I couldn’t figure out why heat made me feel so awful- I recently got diagnosed with MS but I have had the symptoms for 20 years (they called it chronic fatigue syndrome for the last 15 years) and your explanation helps me understand why I need cold showers, get worse with exercise or out in the heat. I use a fan to help sleep. I live in a hot dry area (forest fire central here in BC🇨🇦) I didn’t realize that stress increases core temperature. And I worried that I’m getting worse due to heat. I’m going to add ice to the water and drink my coffee iced. Looking into cooling garments.
I literally noticed this about the temperature outside causing pressure in my body last week. I didn't even know this could happen and I did not yet know I had MS but was questioning it. I mentioned it to my physical therapist. Even when I was there also and it was cool inside, I really struggled that week because of the intense intense heat outside. It was horrible.
I live in Florida and this summer is brutal. I have absolutely no energy & painful muscle spasms galore! I’m so miserable 😩 Thank you so much for this video. I will definitely try these interventions.
Girl, we need to move north! Arkansas gets so hot and humid, too. I went to the Gulf Coast in May, thinking nothing of it. I went out one day for an hour, in the shade by the pool and that sent me into an “attack” and put me in the bed the rest of the week. I couldn’t even go eat at night, nothing. It was one of the worst weeks of my life. I had no idea I might have a disease causing this. I’m just now ruling out all the differential dx like lupus. I am 99% convinced it’s MS. I hope you’re doing better as the temps aren’t deathly high right now. Thank God!
Yeah, when I mowed my lawn (when it is was hot or not), I become so fatigued, I can barely walk into my house afterwards. If I do anything physical, it worsens my MS.
I use regular gel ice packs that I cut in strips ( that ends up being 3-4 of the packs) wrap around my neck and change them out every 1 1/2 hours. That means I need a hard sided cooler but it’s the only way.
I couldn’t figure out why heat made me feel so awful- I recently got diagnosed with MS but I have had the symptoms for 20 years (they called it chronic fatigue syndrome for the last 15 years) and your explanation helps me understand why I need cold showers, get worse with exercise or out in the heat. I use a fan to help sleep. I live in a hot dry area (forest fire central here in BC🇨🇦)
I didn’t realize that stress increases core temperature. And I worried that I’m getting worse due to heat.
I’m going to add ice to the water and drink my coffee iced. Looking into cooling garments.
Fever. I can generally tell if I have a fever even before I check with a thermometer.
Same here! I start seeing blurry before realizing the fever is happening. It's like a confirmation of a fever, haha! Best wishes! 😉
Excellent tips. I will definitely implement them to combat heat intolerance.
Love this! All the things that can increase our core temps. Brilliant tips!
I literally noticed this about the temperature outside causing pressure in my body last week. I didn't even know this could happen and I did not yet know I had MS but was questioning it. I mentioned it to my physical therapist. Even when I was there also and it was cool inside, I really struggled that week because of the intense intense heat outside. It was horrible.
I live in Florida and this summer is brutal. I have absolutely no energy & painful muscle spasms galore! I’m so miserable 😩 Thank you so much for this video. I will definitely try these interventions.
I hope that these tips can prove helpful for you!!
Girl, we need to move north! Arkansas gets so hot and humid, too. I went to the Gulf Coast in May, thinking nothing of it. I went out one day for an hour, in the shade by the pool and that sent me into an “attack” and put me in the bed the rest of the week. I couldn’t even go eat at night, nothing. It was one of the worst weeks of my life. I had no idea I might have a disease causing this. I’m just now ruling out all the differential dx like lupus. I am 99% convinced it’s
MS. I hope you’re doing better as the temps aren’t deathly high right now. Thank God!
@@Hopscotch_24 😢
Thank you beautiful soul 🧡
Dr. Gretchen ALL of your videos are insightful, relatable and very helpful for symptom management. Thank you.
You're very welcome!🧡
It's called Uhthoff phenomenon, heat horrible to my MS, might have to move to Iceland
Great information ❤thanks
My first video here, new subscriber! Thank you so much 💖💖
Welcome! I'm so happy you found my page!
Hello, I’ve just subscribed having watched your interview with Evensoutiswell on Neuroplasticity, which I loved 👍🙂
I get daily headaches /migraines when it’s hot outside even tho im inside with ac
Thank you for sharing! Even when being in AC the barometric pressure can affect a person. I hope that the tips shared can prove helpful for you!
Yeah, when I mowed my lawn (when it is was hot or not), I become so fatigued, I can barely walk into my house afterwards. If I do anything physical, it worsens my MS.
I appreciate you sharing your experience! You are definitely not alone!
I read somewhere that a dose of 650mg of Aspirin can be very beneficial to keep core temperature down during exercise or warm weather
Interesting! Thank you for sharing!
I use regular gel ice packs that I cut in strips ( that ends up being 3-4 of the packs) wrap around my neck and change them out every 1 1/2 hours. That means I need a hard sided cooler but it’s the only way.
Thank you for sharing! This is a great tip as well!
I live in northeast florida so the heat is something i'm all too familiar with
I can imagine!! Hope you are doing well!
Do muscles popping and twitching after exercise count as a “heat intolerance” symptom in MS?
Potentially… it could also be a sign of fatigue.
It’s much much worse than in the past for me. I can not function
I'm sorry to hear that! I hope that some of these tips can be helpful for you!
I made the mistake of moving to Austin... Whoops. Haha, if you have MS, don't do that! :)
Thank you for sharing!