🍎 Berthold - Introduction - Overview of Morbus Fabry disease - Germany 2023

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In upcoming episodes:
Episode 1 - The disease and its diagnosis - What is Morbus Fabry? - My reason for going to a support group - My story: When and how was your Morbus Fabry disease diagnosed? - General experiences / diagnosis time
Episode 2 - Therapy, pain, fatigue - Morbus Fabry therapies and what can the patient do? - How to manage pain? - How to manage pain and fatigue?
Episode 3 - Information seeking and association - Where do patients find out about the disease?
Episode 4 - In public, at work - How do I talk about my illness in public? - What happens at work?
Episode 5 - Everyday life - The effects on my daily life - What can patients do: nutrition and individual measures? - Covid - My recommendations to patients