I'm literally in tears - nobody understands and most people don't want to. You just showed everyone what they need to know about this, this is why I'm in tears, YOU GOT IT! You absolutely showed why this is SO hard - and why others should care and try to understand. THANK YOU SO MUCH 🩵💞 Extra soft hugs to you and sending you warm blessings - I'm a loyal sister in pain. ✌🏻🩵
Your comment made me emotional too. It means so much to hear that my video resonated with you on such a deep level. We know how hard it is to make others understand what we go through, and I'm glad I could help shine a light on it. Thank you for your kind words and for being a loyal sister in pain. Your support and empathy mean the world to me. Extra soft hugs back to you. Let's keep lifting each other up and pushing through together. ♥️
@tt_looking_glass I also showed your video to my mom, she always wants to do things to help me - she really got a better understanding of what I go through & why there's only so much any of us can do.
That's amazing. I'm so glad the video was helpful to your mom and gave her a better understanding of what you're going through. It's so important for our loved ones to grasp the reality of our challenges. Thank you for sharing this with me. Your support and kind words mean a lot. Hang in there, and remember, you're not alone in this journey. 💖
This Video really hit me hard because this is my life daily. You hit the nail on the head, especially going from the shower back to the bed to rest up. Showers are so draining, I don't know whats the hardest the heat and steam then reaching and bending to clean my hair and body its a literal workout. Getting my heart rate back down, my breathing slowed down and cooled off then thinking about what to wear. Is it a PJ day or get dressed kinda day. Or lay there a while and wait and see kinda day. I loved your fabric hang from the ceiling. I've got to try it!
lord right now i lift up MK-Empath, her mom also sheheri5828 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on these people and you will see them throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around these sisters and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on them to much help them pull through this ordeal and by all means please help these sister’s faith to grow stronger each and everyday and help them not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
It’s so validating to see someone else go through what I’m going through. My pain feels like it’s in my bones also. It’s heartbreaking that the medical community has not been able to help us. Thank you for sharing. Stacy
Stacy, I couldn't agree more! It's incredibly validating to see someone else going through what you're experiencing. Fibromyalgia is a condition that can make you feel isolated, so finding that connection in someone else's story can be truly comforting. It's disheartening that the medical community hasn't been able to provide more answers or solutions for Fibromyalgia yet. But in sharing our experiences and supporting each other, we can find a sense of empowerment and understanding. Thank you for your heartfelt comment and for being a part of this community. 💕
Dear Stacy, Please can I let you know about how my local doctors help me. They are brilliant! I am on tramadol and I can take it with paracetamol at same time. Rest. No bad emotions. No upset. 9 hours sleep every night. Healthy food. Lots of healthy quality water-the tap water here is OK. Multi vits and mins. Vit D3. B Complex. Restless legs syndrome I take 2 pram...something. I am tired today and I am resting 50 percent today. BUT...my GPs DO UNDERSTAND and they inform me about fibromyalgia. It causes severe chronic functional constipation so I am on 5 docusate a day too. And my understanding husband, Mr Furry Bear, is so beautiful! I stand up for what I need and want! I am getting better at it. I am autistic ADHD as well as fibromyalgia. I hope this is helpful in some way for you. God bless. Bess in UK x
Absolutely, it's a reality that many don't realize. Something as simple as taking a shower can become a daunting task when you're dealing with fibromyalgia. It's those everyday activities that others take for granted, which can sometimes feel like climbing a mountain for us.
I have reached a point in which am having burning sensation and pain throughout my body whenever i share and it drains me to zerooo and cause me headaches 🫠🫠🫠 Most of the new things am facing have been caused by antidepressants…
I just explained to my husband that showering takes so much out of me. More than almost anything else I do. He is understanding but will never truly understand.
I relate to the burning pain from the bones and core. It spreads through the muscles to the skin. I have lived with Fibro at least 10 years now. Bless you all ❤
Thank you for sharing your experience with fibromyalgia. I’m truly sorry to hear about the intense burning pain you endure. It shows how relentless fibro flares are. Living with this for over a decade requires incredible resilience. If you have any strategies or tips that have helped you manage these symptoms, please feel free to share them. Your insights could be incredibly helpful to others in our community who are navigating similar challenges. Stay strong, and thank you again for reaching out and relating your journey.
@@tt_looking_glass Balance is key. Not restrain my body, mind or emotional state. Soft excercise such as walks and yinyoga which works on faschia. Try to get min 8 hrs sleep at night. I rest many timrs during the day. Filter my water, fruits/berries and greens in lots and make sure stomach functions well. Trippel magnesium in high dose at night and other essential minerals. Liver cleansing herbs. CBD oil. Antiinflammatory such as turmeric and ginger. Unfortubatley I am still having to use pharmacetical painkillers and other meds when the pain is out of control. But with a healthier lifestyle I manage daily life better. Bless you all ❤️
Thanks for sharing your approach to maintaining balance. It sounds like you’ve really honed in on what works for you. Those are all powerful tools for managing health holistically. I hear you on still needing pharmaceutical help at times, despite our best efforts with lifestyle changes, medication is necessary to manage pain and other symptoms. It’s all about finding that right mix that works for you personally. Keep doing what feels right for your body and mind, and thanks for blessing us with your wisdom! Wishing you continued strength and wellness. ❤️
For me its my bones. I have this weird, numbing pain in my bones that sometimes just comes out of nowhere. I feel like I'm only now discovering the sheer extent of all of my symptoms. The tiredness, the brainfog, the memory issues. Its so frustrating because this illness just does EVERYTHING. I still have to learn to live my life with it, despite being diagnosed... I think 8 years now? I've tried to just avoid thinking about it but I think that just hurt me
I just was slammed with a whole bunch of dx, fibro being the least. I'm experiencing a lot of what you're describing and I'm crying bc I didn't know that I'm not crazy and I'm not alone. 😢 THANK YOU
Kimmie, I’m so sorry you’ve been hit with so much at once, but I’m so glad this helped you feel less alone. You are absolutely not crazy, everything you’re feeling is valid, and you’re stronger than you realize. Thank YOU for sharing this, it means so much. Sending you love and hoping for some gentler days ahead. ❤️
lord right now i lift up KimmieSunshine and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Kim and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I used to think that it was just when the weather turned bad that affected me but actually it’s like you said any change is a problem. It’s kind of funny because I as a person love change but my body doesn’t. lol! Thanks for your comment.
Yes. I seem to not experience this so much now since we moved south 12 years ago. I used to watch the barometric pressure numbers. Forgot how they work, but a certain something at a certain low or high will mine bad news for me.
lord right now i lift up terrymattson3587, and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help thitsister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I love that you had gotten excited about accomplishing your hair. I felt like this a few days ago, and I am so happy that I could finally do my hair. Most days can be so challenging with our illness.
Dealing with my hair is the hardest aspect of personal hygiene for me, and sometimes it gets neglected. It always makes me happy to have a nice and clean hare. So if I'm in a flare when I get my hair washed is a reason to celebrate.
lord right now i lift up mariahwashington190, and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help thitsister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Wow 😮 that was so real. I hope I’m not an interloper (I have severe COPD).nobody I know gets it. Showers are the hardest for me too. I almost feel like crying when I get out. Not only the fatigue, but I get breathless with little movement. I worry I’ll pass out n the shower. I live alone and that is so scary. All my life I’ve showered every day (sometimes twice) now I put it off as long as possible. Thanks for letting me butt in, I really enjoy your channel. That rain and rainbow at the end was beautiful.
You're definitely not an interloper here; this is a space for everyone who's battling their own challenges, and severe COPD is a tough journey. It's hard when those around you can't fully grasp the extent of what you're going through. The struggle with showers, something so many take for granted, speaks tones about the daily hurdles we face. It's understandable to feel scared about the possibility of passing out, especially when you're living alone. Thank you for sharing your story and for being a part of this community. Your voice adds to the diverse experiences here, and it's valuable. Keep reaching out, keep sharing, and know that you're not alone in this. Take care and stay safe. ♥️🌈
lord right now i lift up charlashellhorn3866 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Charla and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Thank you. I know other people go through similar experiences and we often feel so alone. I want people to know, though it’s hard, we can get through this. Hopefully someone will find comfort in knowing they are not alone in their struggles.
lord right now i lift up zoeabundantmind7170 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Zoe and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I’m an Australian, and I’ve been diagnosed with Fibromyalgia back in 2016/2017. I totally get you, I’ve been suffering flares lately as the weather is all up& down as we’re in Spring 2023 here. So yes I always know when the weather is going to change, from nice warm sunny to cold, cloudy stormy raining I hate it and I just want to achieve something but I can’t I just want to curl up in a ball & sleep 😩😭😫😣😖🥺
I completely understand what you're going through. It's like our bodies have their own built-in barometers, right? When the weather starts shifting, it's as if our symptoms become more pronounced, and it can be incredibly disheartening. I know that feeling of wanting to accomplish things but feeling trapped by the unpredictable nature of the condition. There are days when all you want to do is curl up in a ball and disappear. Just remember, you're not alone in this. Many of us in the fibromyalgia community share these weather-related struggles. Sharing our experiences can help us feel more connected and understood. On those tough days, take things one step at a time, and know that there are others who genuinely understand what you're going through. Stay strong, and take good care of yourself. 🌦️💙😔
People like me; I get so much more done mentally than physically sometimes. Especially in the kitchen. I used to enjoy cooking now cooking along with other tasks just feels like too much during a flare. Everything feels so very overwhelming.
I completely understand how you feel. It's incredibly challenging when the things we once enjoyed, like cooking, become sources of stress and exhaustion due to flare-ups. It’s okay to acknowledge that some days are harder than others and to adjust your activities accordingly. Remember, this community is here for you, sharing in the ups and downs and offering support whenever you need it. Take care of yourself.
lord right now i lift up LuxeJourneyVlogs and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Luxe and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
thank you for posting this, I relate completely with you, Is nice to hear from someone who has very similar experiences than myself… knowing I am not alone 💓💓
I’m so glad this resonated with you, Angie. It’s such a comfort to know that we’re not alone in what we go through, and it means a lot to me that you can relate. Sharing these experiences helps us all feel a little more connected, even on the toughest days. Thank you for being part of this community. together, we’re stronger. 💕
Lord Jesus Bless you!!! Sister I’m feeling your pain! I have it too. You had me laughing so hard because I can so relate. Another human being who understands. Thank you for being real and open. The Lord understands our pain and mental state. Praying that by God’s grace He will give some strength and relief. Keep believing and praying. ❤️
Thank you so much for your comment! It's truly uplifting to connect with someone who understands the challenges of living with fibromyalgia. I'm glad I could bring some laughter to your day and let you know that you're not alone in this journey. You're absolutely right, the Lord understands our pain, and it's through His grace that we find strength and relief. Keeping the faith and continuing to pray is essential, as we trust in God's plan for our lives. Sending you love and prayers as we navigate this fibromyalgia journey. Stay strong! ❤️
This is probably my most rewatched videos of yours. Going through hell at the moment, but like you say “We got this”. I know it’ll end but this is a real comfort video for me. Thanks once again for somehow finding the energy to make this. ((Big Hugs To You)) xxx
I'm so sorry you are going through such a hard time at the moment. It is so hard while we are in the midst of it. It feels like it will never end. It is interesting how the videos that I get the most views are the ones I had no idea how I was going to make a video that week. I just grabbed the camera without any plan and started filming in the hopes that maybe later when I was feeling a bit better I could turn what I had captured into a video. I'm glad it brings people some comfort or hope because it is really hard to pick up the camera when I'm not well. Thank you for telling me that. It is definitely a big boost of confidence in continuing this channel. Feel better soon. 😍
I understand I’ve been watching videos for hours, sleep doesn’t come easy with fibromyalgia. Weather change is spot on, it triggers the pain. And we feel so much better after a shower, but it can be so exhausting. Thanks for this video , I hope you got through this nasty flare up.💜
Wendy, you get it exactly, it’s like even the smallest things, like weather or a shower, can be a battle some days. I’m so sorry you’re dealing with all of this, but I love how you shared what helps, even if it’s just a little relief. Thank you for watching and connecting. Sending lots of love your way! 💜
lord right now i lift up WendyHannan-pt7ez and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Wendy and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Thank you for this vlog. I’m going through a bad flare at the moment and it really helped watching this. I do also feel pain when the weather and air pressure is changing. Hope your flare ends soon x
It makes me so happy to know that this video has helped someone. I am feeling much better. It did seem like it was never going to end but somehow I just keep pushing through. I guess you could say I have no choice, but the power lies in not losing hope. The weather has been very unstable this spring and I think it has definitely contributed to it. Im hoping that as summer approaches it will get better. Thanks for watching.
Thank you so much for the subscription! ❤️Welcome to this wonderful community. I hope you enjoy the channel. I try to post twice a week (Mondays and Fridays) but sometimes my body just doesn’t cooperate. Im sure you know how it is. When that happens I usually make a community post and let you guys know. I hope the weather where you live is kind to you.
@@tt_looking_glass Oh, I understand completely! I live in Michigan where the weather is a rollercoaster. Allergy season, then snow. I don't know what's worse. But we're in the same boat. I know I'll enjoy everything you're able to film. Maybe enjoy is the wrong word, but commiserate with you!
@@klb374money oh man! Yeah, that is tough weather. Pretty much what we have here in Ontario. My content goes from “cry with me, I’m having a really hard time” to “look at me, I’m living the life!” and everything in between. Lol! I try to be as honest and real as possible so people don’t feel so alone in their journeys but also trying to inspire at the same time. It’s a hard balance but I do my best.
I'm so happy to see a real account of someone with chronic illness and has a home, family etc. I agree with you about trying to help our mental health by trying 5/10 minutes of just doing something that's going to help and for me it's my surroundings being clean, not tidy as I can't do that now but clean is good and for my own self cleaning etc. This is a good video. Thank you and I hope your flare is easing up for you. Xxxx
Hi Irene, thank you for your kind comment. It means a lot to me. That flare has passed and I have been able to go camping and visit my daughter since. However, I have acquired COVID last week and I’m struggling to recover. I will make a video about how I got it and how it has been to recover from it as soon as I have the energy to pick up a camera.
@@tt_looking_glass I'm so sorry, you must feel absolutely awful. I had Covid back in December and it's not nice at all. Take good care and I'm thinking of you. Look after you! Xxxxxx
thanks for this video. those long flare ups with fibromyalgia are the worst :(. after 7 years of pain, I was finally diagnosed a few months ago after a two week long flare up that started with severe pain in my left foot, than radiated to all over my body and made me unable to walk properly for like 4 days. it was only a few days before my HS graduation and I was at one of my lowest points in life. healthy people don't understand how debilitating, isolating, and heartbreaking this stuff is. it sucks. just glad to know that you and so many others online get it too ❤
I’m so sorry you had to go through that, especially right before such an important milestone like your graduation. Flares like that are absolutely brutal, and it’s hard for people who haven’t experienced it to understand just how much it takes out of you. It’s isolating and frustrating, and it can really feel like the world is closing in. But you’re not alone in this, and I’m glad you found some comfort in knowing there are others who truly get it. We’re here to lift each other up on those tough days. Keep pushing through, and remember that even on the hardest days, you’re doing an amazing job. Sending lots of love your way ❤️.
My heart brakes for you. My wife has had fibromyalgia for over 20yrs. Every thing you covered on this video is what she deals with. She knows when the weather is going to change she tells me that it’s hurts in her core in her bones. She deals with migraines and CFS. In 2019 we went to Panama to get stem cells and it helped her a lot.
I’m really moved by your empathy and support for your wife. It sounds like she has a strong ally in you, and I appreciate you sharing a bit about her journey with us. The trip to Panama for stem cell treatment is quite intriguing. I haven't heard of stem cell therapy for fibromyalgia before. Could you share more about how it works and how it helped her? It’s incredible how deeply fibromyalgia affects those living with it, from predicting weather changes to managing migraines and chronic fatigue. Thank you for watching the video and connecting here. I hope you both continue to find ways that ease her symptoms and improve her quality of life.
Wow that was such a raw and great insight into what fibro looks like. I believe I have it also. Waiting to see a Rheumatologist in July for a diagnosis. Thank you for being so strong and brave to share your story. I hope there's more studies in the future that will come out to show what causes fibromyalgia and cures for this illness. Praying for all who have it and those waiting for a diagnosis 🙏
Thank you so much for your comment! I'm glad this video resonated with you. It can be a challenging and often misunderstood condition, so sharing personal experiences can help raise awareness and provide support to others who may be going through something similar. I truly hope your upcoming appointment with the Rheumatologist goes well and provides you with the clarity you seek. You're absolutely right that more research and studies are needed to better understand the causes of fibromyalgia and find effective treatments or even a cure. It's an area that still requires further exploration, but advancements are being made and I hope with time answers will be found. In the meantime, it's important to stay hopeful and positive and keep advocating for yourself. Sending you positive thoughts and well wishes as you navigate your journey toward a diagnosis. ❤️
Cold, wet, weather knocks me down so bad. Thank you for your channel, just found it and now I’m not hating on myself so much for not managing to shower as energy cup is empty
I'm so glad you found the channel and that it's helping you feel less alone. It can be incredibly tough when the weather exacerbates symptoms, and it's important to be gentle with ourselves. Remember, taking care of your basic needs is a victory in itself. You are doing your best, and that is enough. Sending you strength and gentle hugs. 💜
Oh no, I’m so sorry to hear you’re flaring right now! 😔 Yes, weeks, it’s rough, but knowing there are so many kindred spirits like you out there makes it a little easier to get through. Sending lots of strength your way, and I hope this flare passes soon! Hang in there! 💜
Hopefully, this vlog will help people going through similar experiences to not feel so alone. All the best with your journey. I hope you will find my videos helpful. Next week I will be posting a "How to get stuff done when you have a chronic illness" video. Don't miss it. Make sure to subscribe.
❤❤❤❤❤ My dear sister, I 100% understand... It is like you made this video to explain my life. I will use it to send to some friends and family. Hopefully it will help to give them further understanding with this peek into yours and my life. Thank you so much for making this video. The energy it would have taken you even to do this is very appreciated. God bless you. indeed! Heaven is coming soon 🙏🏼💐
Thank you so much for your beautiful message. It means a lot to know that the video resonated with you and that you’re sharing it to help others understand what life with fibromyalgia is like. It’s always my hope that these videos can foster greater empathy and support. I really appreciate your recognition of the energy that goes into creating these pieces, it truly keeps me motivated. God bless you too, and take care! ♥️
I'm truly happy to hear that the video brought you a bit of hope and motivation, especially during such a tough time. Flares are so draining, and finding even a small amount of relief or encouragement is so important. Keep holding onto that hope, and remember that you're not alone in this journey. We're all here to support each other. Stay strong and take care! ♥️
I am so happy that this video provided what you needed. If it brings a little bit of comfort for someone, it was worth sharing. I hope you improve soon. Take care.
Glad I found your channel. I'm about to get diagnosed with fibromyalgia after many years of suffering from it. Been going to the orthopedic doctor for 4 to 5 years on and off mostly in spring which is when my flares are excruciating. So the doc finally introduced me to the a rheumatologist. I did extensive blood work (uric acid etc) and he came to the conclusion that what I suffer from is fibromyalgia. Now I'm waiting his letter of recommendation to a neurologist. Can't wait to be diagnosed and get the proper meds cause I hate doing so little in a day and feeling like I climbed a mountain just from cooking and doing the dishes.
I'm glad you found my channel too and shared your story. Welcome to the community. I understand how frustrating it is to feel so limited by your symptoms, and it's understandable why you're eagerly awaiting a formal diagnosis and proper medication. Proper treatment can make a huge difference. I don't know if you saw some of my more recent videos with the title "Diagnosed with Fibromyalgia? - What I wish I knew." ruclips.net/video/WhGiJtNqmHw/видео.html and "STOP doing this if you have Fibromyalgia" ruclips.net/video/-3PbyAaeFb8/видео.html . I believe those videos can be very helpful if you have just been diagnosed. I hope they bring you some guidance in your Fibromyalgia journey. Take care. ♥️
Paula, I’m so sorry you’re dealing with that constant severe pain too. It’s such a hard thing to live with, but the fact that you’re here, trying your best every day, says so much about your strength. That effort counts, even on the days when it doesn’t feel like it. ❤️
Thank you for this video.im having a bad fair, so i watch youre video, it helps to se other fibro people, then you dont feel so alone.This is me everyday just like you.❤high five fibro warrior❤😊
Really glad to hear that the video helped you out. It's tough dealing with a flare-up, but it's good to know that seeing others going through the same thing can make you feel less alone. It's a daily battle, for sure. Sending a big high five right back at you, fellow fibro warrior! 😊
This is such a true reflection on life with fibro......had a bad night last night followed by a bad day...I hate the feeling of being useless .....how can showering become such a task? I sometimes get into despair as t feelsnlike it will last forever ......I always say....t can't rain all the time. X ❤️
When you are going through a flare it feels like you will never feel better again. It is so hard. I need people to remind me that I have survived other flares. I hope this one improves for you soon, and meanwhile, I hope my videos keep you company.
I just came out of a month flare...i mostly live in bed anyways, my fibromyalgia is so severe im in full time pain, cant work, lost everything, i just found your channel, i have cried at every video just having ppl who understand 😥❤ showers r one of the hardest most draining tasks i miss enjoying my showers like i used to, now its so painful & fatiguing, that sometime i just get out & lay down immediately, but sometimes the pain is so bad just from the shower alone i end up puking in the toilet immediately after😢 its so sad/discouraging
Hey Catie! I'm so sorry to hear about your long flare and the constant pain you're dealing with. I understand how tough it is to live in bed and feel like you've lost so much. Finding this community where people truly understand what you're going through can be a lifeline, and I'm glad you're here with us. 💜 Showers are a draining and painful task - I totally get that. It's heartbreaking when something that used to be a simple pleasure becomes a source of pain and exhaustion. I've had moments where even the smallest tasks leave me feeling completely wiped out, so I can relate to how discouraging it feels. Please know you're not alone, and it's okay to have those tough days. We're all here to support each other, and I'm sending you the biggest, gentlest hugs. Take it one day at a time, and remember to be kind to yourself. You're incredibly strong, even on the days it doesn't feel like it. 💜
I’m so sorry you’re going through this too, Natalie. Fibro flares can be incredibly tough. It helps to know we’re not alone in this. Sending you gentle hugs and hoping for better days ahead for both of us. 💖
thank you so much for sharing im in a flare right now with a lot of family stress of parents getting old and having to try care for them as well as our selfs and make time for the grandkids i dont like them seeing me in pain so its hard but like you i try to stay positive to help get me through so thank you that yoga sling looks amazing going to have to get one for my back ans shoulders as well thank you x
Hi Amanda, It sounds like you’re really going through a tough time right now, managing your own flare-ups while also caring for your aging parents and spending time with your grandkids. It’s a lot to handle, and your effort to stay positive and strong for your family is incredible I’m glad you found the yoga sling interesting. I absolutely love mine. it could definitely be a helpful tool for your back and shoulders, providing some relief and support. Taking care of yourself is just as important as the care you provide to others, so I hope the sling brings you some comfort. Thank you for sharing what you are going through and for your kind words. It’s okay to have tough days and not always feel positive. You’re doing your best, and that’s more than enough. Sending you strength and hoping you find some peaceful moments amidst the challenges.
I'm so glad to hear the video spoke to you. It's so important to have spaces where we can share our stories and feel understood. Your message is a reminder of why creating content that resonates with others' experiences is so valuable. ❤️
Right now im on day 17 of the worst flare ive had in years. The days are bad but the nights,,,they are a whole nother level of hell. It's not nice to see a fellow Human suffer but it helps to know we arent on our own in this.
I’m so sorry you’re going through such a tough time. Seventeen days of a flare is brutal, and those nights can be especially torturous. It’s like you can’t even catch a break when the world is supposed to be quiet and restful. I completely understand that feeling of isolation during the worst of it, but knowing we have each other to lean on makes a difference. It’s comforting to know we’re not alone in this struggle. Hang in there, and thank you for sharing your story. Sending strength and hoping you find some relief soon.
So glad I found your channel it is helping me a lot. I am really sick atm and I have chronic pelvic pain as well as fibro and many other issues. So my body is in extreme pain and I’m sick from the pain most night and fibro is relatively new to me so still learning to deal with it. I’m struggling so much at the moment though this flare and struggling to keep my head up and fight. I’m in pain everyday but because I have a flu it’s amplified I know that. Any advice to try get thru this or could you do a video dealing with fibro when you are sick? But your channel has helped me alot to have some faith. Thank you for doing what you are you keep me inspired and I’m sure so many others.
I’m glad this video gave you hope. There is no other way to put it. Flares as hard! The two biggest advice I have is, you need to have patience and they will not last forever. Make sure to get rid of all the guilt of not doing anything but surviving. Find ways to distract yourself and use medications to help with symptoms if they are safe for you to do so. There are two videos that I will be making soon, one is things that help me deal with pain and the other is what to do during a flare. I also have to navigate flares all the time. I have all those video ideas but then I get a flare, or Covid, or migraines… it’s always something. It’s hard to keep a consistent life. For me life with Fibromyalgia is all about constantly adapting, changing plans… at the beginning I used to get angry but now I actually take pride on how resilient I have become. I’m still practicing the patience part, I have always been very impatient but I’m slowly learning that I don’t have to be in control all the time. Because Fibromyalgia is new to you, you are still developing skills to deal with it. You will learn what works for you over time. It makes a lot easier to be surrounded by understanding, loving and supportive people. I hope you start to feel better soon. Remember, you are not alone. Many people are going through a flare right this moment.
Thank you so much for replying to me. Yeh I get cluster migraines and they are horrible. I just trying to adapt to all this pain and my body feels like it is deteriorating. You are a very strong lady and thank you for your advice and videos they are helping me. It’s hard to deal with multiple chronic illnesses that are invisible. I have amazing support around me, just find it hard to explain fibro to them, I have showed them some of your videos and they have slightly better understanding. I have pain killers but sometimes they just don’t do enough. Some nights I think of going to hospital but really not sure what they can even do and I don’t like hospitals. I hope you are doing better and thank you again for helping me and many others.
Thank you sharing this video of a flare up. 💕🛐 I'm coming out of a two week fibro/fatigue flare. Adding your video to my "FIBROMYALGIA & CFS HELP" playlist :) Love and God bless You😇 Rachel in Nashville:) Claiming Healing from Psalm 103💕😇
Hi Rachel, thank you so much for your kind comment! I'm sorry to hear that you've been experiencing a fibro/fatigue flare-up for the past two weeks. I can understand how challenging and draining that can be. I truly appreciate you taking the time to watch and share this video. It means a lot to me that you've added it to your "FIBROMYALGIA & CFS HELP" playlist. Sending you lots of love and blessings as you navigate your journey. Stay strong and take care! ♥️
@@tt_looking_glass Hi Daniela! 🐱🌞 Hope I'm spelling your name right 😉 You are SO WELCOME for watching and for adding your vids to my playlist :) I just added more!🤗🎦 Your videos are very interesting and informative! :) Also your video shorts are cute and creative, and some made me laugh! Thank You for the laughter today! "Laughter does good like a medicine" - Psalms 📙📖🐱 Also your videos just greatly encouraged me today that I'm not alone 🦜🦩🐠 And your tips for how to live with fibromyalgia really helped as well! I have some of those tips and protocols in place already...but I may need to find a doctor who is more supportive and helpful about this issue. Also I'm working on moving my body more🚶♀️🏄♀️ Lol on surfing, yeah right!! 😉 But I do love walking, and that helps. I know the Lord heals our bodies and sometimes it's over time and not instantly, and He gives us natural things too, like herbs and vitamins, which helps our bodies 🌞 My vitamin array is similar to yours...it's pretty grand!! Anyways love and blessings to you too, and I'm so glad you have a loving husband to support you! What a HUGE BLESSING!! Have a wonderful week:) Rachel in Nashville:) P.S.... Your videos have inspired me even more to go ahead and make a new video. Tomorrow is my birthday and I HOPE to make a video tonight or tomorrow. 🎦🎦😉💕🛐
Hi Rachel! 🐱🌞 Thank you so much for your lovely and heartfelt comment! You spelled my name perfectly, and I truly appreciate your kind words and support. I'm thrilled to hear that you find my videos interesting, informative, and even funny! Laughter is indeed a wonderful medicine for the soul, and I'm glad I could bring some joy to your day. I'm touched to know that my videos have encouraged you and made you feel less alone. Dealing with fibromyalgia can be challenging, but finding supportive healthcare professionals and implementing helpful tips and protocols can make a significant difference. I'm glad to hear that you already have some of those in place and that you're working on moving your body more through walking. It's all about finding what works best for you. You're absolutely right that the Lord heals our bodies. Happy early birthday! 🎉🎂 I'm excited to hear that my videos have inspired you to create a new video of your own. What a wonderful way to celebrate your birthday! I wish you all the best with your video creation, and may it bring you joy and fulfillment. I will check out your channel. Thank you for your kind wishes, love, and blessings. Having a supportive husband is indeed a tremendous blessing in my life. I hope you have a fantastic week as well, filled with love, joy, and memorable moments. Take care, Rachel, and once again, happy birthday! 🎉💕
@@tt_looking_glass AWWWW THANK YOU, Daniela!! What a beautiful, sweet reply! You are a very kind person 💗 It's interesting how kind and compassionate people find each other so many times in this big world! You are a blessing to me as well! Thank you for all your kind words and your sweet thoughts! I don't even know you and you made me feel so much BETTER!! 🤗🤗🐹🧡😃 Thank you so very much for your words of encouragement and your kind thought! I actually had another bad flare-up and have been having to rest for like 2 days and had a really disappointing birthday! I did exactly what you warned about, not to overdo it when you have a good day! I'm so bad about that! So I was trying to learn the shuffle dance you know which is the latest trend, and I just tried it very gently in my apartment for like 30 minutes and that was it! Bam I've had to rest for two days straight! I've been in pain but you know what the Lord is here with me and I can tell he's with you too! You live and learn and I'm still learning so much at 53! Many times people think I'm in my thirties which is a blessing :-) I've asked the Lord for years to preserve me, and it works! I had a friend from Jamaica who look way younger than her age whom I met at church, and I asked her how she looks so young, and she said I've been asking the Lord to preserve me! So I started crying that back in 2005 :) now I just need to get this fibromyalgia and lipedema under control... I'm praying and hoping to get surgery for the lipedema and I know that will help a lot 🙏 I hope that you have a beautiful week and I hope that you have really really good days and that you feel blessed and peaceful, my fibro friend! Love and blessings and joy and hugs to you today! Rachel in Nashville:))🐹😺😺😺🐠🧡☕🍨
Oh, wow! Thank you so much for your incredibly kind and heartfelt response! Sorry for the late reply. Sometimes comments get lost in my channel and it can be hard to keep up. It's true how kind and compassionate people often find each other in this vast world. I feel blessed to have connected with you and to be a source of comfort and encouragement. I'm sorry to hear about your recent flare-up and the disappointing birthday. It can be tough when our bodies remind us to take it easy, but rest is essential for our well-being. Learning to listen to our bodies is a continuous journey, and we all have those moments where we push ourselves a little too far. But hey, we live and learn, right? I'm glad you feel the presence of the Lord with you. He's always there, providing strength and support. And it's wonderful that you've been blessed with looking younger than your age. Sending you all my love and prayers as you navigate your fibromyalgia and lipedema journey. May you find relief and healing, and may your surgery bring you much-needed improvement. Know that you're never alone, fibro friend! Love and blessings.
Thank you for making this channel, sometimes it’s easy to feel like your all alone or people don’t get this fibromyalgia disease.. it’s so nice to be able to see and share actually.. how very difficult it is to live with this… thank you, thank you! 🥰♥️
Some days, even the simplest tasks feel like climbing a mountain. Showering can be such a battle, but the fact that you're still pushing through is incredible. Keep trucking, you've got a lot of strength and heart! ❤️💪
Haha. I love your dinner. I keep a drawer with special foods for just those days. Things i like and lots of liquids. I also keep a supply of body wipes. I call them my baby wipe showers
Haha, I’m so glad you enjoyed my dinner. LOL Keeping a drawer with special foods for those tough days is such a great idea. I've recently added a portable electric cooler by my bed with snacks like yogurt, fruit, hummus, and water. It makes my life so much easier since I'm often in bed. It's been a game-changer! And yes, body wipes are a great idea! I'm definitely getting some of those. Thanks for sharing your tips. It’s little things like these that make a big difference. Sending you a virtual high-five and a gentle hug!
It's always reassuring to hear from someone else who gets the struggle, even down to the oily hair bit. 😅 It's funny how those small details can make us feel more connected. And yeah, finding the motivation to do things can be a real challenge. Sending lots of love back to you from across miles.
Mission accomplished your decore flip is so beautiful. With you Daniella its not good enough I start writing before watching the whole video. See you're making a better me . Be aware the effects of your efforts. I was selling myself short. Keep it up. Before I tripped over proper treatment. Had prostate urgency and hesitantcy. I don't know if proximity to the cyst thus prostate is for sure explains everything. If i can dream ? Taking care of business in the sacrum= zero prostatitis. Let this run on feeling. Carry over to the head skin stomach. All handled in the sacrum. Sacral matter's so hard to pur into words. Maybe there's a reason for that ? God the job you do naturally should be enough and is . Just a minor tweaking is all it takes.
I love your videos I have Fibromyalgia & RA you're bless to have a husband to help you I think I have POTS too, but I haven't been diagnosed yet. I live with pain everyday, but I just came out of a flare that lasted 2-3 weeks I had severe headaches but with rest & I started taking my supplements everyday I been horrible with taking them. I do the same things you do with trying to pace myself and I normally over exert myself & boy do I suffer from over doing things. It hard for me because I live at home with my mother & daughter and my mother seems to think I am lazy I don't understand why because I have been a hard worker & overachiever all my life . However, I am the only person in my family on my mother side who have these chronic illness I keep trying to get disability, but I keep getting denied I think the hardest part is the chronic fatigue I have especially after doing one daily routine. I just want to say thank you for sharing your story it helps me to know I am not alone.
Thank you for watching my videos. Welcome to the channel. You are definitely not alone. ❤️Flares are the worst! I am very blessed to have such an understanding and helpful husband. I can’t even imagine what it would be like to do this journey on my own. I have also been slacking quite a bit with my vitamins, specially since I had a reaction to them and almost went into anaphylaxis. I’ve been scared to take them ever since but I know they make a difference on my energy levels and immune system. It’s horrible when people think we are lazy. We are anything but lazy. If people had half of our symptoms they wouldn’t get half done of what we accomplish. Everything we do is through pain and pushing our bodies, even when it keeps telling us to stop. It’s heartbreaking. I hope you enjoy my other videos as well. Feel free to comment anytime. I love engaging with my subscribers. Thanks for watching and supporting my channel. I hope you get a bit of a break through the holiday.
To anyone reading my comment and going through pain this is my advice: -Go for CBT therapy -Practice Yoga and Pilates -Go for cupping and acupuncture therapy - avoid screens - Drink herbal tea, fresh ginger, lemon and honey - When you are going through pain, don’t feed it, instead, destruct your brain with reading and keep repeating it will pass, if it gets worse. - Tap on your shoulders for every achievement you have done, like having shower, cleaning your room… -Accept that they will days you will rest as your body is telling you to do so - Eat healthy, avoid sugar, instead replace it with honey -Pray and express your pain with writing. - Accept that you become too sensitive to pain as you are making your nervous system better - Avoid negative people, people who stuck in victim mode and role , as it is not your responsibility to solve their issues - Having a pet can help you if you are lonely Wishing everyone best of luck for quick recovery. 🙏 🙏 🙏 ❤❤❤❤❤
I absolute love that. Would you mind if I turned your advice into a video? I feel a lot more people need to hear it and not everyone reads comments. I would absolutely give you credit for the content.
@@tt_looking_glass of course, anything to help others going through the same thing and by the way this is what I am doing and following now to heal .🙏🙏🙏🙏
lord right now i lift up paulablount5565 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Paula and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Hey Samantha, thank you so much for all the positivity. 💜 I’m really sorry to hear that you’re going through so much fatigue and pain. I hope you get relief soon and that you have support to get through this. Love you too! Stay strong, and we’ll get through this together. It means a lot to have your support.
Yes I can totally relate! the weather changes kick my butt. Where did you get that silk ariel? need to get one of those. my thoughts and prayers are with you..
Thanks for the comment. The silk hammock is from Amazon. I have an Amazon store both Canadian and American that have links to all my favorite products. It costs you exactly the same, it just tells Amazon that I am recommending it and they give me a small percentage. So if you decide to buy it, I would appreciate if you could use my link. 😉
I have fibromyalgia. Also, chronic migraines as well as other issues. Lately my migraines have been very bad and are not responding to my meds. I'm tired all the time (but can't sleep at night well). & today/yesterday I am in the biggest flare up. I'm in so much pain & trying to explain the pain to people as "very bad" but also that it's "normal" is so hard. Like it's terrible pain, it's uncomfortable, there's tons of symptoms, but it's a thing that happens when you have fibromyalgia. I am very stressed and anxious lately and am wondering if the stress is what caused the flare up. I'm currently trying to just rest and hope for the best. Thank you for this channel! ❤
I'm really sorry to hear about the tough time you're having with your fibromyalgia and chronic migraines. I know how challenging it is when the pain is intense and the usual medications aren't providing relief. Stress and anxiety often contribute to flare-ups in conditions like fibromyalgia. While it's hard to pinpoint the exact cause, managing stress can sometimes help in managing the symptoms. It's okay to take the time you need to rest and recover. It's important to listen to your body. I'm glad you find the channel helpful - that's exactly why I'm here. Know that you're not alone in this, and there's a whole community here who understands and supports you. Take care, and I hope you find some relief soon. ❤
Ooo my hat, looking at you seeing myself, been in a flare for a couple of months now.... arggghhhh. Mentally it screws me up.... but doing the same as you.... good luck!!!
I’m so sorry you are going through this too. I hope you have good support and that we get some relief soon. Remember, we are strong and we can do this.
Thank you for the reply, yes I have awesome support diagnosed 2017, recieved permanent disability from , Neurologist, Occupational therapist, psychiatrist and Rheumatologist. Hahhaha, that's South Africa for you. Studied massages therapy unable to practice, but it's been helping a lot with understanding what's happening in my body to help manage my fibro and all the comorbidities so I am just normal crazy now. Sorry but have to keep the sence of humor. Some years are good some are just behond comprehension in full flare. Mental health is so important, physically I am so screwed full body pain, but this to will pass at some point.
@@D.K8637 You are very right about keeping a sense of humour. Thanks for sharing a bit more about your story. It's good to know how other people deal with this condition and how their health care system works.
It is impossible for anybody to fully understand what fibro is like. Some people do not care while others can be sympathetic, but they still do not understand. I have given up trying to explain. I do not get angry with the ones who "do not get it". I try to avoid these people as much as possible. I will explain to some I am in a flare if they have a chronic condition too like my niece with her IBS. If you cannot see it you must be faking or over exaggerating. My own brother said that to me. Oh, I have had fibro since I was 38. I am now 75. I had to fight for my disability payments and won in the end. Fortunately I do have a medication that works for me most of the time, but cannot take it all the time as it will lose it's potency.
Thank you so much for sharing your story, it’s powerful and something so many of us can relate to. You’re absolutely right: unless someone lives with something like fibro, it’s nearly impossible for them to fully understand what it’s like. The lack of understanding, even from well-meaning people, is exhausting, and dealing with dismissiveness really stings. I’m so sorry you’ve faced that. Thank you for your honesty and for sharing this, It’s a reminder to so many of us that we’re not alone in these struggles. Sending you all my admiration and strength, you’ve been through so much, and you continue to show what it means to keep going. ❤️
Love your videos. I'm just getting over a flare, but I'm terrified. We're going on vacation to a theme park next week. You would think I would be excited, but my anxiety is sky high. I'm worried about catching a virus and over doing it back into a flare. This is my first vacation since my diagnosis. Any tips would be greatly appreciated. Thank you❤. I hope you heal from this flare soon.
Thank you so much for your compliment. I know the feeling, I only started feeling better from that flare two days before a camping trip I was really looking forward to. I also vlogged the camping trip (it will be uploaded in two weeks). I didn't know if I was going to be able to go but in the end, it worked out. The advice I would give is to not leave any packing or getting ready for the last minute. The few days before your trip you want to do as little as possible. Start taking Vit D, Zinc and Vit C if you already don't take them (unless there is a contraindication from your doctor) this will support your immune system. Try to get as much sleep the week before your trip and try not to stress (I know... easier said than done). But stress greatly suppressed your immune system. Make sure you keep hydrated at the amusement park (add electrolytes to your water to maximize hydration) and bring a small collapsable stool so you can use it whenever you need to sit down (search for "Portable Folding Tripod Stool" on Amazon) Especially if you will need to lineup. You may even want to consider getting a wheelchair there (parks have them available but you may need to reserve them ahead of time) so you are not exhausting yourself too much with the long walks. I know it's hard at the beginning to accept that we may need help but it's better to use one and have fun than to not use it and be miserable and in bed the next day. Ultimately, accept that you may end up in a flare but you need to decide if having some fun now and again is worth it. For me it is. If you haven't watched my "my baby girl is going to be a pilot" vlog, that is an example where I totally overdid it but it was worth every minute of it. Good luck with your trip, I hope you have a really great time. Ohh and don't forget to bring pain killers, anti-nausea medication etc... They exist for a reason.
Thank you, SO MUCH for the advice!! I was taking these supplements but I've kinda forgot about them. I'm writing this all down. I'm going to watch the vlog you suggested. Thank you so much for all you do!!
You are very welcome. Comments like yours is what keeps me motivated to makes those videos, because let me tell you it’s not easy when you have several chronic illnesses. Also, I will be I interviewed in a Podcast that will be aired on Jun 27 on Aimee Esther RUclips channel. She also posts content on chronic illnesses. Check her out and don’t miss the podcast on the 27th. You can watch it on her RUclips channel. The topic is “How to live your best life in spite of chronic illnesses”.
I'm in a flare all the time. The past couple of weeks have been even worse then usual. Im exhausted no matter how many hours I sleep. My brain doesn't work very well. And taking a shower is exhausting. Every task is hard
I'm really sorry to hear you're in such a tough flare. It is exhausting and frustrating, especially when even basic tasks feel overwhelming. I completely understand how draining it is when your brain and body just won't cooperate. Hang in there and remember to be kind to yourself. Rest as much as you can and take things one step at a time. You're not alone in this, our community is here for you. Sending you lots of strength and support. 💖
I am new here. Diagnosed with migraines, dysautonomia, fibromyalgia, EDS. Some things that have helped me...two words Shower. Chair. You can sit and wash at the same time, or I will just sit in the tub while showering. I will also alternate what I wash, like if my hair is greasy but I didn't sweat or anything, I will just wash my hair. Or if I washed my hair the day before, then I will just wash my body that day. Also my physical therapist recommends magnesium citrate/ threonate to help with muscles. I have prescriptions for inflammation, nerve pain, muscle relaxants, and low BP. During a flare-up, I will alternate between heat and ice. Also, I have a packet of steroids that I keep if the flare is going on for more than a few days. And I have an urgent care nearby that carries Toradol, an injectable NSAID. With my dysautonomia, my digestive system doesn't always move things along if I am idle for too long. Milk of magnesia is definitely a must for those days (a little goes a long way!) Hope this helps somebody out there!! 🤗
Hey, welcome to the community! Thanks for sharing your coping strategies and what's been helping you manage your conditions. The shower chair tip is a game-changer for sure-such a simple thing but so impactful for energy conservation and safety. Your approach to personal hygiene, focusing on what needs the most attention, is super practical too. Plus, the advice on magnesium supplements for muscle support is really insightful. It sounds like you’ve got a solid routine with your medications and the heat/ice during flare-ups. Keeping steroids on hand for extended flares and knowing the quick relief options shows how much you’ve navigated through to find what works for you. The milk of magnesia tip for those tougher dysautonomia days is interesting, I had never heard of it. Your post is definitely going to help many out here feeling a bit lost or looking for new strategies to try. Big hugs and thanks for spreading the positivity and support! 🌟
Can anyone tell me does fibromyalgia flare up with day to day activities and working? I am currently waiting to see a rhuematologist, my symptoms include, sore feet, sore Achilles and calf's, my knees ache. Got a lot of pain in my buttocks and my hip/pelvis and lower back, my shoulders are sore when lifting my arms, forearms at the elbow are sore with limited movement, hands and fingers ache with less grip. Had x-rays in most places everything clear apart from my neck which been told I have cervical spondylosis. Got a vitamin D defiency but been taking vit d for 5 months no change in how I feel if anything feel worse. I am always in pain but when I finish my job everyday I am extremely stiff and my whole body is crying in pain. My mental health is suffering. I'm only 44 and male. P it's hard to describe how I feel to people because on the outside I look fine
I totally hear you about our symptoms it showing to the outside world. Fibromyalgia is a diagnosis of exclusion, meaning they will diagnose you if you meet certain criteria but also when they can’t find anything else to blame for your symptoms. It could very well be that you have it but it is wise to have doctors rule out other conditions that could potentially be treated differently. I hope you find some answers and ways to make it more manageable. Definitely having support and people around you who understand you is extremely important for our mental health. I’m glad you found this community. I try to share as much as possible of my health journey to inspire others and help them not feel so alone.
Dry eyes and dry mouth, depression with rumatiod arthritis and IBS, super sweats. I have it for 10 years now and the very cold winter makes it nearly impossible to move😢
Oh man, I totally feel you on the dry eyes and mouth, depression, and those awful super sweats. Having rheumatoid arthritis and IBS on top of it all must be so tough. Ten years is a long time to deal with all of this. Believe me, I know. I've dad it for over 30 years. I've recently also been diagnosed with Ankylosing Spondylitis, and it adds a whole other layer to it all. Winter can be so brutal, making it nearly impossible to move. I find those colder months really challenging too. Just know that you’re not alone in this, and it’s okay to have those tough days. Hang in there, and thanks for sharing your experience with us. We're all in this together. Sending you lots of warm hugs! 💜
Absolutely, taking time to rest after enjoying activities is so important for us. It’s all about finding that balance, even though it can be frustrating at times. And yes, with faith and strength, we will get through it! Thank you for the reminder. Stay strong! 🙏💜
I get you. Had varicose leg vein surgery last month and it kind of stirred a fibro flare. So after so much bed rest (three weeks), a week without pain, even started doing exercise (it helps me), went to my doc Tuesday, all labs within range, Wednesday cooked, cleaned, washed the dog, etc., but started coughing alot on Thursday, Friday more intensive cough, had asma and sore throat. I did a home Covid test that day, came out negative. But by Monday "symptoms" continued (i.e. no smell, no taste, like a metallic like flavor in my mouth, etc.) and two Covid home tests later and the lab one came out positive. Been on respiratory therapy for two weeks and my chest still bothers, still coughing and feel like I've been run over by a truck. I do have my four Covid shots, take multi vitamins and finished the five-day treatment. Need to see my neumologist. Yesterday was my birthday, didn't go anywhere... Hang on there, we can do this.
Firstly, I'm so sorry to hear about your recent experiences, especially dealing with both post-surgery recovery and then catching Covid. It sounds like you've been through a lot, and yet you're still holding on with such a positive outlook. I truly admire your strength. Remember to always prioritize your health and give your body the rest it needs. I hope you see your pneumologist soon and get all the care and support you need. Belated happy birthday to you 🎉. Even though you couldn't celebrate the way you might have wanted, remember that each day you push through is a testament to your resilience. Sending healing vibes your way 💪❤️. Hang in there, brighter days are ahead.
Dear I have SPS and Fibromyalgia, so I,m told and Flares very hard to get out off, like now non stop I can’t do any tasks now , I stuck in my body, J 💕💕
lord right now i lift up Foxie12100 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I have fibro too and I feel changes in the weather too just like you described deep pain in your bones. I also suffer from arthritis and recently found out I have a bone spur in my lower left side of my neck which causes a lot of pain and constant head aches that will become full on migraines its really bad. I feel the same like people don't understand the daily struggles just to do normal everyday chores and self care.
I hear you, and I’m right there with you. The way the weather changes can just knock you out, can’t it? That deep pain in your bones is something only fellow fibro warriors can truly understand. I’m so sorry to hear about your arthritis and the bone spur in your neck. I just did an MRI and they found those in mine too. It’s tough when people don’t get how challenging even the simplest daily tasks can be. Every little thing can feel like a mountain to climb when you’re dealing with so much pain. Just know that you’re not alone in this. Sending you lots of strength and understanding. Take care of yourself, and thank you for sharing your story. 💖
I've had fibromyalgia and CFS for 40 years and I literally get exhausted just thinking about what needs done. No one understands it. I can't exercise cos I have damaged my back and many other things from when I was younger and I did karate. But I don't even have the energy to move my toes. The shower thing, I know what that's like. Also the insomnia, I get that a lot, I do music vids at 4,6am just to make others suffer too lol gotta get fun somewhere. My bones ache from inside including my face, ribs hips, knees and ankles. Yes I know when the weather's changed cos the pain intensifies
Jo, I'm so sorry to hear about everything you've been dealing with for the past 40 years. It's beyond tough when people don’t understand just how exhausting it is, even thinking about what needs to be done. The struggle with exercise, the shower, the insomnia, and the bone-deep aches, I get it. It's like the weather changes and our bodies feel it tenfold. Finding humor, like making music videos is such a great way to cope and bring a bit of fun into the struggle. Hang in there, and know that you’re not alone. Take care and keep finding those little moments of joy. 💖🌟
One in the Morning? Sorry that you are going through so much discomfort I appreciate your honesty,seriously It’s time some more research is done to help those with Fibromyalgia Warm,gentle Hugs 🤗
Thank you so much. I think because Fibromyalgia won’t kill you, it’s not progressive and affects women primarily, there isn’t a big drive for research.
@@elizabethconroy7665 I 100% agree and I’m living proof of that declining quality of life. I think Fibromyalgia, or chronic illness in general as a matter of fact, is so complex that unless doctors and scientists start to address the body as whole, completely interconnected, and not as individual organ systems,we will not find a way to recover.
Adderall’s changed my life. Don’t get me wrong, I still have the tiredness but I can actually stay awake, and do stuff like the tribal fiber art stuff I do. It also has this odd side effect of rare migraines now. Only bad effect is eating very sugar heavy food since it cuts my appetite more, but without it I could not stay awake. And yes I feel season and weather changes, it’s like it literally flares the nerves with electricity that singes and burns.
That’s amazing, I’m so glad Adderall has made such a difference for you! Staying awake and having the energy to do things you love is a huge win. I know the fatigue can be such a relentless battle, so even a little relief is life-changing. The side effects sound like a bit of a trade-off, though-ugh, those migraines and appetite issues can be rough. But I totally relate to what you said about the weather changes. It’s wild how our bodies react, isn’t it? Sending you lots of strength to keep pushing through! 💪💜
I’ve been there too, and it's so frustrating when it happens. It’s hard not to feel a little defeated by it. Just know you're not alone in that feeling, and it's okay to take those breaks whenever you need to. Take care of yourself, friend. Your body’s just asking for a little extra love in those moments.
Thanks for sharing! I'm going through the same thing. Nobody else but us understands what Fibro is like. Even my own family do not understand - but I think they're on their way. I wouldn't wish this on my worst enemy! Pain is my worst issue as I have issues with my mobility, severe pain in knees although MRI was clear (so its the fibro) Anything I do comes back and bites me on the ass. Learning to live like this is so hard. The hardest thing I've ever done. On the weather - I'm not sure but I do know that getting too hot in the sun will flare me up. Flu like symptoms, pain all over and then have to crash in bed.
I hear you completely. It's so tough when even our closest ones don't understand what we're going through. Pain really is a relentless enemy. Learning to live with it is definitely one of the hardest things ever. The sun can be such a double-edged sword. Great for some, but triggering for us. Hang in there, and thank you for sharing your experience. We're in this together! 🌸🌞
@@tt_looking_glass Thank you so much for your reply. I really appreciate it. Yes the sun is a no no for me now cos it makes me flare up. I used to love the sunshine! Yes. We are in this together. Much love.
@@pacmanghostdude5227 It's like having to say goodbye to something that once brought so much joy. But hey, we find new ways to shine, right? Much love right back at you. 🌼
Hello 👋🏾 do you have palpitations and dizzy spells ? I’m so tired it feels like I’m dreaming 😢. Doctors won’t listen to me it’s like I’m making up pain .
Hey Breona 👋, yes, I do experience palpitations and dizzy spells too. I’ve also been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), so I’m not sure if it’s related to fibromyalgia or if it’s more connected to POTS. I totally understand the frustration with doctors not listening. Just know you’re not alone in this, and what you’re feeling is real. Hang in there, okay? 💛
I get these too. I think I may have POTS or some type of dysautonomia. although my doctors says it could be connected to my fibromyalgia, we'll wait it out and see
I'm so Happy to see your video. AtLeast people will knowhow we suffer. I suffer a lot recently due to over stress. I'm having from 1098.26 years. What makes me feel sad that no one knows abt it. Only now Dr understand. Im on neuro medication.They say I look nice as I always like to look good. So noone believes my inner sufferings. Since of latest too tough to manage. Get scared when morning comes. I do lot of work though I cannot cope up. I too get scared to get into showers. In used to havev 3 orn4 times. Now even for 2 or 3 days I have no interest. I have aches n pains from head to the toe. All organs are affected. I also have Neuropathy n all.other probs. I don't get sleep till 2pm. I'm living in india. Once I get up I have lot to do. But with grt difficulty I manage. Cannot get up in the morning. Feel like sitting 😮 near a pool with some good friends. I like your last messages about clouds n rainbows. ❤Bye. Take care. .
Hi Teresa, I'm really touched by your message. It's so true that many people don't understand the extent of our struggles because they can't see it. I'm so sorry you're going through this. Your strength to keep going, even with all the pain and challenges, is truly inspiring. Thank you for sharing your experience and for your kind words about the video. I'm glad it resonated with you. Keep holding onto those moments of calm and take care of yourself. ❤️
I can smell the rain out snow coming. People laugh and say.. It's not supposed to rain/snow. I'm a short while... Here comes the rain/snow. I smile 😂. My senses are all heightened all the time
I totally get what you mean about sensing the rain or snow coming! It’s like being a human barometer, right? 😂 I’ve noticed my senses are heightened all the time too. It can be overwhelming, but it also means we’re super in tune with our environment. Glad to know I’m not the only one with this weather-sensing ability! Thanks for sharing and giving me a smile.
Does your upoer back hurt when you walk too much, mine does, i have been diagnosed with fibro also . My back hurts so much when i walk too much I have to sit down. I also have psoriatic arthritis. I can also feel more pain when the weather changes. Does your body jerk when you are trying to sleep, mine does. Do you know if this is a part of fibro? What is pot's?
Hey there, it sounds like you're really going through a tough time with fibro and psoriatic arthritis. Yeah, I totally get how challenging it can be, especially with all those aches and pains. I get a lot of upper back pain when I walk. It's hard to understand why, but it is a thing. And that jerky feeling when trying to sleep? I hear you, it's not easy. Remember, you're not alone in this, and it's always a good idea to talk with your doctor about what you're experiencing. And about POTS (postural orthostatic tachycardia syndrome) , it's basically when your heart rate shoots up after standing up, causing dizziness or even fainting. It's another one of those tricky conditions. Take care and stay strong.
i dont see how you talk during a flare i sometimes go 2 or 3 days without a word because i feel so bad. thank goodness i have a very understanding husband
I totally get where you're coming from. Flares affect people in different ways, and I definitely have days when I won't leave my bed and don't say much. I'm lucky to have an understanding husband too. On those really bad days, I won’t be filming, so you most likely won’t see it. We all have our struggles, and it's important to give ourselves grace. Take care!
I’m so sorry to hear you’re in such terrible pain. It really sucks when you can't plan or do anything because of these flare-ups. I know how tough SPS and fibromyalgia can be. Sending you all my love and hoping things ease up for you soon. Hang in there, my friend. 💖💕
@@tt_looking_glass morning my friend, My flare this month is getting so much worse, And the weather being 1deg outdoors has caused a massive flare even hurt my right ankle , I already had a broken knee broken feet, How do we win, this my bones are painful ,And it’s like you dear to the point where what do we do !my husband has been by my side for many years , God love him, So what I’m saying is my independence has gone, and honestly, all you are suffering I,m with you, I have my singing, some days , when I’m strong enough, But like you I overdo it just having a shower now, Also having SPS which I was first diagnosed with, my fatigue is so bad I sleep or have attack of , Narcolepsy, I felt alone for so long thank you , bless you we have to try and stay strong, Best wishes, Judye 🌹
@@tt_looking_glass you got this Stacey , stay strong, if possible, Best wishes, I’m too find bed is too painful now for me, My back , my hips I can’t put pressure anywhere, What and how do you get around this , Not enough cotton wool to swodle a body in, Just sayiing I’m having a terrible teary day, Why because the pain has really hit me bad, This last two days no sleep Getting hubby up not fair on him , But no one listens to us , Not medical care, Drs Etc, Once in the too hard basket you can’t get out, I’m feeling fed up, needed some one too talk too about there illness Hiw do you after years and I was diagnosed Years back ,and the past five years / 2years so much worse, I can’t go out , I panic, Afraid of flares , but Stacey I thank you very much, Keep safe , well, if possible, Judye xx 🌹🌹
40 years is such a long time to deal with fibromyalgia. I was like, "Wow!" But then I realized that for me, it's been 32 years. It's tough when doctors don't have the answers, isn't it? I've tried so many things too, and it still rocks my world everyday. Hang in there and hopefully we’ll keep finding new ways to manage it better. 💜
lord right now i lift up marikaymccarty6 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around marika and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
When the pain in my bones (mostly the bones from my elbows to my wrist, my wrists, the bones from my knees to my ankles, sometimes my ankles) makes me sick at my stomach zs soon as it strikes me. Gross as it is, today I took a bath after 2 months (maybe more). Also, I am now losing teeth because I have no energy to brush them. I cannot do anything because of the pain and fatigue. The only person I have left in my life who is sticking with me is my husband. I met him and we married after I got sick. May you feel better.
Oh my heart goes out to you! That level of bone pain just eats away at your whole being, doesn’t it? I totally get the struggle with bathing and self-care… sometimes it takes all the strength just to get through one small task. But you know what? Taking that bath after two months? That’s a victory! Seriously, give yourself credit for that. It sounds like your husband is such a strong source of support, what a blessing to have someone stick by you like that. Sending you so much love and strength. I really hope you get a little relief soon. Keep holding on, you’re stronger than you know. ❤️
This makes me realize how far I have come along. Or at least a stupid amount of resilience. Somehow I work 40 hour weeks. Workout 3 times a week, walk the dog multiple times a day and clean the house for hours on the weekend, along with renovations. There was a time where none of that was possible. However, I feel exhausted and in pain all the time. I’ve been able to find a supplement that really helps me with sleep. I’ve also gone from 9 pills of different medication a day to 2.5. Only the good lord knows how. I do believe in a cure even after 14 years. However, I can’t say that I really truly feel happy. Mostly feel like I’m existing.
Wow, Gloria, your resilience is truly inspiring! It’s incredible how much you’ve accomplished despite the constant exhaustion and pain. Balancing a 40-hour workweek, regular workouts, walking the dog, and even handling renovations is no small feat. It’s great to hear that you’ve found a supplement that helps with sleep and have reduced your medication significantly. Believing in a cure and pushing through each day with such determination is something to be proud of, even if true happiness feels out of reach right now. Remember, you’re not just existing. You’re making progress and showing immense strength. Sending you lots of love and strength! ❤️
@@tt_looking_glass thank you that’s very kind of you. I’m not sure my approach is the right one…if just pushing through the pain and exhaustion is actually helpful. Like everyone else just trying to figure out how to live with this for now. I really hope that one day this won’t be a reality, and that every person suffering finds a way through. 🙏
I completely understand how you feel. The weather can really impact our bodies in ways others might not realize. Showers feeling like needles sound like such a painful experience, but I'm glad you found some relief with baths and salts. It's all about finding those small comforts that help us get through the tough days. Thank you for sharing, and take care. 💜
It’s quite something, isn’t it, how our bodies can show what we’re going through, even in ways as subtle as the look in our eyes? You are very perceptive. It sounds like you and your mom share a deep understanding of each other's experiences during those flare-ups. That kind of connection can be really powerful, knowing someone so close can truly see and understand the pain without needing a word. If you ever feel like sharing more about what you and your mom go through, or if you need a place to find support during those tough times, this community and I are here. Take care, and give my best to your mom.
Oh my goodness, that's why showers knock me down..... Everyone around me has said I have fibro and it's been since having covid that it's thrown everything upside down. Gp said it was the menopause and then it was chronic pain. Then, it was both menopause and chronic. Pain with fatigue. I just need to know what is going on and how to deal with it. As for the weather, yes. Oh yes, I can feel that 100%. Even the pressure changes. I have long gone through the menopause and even though I have arthritis I know the difference between the two pains. I just wish someone medical would see me and confirm and not make me feel that I am making this up. Thank you From a very tired lady in pain from England xx
You've been through quite a challenging journey trying to get a clear understanding of what's happening with your health. It is incredibly frustrating to not be heard or understood by doctors. It’s important to continue advocating for yourself and seeking a doctor who will take the time to thoroughly evaluate your symptoms and consider all possible explanations. It might be helpful to document your symptoms, noting their frequency, severity, and any triggers you've noticed, like weather changes. This can provide useful insights during medical appointments. The overlap of symptoms from different conditions can definitely complicate diagnosis and treatment. It’s understandable to feel exhausted and overwhelmed by this process. Thank you for sharing your story, and I truly hope you find some relief soon. Take care and keep pushing for the answers and support you deserve.
@tt_looking_glass thank you for replying. I think I will do as you have suggested and do a diary. I'm just watching more of your videos for helpful information. Thank you 😊
It's crazy, isn't it? We should all work at the weather network!! We would probably have a more accurate prediction than the weather people who often get it wrong. 🤣
i am a man the flare up and pain is so bad i know what you are going through, it makes me mad some doctors don't believe in fibromyalgia flare i wish they could feel what i am going through
I'm so sorry you're dealing with such intense pain. It's so frustrating when doctors don't validate our experiences with fibromyalgia. You are not alone, and there are many of us who understand and share your frustration. Thank you for sharing your story and being part of this community. Together, we can continue to raise awareness and support each other through the tough times. Sending strength and understanding your way. 💜
Hello from UK thank you for your reply I wonder if there is a doctor out there with fibromyalgia with the pain we have. I wish the pain would go away rich x
Hello from Canada! I believe Dr. Geneva has fibromyalgia herself and understands the pain we go through. It's always comforting to know that some doctors truly understand our struggles. I wish the pain would go away too. Hang in there, Rich. Sending you lots of support! 💖
That's good but my doctors look at me gone out when asking for help. hospital doctors understand what I am going through I wish it would go away. my wife left me because of this problem she has really hurt me talking to you I don't feel alone if only If I lived in Canada x
@@tt_looking_glass thank you for your video I have been recently diagnosed before that I didn't know what was happening with my life I'm a very fit person and I was always tired I thought I was going through the menopause or I was imagining things good to hear I'm not alone
@@lovil6375 we all go through this “are we imagining things” or “am I crazy” fase because the symptoms feel so real but nothing shows up on tests. It’s very frustrating. Welcome to our little channel community. I’m glad my video was helpful to you. It makes my heart smile.
It sounds like you're facing tough challenges with even the most basic daily activities, and I really admire your courage in sharing that with us. It must be so hard to manage those everyday tasks while also wanting to be there for your kids in the way that you’d like. You're doing an incredible job under such difficult circumstances. Remember, every small step you take is a victory, no matter how small it may seem. Please know that this community is here for you, to support you and to remind you that you're not alone in this struggle. Keep reaching out, keep sharing, and keep taking it one day at a time. You're doing better than you think, and we're all here cheering you on.
Im a man with fibromyalgia, i have 2 kids under 2, and work full time. Life is so hard and its hard for people around me to see the level of struggle it is to manage the inescapable jobs whilst in pain and tired. Ive just been prescribed deloxitine as my mental health has been that bad. Any advice from similar people whether i should take it??
I hear you, and my heart goes out to you. Managing fibromyalgia while raising two little ones and working full-time is beyond tough. I’ve had young children myself, and even without the chronic pain, it’s exhausting. It’s hard for others to truly understand how draining it is, both physically and mentally, to keep pushing through that daily pain and fatigue. When it comes to medication, my honest advice, as someone who’s been through the trial and error, is that you won’t know until you give it a try. I’ve heard from people who’ve had amazing results, some where it helped for a while and then plateaued, and others who found it didn’t suit them. We’re all so different, and even our bodies can react differently as we move through different phases of life. Personally, I’ve found that LDN has been a lifeline for me, it’s the thing that’s allowed me to reclaim parts of my life I thought I’d lost. You’re doing an incredible job, even if it doesn’t always feel like it. Just the fact that you’re showing up for your family and work, despite everything, is proof of your strength. I’m rooting for you, and I truly hope you find something that brings you relief. You deserve it. 💛
@tt_looking_glass Thank you so much for taking the time to send a reply. Especially one that so authentically heard what I was saying. I appreciate your advice, and it has given me a positive outlook on trying the medication. So thank you sincerely! Your video was well worth your time and effort to make as hard as I can imagine it was to do on a bad day, as it represents that we are not alone and it's a journey we share with others, albeit I wish no one had this and a cure was there to save the years it takes away.
Thank you so much for your kind words! Honestly, hearing that you felt truly heard means the world to me. It’s all we really want sometimes, right? Just for someone to "get it." I'm so glad that my advice helped give you some positive thoughts about trying the medication. It's never easy, but that little bit of hope can make a big difference when we're dealing with the daily grind of chronic illness. And you're right, making content on tough days is a challenge. But knowing that it resonated with you and reminded you that we’re not alone in this journey makes it so worth it. I’m so grateful you are here and I hope you explore my other videos. Keep me posted on how the medication goes for you. I'm rooting for you!
I have been suffering for 31 years and what makes it worst is I am a dentist. I swim every morning to take away the pain and stiffness and seek Accupuncture once a month. Unfortunately my Accupuncturist retired and move across the USA west coast so I will be retiring from being a dentist. I have not found one like her . Hopefully the decrease in stress after retirement will help 😊
I'm really sorry to hear about your long battle with pain, especially while being a dentist. Swimming every morning and monthly acupuncture sound like great routines, but it's tough when you lose a trusted acupuncturist. I hope the decrease in stress after retirement brings you much-needed relief. Take care, and I wish you all the best in this new chapter! 😊💖
Oh Thalia, I can’t even imagine how exhausting that must be, managing fibro flares while caring for six kids sounds beyond overwhelming. I have five children (all grown now) and it was hard! Six!?! Wow!! It’s so frustrating when they don’t take our pain seriously, and it just adds to the stress. You’re doing so much already, and it’s not easy. I really hope you have some support around you because you deserve it. Hang in there, and don’t hesitate to reach out if you ever need to vent or talk it through. You’re stronger than you know!
Thanks i found your channel..from Philippines.. suffering chronic pain,,neuralgia,,neurophaty, or i think this is fibromyalgia coz i feel same symptoms..
I’m so glad you found the channel and that it resonates with your experiences. Dealing with chronic pain, neuralgia, and neuropathy is incredibly challenging, and it's has lots of similarities with fibromyalgia symptoms. You're not alone in this journey, and I hope the content here can offer some comfort and useful information as you navigate your symptoms. Stay connected with us here, and don’t hesitate to share more of your story whenever you feel comfortable. Take care and hang in there! 🌟
Yes, fibromyalgia can definitely feel like having flu-like symptoms, especially when it comes to the all-over aches, joint pain, and that deep, body-wide fatigue. It's like your whole body is stuck in this constant state of soreness and exhaustion, but without the typical signs of a cold or flu. The aches can feel so intense, and even small tasks can become a huge effort. It’s hard to explain to others because it’s so invisible, but those symptoms are very real and can be incredibly draining. If you’re experiencing something similar, you’re not alone!
Can somebody answer me please I'm confused . Is it nessesary for people to have pain when having fibromyalgia?? And how does one test for this. Thank you in advance
Hey Francina! Yes, pain is one of the hallmark symptoms of fibromyalgia. It’s a widespread, persistent pain that feels like it’s all over your body. But the thing with fibro is that it can affect everyone differently. Some people feel it constantly, while others have flare-ups that come and go. As for tests, there isn’t one specific test for fibromyalgia. It’s more about ruling out other conditions, and doctors often diagnose it based on your pain history and symptoms, like fatigue and brain fog. It can be confusing for sure.
I dont have pain but I'm sensitive to noise.. I can't handle certain smells ... Then my chest pulls tight... I can't handle the heat it makes me feel weak and sick ... my upper shoulder muscles pains and causes migraine at times... I have digestive issues ... gassy and Bloatedness... I'm 45 and also in menopause... No period anymore .. I become agitated I have anxiety .. I also go on into a low mood like no zeal .
Oh, Francina, that sounds so tough.That must be exhausting. And being in menopause on top of it just throws another layer of complexity into the mix. I know because I am also going through it. Have you ever thought of hormone replacement therapy. I know it's not for everyone but I have benefited from it. It’s no wonder you’re feeling low mood and anxiety, our bodies and minds are so connected, and when one thing is off, it can feel like everything is crashing down. I’m really sorry you’re going through this, but it’s good that you’re aware of how all these things are affecting you. Sometimes just acknowledging how overwhelming it all feels is the first step in finding ways to cope. You're not alone in this, and I hope you find some relief soon. I'm sending you strength and a big virtual hug! 💜
The drs used to tell me I was a “hysterical woman who needed a husband” back in the early ‘90s. When it was fibro, Paget’s disease of the bone, & a meningioma tumor on my spine
Oh Jill, that's so infuriating to hear. It's heartbreaking that you were dismissed like that when you were dealing with such serious conditions. Being told you’re "hysterical" instead of being properly diagnosed is just wrong. I'm glad you finally got the correct diagnosis, but it shouldn’t have taken so long. You’ve been through so much. Thank you for sharing your story with us. 💪🦋
I'm literally in tears - nobody understands and most people don't want to.
You just showed everyone what they need to know about this, this is why I'm in tears, YOU GOT IT! You absolutely showed why this is SO hard - and why others should care and try to understand.
THANK YOU SO MUCH 🩵💞
Extra soft hugs to you and sending you warm blessings - I'm a loyal sister in pain. ✌🏻🩵
Your comment made me emotional too. It means so much to hear that my video resonated with you on such a deep level. We know how hard it is to make others understand what we go through, and I'm glad I could help shine a light on it.
Thank you for your kind words and for being a loyal sister in pain. Your support and empathy mean the world to me. Extra soft hugs back to you. Let's keep lifting each other up and pushing through together. ♥️
@tt_looking_glass I also showed your video to my mom, she always wants to do things to help me - she really got a better understanding of what I go through & why there's only so much any of us can do.
That's amazing. I'm so glad the video was helpful to your mom and gave her a better understanding of what you're going through. It's so important for our loved ones to grasp the reality of our challenges. Thank you for sharing this with me. Your support and kind words mean a lot. Hang in there, and remember, you're not alone in this journey. 💖
This Video really hit me hard because this is my life daily. You hit the nail on the head, especially going from the shower back to the bed to rest up. Showers are so draining, I don't know whats the hardest the heat and steam then reaching and bending to clean my hair and body its a literal workout. Getting my heart rate back down, my breathing slowed down and cooled off then thinking about what to wear. Is it a PJ day or get dressed kinda day. Or lay there a while and wait and see kinda day. I loved your fabric hang from the ceiling. I've got to try it!
lord right now i lift up MK-Empath, her mom also sheheri5828 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on these people and you will see them throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around these sisters and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on them to much help them pull through this ordeal and by all means please help these sister’s faith to grow stronger each and everyday and help them not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
It’s so validating to see someone else go through what I’m going through. My pain feels like it’s in my bones also. It’s heartbreaking that the medical community has not been able to help us. Thank you for sharing. Stacy
Stacy, I couldn't agree more! It's incredibly validating to see someone else going through what you're experiencing. Fibromyalgia is a condition that can make you feel isolated, so finding that connection in someone else's story can be truly comforting.
It's disheartening that the medical community hasn't been able to provide more answers or solutions for Fibromyalgia yet. But in sharing our experiences and supporting each other, we can find a sense of empowerment and understanding.
Thank you for your heartfelt comment and for being a part of this community. 💕
Dear Stacy, Please can I let you know about how my local doctors help me. They are brilliant! I am on tramadol and I can take it with paracetamol at same time. Rest. No bad emotions. No upset. 9 hours sleep every night. Healthy food. Lots of healthy quality water-the tap water here is OK. Multi vits and mins. Vit D3. B Complex. Restless legs syndrome I take 2 pram...something. I am tired today and I am resting 50 percent today. BUT...my GPs DO UNDERSTAND and they inform me about fibromyalgia. It causes severe chronic functional constipation so I am on 5 docusate a day too. And my understanding husband, Mr Furry Bear, is so beautiful! I stand up for what I need and want! I am getting better at it. I am autistic ADHD as well as fibromyalgia. I hope this is helpful in some way for you. God bless. Bess in UK x
Going through all you described. I thought it was just me about my bones hurting. 😢
Exactly the same thing and m only 20🙂 its feel like pain in each and every bone
@@elizabethdarley8646I have adhd autism, Fibromyalgia to. Jesus helps alot❤❤ Jessy typing
People without fibro can’t understand how exhausting showers are 😢
Absolutely, it's a reality that many don't realize. Something as simple as taking a shower can become a daunting task when you're dealing with fibromyalgia. It's those everyday activities that others take for granted, which can sometimes feel like climbing a mountain for us.
I have reached a point in which am having burning sensation and pain throughout my body whenever i share and it drains me to zerooo and cause me headaches 🫠🫠🫠
Most of the new things am facing have been caused by antidepressants…
I just explained to my husband that showering takes so much out of me. More than almost anything else I do. He is understanding but will never truly understand.
Only those who experience will ever understand.
I have to go lay down after a shower. I make sure I leave enough time for that
I relate to the burning pain from the bones and core. It spreads through the muscles to the skin.
I have lived with Fibro at least 10 years now.
Bless you all ❤
Thank you for sharing your experience with fibromyalgia. I’m truly sorry to hear about the intense burning pain you endure. It shows how relentless fibro flares are. Living with this for over a decade requires incredible resilience. If you have any strategies or tips that have helped you manage these symptoms, please feel free to share them. Your insights could be incredibly helpful to others in our community who are navigating similar challenges. Stay strong, and thank you again for reaching out and relating your journey.
@@tt_looking_glass
Balance is key.
Not restrain my body, mind or emotional state.
Soft excercise such as walks and yinyoga which works on faschia. Try to get min 8 hrs sleep at night.
I rest many timrs during the day.
Filter my water, fruits/berries and greens in lots and make sure stomach functions well.
Trippel magnesium in high dose at night and other essential minerals.
Liver cleansing herbs.
CBD oil. Antiinflammatory such as turmeric and ginger.
Unfortubatley I am still having to use pharmacetical painkillers and other meds when the pain is out of control. But with a healthier lifestyle I manage daily life better.
Bless you all ❤️
Thanks for sharing your approach to maintaining balance. It sounds like you’ve really honed in on what works for you. Those are all powerful tools for managing health holistically.
I hear you on still needing pharmaceutical help at times, despite our best efforts with lifestyle changes, medication is necessary to manage pain and other symptoms. It’s all about finding that right mix that works for you personally.
Keep doing what feels right for your body and mind, and thanks for blessing us with your wisdom! Wishing you continued strength and wellness. ❤️
For me its my bones. I have this weird, numbing pain in my bones that sometimes just comes out of nowhere. I feel like I'm only now discovering the sheer extent of all of my symptoms. The tiredness, the brainfog, the memory issues. Its so frustrating because this illness just does EVERYTHING. I still have to learn to live my life with it, despite being diagnosed... I think 8 years now? I've tried to just avoid thinking about it but I think that just hurt me
@@enstellaskanal Key to do what? Feel better? If it works for you, hurray!! Not for me. 😞
I just was slammed with a whole bunch of dx, fibro being the least. I'm experiencing a lot of what you're describing and I'm crying bc I didn't know that I'm not crazy and I'm not alone. 😢 THANK YOU
Kimmie, I’m so sorry you’ve been hit with so much at once, but I’m so glad this helped you feel less alone. You are absolutely not crazy, everything you’re feeling is valid, and you’re stronger than you realize. Thank YOU for sharing this, it means so much. Sending you love and hoping for some gentler days ahead. ❤️
lord right now i lift up KimmieSunshine and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Kim and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Oh the weather changes, high pressure,low pressure. Thank you for sharing. We are not alone.
I used to think that it was just when the weather turned bad that affected me but actually it’s like you said any change is a problem. It’s kind of funny because I as a person love change but my body doesn’t. lol!
Thanks for your comment.
Yes. I seem to not experience this so much now since we moved south 12 years ago. I used to watch the barometric pressure numbers. Forgot how they work, but a certain something at a certain low or high will mine bad news for me.
lord right now i lift up terrymattson3587, and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help thitsister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I love that you had gotten excited about accomplishing your hair. I felt like this a few days ago, and I am so happy that I could finally do my hair. Most days can be so challenging with our illness.
Dealing with my hair is the hardest aspect of personal hygiene for me, and sometimes it gets neglected. It always makes me happy to have a nice and clean hare. So if I'm in a flare when I get my hair washed is a reason to celebrate.
lord right now i lift up mariahwashington190, and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help thitsister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Wow 😮 that was so real. I hope I’m not an interloper (I have severe COPD).nobody I know gets it. Showers are the hardest for me too. I almost feel like crying when I get out. Not only the fatigue, but I get breathless with little movement. I worry I’ll pass out n the shower. I live alone and that is so scary. All my life I’ve showered every day (sometimes twice) now I put it off as long as possible. Thanks for letting me butt in, I really enjoy your channel. That rain and rainbow at the end was beautiful.
You're definitely not an interloper here; this is a space for everyone who's battling their own challenges, and severe COPD is a tough journey. It's hard when those around you can't fully grasp the extent of what you're going through. The struggle with showers, something so many take for granted, speaks tones about the daily hurdles we face. It's understandable to feel scared about the possibility of passing out, especially when you're living alone.
Thank you for sharing your story and for being a part of this community. Your voice adds to the diverse experiences here, and it's valuable. Keep reaching out, keep sharing, and know that you're not alone in this. Take care and stay safe. ♥️🌈
lord right now i lift up charlashellhorn3866 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Charla and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Honest account, Daniela. God's grace in this moment 💝
Thank you. I know other people go through similar experiences and we often feel so alone. I want people to know, though it’s hard, we can get through this. Hopefully someone will find comfort in knowing they are not alone in their struggles.
I am so happy I found your channel. This is real. X
Ahhh. Thank you so much. 😍
Yes I feel the weather before it changes and my allergies…
We are human barometers!! 🤣
lord right now i lift up zoeabundantmind7170 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Zoe and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I’m an Australian, and I’ve been diagnosed with Fibromyalgia back in 2016/2017. I totally get you, I’ve been suffering flares lately as the weather is all up& down as we’re in Spring 2023 here. So yes I always know when the weather is going to change, from nice warm sunny to cold, cloudy stormy raining I hate it and I just want to achieve something but I can’t I just want to curl up in a ball & sleep 😩😭😫😣😖🥺
I completely understand what you're going through. It's like our bodies have their own built-in barometers, right? When the weather starts shifting, it's as if our symptoms become more pronounced, and it can be incredibly disheartening.
I know that feeling of wanting to accomplish things but feeling trapped by the unpredictable nature of the condition. There are days when all you want to do is curl up in a ball and disappear.
Just remember, you're not alone in this. Many of us in the fibromyalgia community share these weather-related struggles. Sharing our experiences can help us feel more connected and understood. On those tough days, take things one step at a time, and know that there are others who genuinely understand what you're going through. Stay strong, and take good care of yourself. 🌦️💙😔
People like me; I get so much more done mentally than physically sometimes. Especially in the kitchen. I used to enjoy cooking now cooking along with other tasks just feels like too much during a flare. Everything feels so very overwhelming.
I completely understand how you feel. It's incredibly challenging when the things we once enjoyed, like cooking, become sources of stress and exhaustion due to flare-ups. It’s okay to acknowledge that some days are harder than others and to adjust your activities accordingly. Remember, this community is here for you, sharing in the ups and downs and offering support whenever you need it. Take care of yourself.
Yes EVERYTHING is totally overwhelming 🙏🏼
lord right now i lift up LuxeJourneyVlogs and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Luxe and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
thank you for posting this, I relate completely with you, Is nice to hear from someone who has very similar experiences than myself… knowing I am not alone 💓💓
I’m so glad this resonated with you, Angie. It’s such a comfort to know that we’re not alone in what we go through, and it means a lot to me that you can relate. Sharing these experiences helps us all feel a little more connected, even on the toughest days. Thank you for being part of this community. together, we’re stronger. 💕
Lord Jesus Bless you!!! Sister I’m feeling your pain! I have it too. You had me laughing so hard because I can so relate. Another human being who understands. Thank you for being real and open. The Lord understands our pain and mental state. Praying that by God’s grace He will give some strength and relief. Keep believing and praying. ❤️
Thank you so much for your comment! It's truly uplifting to connect with someone who understands the challenges of living with fibromyalgia. I'm glad I could bring some laughter to your day and let you know that you're not alone in this journey.
You're absolutely right, the Lord understands our pain, and it's through His grace that we find strength and relief. Keeping the faith and continuing to pray is essential, as we trust in God's plan for our lives.
Sending you love and prayers as we navigate this fibromyalgia journey. Stay strong! ❤️
This is probably my most rewatched videos of yours. Going through hell at the moment, but like you say “We got this”. I know it’ll end but this is a real comfort video for me. Thanks once again for somehow finding the energy to make this. ((Big Hugs To You)) xxx
I'm so sorry you are going through such a hard time at the moment. It is so hard while we are in the midst of it. It feels like it will never end. It is interesting how the videos that I get the most views are the ones I had no idea how I was going to make a video that week. I just grabbed the camera without any plan and started filming in the hopes that maybe later when I was feeling a bit better I could turn what I had captured into a video. I'm glad it brings people some comfort or hope because it is really hard to pick up the camera when I'm not well. Thank you for telling me that. It is definitely a big boost of confidence in continuing this channel. Feel better soon. 😍
I understand I’ve been watching videos for hours, sleep doesn’t come easy with fibromyalgia. Weather change is spot on, it triggers the pain. And we feel so much better after a shower, but it can be so exhausting. Thanks for this video , I hope you got through this nasty flare up.💜
Wendy, you get it exactly, it’s like even the smallest things, like weather or a shower, can be a battle some days. I’m so sorry you’re dealing with all of this, but I love how you shared what helps, even if it’s just a little relief. Thank you for watching and connecting. Sending lots of love your way! 💜
lord right now i lift up WendyHannan-pt7ez and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Wendy and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Thank you for this vlog. I’m going through a bad flare at the moment and it really helped watching this.
I do also feel pain when the weather and air pressure is changing.
Hope your flare ends soon x
It makes me so happy to know that this video has helped someone. I am feeling much better. It did seem like it was never going to end but somehow I just keep pushing through. I guess you could say I have no choice, but the power lies in not losing hope. The weather has been very unstable this spring and I think it has definitely contributed to it. Im hoping that as summer approaches it will get better. Thanks for watching.
Just subbed. I am a human barometer with fibro. I feel your pain.
Thank you so much for the subscription! ❤️Welcome to this wonderful community. I hope you enjoy the channel. I try to post twice a week (Mondays and Fridays) but sometimes my body just doesn’t cooperate. Im sure you know how it is. When that happens I usually make a community post and let you guys know. I hope the weather where you live is kind to you.
@@tt_looking_glass Oh, I understand completely! I live in Michigan where the weather is a rollercoaster. Allergy season, then snow. I don't know what's worse. But we're in the same boat. I know I'll enjoy everything you're able to film. Maybe enjoy is the wrong word, but commiserate with you!
@@klb374money oh man! Yeah, that is tough weather. Pretty much what we have here in Ontario. My content goes from “cry with me, I’m having a really hard time” to “look at me, I’m living the life!” and everything in between. Lol! I try to be as honest and real as possible so people don’t feel so alone in their journeys but also trying to inspire at the same time. It’s a hard balance but I do my best.
@@tt_looking_glass oh yeah ? "Tin soldier" small faces
@@klb374money interesting EDS channel YT working overtime to limit comments " my VEDS characteristics and diagnosis" Katey Wright channel
I'm so happy to see a real account of someone with chronic illness and has a home, family etc. I agree with you about trying to help our mental health by trying 5/10 minutes of just doing something that's going to help and for me it's my surroundings being clean, not tidy as I can't do that now but clean is good and for my own self cleaning etc. This is a good video. Thank you and I hope your flare is easing up for you. Xxxx
Hi Irene, thank you for your kind comment. It means a lot to me. That flare has passed and I have been able to go camping and visit my daughter since. However, I have acquired COVID last week and I’m struggling to recover. I will make a video about how I got it and how it has been to recover from it as soon as I have the energy to pick up a camera.
@@tt_looking_glass I'm so sorry, you must feel absolutely awful. I had Covid back in December and it's not nice at all. Take good care and I'm thinking of you. Look after you! Xxxxxx
thanks for this video. those long flare ups with fibromyalgia are the worst :(. after 7 years of pain, I was finally diagnosed a few months ago after a two week long flare up that started with severe pain in my left foot, than radiated to all over my body and made me unable to walk properly for like 4 days. it was only a few days before my HS graduation and I was at one of my lowest points in life. healthy people don't understand how debilitating, isolating, and heartbreaking this stuff is. it sucks. just glad to know that you and so many others online get it too ❤
I’m so sorry you had to go through that, especially right before such an important milestone like your graduation. Flares like that are absolutely brutal, and it’s hard for people who haven’t experienced it to understand just how much it takes out of you. It’s isolating and frustrating, and it can really feel like the world is closing in. But you’re not alone in this, and I’m glad you found some comfort in knowing there are others who truly get it. We’re here to lift each other up on those tough days. Keep pushing through, and remember that even on the hardest days, you’re doing an amazing job. Sending lots of love your way ❤️.
My heart brakes for you. My wife has had fibromyalgia for over 20yrs. Every thing you covered on this video is what she deals with. She knows when the weather is going to change she tells me that it’s hurts in her core in her bones. She deals with migraines and CFS. In 2019 we went to Panama to get stem cells and it helped her a lot.
I’m really moved by your empathy and support for your wife. It sounds like she has a strong ally in you, and I appreciate you sharing a bit about her journey with us. The trip to Panama for stem cell treatment is quite intriguing. I haven't heard of stem cell therapy for fibromyalgia before. Could you share more about how it works and how it helped her? It’s incredible how deeply fibromyalgia affects those living with it, from predicting weather changes to managing migraines and chronic fatigue. Thank you for watching the video and connecting here. I hope you both continue to find ways that ease her symptoms and improve her quality of life.
Wow that was such a raw and great insight into what fibro looks like. I believe I have it also. Waiting to see a Rheumatologist in July for a diagnosis. Thank you for being so strong and brave to share your story. I hope there's more studies in the future that will come out to show what causes fibromyalgia and cures for this illness. Praying for all who have it and those waiting for a diagnosis 🙏
Thank you so much for your comment! I'm glad this video resonated with you. It can be a challenging and often misunderstood condition, so sharing personal experiences can help raise awareness and provide support to others who may be going through something similar. I truly hope your upcoming appointment with the Rheumatologist goes well and provides you with the clarity you seek.
You're absolutely right that more research and studies are needed to better understand the causes of fibromyalgia and find effective treatments or even a cure. It's an area that still requires further exploration, but advancements are being made and I hope with time answers will be found. In the meantime, it's important to stay hopeful and positive and keep advocating for yourself.
Sending you positive thoughts and well wishes as you navigate your journey toward a diagnosis. ❤️
What did the results say?
Cold, wet, weather knocks me down so bad. Thank you for your channel, just found it and now I’m not hating on myself so much for not managing to shower as energy cup is empty
I'm so glad you found the channel and that it's helping you feel less alone. It can be incredibly tough when the weather exacerbates symptoms, and it's important to be gentle with ourselves. Remember, taking care of your basic needs is a victory in itself. You are doing your best, and that is enough. Sending you strength and gentle hugs. 💜
OMG weeks? I'm flaring now, and watching. You have many, many kindred spirits out here.
Oh no, I’m so sorry to hear you’re flaring right now! 😔 Yes, weeks, it’s rough, but knowing there are so many kindred spirits like you out there makes it a little easier to get through. Sending lots of strength your way, and I hope this flare passes soon! Hang in there! 💜
Hope your flare ends soon, thanks for vlogging how a flare affects you. Im being tested atm and looking likely i have fibro also 🥺
Hopefully, this vlog will help people going through similar experiences to not feel so alone. All the best with your journey. I hope you will find my videos helpful. Next week I will be posting a "How to get stuff done when you have a chronic illness" video. Don't miss it. Make sure to subscribe.
❤❤❤❤❤
My dear sister,
I 100% understand...
It is like you made this video to explain my life. I will use it to send to some friends and family.
Hopefully it will help to give them further understanding with this peek into yours and my life.
Thank you so much for making this video. The energy it would have taken you even to do this is very appreciated.
God bless you. indeed!
Heaven is coming soon 🙏🏼💐
Thank you so much for your beautiful message. It means a lot to know that the video resonated with you and that you’re sharing it to help others understand what life with fibromyalgia is like. It’s always my hope that these videos can foster greater empathy and support. I really appreciate your recognition of the energy that goes into creating these pieces, it truly keeps me motivated.
God bless you too, and take care! ♥️
Thank you so much for this. You made me feel a tiny bit hopeful and motivated during my flare.
I'm truly happy to hear that the video brought you a bit of hope and motivation, especially during such a tough time. Flares are so draining, and finding even a small amount of relief or encouragement is so important. Keep holding onto that hope, and remember that you're not alone in this journey. We're all here to support each other. Stay strong and take care! ♥️
Plz help me not anyone trust me @tt_looking_glass
I needed this tonight, thank you 😊
I am so happy that this video provided what you needed. If it brings a little bit of comfort for someone, it was worth sharing. I hope you improve soon. Take care.
I also have crushing fatigue. My skin burning all over my body.
Chronic fatigue syndrome often accompanies Fibromyalgia. It’s like one is not bad enough. We often deal with multiple chronic illnesses.
Glad I found your channel. I'm about to get diagnosed with fibromyalgia after many years of suffering from it. Been going to the orthopedic doctor for 4 to 5 years on and off mostly in spring which is when my flares are excruciating.
So the doc finally introduced me to the a rheumatologist. I did extensive blood work (uric acid etc) and he came to the conclusion that what I suffer from is fibromyalgia. Now I'm waiting his letter of recommendation to a neurologist. Can't wait to be diagnosed and get the proper meds cause I hate doing so little in a day and feeling like I climbed a mountain just from cooking and doing the dishes.
I'm glad you found my channel too and shared your story. Welcome to the community. I understand how frustrating it is to feel so limited by your symptoms, and it's understandable why you're eagerly awaiting a formal diagnosis and proper medication. Proper treatment can make a huge difference. I don't know if you saw some of my more recent videos with the title "Diagnosed with Fibromyalgia? - What I wish I knew." ruclips.net/video/WhGiJtNqmHw/видео.html and "STOP doing this if you have Fibromyalgia" ruclips.net/video/-3PbyAaeFb8/видео.html . I believe those videos can be very helpful if you have just been diagnosed. I hope they bring you some guidance in your Fibromyalgia journey. Take care. ♥️
I am just like you, the pain is severe all the time, I try my best also . Hope you start feeling better soon
Paula, I’m so sorry you’re dealing with that constant severe pain too. It’s such a hard thing to live with, but the fact that you’re here, trying your best every day, says so much about your strength. That effort counts, even on the days when it doesn’t feel like it.
❤️
Thank you for this video.im having a bad fair, so i watch youre video, it helps to se other fibro people, then you dont feel so alone.This is me everyday just like you.❤high five fibro warrior❤😊
Really glad to hear that the video helped you out. It's tough dealing with a flare-up, but it's good to know that seeing others going through the same thing can make you feel less alone. It's a daily battle, for sure. Sending a big high five right back at you, fellow fibro warrior! 😊
This is such a true reflection on life with fibro......had a bad night last night followed by a bad day...I hate the feeling of being useless .....how can showering become such a task? I sometimes get into despair as t feelsnlike it will last forever ......I always say....t can't rain all the time. X ❤️
When you are going through a flare it feels like you will never feel better again. It is so hard. I need people to remind me that I have survived other flares. I hope this one improves for you soon, and meanwhile, I hope my videos keep you company.
@@tt_looking_glass thank you for helping. Only been doing diagnosed a year have lost my career and friends and everything to it. You give me hope.
I just came out of a month flare...i mostly live in bed anyways, my fibromyalgia is so severe im in full time pain, cant work, lost everything, i just found your channel, i have cried at every video just having ppl who understand 😥❤ showers r one of the hardest most draining tasks i miss enjoying my showers like i used to, now its so painful & fatiguing, that sometime i just get out & lay down immediately, but sometimes the pain is so bad just from the shower alone i end up puking in the toilet immediately after😢 its so sad/discouraging
Hey Catie! I'm so sorry to hear about your long flare and the constant pain you're dealing with. I understand how tough it is to live in bed and feel like you've lost so much. Finding this community where people truly understand what you're going through can be a lifeline, and I'm glad you're here with us. 💜
Showers are a draining and painful task - I totally get that. It's heartbreaking when something that used to be a simple pleasure becomes a source of pain and exhaustion. I've had moments where even the smallest tasks leave me feeling completely wiped out, so I can relate to how discouraging it feels.
Please know you're not alone, and it's okay to have those tough days. We're all here to support each other, and I'm sending you the biggest, gentlest hugs. Take it one day at a time, and remember to be kind to yourself. You're incredibly strong, even on the days it doesn't feel like it. 💜
I feel your pain. I also suffer with fibro flair
I’m so sorry you’re going through this too, Natalie. Fibro flares can be incredibly tough. It helps to know we’re not alone in this. Sending you gentle hugs and hoping for better days ahead for both of us. 💖
thank you so much for sharing im in a flare right now with a lot of family stress of parents getting old and having to try care for them as well as our selfs and make time for the grandkids i dont like them seeing me in pain so its hard but like you i try to stay positive to help get me through so thank you that yoga sling looks amazing going to have to get one for my back ans shoulders as well thank you x
Hi Amanda, It sounds like you’re really going through a tough time right now, managing your own flare-ups while also caring for your aging parents and spending time with your grandkids. It’s a lot to handle, and your effort to stay positive and strong for your family is incredible
I’m glad you found the yoga sling interesting. I absolutely love mine. it could definitely be a helpful tool for your back and shoulders, providing some relief and support. Taking care of yourself is just as important as the care you provide to others, so I hope the sling brings you some comfort.
Thank you for sharing what you are going through and for your kind words. It’s okay to have tough days and not always feel positive. You’re doing your best, and that’s more than enough. Sending you strength and hoping you find some peaceful moments amidst the challenges.
I love this. ❤️ I feel the exact same way!
I'm so glad to hear the video spoke to you. It's so important to have spaces where we can share our stories and feel understood. Your message is a reminder of why creating content that resonates with others' experiences is so valuable. ❤️
Right now im on day 17 of the worst flare ive had in years. The days are bad but the nights,,,they are a whole nother level of hell.
It's not nice to see a fellow Human suffer but it helps to know we arent on our own in this.
I’m so sorry you’re going through such a tough time. Seventeen days of a flare is brutal, and those nights can be especially torturous. It’s like you can’t even catch a break when the world is supposed to be quiet and restful.
I completely understand that feeling of isolation during the worst of it, but knowing we have each other to lean on makes a difference. It’s comforting to know we’re not alone in this struggle. Hang in there, and thank you for sharing your story. Sending strength and hoping you find some relief soon.
So glad I found your channel it is helping me a lot. I am really sick atm and I have chronic pelvic pain as well as fibro and many other issues. So my body is in extreme pain and I’m sick from the pain most night and fibro is relatively new to me so still learning to deal with it. I’m struggling so much at the moment though this flare and struggling to keep my head up and fight. I’m in pain everyday but because I have a flu it’s amplified I know that. Any advice to try get thru this or could you do a video dealing with fibro when you are sick?
But your channel has helped me alot to have some faith. Thank you for doing what you are you keep me inspired and I’m sure so many others.
I’m glad this video gave you hope. There is no other way to put it. Flares as hard! The two biggest advice I have is, you need to have patience and they will not last forever. Make sure to get rid of all the guilt of not doing anything but surviving. Find ways to distract yourself and use medications to help with symptoms if they are safe for you to do so. There are two videos that I will be making soon, one is things that help me deal with pain and the other is what to do during a flare. I also have to navigate flares all the time. I have all those video ideas but then I get a flare, or Covid, or migraines… it’s always something. It’s hard to keep a consistent life. For me life with Fibromyalgia is all about constantly adapting, changing plans… at the beginning I used to get angry but now I actually take pride on how resilient I have become. I’m still practicing the patience part, I have always been very impatient but I’m slowly learning that I don’t have to be in control all the time. Because Fibromyalgia is new to you, you are still developing skills to deal with it. You will learn what works for you over time. It makes a lot easier to be surrounded by understanding, loving and supportive people. I hope you start to feel better soon. Remember, you are not alone. Many people are going through a flare right this moment.
Thank you so much for replying to me. Yeh I get cluster migraines and they are horrible. I just trying to adapt to all this pain and my body feels like it is deteriorating. You are a very strong lady and thank you for your advice and videos they are helping me. It’s hard to deal with multiple chronic illnesses that are invisible. I have amazing support around me, just find it hard to explain fibro to them, I have showed them some of your videos and they have slightly better understanding. I have pain killers but sometimes they just don’t do enough. Some nights I think of going to hospital but really not sure what they can even do and I don’t like hospitals. I hope you are doing better and thank you again for helping me and many others.
Thank you sharing this video of a flare up. 💕🛐
I'm coming out of a two week fibro/fatigue flare.
Adding your video to my "FIBROMYALGIA & CFS HELP" playlist :) Love and God bless You😇
Rachel in Nashville:)
Claiming Healing from Psalm 103💕😇
Hi Rachel, thank you so much for your kind comment! I'm sorry to hear that you've been experiencing a fibro/fatigue flare-up for the past two weeks. I can understand how challenging and draining that can be. I truly appreciate you taking the time to watch and share this video. It means a lot to me that you've added it to your "FIBROMYALGIA & CFS HELP" playlist. Sending you lots of love and blessings as you navigate your journey. Stay strong and take care! ♥️
@@tt_looking_glass Hi Daniela! 🐱🌞 Hope I'm spelling your name right 😉
You are SO WELCOME for watching and for adding your vids to my playlist :) I just added more!🤗🎦 Your videos are very interesting and informative! :) Also your video shorts are cute and creative, and some made me laugh! Thank You for the laughter today! "Laughter does good like a medicine" - Psalms 📙📖🐱 Also your videos just greatly encouraged me today that I'm not alone 🦜🦩🐠 And your tips for how to live with fibromyalgia really helped as well! I have some of those tips and protocols in place already...but I may need to find a doctor who is more supportive and helpful about this issue. Also I'm working on moving my body more🚶♀️🏄♀️ Lol on surfing, yeah right!! 😉 But I do love walking, and that helps. I know the Lord heals our bodies and sometimes it's over time and not instantly, and He gives us natural things too, like herbs and vitamins, which helps our bodies 🌞 My vitamin array is similar to yours...it's pretty grand!! Anyways love and blessings to you too, and I'm so glad you have a loving husband to support you! What a HUGE BLESSING!! Have a wonderful week:) Rachel in Nashville:)
P.S.... Your videos have inspired me even more to go ahead and make a new video. Tomorrow is my birthday and I HOPE to make a video tonight or tomorrow. 🎦🎦😉💕🛐
Hi Rachel! 🐱🌞 Thank you so much for your lovely and heartfelt comment! You spelled my name perfectly, and I truly appreciate your kind words and support. I'm thrilled to hear that you find my videos interesting, informative, and even funny! Laughter is indeed a wonderful medicine for the soul, and I'm glad I could bring some joy to your day.
I'm touched to know that my videos have encouraged you and made you feel less alone. Dealing with fibromyalgia can be challenging, but finding supportive healthcare professionals and implementing helpful tips and protocols can make a significant difference. I'm glad to hear that you already have some of those in place and that you're working on moving your body more through walking. It's all about finding what works best for you.
You're absolutely right that the Lord heals our bodies.
Happy early birthday! 🎉🎂 I'm excited to hear that my videos have inspired you to create a new video of your own. What a wonderful way to celebrate your birthday! I wish you all the best with your video creation, and may it bring you joy and fulfillment. I will check out your channel.
Thank you for your kind wishes, love, and blessings. Having a supportive husband is indeed a tremendous blessing in my life. I hope you have a fantastic week as well, filled with love, joy, and memorable moments. Take care, Rachel, and once again, happy birthday! 🎉💕
@@tt_looking_glass AWWWW THANK YOU, Daniela!! What a beautiful, sweet reply! You are a very kind person 💗 It's interesting how kind and compassionate people find each other so many times in this big world! You are a blessing to me as well! Thank you for all your kind words and your sweet thoughts! I don't even know you and you made me feel so much BETTER!! 🤗🤗🐹🧡😃 Thank you so very much for your words of encouragement and your kind thought! I actually had another bad flare-up and have been having to rest for like 2 days and had a really disappointing birthday! I did exactly what you warned about, not to overdo it when you have a good day! I'm so bad about that! So I was trying to learn the shuffle dance you know which is the latest trend, and I just tried it very gently in my apartment for like 30 minutes and that was it! Bam I've had to rest for two days straight! I've been in pain but you know what the Lord is here with me and I can tell he's with you too! You live and learn and I'm still learning so much at 53! Many times people think I'm in my thirties which is a blessing :-) I've asked the Lord for years to preserve me, and it works! I had a friend from Jamaica who look way younger than her age whom I met at church, and I asked her how she looks so young, and she said I've been asking the Lord to preserve me! So I started crying that back in 2005 :) now I just need to get this fibromyalgia and lipedema under control... I'm praying and hoping to get surgery for the lipedema and I know that will help a lot 🙏
I hope that you have a beautiful week and I hope that you have really really good days and that you feel blessed and peaceful, my fibro friend! Love and blessings and joy and hugs to you today! Rachel in Nashville:))🐹😺😺😺🐠🧡☕🍨
Oh, wow! Thank you so much for your incredibly kind and heartfelt response! Sorry for the late reply. Sometimes comments get lost in my channel and it can be hard to keep up. It's true how kind and compassionate people often find each other in this vast world. I feel blessed to have connected with you and to be a source of comfort and encouragement.
I'm sorry to hear about your recent flare-up and the disappointing birthday. It can be tough when our bodies remind us to take it easy, but rest is essential for our well-being. Learning to listen to our bodies is a continuous journey, and we all have those moments where we push ourselves a little too far. But hey, we live and learn, right?
I'm glad you feel the presence of the Lord with you. He's always there, providing strength and support. And it's wonderful that you've been blessed with looking younger than your age. Sending you all my love and prayers as you navigate your fibromyalgia and lipedema journey. May you find relief and healing, and may your surgery bring you much-needed improvement. Know that you're never alone, fibro friend! Love and blessings.
I’m a human weather vane! Definitely can relate to you! It sucks so much!
Isn’t that crazy!! 😜
Thank you for making this channel, sometimes it’s easy to feel like your all alone or people don’t get this fibromyalgia disease.. it’s so nice to be able to see and share actually.. how very difficult it is to live with this… thank you, thank you! 🥰♥️
@@mindydifilippo5516 thank you for the encouragement ❤️
I cant even get on the floor. Showering is like going to war. But im still trucking ❤
Some days, even the simplest tasks feel like climbing a mountain. Showering can be such a battle, but the fact that you're still pushing through is incredible. Keep trucking, you've got a lot of strength and heart! ❤️💪
Haha. I love your dinner. I keep a drawer with special foods for just those days. Things i like and lots of liquids. I also keep a supply of body wipes. I call them my baby wipe showers
Haha, I’m so glad you enjoyed my dinner. LOL Keeping a drawer with special foods for those tough days is such a great idea. I've recently added a portable electric cooler by my bed with snacks like yogurt, fruit, hummus, and water. It makes my life so much easier since I'm often in bed. It's been a game-changer!
And yes, body wipes are a great idea! I'm definitely getting some of those.
Thanks for sharing your tips. It’s little things like these that make a big difference. Sending you a virtual high-five and a gentle hug!
This is an excellent description. I also have oily hair. I find doing things hard too. LOve to you from Bess in Yorkshire UK x
It's always reassuring to hear from someone else who gets the struggle, even down to the oily hair bit. 😅 It's funny how those small details can make us feel more connected. And yeah, finding the motivation to do things can be a real challenge. Sending lots of love back to you from across miles.
Mission accomplished your decore flip is so beautiful. With you Daniella its not good enough I start writing before watching the whole video. See you're making a better me . Be aware the effects of your efforts. I was selling myself short. Keep it up. Before I tripped over proper treatment. Had prostate urgency and hesitantcy. I don't know if proximity to the cyst thus prostate is for sure explains everything. If i can dream ? Taking care of business in the sacrum= zero prostatitis. Let this run on feeling. Carry over to the head skin stomach. All handled in the sacrum. Sacral matter's so hard to pur into words. Maybe there's a reason for that ? God the job you do naturally should be enough and is . Just a minor tweaking is all it takes.
Wow you just threw the fireplace lights and they cooperated by falling perfectly !
I love your videos I have Fibromyalgia & RA you're bless to have a husband to help you I think I have POTS too, but I haven't been diagnosed yet. I live with pain everyday, but I just came out of a flare that lasted 2-3 weeks I had severe headaches but with rest & I started taking my supplements everyday I been horrible with taking them. I do the same things you do with trying to pace myself and I normally over exert myself & boy do I suffer from over doing things. It hard for me because I live at home with my mother & daughter and my mother seems to think I am lazy I don't understand why because I have been a hard worker & overachiever all my life . However, I am the only person in my family on my mother side who have these chronic illness I keep trying to get disability, but I keep getting denied I think the hardest part is the chronic fatigue I have especially after doing one daily routine. I just want to say thank you for sharing your story it helps me to know I am not alone.
Thank you for watching my videos. Welcome to the channel. You are definitely not alone. ❤️Flares are the worst! I am very blessed to have such an understanding and helpful husband. I can’t even imagine what it would be like to do this journey on my own. I have also been slacking quite a bit with my vitamins, specially since I had a reaction to them and almost went into anaphylaxis. I’ve been scared to take them ever since but I know they make a difference on my energy levels and immune system. It’s horrible when people think we are lazy. We are anything but lazy. If people had half of our symptoms they wouldn’t get half done of what we accomplish. Everything we do is through pain and pushing our bodies, even when it keeps telling us to stop. It’s heartbreaking. I hope you enjoy my other videos as well. Feel free to comment anytime. I love engaging with my subscribers. Thanks for watching and supporting my channel. I hope you get a bit of a break through the holiday.
To anyone reading my comment and going through pain this is my advice:
-Go for CBT therapy
-Practice Yoga and Pilates
-Go for cupping and acupuncture therapy
- avoid screens
- Drink herbal tea, fresh ginger, lemon and honey
- When you are going through pain, don’t feed it, instead, destruct your brain with reading and keep repeating it will pass, if it gets worse.
- Tap on your shoulders for every achievement you have done, like having shower, cleaning your room…
-Accept that they will days you will rest as your body is telling you to do so
- Eat healthy, avoid sugar, instead replace it with honey
-Pray and express your pain with writing.
- Accept that you become too sensitive to pain as you are making your nervous system better
- Avoid negative people, people who stuck in victim mode and role , as it is not your responsibility to solve their issues
- Having a pet can help you if you are lonely
Wishing everyone best of luck for quick recovery. 🙏 🙏 🙏 ❤❤❤❤❤
I absolute love that. Would you mind if I turned your advice into a video? I feel a lot more people need to hear it and not everyone reads comments. I would absolutely give you credit for the content.
@@tt_looking_glass of course, anything to help others going through the same thing and by the way this is what I am doing and following now to heal .🙏🙏🙏🙏
Yes I do feel the weather change
Weather changes are the worst!
lord right now i lift up paulablount5565 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Paula and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Sending you Light Love and God's Healing Prayers 💜 I am in the middle of a cycle myself.. days of severe fatigue and pain. Love you ❤
Hey Samantha, thank you so much for all the positivity. 💜 I’m really sorry to hear that you’re going through so much fatigue and pain. I hope you get relief soon and that you have support to get through this. Love you too! Stay strong, and we’ll get through this together. It means a lot to have your support.
@tt_looking_glass Muchly appreciated! Yes we will. Love and Light 💜
Yes I can totally relate! the weather changes kick my butt. Where did you get that silk ariel? need to get one of those. my thoughts and prayers are with you..
Thanks for the comment. The silk hammock is from Amazon. I have an Amazon store both Canadian and American that have links to all my favorite products. It costs you exactly the same, it just tells Amazon that I am recommending it and they give me a small percentage. So if you decide to buy it, I would appreciate if you could use my link. 😉
I have fibromyalgia. Also, chronic migraines as well as other issues. Lately my migraines have been very bad and are not responding to my meds. I'm tired all the time (but can't sleep at night well). & today/yesterday I am in the biggest flare up. I'm in so much pain & trying to explain the pain to people as "very bad" but also that it's "normal" is so hard. Like it's terrible pain, it's uncomfortable, there's tons of symptoms, but it's a thing that happens when you have fibromyalgia. I am very stressed and anxious lately and am wondering if the stress is what caused the flare up. I'm currently trying to just rest and hope for the best. Thank you for this channel! ❤
I'm really sorry to hear about the tough time you're having with your fibromyalgia and chronic migraines. I know how challenging it is when the pain is intense and the usual medications aren't providing relief. Stress and anxiety often contribute to flare-ups in conditions like fibromyalgia. While it's hard to pinpoint the exact cause, managing stress can sometimes help in managing the symptoms. It's okay to take the time you need to rest and recover. It's important to listen to your body. I'm glad you find the channel helpful - that's exactly why I'm here. Know that you're not alone in this, and there's a whole community here who understands and supports you. Take care, and I hope you find some relief soon. ❤
Ooo my hat, looking at you seeing myself, been in a flare for a couple of months now.... arggghhhh. Mentally it screws me up.... but doing the same as you.... good luck!!!
I’m so sorry you are going through this too. I hope you have good support and that we get some relief soon. Remember, we are strong and we can do this.
Thank you for the reply, yes I have awesome support diagnosed 2017, recieved permanent disability from , Neurologist, Occupational therapist, psychiatrist and Rheumatologist. Hahhaha, that's South Africa for you. Studied massages therapy unable to practice, but it's been helping a lot with understanding what's happening in my body to help manage my fibro and all the comorbidities so I am just normal crazy now. Sorry but have to keep the sence of humor. Some years are good some are just behond comprehension in full flare. Mental health is so important, physically I am so screwed full body pain, but this to will pass at some point.
@@D.K8637 You are very right about keeping a sense of humour. Thanks for sharing a bit more about your story. It's good to know how other people deal with this condition and how their health care system works.
I am definitely making myself that hammock you are using for those can't sit stand or lay down days. Thank you for that!!!!
@@D.K8637 it is the best!! You can make it yourself or you can buy them at Amazon as a Yoga Hammock.
It is impossible for anybody to fully understand what fibro is like. Some people do not care while others can be sympathetic, but they still do not understand. I have given up trying to explain. I do not get angry with the ones who "do not get it". I try to avoid these people as much as possible. I will explain to some I am in a flare if they have a chronic condition too like my niece with her IBS. If you cannot see it you must be faking or over exaggerating. My own brother said that to me.
Oh, I have had fibro since I was 38. I am now 75. I had to fight for my disability payments and won in the end. Fortunately I do have a medication that works for me most of the time, but cannot take it all the time as it will lose it's potency.
Thank you so much for sharing your story, it’s powerful and something so many of us can relate to. You’re absolutely right: unless someone lives with something like fibro, it’s nearly impossible for them to fully understand what it’s like. The lack of understanding, even from well-meaning people, is exhausting, and dealing with dismissiveness really stings. I’m so sorry you’ve faced that.
Thank you for your honesty and for sharing this, It’s a reminder to so many of us that we’re not alone in these struggles. Sending you all my admiration and strength, you’ve been through so much, and you continue to show what it means to keep going. ❤️
Love your videos. I'm just getting over a flare, but I'm terrified. We're going on vacation to a theme park next week. You would think I would be excited, but my anxiety is sky high. I'm worried about catching a virus and over doing it back into a flare. This is my first vacation since my diagnosis. Any tips would be greatly appreciated. Thank you❤. I hope you heal from this flare soon.
Thank you so much for your compliment. I know the feeling, I only started feeling better from that flare two days before a camping trip I was really looking forward to. I also vlogged the camping trip (it will be uploaded in two weeks). I didn't know if I was going to be able to go but in the end, it worked out. The advice I would give is to not leave any packing or getting ready for the last minute. The few days before your trip you want to do as little as possible. Start taking Vit D, Zinc and Vit C if you already don't take them (unless there is a contraindication from your doctor) this will support your immune system. Try to get as much sleep the week before your trip and try not to stress (I know... easier said than done). But stress greatly suppressed your immune system. Make sure you keep hydrated at the amusement park (add electrolytes to your water to maximize hydration) and bring a small collapsable stool so you can use it whenever you need to sit down (search for "Portable Folding Tripod Stool" on Amazon) Especially if you will need to lineup. You may even want to consider getting a wheelchair there (parks have them available but you may need to reserve them ahead of time) so you are not exhausting yourself too much with the long walks. I know it's hard at the beginning to accept that we may need help but it's better to use one and have fun than to not use it and be miserable and in bed the next day. Ultimately, accept that you may end up in a flare but you need to decide if having some fun now and again is worth it. For me it is. If you haven't watched my "my baby girl is going to be a pilot" vlog, that is an example where I totally overdid it but it was worth every minute of it. Good luck with your trip, I hope you have a really great time. Ohh and don't forget to bring pain killers, anti-nausea medication etc... They exist for a reason.
Thank you, SO MUCH for the advice!! I was taking these supplements but I've kinda forgot about them. I'm writing this all down. I'm going to watch the vlog you suggested. Thank you so much for all you do!!
You are very welcome. Comments like yours is what keeps me motivated to makes those videos, because let me tell you it’s not easy when you have several chronic illnesses. Also, I will be I interviewed in a Podcast that will be aired on Jun 27 on Aimee Esther RUclips channel. She also posts content on chronic illnesses. Check her out and don’t miss the podcast on the 27th. You can watch it on her RUclips channel. The topic is “How to live your best life in spite of chronic illnesses”.
I'm in a flare all the time. The past couple of weeks have been even worse then usual. Im exhausted no matter how many hours I sleep. My brain doesn't work very well. And taking a shower is exhausting. Every task is hard
I'm really sorry to hear you're in such a tough flare. It is exhausting and frustrating, especially when even basic tasks feel overwhelming. I completely understand how draining it is when your brain and body just won't cooperate.
Hang in there and remember to be kind to yourself. Rest as much as you can and take things one step at a time. You're not alone in this, our community is here for you. Sending you lots of strength and support. 💖
I am new here. Diagnosed with migraines, dysautonomia, fibromyalgia, EDS. Some things that have helped me...two words Shower. Chair. You can sit and wash at the same time, or I will just sit in the tub while showering. I will also alternate what I wash, like if my hair is greasy but I didn't sweat or anything, I will just wash my hair. Or if I washed my hair the day before, then I will just wash my body that day. Also my physical therapist recommends magnesium citrate/ threonate to help with muscles. I have prescriptions for inflammation, nerve pain, muscle relaxants, and low BP. During a flare-up, I will alternate between heat and ice. Also, I have a packet of steroids that I keep if the flare is going on for more than a few days. And I have an urgent care nearby that carries Toradol, an injectable NSAID. With my dysautonomia, my digestive system doesn't always move things along if I am idle for too long. Milk of magnesia is definitely a must for those days (a little goes a long way!) Hope this helps somebody out there!! 🤗
Hey, welcome to the community! Thanks for sharing your coping strategies and what's been helping you manage your conditions. The shower chair tip is a game-changer for sure-such a simple thing but so impactful for energy conservation and safety. Your approach to personal hygiene, focusing on what needs the most attention, is super practical too. Plus, the advice on magnesium supplements for muscle support is really insightful. It sounds like you’ve got a solid routine with your medications and the heat/ice during flare-ups. Keeping steroids on hand for extended flares and knowing the quick relief options shows how much you’ve navigated through to find what works for you. The milk of magnesia tip for those tougher dysautonomia days is interesting, I had never heard of it. Your post is definitely going to help many out here feeling a bit lost or looking for new strategies to try. Big hugs and thanks for spreading the positivity and support! 🌟
Can anyone tell me does fibromyalgia flare up with day to day activities and working? I am currently waiting to see a rhuematologist, my symptoms include, sore feet, sore Achilles and calf's, my knees ache. Got a lot of pain in my buttocks and my hip/pelvis and lower back, my shoulders are sore when lifting my arms, forearms at the elbow are sore with limited movement, hands and fingers ache with less grip. Had x-rays in most places everything clear apart from my neck which been told I have cervical spondylosis. Got a vitamin D defiency but been taking vit d for 5 months no change in how I feel if anything feel worse. I am always in pain but when I finish my job everyday I am extremely stiff and my whole body is crying in pain. My mental health is suffering. I'm only 44 and male. P it's hard to describe how I feel to people because on the outside I look fine
I totally hear you about our symptoms it showing to the outside world. Fibromyalgia is a diagnosis of exclusion, meaning they will diagnose you if you meet certain criteria but also when they can’t find anything else to blame for your symptoms. It could very well be that you have it but it is wise to have doctors rule out other conditions that could potentially be treated differently. I hope you find some answers and ways to make it more manageable. Definitely having support and people around you who understand you is extremely important for our mental health. I’m glad you found this community. I try to share as much as possible of my health journey to inspire others and help them not feel so alone.
Dry eyes and dry mouth, depression with rumatiod arthritis and IBS, super sweats. I have it for 10 years now and the very cold winter makes it nearly impossible to move😢
Oh man, I totally feel you on the dry eyes and mouth, depression, and those awful super sweats. Having rheumatoid arthritis and IBS on top of it all must be so tough. Ten years is a long time to deal with all of this. Believe me, I know. I've dad it for over 30 years.
I've recently also been diagnosed with Ankylosing Spondylitis, and it adds a whole other layer to it all. Winter can be so brutal, making it nearly impossible to move. I find those colder months really challenging too. Just know that you’re not alone in this, and it’s okay to have those tough days. Hang in there, and thanks for sharing your experience with us. We're all in this together. Sending you lots of warm hugs! 💜
Dry eyes, nose, arthritis, fibromyalgia, feel you
Good morning l I,m in terrible pain, From so many Health issues ,SPS And Fibromyalgia, Multiple, Chronic Pain, so severe, yes to about the weather
When we. Enjoy activities we must rest for a few days. GOD WIL GET US TROUGH!
Absolutely, taking time to rest after enjoying activities is so important for us. It’s all about finding that balance, even though it can be frustrating at times. And yes, with faith and strength, we will get through it! Thank you for the reminder. Stay strong! 🙏💜
I get you. Had varicose leg vein surgery last month and it kind of stirred a fibro flare. So after so much bed rest (three weeks), a week without pain, even started doing exercise (it helps me), went to my doc Tuesday, all labs within range, Wednesday cooked, cleaned, washed the dog, etc., but started coughing alot on Thursday, Friday more intensive cough, had asma and sore throat. I did a home Covid test that day, came out negative. But by Monday "symptoms" continued (i.e. no smell, no taste, like a metallic like flavor in my mouth, etc.) and two Covid home tests later and the lab one came out positive. Been on respiratory therapy for two weeks and my chest still bothers, still coughing and feel like I've been run over by a truck. I do have my four Covid shots, take multi vitamins and finished the five-day treatment. Need to see my neumologist. Yesterday was my birthday, didn't go anywhere... Hang on there, we can do this.
Firstly, I'm so sorry to hear about your recent experiences, especially dealing with both post-surgery recovery and then catching Covid. It sounds like you've been through a lot, and yet you're still holding on with such a positive outlook. I truly admire your strength. Remember to always prioritize your health and give your body the rest it needs. I hope you see your pneumologist soon and get all the care and support you need. Belated happy birthday to you 🎉. Even though you couldn't celebrate the way you might have wanted, remember that each day you push through is a testament to your resilience. Sending healing vibes your way 💪❤️. Hang in there, brighter days are ahead.
You have terrific printing skills…Good for you😊🙏😊. KCMary. .
Thanks so much 😊
Yes I feel when weather gonna change
We are like a walking barometer.
Dear I have SPS and Fibromyalgia, so I,m told and Flares very hard to get out off, like now non stop I can’t do any tasks now , I stuck in my body, J 💕💕
lord right now i lift up Foxie12100 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
I have fibro too and I feel changes in the weather too just like you described deep pain in your bones. I also suffer from arthritis and recently found out I have a bone spur in my lower left side of my neck which causes a lot of pain and constant head aches that will become full on migraines its really bad. I feel the same like people don't understand the daily struggles just to do normal everyday chores and self care.
I hear you, and I’m right there with you. The way the weather changes can just knock you out, can’t it? That deep pain in your bones is something only fellow fibro warriors can truly understand. I’m so sorry to hear about your arthritis and the bone spur in your neck. I just did an MRI and they found those in mine too.
It’s tough when people don’t get how challenging even the simplest daily tasks can be. Every little thing can feel like a mountain to climb when you’re dealing with so much pain. Just know that you’re not alone in this.
Sending you lots of strength and understanding. Take care of yourself, and thank you for sharing your story. 💖
I use shower oil when showering, that helps me a lot! You are a trooper well done!
Me too.... that is all I can say.
I've had fibromyalgia and CFS for 40 years and I literally get exhausted just thinking about what needs done. No one understands it. I can't exercise cos I have damaged my back and many other things from when I was younger and I did karate. But I don't even have the energy to move my toes.
The shower thing, I know what that's like.
Also the insomnia, I get that a lot, I do music vids at 4,6am just to make others suffer too lol gotta get fun somewhere.
My bones ache from inside including my face, ribs hips, knees and ankles.
Yes I know when the weather's changed cos the pain intensifies
Jo, I'm so sorry to hear about everything you've been dealing with for the past 40 years. It's beyond tough when people don’t understand just how exhausting it is, even thinking about what needs to be done. The struggle with exercise, the shower, the insomnia, and the bone-deep aches, I get it. It's like the weather changes and our bodies feel it tenfold.
Finding humor, like making music videos is such a great way to cope and bring a bit of fun into the struggle. Hang in there, and know that you’re not alone. Take care and keep finding those little moments of joy. 💖🌟
@@tt_looking_glass you hang in there too. I really appreciate your videos❤❤
@@JoGray1987 Thank you so much for your encouraging words. ❤️
One in the Morning?
Sorry that you are going through so much discomfort
I appreciate your honesty,seriously
It’s time some more research is done to help those with Fibromyalgia
Warm,gentle Hugs 🤗
Thank you so much. I think because Fibromyalgia won’t kill you, it’s not progressive and affects women primarily, there isn’t a big drive for research.
@@tt_looking_glass I understand but many have very poor quality of life and that is sad
@@elizabethconroy7665 I 100% agree and I’m living proof of that declining quality of life. I think Fibromyalgia, or chronic illness in general as a matter of fact, is so complex that unless doctors and scientists start to address the body as whole, completely interconnected, and not as individual organ systems,we will not find a way to recover.
When I at my worse flare I screaming out as pain to much
I’m so sorry to hear you too suffer from this awful condition. Sending you love and strength.
Adderall’s changed my life. Don’t get me wrong, I still have the tiredness but I can actually stay awake, and do stuff like the tribal fiber art stuff I do. It also has this odd side effect of rare migraines now. Only bad effect is eating very sugar heavy food since it cuts my appetite more, but without it I could not stay awake. And yes I feel season and weather changes, it’s like it literally flares the nerves with electricity that singes and burns.
That’s amazing, I’m so glad Adderall has made such a difference for you! Staying awake and having the energy to do things you love is a huge win. I know the fatigue can be such a relentless battle, so even a little relief is life-changing. The side effects sound like a bit of a trade-off, though-ugh, those migraines and appetite issues can be rough. But I totally relate to what you said about the weather changes. It’s wild how our bodies react, isn’t it? Sending you lots of strength to keep pushing through! 💪💜
Yes about the weather
My pain is so bad all over, deep, when raining
I’ve been there too, and it's so frustrating when it happens. It’s hard not to feel a little defeated by it. Just know you're not alone in that feeling, and it's okay to take those breaks whenever you need to. Take care of yourself, friend. Your body’s just asking for a little extra love in those moments.
You are good ❤ i hope 🤞 for you
Thank you so much for the kind words.
Thanks for sharing! I'm going through the same thing. Nobody else but us understands what Fibro is like. Even my own family do not understand - but I think they're on their way.
I wouldn't wish this on my worst enemy! Pain is my worst issue as I have issues with my mobility, severe pain in knees although MRI was clear (so its the fibro) Anything I do comes back and bites me on the ass. Learning to live like this is so hard. The hardest thing I've ever done.
On the weather - I'm not sure but I do know that getting too hot in the sun will flare me up. Flu like symptoms, pain all over and then have to crash in bed.
I hear you completely. It's so tough when even our closest ones don't understand what we're going through. Pain really is a relentless enemy. Learning to live with it is definitely one of the hardest things ever. The sun can be such a double-edged sword. Great for some, but triggering for us. Hang in there, and thank you for sharing your experience. We're in this together! 🌸🌞
@@tt_looking_glass Thank you so much for your reply. I really appreciate it. Yes the sun is a no no for me now cos it makes me flare up. I used to love the sunshine!
Yes. We are in this together. Much love.
@@pacmanghostdude5227 It's like having to say goodbye to something that once brought so much joy. But hey, we find new ways to shine, right? Much love right back at you. 🌼
@@tt_looking_glass Yes, it's a whole new life and the best we can do is try and be positive about it. Much love.
Exactly! ❤️
Hello 👋🏾 do you have palpitations and dizzy spells ? I’m so tired it feels like I’m dreaming 😢. Doctors won’t listen to me it’s like I’m making up pain .
Hey Breona 👋, yes, I do experience palpitations and dizzy spells too. I’ve also been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), so I’m not sure if it’s related to fibromyalgia or if it’s more connected to POTS. I totally understand the frustration with doctors not listening. Just know you’re not alone in this, and what you’re feeling is real. Hang in there, okay? 💛
I get these too. I think I may have POTS or some type of dysautonomia. although my doctors says it could be connected to my fibromyalgia, we'll wait it out and see
I'm so Happy to see your video. AtLeast people will knowhow we suffer. I suffer a lot recently due to over stress. I'm having from 1098.26 years.
What makes me feel sad that no one knows abt it. Only now Dr understand. Im on neuro medication.They say I look nice as I always like to look good. So noone believes my inner sufferings. Since of latest too tough to manage. Get scared when morning comes.
I do lot of work though I cannot cope up. I too get scared to get into showers. In used to havev 3 orn4 times. Now even for 2 or 3 days I have no interest. I have aches n pains from head to the toe. All organs are affected. I also have Neuropathy n all.other probs. I don't get sleep till 2pm. I'm living in india.
Once I get up I have lot to do. But with grt difficulty I manage. Cannot get up in the morning.
Feel like sitting 😮 near a pool with some good friends.
I like your last messages about clouds n rainbows.
❤Bye. Take care.
.
Hi Teresa, I'm really touched by your message. It's so true that many people don't understand the extent of our struggles because they can't see it. I'm so sorry you're going through this.
Your strength to keep going, even with all the pain and challenges, is truly inspiring.
Thank you for sharing your experience and for your kind words about the video. I'm glad it resonated with you. Keep holding onto those moments of calm and take care of yourself. ❤️
I can smell the rain out snow coming. People laugh and say.. It's not supposed to rain/snow. I'm a short while... Here comes the rain/snow. I smile 😂. My senses are all heightened all the time
I totally get what you mean about sensing the rain or snow coming! It’s like being a human barometer, right? 😂
I’ve noticed my senses are heightened all the time too. It can be overwhelming, but it also means we’re super in tune with our environment. Glad to know I’m not the only one with this weather-sensing ability!
Thanks for sharing and giving me a smile.
Does your upoer back hurt when you walk too much, mine does, i have been diagnosed with fibro also . My back hurts so much when i walk too much I have to sit down. I also have psoriatic arthritis. I can also feel more pain when the weather changes. Does your body jerk when you are trying to sleep, mine does. Do you know if this is a part of fibro? What is pot's?
Hey there, it sounds like you're really going through a tough time with fibro and psoriatic arthritis. Yeah, I totally get how challenging it can be, especially with all those aches and pains. I get a lot of upper back pain when I walk. It's hard to understand why, but it is a thing. And that jerky feeling when trying to sleep? I hear you, it's not easy. Remember, you're not alone in this, and it's always a good idea to talk with your doctor about what you're experiencing. And about POTS (postural orthostatic tachycardia syndrome) , it's basically when your heart rate shoots up after standing up, causing dizziness or even fainting. It's another one of those tricky conditions. Take care and stay strong.
i dont see how you talk during a flare i sometimes go 2 or 3 days without a word because i feel so bad. thank goodness i have a very understanding husband
I totally get where you're coming from. Flares affect people in different ways, and I definitely have days when I won't leave my bed and don't say much. I'm lucky to have an understanding husband too. On those really bad days, I won’t be filming, so you most likely won’t see it. We all have our struggles, and it's important to give ourselves grace. Take care!
Bless you dear, We cannot plan a family day out anymore, I can’t plan a shopping day either , So what to do 💕💕
I’m so sorry to hear you’re in such terrible pain. It really sucks when you can't plan or do anything because of these flare-ups. I know how tough SPS and fibromyalgia can be. Sending you all my love and hoping things ease up for you soon. Hang in there, my friend. 💖💕
@@tt_looking_glass morning my friend, My flare this month is getting so much worse, And the weather being 1deg outdoors has caused a massive flare even hurt my right ankle , I already had a broken knee broken feet, How do we win, this my bones are painful ,And it’s like you dear to the point where what do we do !my husband has been by my side for many years , God love him, So what I’m saying is my independence has gone, and honestly, all you are suffering I,m with you, I have my singing, some days , when I’m strong enough, But like you I overdo it just having a shower now, Also having SPS which I was first diagnosed with, my fatigue is so bad I sleep or have attack of , Narcolepsy, I felt alone for so long thank you , bless you we have to try and stay strong, Best wishes, Judye 🌹
@@tt_looking_glass you got this Stacey , stay strong, if possible, Best wishes, I’m too find bed is too painful now for me, My back , my hips I can’t put pressure anywhere, What and how do you get around this , Not enough cotton wool to swodle a body in, Just sayiing I’m having a terrible teary day, Why because the pain has really hit me bad, This last two days no sleep Getting hubby up not fair on him , But no one listens to us ,
Not medical care, Drs Etc, Once in the too hard basket you can’t get out,
I’m feeling fed up, needed some one too talk too about there illness Hiw do you after years and I was diagnosed Years back ,and the past five years / 2years so much worse, I can’t go out , I panic, Afraid of flares , but Stacey I thank you very much, Keep safe , well, if possible, Judye xx 🌹🌹
I HAVE HAD FIBROMYALGIA FOR MORE THAN 40 YEARS. I HAVE TRIED EVERYTHING. STILL DON’’T UNDERSTANDIT MY DOCTORS DON’t know anything.
40 years is such a long time to deal with fibromyalgia. I was like, "Wow!" But then I realized that for me, it's been 32 years. It's tough when doctors don't have the answers, isn't it? I've tried so many things too, and it still rocks my world everyday. Hang in there and hopefully we’ll keep finding new ways to manage it better. 💜
lord right now i lift up marikaymccarty6 and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of fibromyalgia all in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome healing report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite these circumstances still i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around marika and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on her to much help her pull through this ordeal and by all means please help this sister’s faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
When the pain in my bones (mostly the bones from my elbows to my wrist, my wrists, the bones from my knees to my ankles, sometimes my ankles) makes me sick at my stomach zs soon as it strikes me.
Gross as it is, today I took a bath after 2 months (maybe more). Also, I am now losing teeth because I have no energy to brush them.
I cannot do anything because of the pain and fatigue. The only person I have left in my life who is sticking with me is my husband. I met him and we married after I got sick.
May you feel better.
Oh my heart goes out to you! That level of bone pain just eats away at your whole being, doesn’t it? I totally get the struggle with bathing and self-care… sometimes it takes all the strength just to get through one small task. But you know what? Taking that bath after two months? That’s a victory! Seriously, give yourself credit for that.
It sounds like your husband is such a strong source of support, what a blessing to have someone stick by you like that. Sending you so much love and strength. I really hope you get a little relief soon. Keep holding on, you’re stronger than you know. ❤️
This makes me realize how far I have come along. Or at least a stupid amount of resilience. Somehow I work 40 hour weeks. Workout 3 times a week, walk the dog multiple times a day and clean the house for hours on the weekend, along with renovations. There was a time where none of that was possible. However, I feel exhausted and in pain all the time. I’ve been able to find a supplement that really helps me with sleep. I’ve also gone from 9 pills of different medication a day to 2.5. Only the good lord knows how. I do believe in a cure even after 14 years. However, I can’t say that I really truly feel happy. Mostly feel like I’m existing.
Wow, Gloria, your resilience is truly inspiring! It’s incredible how much you’ve accomplished despite the constant exhaustion and pain. Balancing a 40-hour workweek, regular workouts, walking the dog, and even handling renovations is no small feat. It’s great to hear that you’ve found a supplement that helps with sleep and have reduced your medication significantly. Believing in a cure and pushing through each day with such determination is something to be proud of, even if true happiness feels out of reach right now. Remember, you’re not just existing. You’re making progress and showing immense strength. Sending you lots of love and strength! ❤️
@@tt_looking_glass thank you that’s very kind of you. I’m not sure my approach is the right one…if just pushing through the pain and exhaustion is actually helpful. Like everyone else just trying to figure out how to live with this for now. I really hope that one day this won’t be a reality, and that every person suffering finds a way through. 🙏
@@gloriaradivojevic9221 I wish that too. ❤️
I can feel the weather coming and even when it is far away.Showers feel like needles shooting into me.Luckily,I can take baths with piles of salts.
I completely understand how you feel. The weather can really impact our bodies in ways others might not realize. Showers feeling like needles sound like such a painful experience, but I'm glad you found some relief with baths and salts. It's all about finding those small comforts that help us get through the tough days. Thank you for sharing, and take care. 💜
Your eyes show the flare. My mom and me have the same eyes when in flares
It’s quite something, isn’t it, how our bodies can show what we’re going through, even in ways as subtle as the look in our eyes? You are very perceptive. It sounds like you and your mom share a deep understanding of each other's experiences during those flare-ups. That kind of connection can be really powerful, knowing someone so close can truly see and understand the pain without needing a word.
If you ever feel like sharing more about what you and your mom go through, or if you need a place to find support during those tough times, this community and I are here. Take care, and give my best to your mom.
Oh my goodness, that's why showers knock me down.....
Everyone around me has said I have fibro and it's been since having covid that it's thrown everything upside down.
Gp said it was the menopause and then it was chronic pain.
Then, it was both menopause and chronic. Pain with fatigue.
I just need to know what is going on and how to deal with it.
As for the weather, yes. Oh yes, I can feel that 100%. Even the pressure changes.
I have long gone through the menopause and even though I have arthritis I know the difference between the two pains.
I just wish someone medical would see me and confirm and not make me feel that I am making this up.
Thank you
From a very tired lady in pain from England xx
You've been through quite a challenging journey trying to get a clear understanding of what's happening with your health. It is incredibly frustrating to not be heard or understood by doctors.
It’s important to continue advocating for yourself and seeking a doctor who will take the time to thoroughly evaluate your symptoms and consider all possible explanations. It might be helpful to document your symptoms, noting their frequency, severity, and any triggers you've noticed, like weather changes. This can provide useful insights during medical appointments.
The overlap of symptoms from different conditions can definitely complicate diagnosis and treatment. It’s understandable to feel exhausted and overwhelmed by this process.
Thank you for sharing your story, and I truly hope you find some relief soon. Take care and keep pushing for the answers and support you deserve.
@tt_looking_glass thank you for replying. I think I will do as you have suggested and do a diary.
I'm just watching more of your videos for helpful information.
Thank you 😊
I’m so glad you are finding the videos helpful. I hope you find the answers you are looking for.
Yes I know when the weather is going to change...
It's crazy, isn't it? We should all work at the weather network!! We would probably have a more accurate prediction than the weather people who often get it wrong. 🤣
i am a man the flare up and pain is so bad i know what you are going through, it makes me mad some doctors don't believe in fibromyalgia flare i wish they could feel what i am going through
I'm so sorry you're dealing with such intense pain. It's so frustrating when doctors don't validate our experiences with fibromyalgia. You are not alone, and there are many of us who understand and share your frustration. Thank you for sharing your story and being part of this community. Together, we can continue to raise awareness and support each other through the tough times. Sending strength and understanding your way. 💜
Hello from UK thank you for your reply I wonder if there is a doctor out there with fibromyalgia with the pain we have. I wish the pain would go away rich x
Hello from Canada! I believe Dr. Geneva has fibromyalgia herself and understands the pain we go through. It's always comforting to know that some doctors truly understand our struggles. I wish the pain would go away too. Hang in there, Rich. Sending you lots of support! 💖
Only those who have it will understand❤. I absolutely understand.
That's good but my doctors look at me gone out when asking for help. hospital doctors understand what I am going through I wish it would go away. my wife left me because of this problem she has really hurt me talking to you I don't feel alone if only If I lived in Canada x
Yes I feel it in my bones too, and my feet stay cold when the weather changes
Yes! The cold feet and hands!!
@@tt_looking_glass thank you for your video I have been recently diagnosed before that I didn't know what was happening with my life I'm a very fit person and I was always tired I thought I was going through the menopause or I was imagining things
good to hear I'm not alone
@@lovil6375 we all go through this “are we imagining things” or “am I crazy” fase because the symptoms feel so real but nothing shows up on tests. It’s very frustrating. Welcome to our little channel community. I’m glad my video was helpful to you. It makes my heart smile.
I struggle everyday to go downstairs to eat with my kids. Even brushing my teeth or peeing.
It sounds like you're facing tough challenges with even the most basic daily activities, and I really admire your courage in sharing that with us. It must be so hard to manage those everyday tasks while also wanting to be there for your kids in the way that you’d like. You're doing an incredible job under such difficult circumstances.
Remember, every small step you take is a victory, no matter how small it may seem. Please know that this community is here for you, to support you and to remind you that you're not alone in this struggle. Keep reaching out, keep sharing, and keep taking it one day at a time. You're doing better than you think, and we're all here cheering you on.
Im a man with fibromyalgia, i have 2 kids under 2, and work full time. Life is so hard and its hard for people around me to see the level of struggle it is to manage the inescapable jobs whilst in pain and tired. Ive just been prescribed deloxitine as my mental health has been that bad. Any advice from similar people whether i should take it??
I hear you, and my heart goes out to you. Managing fibromyalgia while raising two little ones and working full-time is beyond tough. I’ve had young children myself, and even without the chronic pain, it’s exhausting. It’s hard for others to truly understand how draining it is, both physically and mentally, to keep pushing through that daily pain and fatigue.
When it comes to medication, my honest advice, as someone who’s been through the trial and error, is that you won’t know until you give it a try. I’ve heard from people who’ve had amazing results, some where it helped for a while and then plateaued, and others who found it didn’t suit them. We’re all so different, and even our bodies can react differently as we move through different phases of life. Personally, I’ve found that LDN has been a lifeline for me, it’s the thing that’s allowed me to reclaim parts of my life I thought I’d lost.
You’re doing an incredible job, even if it doesn’t always feel like it. Just the fact that you’re showing up for your family and work, despite everything, is proof of your strength. I’m rooting for you, and I truly hope you find something that brings you relief. You deserve it. 💛
@tt_looking_glass Thank you so much for taking the time to send a reply. Especially one that so authentically heard what I was saying. I appreciate your advice, and it has given me a positive outlook on trying the medication. So thank you sincerely!
Your video was well worth your time and effort to make as hard as I can imagine it was to do on a bad day, as it represents that we are not alone and it's a journey we share with others, albeit I wish no one had this and a cure was there to save the years it takes away.
Thank you so much for your kind words! Honestly, hearing that you felt truly heard means the world to me. It’s all we really want sometimes, right? Just for someone to "get it." I'm so glad that my advice helped give you some positive thoughts about trying the medication. It's never easy, but that little bit of hope can make a big difference when we're dealing with the daily grind of chronic illness.
And you're right, making content on tough days is a challenge. But knowing that it resonated with you and reminded you that we’re not alone in this journey makes it so worth it. I’m so grateful you are here and I hope you explore my other videos. Keep me posted on how the medication goes for you. I'm rooting for you!
I have been suffering for 31 years and what makes it worst is I am a dentist. I swim every morning to take away the pain and stiffness and seek Accupuncture once a month. Unfortunately my Accupuncturist retired and move across the USA west coast so I will be retiring from being a dentist. I have not found one like her . Hopefully the decrease in stress after retirement will help 😊
I'm really sorry to hear about your long battle with pain, especially while being a dentist. Swimming every morning and monthly acupuncture sound like great routines, but it's tough when you lose a trusted acupuncturist. I hope the decrease in stress after retirement brings you much-needed relief. Take care, and I wish you all the best in this new chapter! 😊💖
They won't take my pain seriously I can barely make appointments it's exhausting the flares with taking care of 6 children is insane
Oh Thalia, I can’t even imagine how exhausting that must be, managing fibro flares while caring for six kids sounds beyond overwhelming. I have five children (all grown now) and it was hard! Six!?! Wow!! It’s so frustrating when they don’t take our pain seriously, and it just adds to the stress. You’re doing so much already, and it’s not easy. I really hope you have some support around you because you deserve it. Hang in there, and don’t hesitate to reach out if you ever need to vent or talk it through. You’re stronger than you know!
Thanks i found your channel..from Philippines..
suffering chronic pain,,neuralgia,,neurophaty, or i think this is fibromyalgia coz i feel same symptoms..
I’m so glad you found the channel and that it resonates with your experiences. Dealing with chronic pain, neuralgia, and neuropathy is incredibly challenging, and it's has lots of similarities with fibromyalgia symptoms. You're not alone in this journey, and I hope the content here can offer some comfort and useful information as you navigate your symptoms. Stay connected with us here, and don’t hesitate to share more of your story whenever you feel comfortable. Take care and hang in there! 🌟
Does Fibromyalgia feel like flu-like symptoms with all the joints and aches?
Yes, fibromyalgia can definitely feel like having flu-like symptoms, especially when it comes to the all-over aches, joint pain, and that deep, body-wide fatigue. It's like your whole body is stuck in this constant state of soreness and exhaustion, but without the typical signs of a cold or flu. The aches can feel so intense, and even small tasks can become a huge effort. It’s hard to explain to others because it’s so invisible, but those symptoms are very real and can be incredibly draining. If you’re experiencing something similar, you’re not alone!
@@tt_looking_glass In the beginning it is very scary because you don't know what it is and are only thinking it is some disease.
Can somebody answer me please I'm confused . Is it nessesary for people to have pain when having fibromyalgia?? And how does one test for this. Thank you in advance
Hey Francina! Yes, pain is one of the hallmark symptoms of fibromyalgia. It’s a widespread, persistent pain that feels like it’s all over your body. But the thing with fibro is that it can affect everyone differently. Some people feel it constantly, while others have flare-ups that come and go. As for tests, there isn’t one specific test for fibromyalgia. It’s more about ruling out other conditions, and doctors often diagnose it based on your pain history and symptoms, like fatigue and brain fog. It can be confusing for sure.
I dont have pain but I'm sensitive to noise.. I can't handle certain smells ... Then my chest pulls tight... I can't handle the heat it makes me feel weak and sick ... my upper shoulder muscles pains and causes migraine at times... I have digestive issues ... gassy and Bloatedness... I'm 45 and also in menopause... No period anymore .. I become agitated I have anxiety .. I also go on into a low mood like no zeal .
Oh, Francina, that sounds so tough.That must be exhausting. And being in menopause on top of it just throws another layer of complexity into the mix. I know because I am also going through it. Have you ever thought of hormone replacement therapy. I know it's not for everyone but I have benefited from it. It’s no wonder you’re feeling low mood and anxiety, our bodies and minds are so connected, and when one thing is off, it can feel like everything is crashing down.
I’m really sorry you’re going through this, but it’s good that you’re aware of how all these things are affecting you. Sometimes just acknowledging how overwhelming it all feels is the first step in finding ways to cope. You're not alone in this, and I hope you find some relief soon. I'm sending you strength and a big virtual hug! 💜
The drs used to tell me I was a “hysterical woman who needed a husband” back in the early ‘90s. When it was fibro, Paget’s disease of the bone, & a meningioma tumor on my spine
Oh Jill, that's so infuriating to hear. It's heartbreaking that you were dismissed like that when you were dealing with such serious conditions. Being told you’re "hysterical" instead of being properly diagnosed is just wrong. I'm glad you finally got the correct diagnosis, but it shouldn’t have taken so long. You’ve been through so much. Thank you for sharing your story with us. 💪🦋