2015-06-13: It's no fun being right about being intersex
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- Опубликовано: 25 авг 2024
- Video update on my medical situation surrounding my intersex condition and the medical complications which began to develop this year, taking the form of a pregnancy.
Also some updates on my plans for the near future with current and other projects.
I'm sure I've already said this in one form or another at some point in time, but I can't imagine it gets old. I can't tell you how much comfort it gives me simply to know that you exist. To be reminded that there is someone out there who is going through a similar crisis of identity, to know that there is someone out there who has had to cope with the same kinds of frustrations in dealing with the medical community, to know, even if you identify as a female and I a male, that there is someone out there like me, eases my mind in so many ways. I cried with you at the end of the video. I know that frustration--that sense of despair in realizing "well, I could say I told you so, but that really wouldn't make me feel any better or improve my situation one bit." And I hope that knowing that there is someone out there who to some degree shares your pain and fear and frustration gives you even a fraction of the solace that the simple fact of your existence gives me, even if I'm on the other side of the world. I look forward to the next video. Keep me posted. :)
[HUGE HUGZ] Just stay strong systyr! \(^_^)/
I and some of the rest of us know you are right and we stand with you!
Oh one more thing I have four mature germ cell teratoma removed that varied in size from 10 to 17.5 cm before chemotherapy. Just one of these took six hours to be removed. The smaller of the teratoma the one that was 10cm, was surgically removed while I was wide awake.
Half of the teratoma appeared to be real fetus like in structure, having limbs, bones, skin, eyes and even internal organs.
I know what your going thoughts I've been dealing with intersex my entire my whole life. All the surgeries and all the lies doctors told my parents and myself. Then there was the stage three testicular/ovarian cancer and more surgeries. Now this year we found out my remaining testis is also a ovotestis,and will need to be surgically removed. I try to make a joke of it by tell friends I'm having a gender change on the installment plan.
In all it took forty five years for me to find out what the doctors knew about me when I was a child. Because of records that were withheld my diagnosis was delayed by months and almost cost me my life.
So now my penal tissue is damaged from hypogonadism in addition the remaining ovotestis will be removed. I'm married which makes this also worse. But this fall I intend on seeing therapist who deals with transgender people.
I realize people do not comprehend what we deal with.
Thank you very much for,sharing your life story.