehensive Augmented Tincture, which can be taken daily to mitigae and abate the ongoing presence of Biologics and Viral Agents which are common and known to be responsible for Neurological Degeneration in the Body. Step 5: Understanding The Importance of Early Disease Treatment Through Key Homeopathics people buy commonly and over the counter, but become quite adept at the mitigation; -even the potential abatement of the Signs and Symptoms of disease we call / called Multiple Sclerosis. Step 6: Discovering Early Treatment Mitigation Strategies: Why Early Detection and Aggressive Treatment of Viruses and Biologics in the form of blood bourne parastic infection, [is only now becoming the perferred method of treatment by more and more doctors in 2020-2024-Present, - and why. {Helps To Restore Microbiome and can Improve Balance Problems slowly over time}. Hope this Helps. MDM, JD Candidate.
cc: An excellent video. I learned a lot, though I and many MS Sufferers, "did in-fact come to the very same conclusions, and have developed their own PIPE type Intervention in order to save Years possibly in long-term studies and focus groups, ... natural based solutions that [ Essentially does the exact same thing], that more and more people can actually afford in order to recover. MS, so sorry, is no longer the Diseased White Elephant in the room it once was... ' * Don't ask Me how I know it actually works. (Smile / Grin) * Here, I was diagnosed in 2016, began seeing visual symptoms in, say 2019, went to work on learning who to mitigate and reverse MS symptoms, and yes, in 2024, I developed an augmented tincture that does the exact same thing, and it Does In-Fact work, at least for me. * - Key Words: [ Quinine, {Antiviral}, Clemestine, {Meylin Regeneration} , and Berbedine], {Helps To Restore Microbiome and can Improve Balance Problems slowly over time}. Hope this Helps. MDM, JD Candidate. Learned a lot, though I an many MS Sufferers, did in-fact come to the very same conclusions, and have developed their own PIPE type Intervention, that Essentially does the exact same thing. Don't ask Me how I know it actually works. Here, I was diagnosed in 2016, began seeing visual symptoms. Went to work on finding actual things that actually work in real-time and straight away. Thank you.
It sucks I can’t buy it online, no vendors supply it. Only FL-modafinil which works great. I just would love to try the original modafinil. Fl modafinil is also very expensive compared to other nootropics. I can get racetams wayyy cheaper but they suck unless you have the perfect choline supply going on
It seems to be the study drug of choice when I was doing a Masters in 2017. The students said they bought it from online pharmacies in Singapore. For what it’s worth.
It was wonderful for me.. until my hair broke off 😫 had to let it go and figure a different way to manage.. drugs are great until you have side effects from them.. 🙏🏾💗
Oh! I also had crazy headaches from it! UGH.. but I felt great otherwise 😏😅
@@KishBish you need to be hydrated
Always. When I get dehydrated no drugs save me! It is always a multipronged approach.
YIKES!
I'm 47, with cerebral palsy and my Psychiatrist has prescribed it for ADHD, after other stimulants caused spasticity in my legs and I had difficulty walking. Fingers crossed and I start it tomorrow morning. Thank you!
how is going?
@simonefichera4671 Very well so far! I'm up to 200mg and no side effects to speak of.
I am 67 almost 68. I have been getting bladder botox. My procedure is done as outpatient through a cystoscope. It does help. I was scared at first but I never had to cath myself after the procedure. In stead I still cath myself before going to bed. Because I have a chronic bladder since 1997. I recommend.
Its a shame that most neurologists dont have a sense of humour like you. Your joking banter about Alexa and dog joke hilarious.
Im not a neurologist! I have MS too. I do work in the field with many neurologists so I may pick up some things. Ann works for a really cool neurologist in Belgium called Doctor Bart.
Hi just to say that in Scotland prescriptions are all free and hospital parking is also free. Prescriptions are also free in Wales but I don’t know about parking fees
Great video - so pleased it is working for you, Hamish. Nice to hear how great the facilities are and that you were well looked after x
Thank you, it was an interesting time for me and the whole thing seems like a dream now. But the care I received was first class and I can't fault the treatment at all.
But aren’t the crashes even more depressive??
I don’t take it for depression.
🤞🤞🤞🤞🤞 🍀 I hope this works ☺️ very exciting medical breakthroughs
Me too ;)
Lmao, i feel you. I've been avoiding leg day for awhile.
Never avoid leg day.
The clip didn't even answer the question you asked.
Try clicking on the link to the whole video. The clip is the trailer.
EXCELLENT VIDEO, BROTHER. THANK YOU.
[let me recommend you to where I got my pharma stuff Oxy's, Adderall, Modafinil, Xanax and more very refined and reliable also guides newbies]
*@VINSPLACE* that's the handle
He's on Telegrams and Instagrams?
The insidious, invisible decline is one of the most heartbreaking things about depression.
Please sir what is with the trial you do climastin and metformin
Please sir what is with the trial you do climastin and metformin
You’ll have to look on the Cambridge University website.
Thanks Dom! This news bring me hope . In Spain, i guess, theres no site to join the clinical trial
Sadly no. Unless you move to London ;)
Thank you so much for this!
Hello sir, I hope you are well. I saw that your RUclips videos are very lovely and very helpful. You have enough of the videos but your video is not getting views because there is some problem with your videos. Your SEO score is very poor (5% out of 100)and you need optimization for better results. If you update the videos then the views of the video will increase. If you want you can discuss with me. Thank you so much.
Thanks for continuing to keep us informed. I look forward to hearing how this goes!
Will do
This is interesting news.
This is exciting!
This video made me feel better. It made me feel like maybe I can get through this. I had pretty severe case of cellulitis and was hospitalized for 5 days. I got 2-3 shots of steroids a day plus 2 different antibiotics and fluids. After I got home I was taking clyndomycin and prednisone for a week. I'm 3 days off the meds, and I feel so tired. I am so lightheaded and nauseous and so sleepy. I never even knew this was a thing. Trudging through the day with a head full of fog and no energy. It really makes me feel the way I used to feel when I had a seizure and had to take more Dilantin than normal. This persistent dream like state, I am hoping this doesn't last long.
Urgh. I hope you feel better soon. All the best.
Does anyone have experience with pretty much all the symptoms but nothing showing up on an MRI? If so, did you ever get a diagnosis?
There are plenty of MS mimics. The oligoclonal bands from a lumbar puncture would seal the deal.
Thank you
@sunnyrey9304 pleasure. I’d read the MS-Selfie by Prof G this week. I did after I replied.
🎉🎉well done on completing the trial
Thank you.
It’s so hard to find any trials and when I do, the endless requirements never stop, so then I’m bound to not be accepted 😪😔 they don’t make it easy on people with ms
It isn’t just MS. To make a trial give robust and credible data the input variables- us - need to be v tightly controlled.
@@theMSguide I would be very interested in the trial that you/Dominic has been talking about on theMSguide. Could you please get in contact with me to discuss the details of the trial and what it entails. I have Relapsing Remitting MS. Thank you xx
@@cheryl2091 This particular trial - SIZOMUS - is only running at the Royal London Hospital. If you are near there then drop me a line at dominic@theMSguide.com Most (not all - get to know if your hospital had a dedicated trials unit as most large ones will) trials are listed on clinicaltrials.gov Applying the various filters like disease (MS) and location will help you narrow it down. There will be the contact details if you are interested.
"You're not going to die. Yeah, I would rather not be disabled, either". BOOM. The point, right there.
Dom this is so awesome and exciting you are doing this!
Thank you. Cheque’s in the post.
How is he doing now after 2years ?
Incredibly well. We are about to do a follow up.
Dominic, where can i support your 1M challenge?
Hi Haydee, that is very kind. We have been working really hard to put in place the back end required. There will be the opportunity/ability to donate v shortly. And we'll be shouting it from the rooftops! Please can you email dominic@theMSguide.com and I'll reply and add you to the notification list. You are a 🌟 Cheers.
Thanks for talking about the ear pain! I also have ms and had that ear pain a couple of times for a few hours and then its gone. Its always my left ear and it feels like someone set a knife on the back side of my ear.
It’s a real bugger isn’t it!
💪
Cheer~~~likely or liable to be influenced or harmed by a particular thing.😊
Well done keep us updated
Every day with shorts. I am a manning a little n get update tomorrow as it is a rest day.
Inspirational, well done Dom! 🙂
Impressive.
So lucky. I went nearly 13 years begging for help. Describing symptoms. Add saying that I couldn't keep on like this. Slammed doors. Yelling. Getting mocked. It was awful
Doctor: can you walk 25m? Me: thanks for asking doc, I can walk 25000 meters with not much problems…
:-) A few years ago I walked 163km in four days with a 14kg pack.
Thank you, Don. Couldn't agree more about how done doctors see the scale of symptoms. Can you walk 25 metres struck such fear into my son's heart (and mine) when he had his first MS appointment.
Wow Dom an amazing personal challenge! I believe in you & look forward to continuing to follow your journey x
Thank you :-)
thx
thx
My hero
Lookin good ! Keep it up !!
Thanks