Yes, please remember that just because us supporters don’t constantly comment doesn’t mean we aren’t here! I just watch, smile and move on with my day.
@@fatheringautism thank YOU! I knew about autism Befor i watched this channel. But my eyes have been EXTREMELY opened to autism since watching you guys. I think you guys are amazing parents/people, from what you show - i know we only see a glimpse. And thank you for always showing love and gratitude to your fans! It so awesome to see when you guys reply!! 😊✌🏼💚
Hi! I’m a mom with ASD, and I’m sure you won’t see this. Nonetheless, it’s obvious to me that the psychiatrist treats their patients for basic human needs, and the BT’s are there to work on ASD related needs. I’m very happy Abbie benefits from both, but I’m also happy that she has such a supportive and proactive family unit. Wishing you all the best. 🌻
When my son's child psychiatrist graduated him out to a different program it was horrific. Our doctor was like yours, just the best! He not only helped my son, but when we found out I had cancer, he told my other two kids that if they ever needed to talk to him, they could call. He was just amazing. I feel your pain.
I know how you feel about him. I lost my son at 16 years old and he would be 43 now but his doctor was awesome like that. We thought we finally had his meds down pat and after 3 years of zero seizures he died from a seizure and drown in the bathtub. Our neurologist was from New Orleans and we traveled twice a year to see him and we were supposed to go the next day after he died. Our doctor was crushed because he missed the entire funeral because his answering service never passed the message on until about 5 days had passed....He offered to fly down and talked to my son’s school mates to help them deal with his death as this all happened around a week before school was to start that year. We buried him in the clothes he had chosen for first day of school. Love you guys and may the lord bless your doctor. 💋🧚🏻♀️❤️🇺🇸
I'm so sorry for your loss. I watched what my parents went through losing a child so I can kind of relate. My brother passed from an aneurysm one month before turning 21. It's amazing when you find a doctor like that. It seems like caring doctors are far and few between.
Thank for everything that all of you do by sharing everyday life with a child that has autism. You guys are so honest and real in YOUR truth and how it is for you guys to live life with a family member that has autism. I hope you continue to receive support and love from your RUclips followers! Abbie is amazing and I hope she continues to live a beautiful life under your loving care.
I have had chronic health issues for most of my life. Losing a beloved, competent dr that you know hears you is the worst. I have faith that you will find a new dr that you’ll love too; it just will take time. It’s sad to lose a member of your team but remember how blessed you were to have them for as long as you did. ❤️
Even though you guys share so much about your own life, no one who ever comments is living your exact life. You are so courageous, willing to educate and empathize. You are doing great - great, loving parents. I admire you guys so much!
Ive been there with chronic illness getting attached to people. It’s very emotional. Some healthcare professionals become friends and family. I am grateful this person was there for you up to this point. I’m sure they’ll remember Abbie ❤️
My 16YO sees his psychiatrist almost weekly for talk therapy and meds (guanficine, adhansia, Zoloft). I had never heard of a psychiatrist providing therapy before we found ours but he is amazing. Most importantly, my son trusts and respects him. I agree, Pricilla, when doctors listen to you, it means everything. Thank you for doing what you do. I love watching Abbey's sweet face and your interactions with her.
I totally get it. My psychiatrist moved to a city about an hour away. For me, I just can't make that drive every month. I was so nervous when looking for a new psychiatrist and therapist. I finally found the best Dr and therapist I could ever imagine. They're amazing. Sending love yalls way. I know its hard putting trust into someone else after having the best if the best for so long. I'm not autistic but I do have three mental health disorders.
Awesome video, very emotional, Abbie's smile makes things better though...and to hear Isaiah being able to discuss things knowing he has viewed Autism from a young child to an adult, is pretty amazing, I feel like I learn something new on this channel every day. Thanks for sharing.
I cried so hard. I've seen a wonderful psychiatrist since I was in middle school and couldn't imagine him leaving. I've never seen anyone else and that would be so hard. Thankfully he's private practice
I’ve had to change psychatrists and after the 3rd change in a year I BEGGED my family doc to take over my meds for a while because I’ve been stable and didn’t need more changes.
People and put into our lives when we need them most. I’m a strong believer that everything happens for a reason. Y’all might not know now but it will work out. Y’all are amazing keep it up. Love y’all and happy Mother’s Day!!!
Okayyyy... I’m going to be super loud while being pro for you, Asa and Priscilla. YOU ARE SUPER PARENTS and SUPER AMBASSADORS for autism families. I have learned so much from you as a non-autism follower. Thank you.
I had the same doctor from two to 19 (or even 20 I can't remember) but it made me so sad to leave him. Like y'all said people move on, but it can be hard after so long. I started saying a few years back that I wanted my kids to go see him and I found out last year that one of the little boys I take care of at work goes to see him! I was so happy to hear that because that’s possibly the closest I'm going to get to having my kids go see him, I don't have kids yet, but boys and girls from work are my kids so I’ll take it.
I had to be trained in ABA just so I could help my son and I survive. We are much more peaceful and calm at home now. He even tells me his feelings. That would not have happened without ABA work to control the big behaviors.
I am so sorry, but why is his whole department shutting down? This is so upsetting for parents that haven't found their "person" yet. Thank you for sharing your life with us. I don't think you two realize how much you have done for so many. ❤
I am currently in my masters program for ABA to become a BCBA and I can’t thank you guys enough for always shedding a positive light on the field of ABA.
Priscilla you look so tan, natural and beautiful. I so understand the emotional road at the end of a medical journey. My son was diagnosed with Grand-Mal seizures at 3 months then diagnosed with T1D at 2.8 yrs. old , he us now 21 and has had the same endocrinologist & neurologist from day 1, and we now have to shift to adult Dr's., I was teary eyed.
I’ve had a bad doctor that didn’t listen to me. It caused some major issue to the point that sometimes I think things are all in my head when it’s actually a real and serious issue. I finally switched doctors to one that listens to me and works with me. I don’t know what I would do if I lost her. Y’all are doing a great job making sure Abbie has the best possible team!
When my psychiatrist moved last summer from Ohio to Rhode Island I literally thought my world was coming to an end. I cried for days. I am so blessed that I was able to find another kind, empathetic, and challenging doctor. I hope it all works out as well for you and Abbie. Prayers going up.🙏🏻🙏🏻🙏🏻
I have chronic pain. I saw an amazing neurologist who was helping me through the pain for a long time. The hospital shut down the adult pain clinic because there are not enough of us in pain to keep them open. WHAT? It was the psychiatry department helping me through...cognitive, physical, and medical (meds) as well. Behavioral Health needs to be taken more seriously. Praying just the right doc comes along and can continue to help you all through this journey.
Your family inspires me to be a better person. Keep up the amazing parenting and give those reviews for positive experience you never know who you can impact in a positive way!!
Y’all made me cry..... been a rough day, my daughter and I were rear ended yesterday and our vehicle is technically not safe to drive, but your vlog helped take my mind off the stress and the pain from the accident. Thank you for sharing your lives with us.
My 5 year old, Hannah, with Down Syndrome and Autism had an ENT appointment today and the doctor told me that she is retiring. I was devastated. She is similar to Abigail’s doctor. Truly listens to the parents and genuinely takes the parents thoughts and ideas seriously.
I am an active Fathering Autism follower! I love your whole family! Leaving my supportive comment cause you are right that I never comment. Yall are amazing
I really appreciate & respect the fact that you all have come thru the struggle of Abby's sleeping issues, without aleays resulting to sleep medications. I've dealt with sleeping issues for so many years of my life and have resulted to stopping & staying away from medications to sleep. It's not easy by any means especially when you deal with so many health complications. I'm proud of us for pushing thru. Medications are sometimes necessary, but not always the best options. They can cause more issues than I had realized. Appreciate your family sharing your lives, tough times, and grace in thriving to the your best abilities. 👌🏾
10:00 i had this same process with myself and antidepressants where i was scared about being medicated bc of the stigma when i really needed them. ive been on them for a few years now and im so glad ive been on them theyve literally saved my life
It’s so hard and emotional when a dr that has been such a huge part of you’re journey leaves! Our paediatrician of 13yrs retired 2 years ago and I was devastated 😭 he had been one of our biggest supporters and helped us so much as a family of 4 asd , special needs children. I honestly wish he was still our paediatrician now as we navigate our new journey of our 2 boys receiving an extremely rare terminal genetic condition. Also having a dr on you’re team that supports you not wanting to just add more meds for everything is becoming hard to find, well here in Australia it is. Keep being the incredibly amazing parents you are 💜💜💜
I LOVE Abbie's expression when you told her she had a doctor's appointment. She expressed the same thing I would have said if someone told me I had a doctor's appointment.
I was misdiagnosed with bipolar and saw one of the best specialists in the country in that field. I actually have autism, depression and anxiety but my behaviors mimicked that of bipolar. The lack of sleep the crying the hissy fits and the depressive episodes. Still that psychiatrist was amazing even though be got it wrong. He ended up moving to a place where he could help more people and so I saw someone else for a little while before just beginning to see a therapist who I am still seeing who has helped me even more. I'm not saying my first psychiatrist didn't help me. I saw him from the time I was 5 until I was 18 years old. He was amazing. He just couldn't figure out that the reason my meds weren't working the way he expected was because I was autistic not bipolar. That's only because that's not his field. He did help us so so much but finding out I was autistic and needed anxiety meds rather than mood stabilizers has changed my life for the better.
I can't believe she about to be 16 already and when I started watching y'all videos. I don't even think she was 13 yrs old yet. I watch Isaiah become a young man in college.
It takes a Village to raise an ASD child. I cant thank you enough for these videos. With all the therapies, OT ABA whatever it takes to make these kids live their best life. I try to give the utmost appreciation to all the providers my child encounters as we are trying to do our best as well.
Any therapy (or lack of therapy) is an individual choice, for many conditions. I have a rare genetic metabolism disorder and my decision for treatment was and is mine individually. It is what works best for me and my family. I agree 100% with your decision on what's best for you all.
Thank you Maas Family. I really appreciate your candor and your willingness to share your experiences. Sending you a 🌻 sunflower and a huge basket of respect and well wishes!
I’m so sorry. I have been with my doctor for 20+ years. He has moved 3 times and I’ve followed driving as far and an hour and a half each way in order to stay with him. He knows me like no one else. I’m blessed to have such an amazing doctor with such compassion and knowledge who TrueType cares. Sooo, i completely get where you at. When we find an amazing doc they become like family. I’m sad for you, but I’m also sad for ALL the kids he could help and parents he could support. So sad. I’ll be praying you find a new doc that you can establish a working relationship with. Hugs
No one know your child better than you. Don’t listen to other and there stories to sway you one way or the other. Your right it is what is best for each child.
I saw my last psychiatrist for 13 years before he retired at the age of 70 he was the most wonderful man!! He was also CD a turning point for me so it was sad to see him go.... I went without a psychiatrist artist for two years then met an amazing lady around my own age who is brilliant... neither better or worse than the other although very very different in their approach they both have the common goal of helping me to be at my optimal functioning level.... I have gone from being on disability for 10 years to now working full time
Thank you for your honesty and openness ,you find what works for you and your child .Loved how Abbie gave herself s thumbs up at the end ,keep on being perfect 👍.❤️👏
I feel the same way you do about the haters if you don't have anything nice to say don't say anything at all. I am a mother of four children, I have had criticisms about the way I raise my children, they are now for well-adjusted human beings so don't let anyone tell you how to raise your children whether "special needs" or not, no one knows what your children need more than you do. I hope you guys find a new psychiatrist is amazing as the old one is. I understand this because my daughter had a specialist for most of her life I want to say over 20 years and he retired and it just about killed us. Love your log love you content, always ignoring the haters!! 🥰
My take on medication in psychiatry: When your body is not capable to produce enough of a certain substance, let's say insulin, you use medication to support your body. So when your body isn't capable to keep the chemicals in your brain balanced, you can use medication to support it. Psychiatry is often considered a non physical thing. Altering how the brain works, with medication, is often considered as altering the person himself. With a balanced brain, a person can blossom to its full potential. Living with the feeling that something is restraining you, is devastating.
My brother is on the spectrum and LOVES his psychiatrist and therapist. He's had the same psychologist and therapist for six years. He even figured out how to do virtual appointments when his therapist moved offices and when COVID started. My family was also against medication, but the medications his therapist has recommended and his psychiatrist has prescribed have helped him amazingly! No stigma again psychiatry here :)
And I agree with the ABA thing, I see all of these people who despise ABA and only know the bits they have heard from others who despise it, and they offer no solutions for the people who greatly benefit. Very few people in ABA are not in OT, Speech, And PT as well, so those are not replacements at all and ABA is recommended by most Occupational and Speech therapists who believe it is needed for the individual because they know they are not a replacement or compensation for ABA. I am in a group of around 1,000 other Autistic Adults (it was at 600 2 weeks ago and is fairly new so it’s growing fast) who are fighting to let the NT population know that plenty of us believe ABA is well supported by both science and a large majority of Autistics who have experienced it within the past 15 years, and the opportunity should not be taken from those who need it❤️
Awh I hate to hear that. I am currently in my feelings bc my daughter's pediatrician which has been her Dr since birth decided to retire due to the pandemic. I am so bummed that I haven't found a new one yet.😣 Such a Blessing to have a Great Dr for your kid.
Finding ur channel is a blessing!!! My son has Autism and Apraxia of speech... I love ur discussion on ABA and meds... My son is only 4 and I've felt against both according to everything I've heard... U definitely got my wheels a turning... Feeling lost as to which direction to go in with our autistic children I imagine is a normal feeling... U guys brought me to tears... Ur so comforting in the way that u speak... I would also LOVE to read ur son's ABA paper he wrote for school... Bless ur family's hearts... U all are AMAZING!!!!💕
So.. I don’t have anybody in my personal life who has Autism (that I know of), but I want you guys to know that I watch these videos religiously. I myself contracted polio at four months old from the vaccine,which led me with a lot of mobility issues and if we’re being honest a lot of emotional issues too (I’m 32, located on Long Island-so obviously I’ve never met another person anywhere near close to my age with this). Often while watching this I think of how I wish my parents knew to advocate and educate for me. Thank you for this and keep doing what you’re doing! Love you all!!
I’m so happy you found someone like that to help you through some of your toughest times. I’m 27 and have had the same family doctor that did my first born measurements, and oh man when he retires I know I’m gonna be lost
My husband is a Psychologist and really promotes meds of all kinds and individualizes it to fit each patient. He finds it most important to really listen to each patient, make a treatment plan and follow up follow up follow up! Like you said, what works for Abbie may not work for someone else.
Wonderful raw & honest vlog.....how blessed are The Maass Family especially Abbie for having such an awesome doctor to listen & guide you when you most needed it....Every child Is unique & deserves to be treated accordingly...treat the person not the label. ❤️❤️❤️
Y'all do a wonderful job as parents. At the end of the day you know your children better than anyone else and are capable of making the best choices for them. People love to judge but hardly offer anything constructive.
None of my children are Autistic, but we had the greatest Pediatrician. He was so gentle, kind and always took time to answer my questions. My kids just loved him. When my son turned 16 and aged out of going to the Pediatrician, he cried when I told him we needed to find a new doctor for him. Dr. Boon. I miss seeing him.
I was against meds at the beginning as well. But then I came to realization that my son was miserable. He was not living in a positive way. After trial and error with medications. He is thriving and happy and living life in a positive way. He has become verbal with medication and also has a chance now with academics.
I think you guys are awesome parents and what your doing to help Abbie is awesome . I believe in Meds . I take Meds for depression and Anxiety. And it helps alot ❤️❤️❤️❤️
My daughter is 13 and has Autism. She is considered level 1/mild. She’s verbal, independent at home (besides cooking and maybe getting all the shampoo out of her hair). Our family never wanted her on meds. But it got bad. We ended up doing so at around 8 years old. We tried many. She was also being bullied for being different by students in her 2nd grade classroom and her regular education teacher. We ended up pulling her and we got her help as she had suicidal tendencies. We moved to another school and when they had issues with her, or didn’t want to deal with her, we never saw redirection. It was did she have her meds. She then had a teacher make her an example in front of her whole 3rd grade class. She was just not happy in brick and mortar school and they always said she was “too high functioning autistic” for the autism classroom but she didn’t fit in in the regular education classroom. We pulled her and started her on virtual charter school 4 years ago, got her completely off medication, and started on cbd oil as needed. There are still days that can be bad, but she’s doing so much better and able to now learn at her own pace.
So glad you were able to find a plan that works for her. We only had our "HF-ASD" child in a traditional school for one year, and while she had a fantastic classroom teacher, two years later we're still hearing new stories of things she's just now willing and able to talk about.
I had the same feelings when 4 months ago, my family Dr. (30 years), had to close his practice due to his an unexpected health issue. I have been struggling to find a new one. He was an amazing guy. I feel your pain.
I lost a therapist I only saw a handful of times, and that was rough enough. I can't imagine losing someone that amazing who's been with you that long. Also, as one of the "quiet" ones, when people are going off about being against something, a lot of us will just stay out of it. There's no point in trying to discuss or reason with people like that and it's not worth the effort or being attacked for being anything other than irate.
when my son was diagnosed with ADHD, we really battled with the idea of putting him on medication. Then a very smart person said “If your son was diabetic, would you give him insulin?” It really opened my eyes. We decided to give him medicine and it was the best decision for him!
I agree with Ann Peet, Asa and Priscilla you are great parents. Also great ambassadors for special needs. I have learned a lot from watching your videos that has helped me in my work in a Sped classroom.
I’m almost 18 and after years of masking and trouble fitting in with my peers and then learning somehow about autism and adhd and then months of deep Research for both conditions i came to the conclusion I have both. The problem is my parents are in denial and won’t take me to an official diagnosis and can’t afford it(they always knew i’m “weird” but never considered autism or adhd since i started talking really early and knew things beyond my age and was a top student in school until highschool and they have the misconception that adhd=trouble making student and i’ve always been really quiet dreamy and shy but like many times i cope with sensory overload by spacing out and mentally detaching myself from everything). The thing is i’m entering the last year of highschool and have a bunch of exams and college application and i just Pray and hope i won’t burnout bcuz i have really perfectionistic tendencies and i feel close to exploding
We had an emotional time at the beginning of the year when Lily lost her developmental pediatrician we've had her for 7 years. Nothing has been the same as far as quality of care since she retired. 😪
If you want Abigail to get to the next level (i.g. investigating the root cause of her aphasia) you shouldn't be seeing an ordinary general psychiatrist, you need to see someone who has a UCNS Board Certification for Behavioral Neurology & Neuropsychiatry. For Jacksonville, Florida, there are only two physicians meeting this requirement, Nilufer Taner, MD, PhD and Philip W. Tipton, MD, both with the Mayo Clinic. Has Abigail ever had a trial of levetiracetam, or been evaluated for epileptic encephalopathy? I'm formally diagnosed with ASD, with level 3 support needs. However, after undergoing experimental trials with Keppra (levetiracetam) and Transcranial Magnetic Stimulation to reactivate my left frontal lobe and language center of my brain we are seeing major improvements in my ability to communicate with others and perform ADLs.
I want to show my support for ABA!! It helped our son talk as well as many other things! The women were wonderful, caring, and invested in his progress. Edit: forgot to mention that they used a branch of ABA, the Denver model P.S. Priscilla you look beautiful and glowy! Your skin is gorgeous
It’s so hard to get attached to a Dr or anyone who helps you and then lose them!! I completely understand!! He has been so helpful to you guys!! My son will be doing ABA and he sees a phenomenal psychiatrist! But we are just starting out with everything! It’s so crazy that Abbie will be 16 on the 12th! My son will be 15 on the 11th!
I really didn’t acknowledge the fact that a dr who actually listens to you is very important especially those in the IDD community. The moment I realized it was important was between my senior of college and my first time choosing my dr on my own. During college I was extremely lethargic and was difficult to breathe. My college dr said it was because of my sinuses, even though I was fine in that area. Then she said it was depression and anxiety (I’ve been taking my medicine) Then the summer that I graduated I was walking home where the symptoms got so intense and rushed myself to the ER. EKG and a chest x-ray they yet again said allergies gave me an inhaler and a surprise 2k medical bill. Well two weeks later I went to my first dr appointment told her I had autism (helps me sus out the doctor) she immediately did a full blood panel and found out I had hypoglycemia and an extreme vitamin d deficiency. A couple weeks later I was feeling great! If you feel like your doctor isn’t on your team it’s okay to find a new doctor.
Yes, please remember that just because us supporters don’t constantly comment doesn’t mean we aren’t here! I just watch, smile and move on with my day.
Same here! I comment here and there but usually pretty quiet! I just love to enjoy! This family is amazing 💙😊
Thanks for the reminder. We appreciate you guys.
@@fatheringautism thank YOU! I knew about autism Befor i watched this channel. But my eyes have been EXTREMELY opened to autism since watching you guys. I think you guys are amazing parents/people, from what you show - i know we only see a glimpse. And thank you for always showing love and gratitude to your fans! It so awesome to see when you guys reply!! 😊✌🏼💚
I follow the whole team. same here I may give a like 👍🏽 on a video some times comment but i watch every video on all you guys platforms 🖤
Me to I'm behind because of nail school
Hi! I’m a mom with ASD, and I’m sure you won’t see this. Nonetheless, it’s obvious to me that the psychiatrist treats their patients for basic human needs, and the BT’s are there to work on ASD related needs. I’m very happy Abbie benefits from both, but I’m also happy that she has such a supportive and proactive family unit. Wishing you all the best. 🌻
Awww when priscilla started crying i was like yeaa that is how you know how much it means and how much they appreciate his help
When my son's child psychiatrist graduated him out to a different program it was horrific. Our doctor was like yours, just the best! He not only helped my son, but when we found out I had cancer, he told my other two kids that if they ever needed to talk to him, they could call. He was just amazing. I feel your pain.
I know how you feel about him. I lost my son at 16 years old and he would be 43 now but his doctor was awesome like that. We thought we finally had his meds down pat and after 3 years of zero seizures he died from a seizure and drown in the bathtub. Our neurologist was from New Orleans and we traveled twice a year to see him and we were supposed to go the next day after he died. Our doctor was crushed because he missed the entire funeral because his answering service never passed the message on until about 5 days had passed....He offered to fly down and talked to my son’s school mates to help them deal with his death as this all happened around a week before school was to start that year. We buried him in the clothes he had chosen for first day of school.
Love you guys and may the lord bless your doctor.
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So sorry for your loss! This is so sad :-( No parent should have to experience such a tragic loss!
I'm so sorry for your loss. I watched what my parents went through losing a child so I can kind of relate. My brother passed from an aneurysm one month before turning 21. It's amazing when you find a doctor like that. It seems like caring doctors are far and few between.
So sorry for your loss. That doctor sounds incredible. I don't know if we have docs like that in the UK!
@@amandamcanally2158 -Thanks for your thoughts and prayers...
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@@nicoles9764 -Thanks so much for your thoughts and prayers!
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Thank for everything that all of you do by sharing everyday life with a child that has autism. You guys are so honest and real in YOUR truth and how it is for you guys to live life with a family member that has autism. I hope you continue to receive support and love from your RUclips followers! Abbie is amazing and I hope she continues to live a beautiful life under your loving care.
I have had chronic health issues for most of my life. Losing a beloved, competent dr that you know hears you is the worst. I have faith that you will find a new dr that you’ll love too; it just will take time. It’s sad to lose a member of your team but remember how blessed you were to have them for as long as you did. ❤️
I couldn't watch the whole video as tears started to fall down. She is so special and fortunate to have parents like both of you. Hugs ❤
I cried when my therapist moved on to a new job. It is hard when you find those one of a kind great humans.
Even though you guys share so much about your own life, no one who ever comments is living your exact life. You are so courageous, willing to educate and empathize. You are doing great - great, loving parents. I admire you guys so much!
I see a therapist and I had one for 12 years. When she retired on me it almost felt like I lost a family member. I cried so much.
Ive been there with chronic illness getting attached to people. It’s very emotional. Some healthcare professionals become friends and family. I am grateful this person was there for you up to this point. I’m sure they’ll remember Abbie ❤️
My 16YO sees his psychiatrist almost weekly for talk therapy and meds (guanficine, adhansia, Zoloft). I had never heard of a psychiatrist providing therapy before we found ours but he is amazing. Most importantly, my son trusts and respects him. I agree, Pricilla, when doctors listen to you, it means everything. Thank you for doing what you do. I love watching Abbey's sweet face and your interactions with her.
I totally get it. My psychiatrist moved to a city about an hour away. For me, I just can't make that drive every month. I was so nervous when looking for a new psychiatrist and therapist. I finally found the best Dr and therapist I could ever imagine. They're amazing. Sending love yalls way. I know its hard putting trust into someone else after having the best if the best for so long.
I'm not autistic but I do have three mental health disorders.
Awesome video, very emotional, Abbie's smile makes things better though...and to hear Isaiah being able to discuss things knowing he has viewed Autism from a young child to an adult, is pretty amazing, I feel like I learn something new on this channel every day. Thanks for sharing.
Sometimes we have people who come into our lives exactly when we need them. Sounds like Abbie’s psychiatrist was there at exactly the right time.
So true!
So sad he won't be her psvhiatrist anymore.😢
My child has sleep meds and is on Zoloft for anxiety and ptsd syndrome. And she is 18 year old and is autistic. She is doing so many new things now.
I cried so hard. I've seen a wonderful psychiatrist since I was in middle school and couldn't imagine him leaving. I've never seen anyone else and that would be so hard. Thankfully he's private practice
I’ve had to change psychatrists and after the 3rd change in a year I BEGGED my family doc to take over my meds for a while because I’ve been stable and didn’t need more changes.
People and put into our lives when we need them most. I’m a strong believer that everything happens for a reason. Y’all might not know now but it will work out. Y’all are amazing keep it up. Love y’all and happy Mother’s Day!!!
Why am I crying. Years later watching this and sobbing for yall. Goodness...right in the feels.
Okayyyy... I’m going to be super loud while being pro for you, Asa and Priscilla. YOU ARE SUPER PARENTS and SUPER AMBASSADORS for autism families. I have learned so much from you as a non-autism follower. Thank you.
Lol, thanks for being loud Ann.
@@fatheringautism You are ever so welcome. Y’all deserve many many accolades for sure.
I had the same doctor from two to 19 (or even 20 I can't remember) but it made me so sad to leave him. Like y'all said people move on, but it can be hard after so long. I started saying a few years back that I wanted my kids to go see him and I found out last year that one of the little boys I take care of at work goes to see him! I was so happy to hear that because that’s possibly the closest I'm going to get to having my kids go see him, I don't have kids yet, but boys and girls from work are my kids so I’ll take it.
I had to be trained in ABA just so I could help my son and I survive. We are much more peaceful and calm at home now. He even tells me his feelings. That would not have happened without ABA work to control the big behaviors.
I am so sorry, but why is his whole department shutting down? This is so upsetting for parents that haven't found their "person" yet. Thank you for sharing your life with us. I don't think you two realize how much you have done for so many. ❤
Not enough funds probably
I am currently in my masters program for ABA to become a BCBA and I can’t thank you guys enough for always shedding a positive light on the field of ABA.
what uni do you go to? im doing a degree in psychology with developmental disorders and looking to do a masters in aba
@@oliviaroberts768 I’m doing Purdue Global, an online school. It’s a masters in psychology with a concentration in ABA.
I hope he is able to recommend a doctor for Abbey in the future
Priscilla you look so tan, natural and beautiful.
I so understand the emotional road at the end of a medical journey. My son was diagnosed with Grand-Mal seizures at 3 months then diagnosed with T1D at 2.8 yrs. old , he us now 21 and has had the same endocrinologist & neurologist from day 1, and we now have to shift to adult Dr's., I was teary eyed.
I’ve had a bad doctor that didn’t listen to me. It caused some major issue to the point that sometimes I think things are all in my head when it’s actually a real and serious issue. I finally switched doctors to one that listens to me and works with me. I don’t know what I would do if I lost her. Y’all are doing a great job making sure Abbie has the best possible team!
When my psychiatrist moved last summer from Ohio to Rhode Island I literally thought my world was coming to an end. I cried for days. I am so blessed that I was able to find another kind, empathetic, and challenging doctor. I hope it all works out as well for you and Abbie. Prayers going up.🙏🏻🙏🏻🙏🏻
I have chronic pain. I saw an amazing neurologist who was helping me through the pain for a long time. The hospital shut down the adult pain clinic because there are not enough of us in pain to keep them open. WHAT? It was the psychiatry department helping me through...cognitive, physical, and medical (meds) as well. Behavioral Health needs to be taken more seriously. Praying just the right doc comes along and can continue to help you all through this journey.
Thank you guys for sharing your life with the world it’s great experience you are inspired and educated people at the same time.
Your family inspires me to be a better person. Keep up the amazing parenting and give those reviews for positive experience you never know who you can impact in a positive way!!
Y’all made me cry..... been a rough day, my daughter and I were rear ended yesterday and our vehicle is technically not safe to drive, but your vlog helped take my mind off the stress and the pain from the accident. Thank you for sharing your lives with us.
My 5 year old, Hannah, with Down Syndrome and Autism had an ENT appointment today and the doctor told me that she is retiring. I was devastated. She is similar to Abigail’s doctor. Truly listens to the parents and genuinely takes the parents thoughts and ideas seriously.
That’s so tough.
I am an active Fathering Autism follower! I love your whole family! Leaving my supportive comment cause you are right that I never comment. Yall are amazing
I really appreciate & respect the fact that you all have come thru the struggle of Abby's sleeping issues, without aleays resulting to sleep medications. I've dealt with sleeping issues for so many years of my life and have resulted to stopping & staying away from medications to sleep. It's not easy by any means especially when you deal with so many health complications. I'm proud of us for pushing thru. Medications are sometimes necessary, but not always the best options. They can cause more issues than I had realized. Appreciate your family sharing your lives, tough times, and grace in thriving to the your best abilities. 👌🏾
10:00 i had this same process with myself and antidepressants where i was scared about being medicated bc of the stigma when i really needed them. ive been on them for a few years now and im so glad ive been on them theyve literally saved my life
Proud of Abbie shes getting better and better every year
It’s so hard and emotional when a dr that has been such a huge part of you’re journey leaves!
Our paediatrician of 13yrs retired 2 years ago and I was devastated 😭 he had been one of our biggest supporters and helped us so much as a family of 4 asd , special needs children.
I honestly wish he was still our paediatrician now as we navigate our new journey of our 2 boys receiving an extremely rare terminal genetic condition.
Also having a dr on you’re team that supports you not wanting to just add more meds for everything is becoming hard to find, well here in Australia it is.
Keep being the incredibly amazing parents you are 💜💜💜
I LOVE Abbie's expression when you told her she had a doctor's appointment. She expressed the same thing I would have said if someone told me I had a doctor's appointment.
Yeah, I was gonna comment on that too. Typical response from a 16 year old. Not gonna lie, I laughed out loud. Gotta love Abbie.
"And who eats yoghurt with a fork?!"
Me: side-eyes my empty yoghurt container with the only clean utensil I had...a fork.
I was misdiagnosed with bipolar and saw one of the best specialists in the country in that field. I actually have autism, depression and anxiety but my behaviors mimicked that of bipolar. The lack of sleep the crying the hissy fits and the depressive episodes. Still that psychiatrist was amazing even though be got it wrong. He ended up moving to a place where he could help more people and so I saw someone else for a little while before just beginning to see a therapist who I am still seeing who has helped me even more. I'm not saying my first psychiatrist didn't help me. I saw him from the time I was 5 until I was 18 years old. He was amazing. He just couldn't figure out that the reason my meds weren't working the way he expected was because I was autistic not bipolar. That's only because that's not his field. He did help us so so much but finding out I was autistic and needed anxiety meds rather than mood stabilizers has changed my life for the better.
I can't believe she about to be 16 already and when I started watching y'all videos. I don't even think she was 13 yrs old yet. I watch Isaiah become a young man in college.
It takes a Village to raise an ASD child. I cant thank you enough for these videos. With all the therapies, OT ABA whatever it takes to make these kids live their best life. I try to give the utmost appreciation to all the providers my child encounters as we are trying to do our best as well.
A supportive one here... THANK YOU for doing what you do Maass family!
Any therapy (or lack of therapy) is an individual choice, for many conditions. I have a rare genetic metabolism disorder and my decision for treatment was and is mine individually. It is what works best for me and my family. I agree 100% with your decision on what's best for you all.
I love keeping up with yall and Abbie. I'm a RBT working on becoming a BCaBA. Definitely love hearing your input and watching how you do things.
I’m fairly new to your guys but you all deserve a round of applause for real!
Thank you Maas Family. I really appreciate your candor and your willingness to share your experiences. Sending you a 🌻 sunflower and a huge basket of respect and well wishes!
I’m so sorry. I have been with my doctor for 20+ years. He has moved 3 times and I’ve followed driving as far and an hour and a half each way in order to stay with him. He knows me like no one else. I’m blessed to have such an amazing doctor with such compassion and knowledge who TrueType cares. Sooo, i completely get where you at. When we find an amazing doc they become like family. I’m sad for you, but I’m also sad for ALL the kids he could help and parents he could support. So sad. I’ll be praying you find a new doc that you can establish a working relationship with. Hugs
No one know your child better than you. Don’t listen to other and there stories to sway you one way or the other. Your right it is what is best for each child.
I saw my last psychiatrist for 13 years before he retired at the age of 70 he was the most wonderful man!! He was also CD a turning point for me so it was sad to see him go.... I went without a psychiatrist artist for two years then met an amazing lady around my own age who is brilliant... neither better or worse than the other although very very different in their approach they both have the common goal of helping me to be at my optimal functioning level.... I have gone from being on disability for 10 years to now working full time
Thank you for your honesty and openness ,you find what works for you and your child .Loved how Abbie gave herself s thumbs up at the end ,keep on being perfect 👍.❤️👏
You guys are awesome, just keep doing what you are doing it's amazing
I know it was a more serious vlog but I busted out laughing at “who eats yogurt with a fork?” I needed that laugh! Thank you :)
That was funny
"You can't eat your lunch before school!"
Lol I giggled out loud whilst wiping away the tears at the same time lol 🤣 I'm a sympathy crier
I do! Lol. FORK lol
I eat everything with a fork actually 😅🤣
I feel the same way you do about the haters if you don't have anything nice to say don't say anything at all. I am a mother of four children, I have had criticisms about the way I raise my children, they are now for well-adjusted human beings so don't let anyone tell you how to raise your children whether "special needs" or not, no one knows what your children need more than you do. I hope you guys find a new psychiatrist is amazing as the old one is. I understand this because my daughter had a specialist for most of her life I want to say over 20 years and he retired and it just about killed us. Love your log love you content, always ignoring the haters!! 🥰
My take on medication in psychiatry:
When your body is not capable to produce enough of a certain substance, let's say insulin, you use medication to support your body.
So when your body isn't capable to keep the chemicals in your brain balanced, you can use medication to support it.
Psychiatry is often considered a non physical thing. Altering how the brain works, with medication, is often considered as altering the person himself.
With a balanced brain, a person can blossom to its full potential.
Living with the feeling that something is restraining you, is devastating.
👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼
My brother is on the spectrum and LOVES his psychiatrist and therapist. He's had the same psychologist and therapist for six years. He even figured out how to do virtual appointments when his therapist moved offices and when COVID started. My family was also against medication, but the medications his therapist has recommended and his psychiatrist has prescribed have helped him amazingly! No stigma again psychiatry here :)
And I agree with the ABA thing, I see all of these people who despise ABA and only know the bits they have heard from others who despise it, and they offer no solutions for the people who greatly benefit. Very few people in ABA are not in OT, Speech, And PT as well, so those are not replacements at all and ABA is recommended by most Occupational and Speech therapists who believe it is needed for the individual because they know they are not a replacement or compensation for ABA.
I am in a group of around 1,000 other Autistic Adults (it was at 600 2 weeks ago and is fairly new so it’s growing fast) who are fighting to let the NT population know that plenty of us believe ABA is well supported by both science and a large majority of Autistics who have experienced it within the past 15 years, and the opportunity should not be taken from those who need it❤️
Thank you your better then me I was in 3 different ones and I left because of how awful they are to people and different opinions
It's true, when Cilla cries we all cry!
Awh I hate to hear that. I am currently in my feelings bc my daughter's pediatrician which has been her Dr since birth decided to retire due to the pandemic. I am so bummed that I haven't found a new one yet.😣 Such a Blessing to have a Great Dr for your kid.
Thank you both for being so real with us too blessed we are truly for sharing this with us
Her smile just melts me!
It is really tough losing the providers that have been so instrumental and helpful for so long. I get it!!!
Abbie is a nice girl.I think she developed lot of things with the help of their parents.
Finding ur channel is a blessing!!! My son has Autism and Apraxia of speech... I love ur discussion on ABA and meds... My son is only 4 and I've felt against both according to everything I've heard... U definitely got my wheels a turning... Feeling lost as to which direction to go in with our autistic children I imagine is a normal feeling... U guys brought me to tears... Ur so comforting in the way that u speak... I would also LOVE to read ur son's ABA paper he wrote for school... Bless ur family's hearts... U all are AMAZING!!!!💕
So.. I don’t have anybody in my personal life who has Autism (that I know of), but I want you guys to know that I watch these videos religiously. I myself contracted polio at four months old from the vaccine,which led me with a lot of mobility issues and if we’re being honest a lot of emotional issues too (I’m 32, located on Long Island-so obviously I’ve never met another person anywhere near close to my age with this). Often while watching this I think of how I wish my parents knew to advocate and educate for me. Thank you for this and keep doing what you’re doing! Love you all!!
I’m so happy you found someone like that to help you through some of your toughest times. I’m 27 and have had the same family doctor that did my first born measurements, and oh man when he retires I know I’m gonna be lost
Sending virtual hugs to you all. You guys are doing the best you know how and it shows on Abbie. 💌 Priscilla have an awesome Mother's day 💐
Well cilla you are the best mom to your loving family
My husband is a Psychologist and really promotes meds of all kinds and individualizes it to fit each patient. He finds it most important to really listen to each patient, make a treatment plan and follow up follow up follow up! Like you said, what works for Abbie may not work for someone else.
This is the first time that I've seen them looking almost defeated. I'm glad that they have the strength because it's all a test. Keep the faith.
Wonderful raw & honest vlog.....how blessed are The Maass Family especially Abbie for having such an awesome doctor to listen & guide you when you most needed it....Every child Is unique & deserves to be treated accordingly...treat the person not the label. ❤️❤️❤️
Y'all do a wonderful job as parents. At the end of the day you know your children better than anyone else and are capable of making the best choices for them. People love to judge but hardly offer anything constructive.
I love watching you guys everyday. It always makes me smile. Watching you guys always puts me in a better mood
None of my children are Autistic, but we had the greatest Pediatrician. He was so gentle, kind and always took time to answer my questions. My kids just loved him. When my son turned 16 and aged out of going to the Pediatrician, he cried when I told him we needed to find a new doctor for him. Dr. Boon. I miss seeing him.
I was against meds at the beginning as well. But then I came to realization that my son was miserable. He was not living in a positive way. After trial and error with medications. He is thriving and happy and living life in a positive way. He has become verbal with medication and also has a chance now with academics.
I think you guys are awesome parents and what your doing to help Abbie is awesome . I believe in Meds . I take Meds for depression and Anxiety. And it helps alot ❤️❤️❤️❤️
So happy that you follow your gut instinct 👏🏻👏🏻👏🏻👏🏻 every person in this world have their own journey, just being there to guide is the main goal
What a great video!!
Explaining anti against ppl and the for ppl..
You guys are so wonderful as parents 💕
My daughter is 13 and has Autism. She is considered level 1/mild. She’s verbal, independent at home (besides cooking and maybe getting all the shampoo out of her hair). Our family never wanted her on meds. But it got bad. We ended up doing so at around 8 years old. We tried many. She was also being bullied for being different by students in her 2nd grade classroom and her regular education teacher. We ended up pulling her and we got her help as she had suicidal tendencies. We moved to another school and when they had issues with her, or didn’t want to deal with her, we never saw redirection. It was did she have her meds. She then had a teacher make her an example in front of her whole 3rd grade class. She was just not happy in brick and mortar school and they always said she was “too high functioning autistic” for the autism classroom but she didn’t fit in in the regular education classroom. We pulled her and started her on virtual charter school 4 years ago, got her completely off medication, and started on cbd oil as needed. There are still days that can be bad, but she’s doing so much better and able to now learn at her own pace.
So glad you were able to find a plan that works for her. We only had our "HF-ASD" child in a traditional school for one year, and while she had a fantastic classroom teacher, two years later we're still hearing new stories of things she's just now willing and able to talk about.
I had the same feelings when 4 months ago, my family Dr. (30 years), had to close his practice due to his an unexpected health issue. I have been struggling to find a new one. He was an amazing guy. I feel your pain.
I lost a therapist I only saw a handful of times, and that was rough enough. I can't imagine losing someone that amazing who's been with you that long. Also, as one of the "quiet" ones, when people are going off about being against something, a lot of us will just stay out of it. There's no point in trying to discuss or reason with people like that and it's not worth the effort or being attacked for being anything other than irate.
I totally agree. I just haven't been able to put it in words, so I thank you for your eloquence!
Seeing Abby accomplish so many things makes me happy.
when my son was diagnosed with ADHD, we really battled with the idea of putting him on medication. Then a very smart person said “If your son was diabetic, would you give him insulin?” It really opened my eyes. We decided to give him medicine and it was the best decision for him!
I agree with Ann Peet, Asa and Priscilla you are great parents. Also great ambassadors for special needs. I have learned a lot from watching your videos that has helped me in my work in a Sped classroom.
Oh how challenging! My hearts goes out to you guys - praying for you all 💗 may you have an easy transition, and equally wonderful doc to help Abbie
She's pretty awesome is your Abbie! And we see that, because of how you parent her! Well done mum and dad! ❤️
I’m almost 18 and after years of masking and trouble fitting in with my peers and then learning somehow about autism and adhd and then months of deep Research for both conditions i came to the conclusion I have both. The problem is my parents are in denial and won’t take me to an official diagnosis and can’t afford it(they always knew i’m “weird” but never considered autism or adhd since i started talking really early and knew things beyond my age and was a top student in school until highschool and they have the misconception that adhd=trouble making student and i’ve always been really quiet dreamy and shy but like many times i cope with sensory overload by spacing out and mentally detaching myself from everything). The thing is i’m entering the last year of highschool and have a bunch of exams and college application and i just Pray and hope i won’t burnout bcuz i have really perfectionistic tendencies and i feel close to exploding
We had an emotional time at the beginning of the year when Lily lost her developmental pediatrician we've had her for 7 years. Nothing has been the same as far as quality of care since she retired. 😪
If you want Abigail to get to the next level (i.g. investigating the root cause of her aphasia) you shouldn't be seeing an ordinary general psychiatrist, you need to see someone who has a UCNS Board Certification for Behavioral Neurology & Neuropsychiatry. For Jacksonville, Florida, there are only two physicians meeting this requirement, Nilufer Taner, MD, PhD and Philip W. Tipton, MD, both with the Mayo Clinic. Has Abigail ever had a trial of levetiracetam, or been evaluated for epileptic encephalopathy? I'm formally diagnosed with ASD, with level 3 support needs. However, after undergoing experimental trials with Keppra (levetiracetam) and Transcranial Magnetic Stimulation to reactivate my left frontal lobe and language center of my brain we are seeing major improvements in my ability to communicate with others and perform ADLs.
I want to show my support for ABA!! It helped our son talk as well as many other things! The women were wonderful, caring, and invested in his progress. Edit: forgot to mention that they used a branch of ABA, the Denver model
P.S. Priscilla you look beautiful and glowy! Your skin is gorgeous
I am so sorry that you got bad new! I love you so much!! Great vlog as always!
I've been away for a few months.. you're feed was on my feed and so I watched again.
Gosh!! I sure missed y'all!
I love watching your family videos
I pray you all get a new wonderful Phychiatrist. I cried with you. Prayers for the best
It’s so hard to get attached to a Dr or anyone who helps you and then lose them!! I completely understand!! He has been so helpful to you guys!!
My son will be doing ABA and he sees a phenomenal psychiatrist! But we are just starting out with everything! It’s so crazy that Abbie will be 16 on the 12th! My son will be 15 on the 11th!
I really didn’t acknowledge the fact that a dr who actually listens to you is very important especially those in the IDD community. The moment I realized it was important was between my senior of college and my first time choosing my dr on my own.
During college I was extremely lethargic and was difficult to breathe. My college dr said it was because of my sinuses, even though I was fine in that area. Then she said it was depression and anxiety (I’ve been taking my medicine)
Then the summer that I graduated I was walking home where the symptoms got so intense and rushed myself to the ER. EKG and a chest x-ray they yet again said allergies gave me an inhaler and a surprise 2k medical bill.
Well two weeks later I went to my first dr appointment told her I had autism (helps me sus out the doctor) she immediately did a full blood panel and found out I had hypoglycemia and an extreme vitamin d deficiency. A couple weeks later I was feeling great!
If you feel like your doctor isn’t on your team it’s okay to find a new doctor.
I love the painting with your kids I love your whole family keep on going forward
I am so sorry