Stiff Person Syndrome ~Fireside Chats (First Epiphany)
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- Опубликовано: 28 авг 2024
- In this talk, I discuss my first "reckoning" with beginning fear and feeling of inadequacy on being a parent within the physical restrictions of Stiff Person Syndrome.
"awareness, knowledge, hope"
I'm so glad I found this post. I only had the first two. Thank you for the inspiration. Diagnosed 2 years, and went to my sister's because she's a nurse. But I'm still here away from my husband because of covid. I pray to get back this summer so we can rebuild out life together.
May the lord bless you