This made me cry. 🥹❤️ I love you guys! I will be back soon. Life has been very challenging lately. But I have a couple of videos coming. ❤️❤️❤️❤️ How are you?
I’ve just found your channel and it’s so reassuring to know I’m not alone. I was diagnosed with RRMS in 2012 and I’m currently going through the worst relapse I’ve ever had. I am having trouble walking with a cane and can’t get in or out of the shower/bath, everything hurts. The last few months have been some of the most challenging of my life. I hope things improve for us both soon. Stay strong 💪 ❤
My gosh! I’m so sorry!! 😢❤️ I know how hard and frustrating it is. You are most definitely NOT alone! We are all here for you and I’m saying a prayer that your pain will ease and you will get relief soon. 🙏🏼❤️ Much love to you my friend
4 месяца назад+1
Hello. Just checking in on you. I hope you are doing okay. ❤
I want someone else to confirm that we are on the right path or be the deciding factor on other treatment. I can’t afford to just wait and get worse. I don’t want to allow it. It was nice to swim a little with the kids. ☺️
Is it posible that you just had a very bad, terrible relapse? You have improved so much since when you were at the hospital. It takes time for the body to recover,
It sounds like you have very good caring parents. Understand how big that is because a lot of people don’t. It’ll be the difference in your life family is the most important.
Yes another doctor’s inside experience is important to hear but don’t forget they can’t say for sure so you can fight regardless. I trust in talking to the body straight from the mind the thoughts and directing those thoughts to what I must do for myself as did my grandfather it may have power more than anyone will ever know it certainly helped him. You look well this is always a good sign you’re getting out and taking care of yourself regardless that’s it feels hard a really great start even if you don’t always feel like it. As for support, write a list of the ups and downs what you know you can do and what you think you’re not likely to go without it’ll help.
Thank you 🙏🏼 I think so too. I’ve been every day since I was hospitalized in June tried my best to be active in some form. I’ve been doing my own rehab training at home. And I’m seeing improvement. But I’m far from where I was.
@@LiiBorossy are you eating well, and a lot? I don’t know what your appetite is but the essentials are important to blood flow and nervous system. Cut out all toxic substances including alcohol and smoking. You have to empower your mind/body as much as possible build a regular daily discipline until it becomes impossible to stray from it that it feels unnatural and impossibly to abandon it. One of the powers of a quality life is that it’s impossible to be attracted to anything less.
@@LiiBorossy and REJOICE be appreciative of what you do for yourself. Have a party a huge one invite all your relatives to celebrate your new look on health. You deserve to see past appearances give your mind that. Here’s another speech of the doctor’s, speaking of that just literally came through my feed-I give to you. Be uplifted you have every reason to be present time can be surpassed by taking on a new perspective. You never have to be a prisoner, remember that. ruclips.net/video/2xQRGu3e3Pg/видео.htmlsi=mSRgJqOVRQDN9IXr
I haven’t committed to this diet. I think it could be great for a period of time but I think I would not be able to do it for a long period of time. But I’m looking into it ☺️
Dear Lii, you probably have thought about variety of options regarding treatment so this may not be new to you. However, I wonder whether there exists a possibility of becoming a part of MS research/study. What brought me to this idea is my mother´s situation. She was diagnosed with Parkinson a few months ago and her neurologist offered her to join a long-term study run by a professor. Upon her entry she was literally examined from head to toe, incl. sleeping laboratory, MRI, genetics and hospitalised for a few days for thorough assessment. Since then she will have to show up once a year for follow ups. If you could be part of such a group, maybe you could get access to the latest methods in treatment and get the best medical support and also psychologically it might help. I wish you all the best and easing of the symptoms. Greetings from the Czech Republic.
Sounds Bad Lii. (What you are describing) Is "AGGRESSIVE RRMS" different from PROGRESSIVE MS? I guess it's opinion based. I'm getting more hand shakes too. My right 👉🏽 finger is doing a lot of Dancing like Elvis. But I had The Worst Myoclonic Jerks the other night. It was actually Very Scary & I felt a sense of Dread. What might happen next.. like a Black Out. Other times I've just felt Silly with my left Arm doing it. But it was Neck Head Torso Ones. Like lightning ⚡ With Warmer weather comes Eye Pain. I hate the Eye Pain. It Rocks my World. The 🧠 is such a mystery. Best Wishes Lii. I Scream, You Scream, We All Scream for 🍦🍨 & A Permanent Cure
@@LiiBorossy Thanks! BTW. I bought a Cheap Table with Cool Wheely Legs from the IKEA Recycled Department in Melbourne Yesterday. And it made my Ᏸrain feel ᔑööö Good in a Nordic~Scandinavian Way. Because it Looks Nice and Ꮿorks in situ. (I haven't been so happy for a Long Time). Which proves 3 Things Scientifically: 1) I'm a Simple Soul. 2). I belong in Cool Sweden Iceland Finland Norway or Estonia. 3) Great Aesthetic & Functional Design Imagined & created by ⵛaring Ꮛmpathic People is Vastly Important to our Quality of Life. Same like Life Affirming Medication & Knowledge fostering Powerful Truth. Much Love to You Lii 💕
I understand what you mean. I think what I mean when I say that is “I want to be like I was before my diagnosis”. You have to remember that only 2 years ago I had no idea what Multiple Sclerosis was. And I had a hard time accepting it. But I will try to follow your advice.
@LiiBorossy no, the thought process of just wanting to be "normal " again, your former self, I get that! It feels like there is a line drawn between pre-diagnosis life and post-diagnosis life that one is constantly comparing life to. I think it's very normal, at least for a while, maybe even longer. Grieve at your own pace and try to accept what you can't change, but never become hopeless or give up. Keep researching, and keep advocating for yourself.
@@dkasper3267 I’m going to send you a RUclips channel link right away from a Canadian doctor who wrote a book about “normal” as toxic. He’s very observant an individual for sure he really nails a lot of manipulative subjects.
@@LiiBorossy we as a species will always want what we know. There is so much we don’t know that also has its benefits too though and this is how skills develop or new understandings or new appreciations. Even something as basic as people who hate animals while others these bring much joy. So there is a great prejudice in the Homo sapien that stops it from loving itself and others basically.
Kforest- not very kind comment. You must not have a progressive neurological disease. Compassion goes a long way. Or just don’t comment. Just don’t do it- control yourself from unkind words.
Come back to us please.
This made me cry. 🥹❤️ I love you guys! I will be back soon. Life has been very challenging lately. But I have a couple of videos coming. ❤️❤️❤️❤️ How are you?
@@LiiBorossy Doing well, thank you. Try to stay positive :)
@@romanxkostan I’m glad to hear you are well! Thank you I’m trying my best to stay positive.
I’ve just found your channel and it’s so reassuring to know I’m not alone. I was diagnosed with RRMS in 2012 and I’m currently going through the worst relapse I’ve ever had. I am having trouble walking with a cane and can’t get in or out of the shower/bath, everything hurts. The last few months have been some of the most challenging of my life. I hope things improve for us both soon. Stay strong 💪 ❤
How do you feel your care would be in Sweeden (I think that is where you had said you are from). Do you think it would be similar?
My gosh! I’m so sorry!! 😢❤️ I know how hard and frustrating it is. You are most definitely NOT alone! We are all here for you and I’m saying a prayer that your pain will ease and you will get relief soon. 🙏🏼❤️ Much love to you my friend
Hello. Just checking in on you. I hope you are doing okay. ❤
Thank you 🥹❤️ I appreciate that you were thinking of me. Sending you love
I hope that someone will take you for a second opinion. The pool looks very nice. 🌸
I want someone else to confirm that we are on the right path or be the deciding factor on other treatment. I can’t afford to just wait and get worse. I don’t want to allow it.
It was nice to swim a little with the kids. ☺️
Is it posible that you just had a very bad, terrible relapse? You have improved so much since when you were at the hospital. It takes time for the body to recover,
Hard to say but there was no sign of new lesions. So I’m assuming it’s my existing lesions/symptoms getting worse.
It sounds like you have very good caring parents. Understand how big that is because a lot of people don’t. It’ll be the difference in your life family is the most important.
100 %! 🙏🏼❤️
Yes another doctor’s inside experience is important to hear but don’t forget they can’t say for sure so you can fight regardless. I trust in talking to the body straight from the mind the thoughts and directing those thoughts to what I must do for myself as did my grandfather it may have power more than anyone will ever know it certainly helped him. You look well this is always a good sign you’re getting out and taking care of yourself regardless that’s it feels hard a really great start even if you don’t always feel like it. As for support, write a list of the ups and downs what you know you can do and what you think you’re not likely to go without it’ll help.
Thank you 🙏🏼 I think so too. I’ve been every day since I was hospitalized in June tried my best to be active in some form. I’ve been doing my own rehab training at home. And I’m seeing improvement. But I’m far from where I was.
@@LiiBorossy are you eating well, and a lot? I don’t know what your appetite is but the essentials are important to blood flow and nervous system. Cut out all toxic substances including alcohol and smoking. You have to empower your mind/body as much as possible build a regular daily discipline until it becomes impossible to stray from it that it feels unnatural and impossibly to abandon it. One of the powers of a quality life is that it’s impossible to be attracted to anything less.
@@LiiBorossy and REJOICE be appreciative of what you do for yourself. Have a party a huge one invite all your relatives to celebrate your new look on health. You deserve to see past appearances give your mind that. Here’s another speech of the doctor’s, speaking of that just literally came through my feed-I give to you. Be uplifted you have every reason to be present time can be surpassed by taking on a new perspective. You never have to be a prisoner, remember that.
ruclips.net/video/2xQRGu3e3Pg/видео.htmlsi=mSRgJqOVRQDN9IXr
Don't know if it will help but have you tried the carnivore diet? It seems to be helping many people with MS.
I haven’t committed to this diet. I think it could be great for a period of time but I think I would not be able to do it for a long period of time. But I’m looking into it ☺️
Dear Lii, you probably have thought about variety of options regarding treatment so this may not be new to you. However, I wonder whether there exists a possibility of becoming a part of MS research/study. What brought me to this idea is my mother´s situation. She was diagnosed with Parkinson a few months ago and her neurologist offered her to join a long-term study run by a professor. Upon her entry she was literally examined from head to toe, incl. sleeping laboratory, MRI, genetics and hospitalised for a few days for thorough assessment. Since then she will have to show up once a year for follow ups. If you could be part of such a group, maybe you could get access to the latest methods in treatment and get the best medical support and also psychologically it might help. I wish you all the best and easing of the symptoms. Greetings from the Czech Republic.
That’s great for your mom! I hope she will get the very best help and care.🙏🏼❤️ I will try to look into this for myself.
I have very aggressive ppms. I feel for you.
I’m so sorry. 🥺 I send you strength and love ❤️
Sounds Bad Lii. (What you are describing) Is "AGGRESSIVE RRMS" different from PROGRESSIVE MS? I guess it's opinion based. I'm getting more hand shakes too. My right 👉🏽 finger is doing a lot of Dancing like Elvis. But I had The Worst Myoclonic Jerks the other night. It was actually Very Scary & I felt a sense of Dread. What might happen next.. like a Black Out. Other times I've just felt Silly with my left Arm doing it. But it was Neck Head Torso Ones. Like lightning ⚡ With Warmer weather comes Eye Pain. I hate the Eye Pain. It Rocks my World. The 🧠 is such a mystery. Best Wishes Lii. I Scream, You Scream, We All Scream for 🍦🍨 & A Permanent Cure
Sending you strength and yes I suppose it’s opinion based… It’s hard to know.
Much love my friend
@@LiiBorossy Thanks! BTW. I bought a Cheap Table with Cool Wheely Legs from the IKEA Recycled Department in Melbourne Yesterday. And it made my Ᏸrain feel ᔑööö Good in a Nordic~Scandinavian Way. Because it Looks Nice and Ꮿorks in situ. (I haven't been so happy for a Long Time). Which proves 3 Things Scientifically: 1) I'm a Simple Soul. 2). I belong in Cool Sweden Iceland Finland Norway or Estonia. 3) Great Aesthetic & Functional Design Imagined & created by ⵛaring Ꮛmpathic People is Vastly Important to our Quality of Life. Same like Life Affirming Medication & Knowledge fostering Powerful Truth. Much Love to You Lii 💕
“You just want to be normal” get that out of your head there’s no such thing not on this planet so embrace it that’s how you develop anew from it
I understand what you mean. I think what I mean when I say that is “I want to be like I was before my diagnosis”. You have to remember that only 2 years ago I had no idea what Multiple Sclerosis was. And I had a hard time accepting it. But I will try to follow your advice.
@LiiBorossy no, the thought process of just wanting to be "normal " again, your former self, I get that! It feels like there is a line drawn between pre-diagnosis life and post-diagnosis life that one is constantly comparing life to. I think it's very normal, at least for a while, maybe even longer. Grieve at your own pace and try to accept what you can't change, but never become hopeless or give up. Keep researching, and keep advocating for yourself.
@@dkasper3267 I’m going to send you a RUclips channel link right away from a Canadian doctor who wrote a book about “normal” as toxic. He’s very observant an individual for sure he really nails a lot of manipulative subjects.
@@LiiBorossy we as a species will always want what we know. There is so much we don’t know that also has its benefits too though and this is how skills develop or new understandings or new appreciations. Even something as basic as people who hate animals while others these bring much joy. So there is a great prejudice in the Homo sapien that stops it from loving itself and others basically.
Kforest- not very kind comment. You must not have a progressive neurological disease. Compassion goes a long way. Or just don’t comment. Just don’t do it- control yourself from unkind words.