What an inspiration you are ❤ I love your moxy (plus your laugh is infectious!) and can fully appreciate how difficult things must be for you and how you have developed such elaborate coping strategies in an attempt to fit in, is both heart warming and breaking concurrently. My partner has ET and I have autoimmune issues which restricts our ability to partake in the so called ‘normal’ pastimes of daily life such as eating out or socialising. I’ve realised that no matter how hard one tries, the reality is that there will always be those folks that stare/judge/have an opinion. In the end though every person has ‘something’ that they are escaping from whether visible or otherwise and when confronted with a break from the norm, folks have a tendency to react often negatively, it’s a fear based response. Well done for your bravery with putting yourself out there ❤
Hi Nan, I love your videos, I also suffer tremors, mine are hereditary from my fathers side, mine are shaken head, hands & my voice which it affects worse, I’m lucky to have an amazing husband who when I’m struggling will take over for me so I don’t have to speak, I’ve tried seizure medication & CBD oils which tone it down but not stop it & your right about ppl staring, but that’s the least of my worries lol, I wish you the very best & hope you can find something that works for you 🩷
The tremors that I deal with come and go, it's not Essential Tremor, but I do understand what it's like trying to eat with tremors and all the stares, for whatever reason, of all those around. A few times I've been able to turn it into a teaching moment, explaining what I have and how it effects me. Essential Tremor does need to be made known, and other things that can cause tremors. I understand how difficult it can be to be out in public and why even though my tremors are not ET. The applaud you for making and sharing these videos. Stigmas and prejudice are caused by the same thing, ignorance, and this is a very good way to get information to others. I wear an ST awareness button/pin on my caps and jackets, for my Granny who has ET and as a conversation starter to help raise awareness and educate others. God Bless you Shakey Nan😊😊😊❤❤❤
Thank you so very much for your kind words. With tremors it is very hard to speak up most times but as you said, turning it into a teaching moment is the best thing to overcome our anxiety. Please keep spreading awareness for your condition aswell my friend. If we can educate even 1 person each day they may pass it on too. Take care and thank you again ❤️😘
Hi Nan, do you use the steady wear gloves you tested for us e.t. sufferers? They seemed to help? I would welcome those gloves but they do not export them to Europe.i wrote to them. I'd be prepared to wear them or the one even in public places. You found they relieved the tremors after wearing them for a while, so you could wear them and take them off ? Thanks.
What an inspiration you are ❤ I love your moxy (plus your laugh is infectious!) and can fully appreciate how difficult things must be for you and how you have developed such elaborate coping strategies in an attempt to fit in, is both heart warming and breaking concurrently.
My partner has ET and I have autoimmune issues which restricts our ability to partake in the so called ‘normal’ pastimes of daily life such as eating out or socialising. I’ve realised that no matter how hard one tries, the reality is that there will always be those folks that stare/judge/have an opinion. In the end though every person has ‘something’ that they are escaping from whether visible or otherwise and when confronted with a break from the norm, folks have a tendency to react often negatively, it’s a fear based response.
Well done for your bravery with putting yourself out there ❤
Hi Nan, I love your videos, I also suffer tremors, mine are hereditary from my fathers side, mine are shaken head, hands & my voice which it affects worse, I’m lucky to have an amazing husband who when I’m struggling will take over for me so I don’t have to speak, I’ve tried seizure medication & CBD oils which tone it down but not stop it & your right about ppl staring, but that’s the least of my worries lol, I wish you the very best & hope you can find something that works for you 🩷
The tremors that I deal with come and go, it's not Essential Tremor, but I do understand what it's like trying to eat with tremors and all the stares, for whatever reason, of all those around. A few times I've been able to turn it into a teaching moment, explaining what I have and how it effects me. Essential Tremor does need to be made known, and other things that can cause tremors. I understand how difficult it can be to be out in public and why even though my tremors are not ET. The applaud you for making and sharing these videos. Stigmas and prejudice are caused by the same thing, ignorance, and this is a very good way to get information to others. I wear an ST awareness button/pin on my caps and jackets, for my Granny who has ET and as a conversation starter to help raise awareness and educate others. God Bless you Shakey Nan😊😊😊❤❤❤
Thank you so very much for your kind words. With tremors it is very hard to speak up most times but as you said, turning it into a teaching moment is the best thing to overcome our anxiety. Please keep spreading awareness for your condition aswell my friend. If we can educate even 1 person each day they may pass it on too. Take care and thank you again ❤️😘
Hi Nan, do you use the steady wear gloves you tested for us e.t. sufferers? They seemed to help? I would welcome those gloves but they do not export them to Europe.i wrote to them. I'd be prepared to wear them or the one even in public places. You found they relieved the tremors after wearing them for a while, so you could wear them and take them off ? Thanks.