What is cystic fibrosis, exactly?
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- Опубликовано: 5 окт 2024
- Cystic fibrosis is a genetic condition mostly affecting the lungs and digestive system.
You are born with cystic fibrosis and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without even knowing.
Presented by Charles Michael Duke.
Join the fight for a Life Unlimited by cystic fibrosis.
Visit www.cysticfibr...
My only beautiful daughter died from complications of cystic fibrosis at 23 years old in 2012. May she Rest In Peace and Love. 🌸💕
Wow . I pray that God give you extra strength from now on 🙏🏽
May God comfort your heart and soul. 🙏
So sorry for your loss. I hope that her memory is eternal in your heart.
@@CFlifestyleFoundation Thanks for your very kind words. God bless.
I’m so sorry! My condolences 💐
Adorable young man, wishing him the best with a healthy long life.
My bff has CF. Two years ago, she was in the hospital whole summer, but now she's doing great. Sometimes i think how lucky i am to be healthy and fine. For all of you with CF, i wish you the best and peaceful life.
Thank you. 🖤
@@adawong7485 you are always welcome. Stay strong! ❤️
@@evastarman2735 + Well... educate yourself Woow!! By the way the REAL CURE TO ALMOST ANY DISEASES IS “ 35% HYDROGEN PEROXIDE FOOD GRADE “ research it I’m very heal no medication just 102 minerals, Curcumin, Turmeric Boost which has Organic curcumin, Organic BLK. Pepper, and Probiotics, Manuka honey, Zinc, and Selenium drops Oh! If ppl. Trying everything under the sun but no good results quit suffering people then try this and guarantee 100% it works!
Thank you
Plse contec me
I just turned 13 years old and have had CF since I was born. It is hard since I'm the only person In my whole entire school who has it. When I take my enzyme tablets , and my nebulisers, people look at me weird and ask alot of questions which make me uncomfortable. I've been watching alot of vidoes about how people deal with CF. It makes me cry all the time, and it has given me depression. I'm always praying to God that I don't die so young. It's scary to say and think, "That's how i may die." Because no one wants to know how they're gonna die. But thankyou for making the video, (Its very late but oh well)! It has made me feel alot better about it. Although It is still in my life, I hope it will make me feel less insecure about a disorder I should be proud of for fighting.
Harleyisnot Online hi I also have cf I'm the only person in my school who has it and I can't digest fat so I take some tablets that help and I also have to have nebulisers I haven't got it as bad as some people
I've had it since I was born I'm 12 now and sometimes I get weird looks when I take my tablets so I don't really like having them in public but I need to otherwise I get bad stomach
The questions also make me a bit uncomfortable but I just say what it is but like not saying what it is fully
@TA A wow you're really kind🤗
Well... little kid this is what you should do next Well... educate yourself Woow!! By the way the REAL CURE TO ALMOST ANY DISEASES IS “ 35% HYDROGEN PEROXIDE FOOD GRADE “ research it I’m very heal no medication just 102 minerals, Curcumin, Turmeric Boost which has Organic curcumin, Organic BLK. Pepper, and Probiotics, Manuka honey, Zinc, and Selenium drops Oh! If ppl. Trying everything under the sun but no good results quit suffering people then try this and guarantee 100% it works!
I have CF am young but i never give up
There is no problem without solution
Hod hold us in peace
L
Excellent video Charles.... well done! I know a 57 year old with CF. She still has same lungs (although not perfect) and she's doing fine. "Life does not have to be perfect to be wonderful..."
"Life does not have to be perfect to be wonderful..." That quotation penetrated right into my heart ❤
Jawad Ahmed, Right?😍😭
What a wonderful quote . Good day to you ❤
Great video. Well done to the lad who presented.
Just wanna say well done to the presenter. He was remarkably well spoken, learnt the lines very well and his energy was up lifting.
I'm not remotely suffering from CF, but I wanna say that the strength in this comment section is unreal. Well done, guys. Just amazing.
He is reading from the screen how did you conclude he learned his lines lmao
@@Flowshow88 I didn't notice. I guess I must be dumb AF. 😎
Brave young man, great video.
Wonderful presentation, I hope that the presenter is doing well! 🙏 I'm sending love to anyone living with Cystic Fibrosis, you're all warriors!!!
I can see a remarkably sad eyes in you, but on the other hand,you are strong enough to face and stall against the crisis. Well done and God bless you
I love the fact that you are able to come out here and educate us about your problems
I mean we all have dark days but am so proud of how you are using yours to create an impact 😩❤️
Will be showing this to my class tomorrow.
My Father had CF and got a double lung transplant while coping with 30% lung capacity, sadly he died around 2 years ago at the age of 47 from Covid , I have finally accepted help from the people who care about me and I’m on the road to recovery.
Awww so SO sorry to hear that. God bless you sir. ❤️🙏🏻
Im 15 y/o bron with cystic fibrosis and have to live with it….that’s my life and i love ❤
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
My beautiful son Kalyan 15/03/1997#07/03/2024 at the age of 27 years old died from cystic fibrosis complications of post Lungs transplantation operation at yashoda hospital secunderabad May he rest in peace and Love ❤️🙏 my son Kalyan
Fantastic presentation. Thank you and well done.
thank you so much this is going to help me with my biology homework 😊😉
same!
same hahaha
I have CF to and watching this video has helped me so much thank you
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
🤲⚘🙏 love and prayer for all those suffering with CF.....😔
I'm a medical student. I would love to work on day helping people with CF.
Kia is bimari ka koi ilaaj nh h proper
Plz btya
My cousin has CF and he is currently at the hospital. I really hope he can get better 😥
How is he doing?
@@maindortv7427 wondering the same thing
I loved your video. On point and very well explained.
Greetings from Toronto Canada
Believe Almighty Allah I am also cf patient facing problems in daily life but I trust Almighty Allah any desease is not the reason of any death.How many persons they even take a tablet in his life time but suddenly they died Why because death keeps no calendar.May Allah protect us all and give healthy life to all people..Nice video.....
wow
How good you are for presenting this. Well done
He has the same problems as you.
Loneliness and fears. Wishing to do what he loves.
Piled on top, several complicated life-threatening problems, including a precious loved one could sacrifice themself to give him lungs............. 😔
God bless you friend my heart breaks for you very deeply...
I saw the ghost of my dead best friend run down the hallway and my cat Tobius saw it with me it was 4am.
She did it to make me stop fearing the afterlife. I miss her so bad I don't have the ability to sing...
I wish you to Heaven someday... but it kills me inside that you live underneath this hovering condition... may you and others form a strong bond and may you get what you deserve in this great experience we call life.
I'm greatly sorry the way you go through some of these things.
To all sufferers of CF , friends and family of sufferers, love you all .
I was diagnosed in 1964 and just turned 60 last month.
What a sterling young man
Well done good and informative video Charles.
godbless to everyone that has cystic fibrosis or other sickness😁😁
informational and inspiring! Lovely video, Charles💓thanks
Bangtan slaying since 2013 army!!!!
watch cystic fibrosis by Dr. Najeeb
ruclips.net/video/Bn7oiKiFSvk/видео.html
Thank you for that. I wish you all the best in life
My only beautiful son Kalyan died cystic fibrosis and after that both Lungs transplantation operation may he rest in peace at age of 27 years old boy
Great video. Till this day i have never heard of this condition. But i went on a birthday and donate money for people with this condition...
My Late Father Died of IDIOPATHIC FIBROSIS...He was 59...And I'm worried about me having this Horrible Illness...And I'm only 51..
I started crying watching this guy.
Hi 🙂
Really nice video.....wish you the very best
This was an amazing video
Brilliantly made - and presented - video 👏
Excellent video that explained things simply & very well presented.
I have Cystic Fibrosis and this video is relly good. Thankyou for that. I eat not to mutch,but I know I must eat but it is for me so hard. I have for 1 year lung problems and I dont like it.
Plse contact me I have a daughter cf position shi 3 month old
Hi place contect
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
God speed to you buddy!
Thank you for a wonderful video, it is a great explanation.
The advancement of CF treatment reminds me of HIV. Just as most people with HIV have a near-normal lifespan, hopefully the same will happen with CF!
Great video Charles!
Great Video. I love it!
my best friend has CF and her little sister does aswell, they meet face to face (well they live together) and they don't get really unwell, why Is this
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
I am grateful for whatever I am. 👍
you are a hero bro👍❤️❤️
Stay strong my friend
great video sir hope your all ok
Well explained !
well done, this is going to help with my science hw ;)
Glad we could help!
@@CFTrust hello cystic fibrosis trust can people with cystic fibrosis not always have problems with their liver and kidneys and pancreas at all I have always wonder that
@@Jess-wk5jo Hi Jess. There are more than 1,400 possible mutations of the faulty gene that causes cystic fibrosis. Everyone living with the condition carries two of these mutated genes, meaning that the way it affects the body can vary wildly from person to person. You can find out more about how CF affects the body on our website: www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/how-does-cystic-fibrosis-affect-the-body
@Cystic Fibrosis Trust hello cystic fibrosis trust can people with cystic fibrosis not always have problems with their liver and kidneys and pancreas at all I have always wonder that
Anyone else from their teacher? Lmao
Kieramua yep
Yeah 😂
It’s very sad cause my Aunt has CF and I have CF so we can only see each other 1 every 2 years
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿❤
I hope to you good health and You should be Muslim
I wanted to learn more about this because my best friends sibblings have cf her younger brother and sister :(
I have been told to do this for school work in biology
watch cystic fibrosis by Dr. Najeeb
ruclips.net/video/Bn7oiKiFSvk/видео.html
I’m super scared just found out we’re carrying the gene
So like I came here bc I know nothing about my own disease and I’m 15 😂
no, i search about CF because of my biology class 🥺
Same!! Its been set for homeschool work
What a wonderful vedio 👍
What ever you Do ..Don't SMOKE 🚬..Even if you have CF..
Is it a problem if I’ve a collapsed lung?
So it makes your mucus thicker. Specifically it effects a gene that encodes an ion channel used in mucus membranes as well as sweat glands and the creation of some digestive fluids.
The effect, as he discussed, is thicker mucus, and a deficiency in digestive enzymes. (This is from a quick google search, not a thorough investigation).
Thanks for your comment.
We're always creating new videos about this complicated genetic disorder, you can see what we say about the CFTR gene here: ruclips.net/video/3zSSejkkdjQ/видео.html
We've also so far made videos about how cystic fibrosis affects the lungs, pancreas and digestive system. Feel free to take a look at our website cysticfibrosis.org.uk where we go into more detail.
@@CFTrust does cystic fibrosis cause every problems to heart
Which test is used to detect cystic fibrosis?
The sweat test is the standard test for diagnosing cystic fibrosis. It may be used if you have symptoms that may indicate cystic fibrosis or to confirm a positive diagnosis from a screening of your newborn baby.
i have 3 of 5 genetic markers for cf, does this mean i have a chance of catching a disease
Is it contagious?
No, it is a genetic disease and is not contagious.
love your energy
الله يشفيك 💕
I have cf
Louis Utting same!
Shanice Junor it’s not fun but it has benefits don’t you think
What sort of benefits because I'm not sure
Shanice Junor like living to 50
@@southwest2915 😂😂😂
I don't want to sound patronising but have you tried raw grass fed milk? It's meant to be health promoting especially with the lungs.
Milk is very mucus forming.my c.f. improved a little by cutting.milk and mucus forming foods out
You are right raw milk is a medicine
If you carry the gene and your mate does can you transmit or activate infection to each other?
Can you get it in later life? If triggered by mating?
i have this
Thankyou
I have cf too
I have been struggling with my condition Primary Ciliary Dyskinesia. Is there anything that can help thin down the abnormally sticky thick mucus which is causing me breathing difficulties. Living in the UK with this rare condition is tough, as there is limited support and knowledge. I have tryed out hypertonic saline, Ventolin nebs, and take daily carbocisteine to thin mucus down.
If any one can recommend something i can try, i would highly appreciate it. Thank you.
Try to ingest more fermented foods daily like sowercrowt and pickles and see how you feel. Hope you well❤
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
Where did you get treatment .. our 6 months baby has it .. can you share on treatment for young children
Hope your baby is doing well so far. Cut out grains and dairy from his diet. Give him mashed boiled apple every day and mashed vegetables. ❤
Also had fermented foods daily to his diet❤
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
اعوذ بالله من الشيطان الرجيم
الله الذي خلقكم من ضعف ثم جعل من بعد ضعف قوة ثم جعل من بعد قوة ضعفا وشيبة يخلق ما يشاء
Once you get a lung transplant, then how do you still suffer from it?
As far as my research on the topic found you won’t have lung issues from CF with new lungs.
However, that doesn’t get rid of the symptoms caused elsewhere in the body and then you’ll also have to be on immunosuppressants the rest of your life so your body won’t attack your new lungs. This of course will also leave you more vulnerable to other diseases as your immune system is weakened.
@@pcdeltalink036 Yikes. There's gotta be a better option.
Hi! I hope you are doing well. I am a student interested in researching CF, and there are some questions I have:
1) I have read that the mutation in the CFTR receptor causes secretions without water which causes mucous to build up and the secretions to be thick. Apparently this can result in an immune response as well, even in the absence of infections with neutrophils being the key player. In the absence of an infection, what role do neutrophils have in exacerbating CF?
2) I notice that CF patients in general have lower airway/pulmonary obstruction as well as upper airway obstruction. Are there any specific characteristics to upper airway mucous secretions that make it different from lower airway?
Any guidance would be appreciated
I’m the healthiest kid in the world with it
pino's son
I had to watch this for homework. Hi classmates.
Harris George Clark Jason Davis Jason
Did you hear about Trikafta ?
Omg Trikafta is amazing! Been on it for about a year now and it’s definitely helped me so much.
@@pcdeltalink036 oh I’m so glad to hear that 😌
I just have one question
Is it possible to get cystic fibrosis if non of you're parents has it
Yes. If both your parents are just carriers of the faulty gene (so they have no symptoms) you have a 25% chance of getting it.
Both of your parents have to carry the faulty gene, but they'd not have it themselves
No have relationship. 😑😑 I know that feeling
Idk if I have it bc Ive blown my nose about 15 times a day and not been able to breathe easy since I was very young. Not sure if that is a symptom is CF but I want figure out what it is I have.
Not enough there to determine it. You’ll need a sweat test and/or genetic testing to say for sure if you have it.
Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿 but for that nose.. in case stuck or mucus disturbing you, take a pure olive oil.. just make abit warm.. then take a syringe.. remove that sharp part put some olive oil inside both side of your nose while your head looking into the sky. It’s going to give you some burning feeling inside but don’t try to look down. Keep your head in the same position. You will feel all the mucus going down your throat. Try it couple times a week.. then you good
@@maindortv7427 ive never tried any of that but wouldnt the olive oil cause infection? Are you a doctor or are these things you've just heard of working for people?
@@BruceWaynge im not a doctor but it’s something I was struggling with for years. You don’t have to try it if you don’t feel it. Pure olive oil can’t never give infection. It cures instead.
I lost a friend to it 😭😥😥
😢😭😭
Is it possible to develop CF in an adult age after 40?
Hi Askar. You are born with CF, inheriting a copy of the faulty CF gene from each of your parents. Most cases of CF are diagnosed shortly after birth, particularly since newborn screening was introduced in the UK in 2007, but sometimes the condition may not be diagnosed until later in life. You can find out more about how CF is diagnosed on our website: www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/diagnosis
@@CFTrust hello @cystic fibrosis trust can I have question for you is cystic fibrosis class as lung disease or condition or chronic lung disease thank you for your time 😀
It’s possible it may not be caught till later in life, especially with milder symptoms (I wasn’t diagnosed till 30) but nowadays newborn screening heavily reduces that chance.
That means I will never be able to meet you bcoze I have cf too lol
L
thanks 2 god my daughter is cured from cystic fibrosis thanks 2 god
How did you do it?
How sir even am waiting for solution
I am 11 and i have cf
You looks cute
I like five feet apart i like haley lu richardson cole spourse💖
Intan Nisita I have a sister and brother who have cf and I have cf too . How do u keep apart from them...🤷🏻♀️
I have cystic fibrosis:( i dont want do die
You will not die. Have you ever tried decoction made of Irish Sea moss, comfrey, elderflowers, bladderwrack olive oil and glycerine before? You will need more potassium chloride and magnesium as much as you can. I can’t say much… it’s up to you to give them a Try or leave them. Have a healthy life👊🏿
Hall David White Timothy Taylor David
As we can infect each other's more worse...lol