Thank you for sharing the Wiki-link to"Dysautonomia". Dan, you already knowing your audience and being proactive, I hope, helps. Those who truly care and are considerate will actually do a little reading and try to understand this disorder before the questions come at high speed. In redundancy. 😅 I actually took my time reading about this and it's very complex and a lil scary, too. I'm just worried about our girl. I saw where Hudsyn's category fell under and clicked on that. I was so delved deep into learning the different types of TBI's, causes, outcome etc.... I'm still not done reading but I want to be as educated about it as possible to stop making assumptions. I did want to ask tho, if she's able to do any physical therapy while she's in this sleepy state? Like stretching her muscles or does her nurse move her limbs to keep them loosened up? I was reading that stress and anxiety can trigger this. Do you think because she works so hard at school and, now with having to be super-focused and work hard on her speaking tablet that it was just a lot on her body and brain so her body clocked out for a bit?And...last question...When, at any time during this heavy sleep state, does it become a a concern or worrisome situation where you have to call a Dr or take her to the ER? She looks so peaceful and I wish I could have such a deep sleep and rest my body. Thank you for sharing your lives. I feel like we're family ❤
I think if we got to the point of several hours of not being able to get a response we would consider taking her to the ER, but we learned 5 years ago that all they will do is what we do, warm her. We do stretches with her each morning and during these bouts of dysautonomia I get her limbs moving to try and increase circulation.
Wow that beautiful girl goes through a lot doesn't she but she's a trooper and a warrior such a sweetheart may God always be with you and may you always have an angel by your side God bless you and your family
I came across this video as I was searching up nosodes in homeopathy.. I’ve heard some amazing things about it curing and healing people. I’m so sorry that she has to go through this it breaks my heart.. I go through the opposite, I get excessive sweating in my hands and feet.. unfortunately was from a v@ccine injury the MMR (measles, mumps, rubella) but they have heated pants at Walmart online and also heated hoodies at Home Depot so she could possibly try wearing those while she’s up and about without falling asleep.. I’ll be praying for her healing🙏🏻❤️
I felt so proud of Hudson when said she had a dipper and then kept repeating it’s so awesome even though she may not understand what it means she was right so cool. She’s a delight beacuse she reminds me of my sister who passed away. She used a dynovox. She would have a hard time keeping her head up to use it. She had really bad cp I have cp too. Luckily I’m able to talk and walk soso I have a power chair.
I love hearing Hudson talk with her device. Your taking really good care of her Dan . I love seeing this family. Hudson still my favorite. I love see her when u vleg. Love ❤️ from Gretchen from new Hampshire 💚💚💚💙💙💙
Sounds like POTS - a common form of Dysautonomia. I luckily don’t need to cath due to it but I would use my Squatty Potty stool to completely empty my bladder. I know it’s different because I’m potty trained and all. Salt and electrolytes usually wake me up some. Does she have a fast heart rate when she is going through all of this?
And St. Luke’s south I believe has a dysautonomia clinic which is what I heard. I live in St. Louis again, because I only spent two weeks in Kansas due to an abusive roommate, but I’m seeing a dysautonomia clinic in Fenton, Missouri
Hey hey! Hope y’all had a good weekend. Question, cuz I’m not informed, how come she has to be encouraged to keep waking up after she was sent home sick? I know there’s a reason I’m just ignorant as to why. Sending love from MN ❤
Good question! It's the dysautonomia that's causing the sleepiness, so we want her alert. Plus we want her awake during the day so she sleeps at night. When she has these bouts and sleeps the whole day, (and she will if we let her) then she is awake ALL NIGHT. It really messes up her schedule.
@@SeeTheSeitz ahh, of course! That makes total sense! Wasn’t sure sure if it was an issue with fluctuations with vitals. Thanks for teaching me! Hugs to everyone 💕 love ya sweet Hudson!
Hi Hudson it is a bummer no fun being sick at school but one thing i do Remer when i was in our class Circus i had the Chicken Pox from a class Mat and then he gave it to me and i gave it to my Big Sister and My Little Sister how fun is that i get to share my life with you Hutson Hudson how funny are you today and Happy New Year and one thing Hudson it is no fun being sicky get better soon but one thing Hudson can i share something with you if you don't minding it at all are you a dog lover but one thing Hudson i love your smile even sometimes i have a ruff day but not today but one thing don't repeat yourself
It's amazing that she can tell you what she needs with just her eyes technology has grown so much it's amazing that she can tell you when she has a diaper
Her answers are spot on too often. Plus we can see where she is looking by following the tracking curser on the screen, and she hovers around appropriate responses, even though she sometimes gets answer incorrect.
Dysautonomia. Hi Dan, can you please explain to me what is Dysautonomia? Also I was brain storming about how to keep her warm. I've always been told that wet heat is best as it penetrates more. Anyway what about an electric blanket. They also have caps you can put in microwave. I was just thinking rather than you having to blow air in her face etc, there are other simple things that you can use. CURIOUS, why don't you do other long lasting things that will keep her warm? I really am just interested. Not judging. Thanks.🌺🔥🌺
It's all good! I welcome all ideas and suggestions. I did mention the electric blanket and the microwave buckwheat pad I was using in the video. There's a link in the description about dysautonomia. 😉❤
Thanks Hudysn for using your device saying your "ok". Maybe I need to stay in closer touch and say hello more my friend "Would you like that"? Dan you got to post more videos of everyone. I sure miss not seeing you all and I have more medical issues going on from Dystonia to now a shaking almost Seizure right leg and on top of trying to find out more and why? Plus doing Botox injections and wondering if that leg is getting weak or my right foot and maybe that's why but not sure. Hudysn I love you feel better my friend
She hit puberty really early. I want to say about 7yrs old? I could be wrong on the age but it was really young. It's a side effect from her diagnosis.
Why you dont use proper grammar or punctuation marks instead of talk like caveman? Don't come to this channel to be messy Anna Lewis. Why don't you take the time to watch Hudsyn's Story and a couple others to learn about who she is, what this girl has been through and what she's been able to overcome despite her condition. Not to ask what she CAN'T do. If you want to question ANYONE on their abilities and where they fall short....make sure you're perfect with no faults, issues or shortcomings. At least make sure you leave a comment that uses proper English and grammar so YOU don't look like a fool trying to clock a disability, try to make her daddy feel bad or troll this video because you feel shitty about yourself. Look in the mirror (really...you really need to) and then look inward. Do YOU, of all people, a grown ass woman think that insulting a little girl's conditions and limitations is a good look for someone like you? This is OUR HUDSYN. We love her and are fiercely protective of her and her family. I was nice to you right now but if you don't change or leave....you're going to realize you picked the wrong channel to act like an imbecile. Be gone with you.
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
Thank you for sharing the Wiki-link to"Dysautonomia". Dan, you already knowing your audience and being proactive, I hope, helps. Those who truly care and are considerate will actually do a little reading and try to understand this disorder before the questions come at high speed. In redundancy. 😅 I actually took my time reading about this and it's very complex and a lil scary, too. I'm just worried about our girl. I saw where Hudsyn's category fell under and clicked on that. I was so delved deep into learning the different types of TBI's, causes, outcome etc.... I'm still not done reading but I want to be as educated about it as possible to stop making assumptions. I did want to ask tho, if she's able to do any physical therapy while she's in this sleepy state? Like stretching her muscles or does her nurse move her limbs to keep them loosened up? I was reading that stress and anxiety can trigger this. Do you think because she works so hard at school and, now with having to be super-focused and work hard on her speaking tablet that it was just a lot on her body and brain so her body clocked out for a bit?And...last question...When, at any time during this heavy sleep state, does it become a a concern or worrisome situation where you have to call a Dr or take her to the ER? She looks so peaceful and I wish I could have such a deep sleep and rest my body. Thank you for sharing your lives. I feel like we're family ❤
I think if we got to the point of several hours of not being able to get a response we would consider taking her to the ER, but we learned 5 years ago that all they will do is what we do, warm her. We do stretches with her each morning and during these bouts of dysautonomia I get her limbs moving to try and increase circulation.
@@SeeTheSeitzhi
Wow that beautiful girl goes through a lot doesn't she but she's a trooper and a warrior such a sweetheart may God always be with you and may you always have an angel by your side God bless you and your family
As a dysautonomia/POTS patient myself, putting the feet above the head could help it get some relief.
I came across this video as I was searching up nosodes in homeopathy.. I’ve heard some amazing things about it curing and healing people. I’m so sorry that she has to go through this it breaks my heart.. I go through the opposite, I get excessive sweating in my hands and feet.. unfortunately was from a v@ccine injury the MMR (measles, mumps, rubella) but they have heated pants at Walmart online and also heated hoodies at Home Depot so she could possibly try wearing those while she’s up and about without falling asleep.. I’ll be praying for her healing🙏🏻❤️
Poor kid. I have dysautonomia issues as well. Different
Presentation than her. It sucks. Hugs to you Hudsyn.
I felt so proud of Hudson when said she had a dipper and then kept repeating it’s so awesome even though she may not understand what it means she was right so cool. She’s a delight beacuse she reminds me of my sister who passed away. She used a dynovox. She would have a hard time keeping her head up to use it. She had really bad cp I have cp too. Luckily I’m able to talk and walk soso I have a power chair.
Poor Baby Girl.. hope she gets better soon.. Abrazos y Beso’s…. Hugs and Kisses.. Take Care Y’all..🙏🏼🙏🏼🌹🌹
Can't wait to see the new vlog and hope you guys have a great Sunday afternoon and evening with the kids
I love hearing Hudson talk with her device. Your taking really good care of her Dan . I love seeing this family. Hudson still my favorite. I love see her when u vleg. Love ❤️ from Gretchen from new Hampshire 💚💚💚💙💙💙
Wow her eyes are SO beautiful!
You are amazing, Dad!
I hope Hudsyn feels better soon again. I love being a Hope-stir. See you in the next episode! 🙂
Thats a good way for her to communicate! ❤ Iam glad she has that option! 😊🎉 ❤
It must be hard for you seeing your daughter going through these episodes! Hope she s feeling better now 🙏
I hope she feels better, god bless u❤❤
It sounded like Hudson’s ACC device was saying grilled cheese every time it said go Chiefs
HAHAHA! Now that's all I'm gonna hear when she says it!
Sounds like POTS - a common form of Dysautonomia. I luckily don’t need to cath due to it but I would use my Squatty Potty stool to completely empty my bladder. I know it’s different because I’m potty trained and all. Salt and electrolytes usually wake me up some. Does she have a fast heart rate when she is going through all of this?
And St. Luke’s south I believe has a dysautonomia clinic which is what I heard. I live in St. Louis again, because I only spent two weeks in Kansas due to an abusive roommate, but I’m seeing a dysautonomia clinic in Fenton, Missouri
@@cochiefemeralds3616 your comment about salt and electrolytes has been a game changer! Gonna feature your comment in the coming episode!
I have cerebral palsy and I really like watching your videos
I also have mild cerebral palsy I really enjoy your videos
@@shauntayecooper9489 Me too!
Hey hey! Hope y’all had a good weekend. Question, cuz I’m not informed, how come she has to be encouraged to keep waking up after she was sent home sick? I know there’s a reason I’m just ignorant as to why. Sending love from MN ❤
Good question! It's the dysautonomia that's causing the sleepiness, so we want her alert. Plus we want her awake during the day so she sleeps at night. When she has these bouts and sleeps the whole day, (and she will if we let her) then she is awake ALL NIGHT. It really messes up her schedule.
@@SeeTheSeitz ahh, of course! That makes total sense! Wasn’t sure sure if it was an issue with fluctuations with vitals. Thanks for teaching me! Hugs to everyone 💕 love ya sweet Hudson!
Hi Hudson it is a bummer no fun being sick at school but one thing i do Remer when i was in our class Circus i had the Chicken Pox from a class Mat and then he gave it to me and i gave it to my Big Sister and My Little Sister how fun is that i get to share my life with you Hutson Hudson how funny are you today and Happy New Year and one thing Hudson it is no fun being sicky get better soon but one thing Hudson can i share something with you if you don't minding it at all are you a dog lover but one thing Hudson i love your smile even sometimes i have a ruff day but not today but one thing don't repeat yourself
I love your channel
Hudsyn has Beautiful eyes.
God bless you all.🙏🕊🙏🕊🙏
It's amazing that she can tell you what she needs with just her eyes technology has grown so much it's amazing that she can tell you when she has a diaper
Tech is amazing
Is that device hers to keep
Hi I love the videos how does she take ?
Disability Fragile x Adrian
Is that like a coma,,kinda scary..hope all is well.
she has being having those a lot hun?
i love being a HOPE-Stir!
Good to hear hudsyn is alright... ❤
is she actually able to consciously use that machine or is it just because she randomly looks at the pictures?
Her answers are spot on too often. Plus we can see where she is looking by following the tracking curser on the screen, and she hovers around appropriate responses, even though she sometimes gets answer incorrect.
@@SeeTheSeitz that’s amazing then, what a cool bit of tech !
That’s so cool.
How is Hudsyn using her speech device without touching the screen?
She uses eye contact on what she wants to say/
The device tracks her eye movements. She stares at the screen choice she wants to say.
@@SeeTheSeitz oh I see now at least she can communicate with you guys.
I thought the blow dryer part was hilarious
hudsyn is so beautiful.
Dysautonomia. Hi Dan, can you please explain to me what is Dysautonomia?
Also I was brain storming about how to keep her warm. I've always been told that wet heat is best as it penetrates more. Anyway what about an electric blanket. They also have caps you can put in microwave. I was just thinking rather than you having to blow air in her face etc, there are other simple things that you can use. CURIOUS, why don't you do other long lasting things that will keep her warm?
I really am just interested. Not judging. Thanks.🌺🔥🌺
It's all good! I welcome all ideas and suggestions. I did mention the electric blanket and the microwave buckwheat pad I was using in the video. There's a link in the description about dysautonomia. 😉❤
Has doctors say that Dysautonomia is common in CP? I know it’s common in EDS. I never heard of Dysautonomia with CP..
We know plenty of other CP families that deal with it, so I'd say yes.
what types of disautonomia does she have
Your such a great dad
Hello hope you are well i love you guys so much
Prayers
She has such beautiful eyes 👀 ❤❤
Nothing wrong with "rocking it out"
I hope your sleeping beauty wakes soon. She does look cozy tho.
Can Hudsyn see or is she cortically blind region of the brain that control vision is affected
We've established that she can see, but she is still somewhat CVI impaired.
yes🎉
😇
Feel better sweet Hudysn. Can you wake up for your friend Ashley Rose Johnson
Thanks Hudysn for using your device saying your "ok". Maybe I need to stay in closer touch and say hello more my friend "Would you like that"? Dan you got to post more videos of everyone. I sure miss not seeing you all and I have more medical issues going on from Dystonia to now a shaking almost Seizure right leg and on top of trying to find out more and why? Plus doing Botox injections and wondering if that leg is getting weak or my right foot and maybe that's why but not sure. Hudysn I love you feel better my friend
😢😂 I love you so much and I hope you have
Does she know what going on?
I sure think/hope so!
@@SeeTheSeitz I have no doubt that she knows what is going on. You can tell when she interacts with you.
Hey. Hugs. She needs a shot of coffee . Love Becky and I
Why don’t you allow her to sleep a bit
The dysautonomia will KEEP her asleep. We need her sake to assess that it’s not affecting her anymore.
What would happen if you let her sleep? ❤
The sleeping is one of the symptoms. We need to awaken her periodically to assess how deep into the coma she is.
Maybe she hitting puberty?
She hit puberty really early. I want to say about 7yrs old? I could be wrong on the age but it was really young. It's a side effect from her diagnosis.
YOUR SWEET BABYGIRL IS SO CUTE
Does she wear a diaper?
Yes
Dysautonomia AGAIN why she dont talk she cant wALK WHAT Can she do
That’s rather rude.
Beyond rude.
Why you dont use proper grammar or punctuation marks instead of talk like caveman? Don't come to this channel to be messy Anna Lewis. Why don't you take the time to watch Hudsyn's Story and a couple others to learn about who she is, what this girl has been through and what she's been able to overcome despite her condition. Not to ask what she CAN'T do. If you want to question ANYONE on their abilities and where they fall short....make sure you're perfect with no faults, issues or shortcomings. At least make sure you leave a comment that uses proper English and grammar so YOU don't look like a fool trying to clock a disability, try to make her daddy feel bad or troll this video because you feel shitty about yourself. Look in the mirror (really...you really need to) and then look inward. Do YOU, of all people, a grown ass woman think that insulting a little girl's conditions and limitations is a good look for someone like you? This is OUR HUDSYN. We love her and are fiercely protective of her and her family. I was nice to you right now but if you don't change or leave....you're going to realize you picked the wrong channel to act like an imbecile. Be gone with you.