ERN ReCONNET GOOD PRACTICE SHARING INITIATIVE 2024 - 2nd Edition

This important event has been organized by the ERN ReCONNET Working Group (WG) Research and Quality of Care led by Dr. Rosaria Talarico, our Scientific Coordinator, and ePAG Ilaria Galetti.
Last year, the event was a great success and for this new edition we look forward to discuss with all the participants the following topics:
- Introduction from the Chairs of the ERN ReCONNET Research and Quality of Care Working Group. R. Talarico, I. Galetti.
- Nurse clinics organisation for wound care and pregnancy management. S. Gori, V. Venturini, M. Mosca, R. Talarico (AOU Pisa).
- The ERN ReCONNET Relapsing Polychondritis (RP) Quality of Life (RP-QoL) assessment tool. L. Arnaud (Hôpitaux Universitaires de Strasbourg).
- ScleroNet: A regional Systemic Sclerosis (SSc) management network. P. Canziani (Presidente GILS), C. Bellocchi (Foundation IRCCS Ca’ Granda Ospedale Maggiore Polyclinic - Milan), C. Campochiaro (IRCCS San Raffaele - Milan).
- The institutional “response” to the ERN system, the Padua Model. G. Perilongo (AOU Padua).
Practical guidelines for the diagnosis and management of the Non-vascular Ehlers-Danlos Syndromes (EDS). G. Guichou (Hôpital Raymond Poincaré).
More info about Research and Quality of Care WG can be found here:
reconnet.ern-net.eu/wg-research-and-quality-of-care/
The registration to the ERN ReCONNET Newsletter can be done following this link:
reconnet.ern-net.eu/event-and-media-newsletter/