Dr Eccles is a genius and many need to follow her example & lead in medicine. I could listen to her all day. I noted her lovely top which might have be a nod to EDS (zebras)
This was so incredibly interesting and helpful. As the mom to a 19 yo diagnosed with EDS, POTS, and anxiety, it explains so much. Their symptoms continue to expand and worsen. ADD and autism have recently entered the conversation and now I know to pursue that testing and look for a PT, OT, movement therapist to help.
I was ticking boxes all the way through, I have a reasonably logical brain and find it so frustrating the feeling of anxiety I get which has no logical foundation but affects me all the same. Also my son was diagnosed ADHD as a child this makes so much more sense.
I've been watching Jessica closely for a while now as she is approaching very much the same pattern of ideas as I have, though from 'the other side' so to speak as I'm coming at this primarily from the neurodivergent experience. This particular discussion though is absolutely the best example on YT from Jessica exploring the interrelationships between neurodiversity, trauma, hypermobility, fibro, interoception, sympathetic and parasym systems, ED, inflammation etc etc.
I loved this. This was really interesting. I have Hypermobility and having knowledge about these subjects is really helpful. This has also fed my passion of wanting to promote awareness of these conditions and in helping to see what better approaches could be done to manage them. If you two wrote a book together I would happily read it.
When Dr Eccles mentioned weighted blankets... I miss mine! My partner realised that my back and shoulder issues became a lot worse over the 2 or 3 years I was using it, so maybe people should be careful of that. I hadn't been diagnosed with EDS then and had no idea what it even was, so hadn't made the connection, but my back and shoulder pain have improved a lot since giving it up (although my anxiety has increased). RIP blankey!
This resonates with me, it makes sense that a difference in brain structure might lead to a different style of thinking. Thank you for doing this research. I hope hypermobility research continues well in to the future.
Stunning. Actually, I feel, unfortunately, like the perfect role model for most of Dr. Eccles different hypothesis...looking foward to more research - thanks for all your work and for sharing!
Wow only 20mins in and I'm mind blown!!! That adaptable therapy sounds like a really good thing, I feel I've had to retrain myself in that, to desensitize what I think is actually happening in my body to what I think is 😳 this just shows me even more so how complex beings we are. Let alone throw traumas, conditioning, learnt behaviours etc and now menopause into the mix. Geez 🤯 I most definitely feel it's something within from birth (even during conception) as we're processing energy all the time right! And just looking at my family around me and the qualities they posses, anxiety, adhd, autism. Super super interesting. The mind literally does boogle hey 😯 AMAZING stuff 👏 Thanks for putting this out there as can really help to putting a sense of clarity, and of release, realisation and acceptance too 🙏 Real deep stuff 😢😊
Interesting ! I've wondered about much of this over the years as I have constant anxiety and several health issues including a connective tissue disorder, arthritis and lymphedema.
@@JeannieDiBonHypermobility As an American, it's both frustrating and a relief to see this kind of research going on over in the UK. In the US, only profitable research is funded and only profitable information is even taught in curricula. I've been told that modern physios here don't even learn about hypermobility anymore (but that's an unverified rumor). It was a physio who first diagnosed me back in 1998, so I get so surprised that modern ones look at me blankly when I mention it. So I really appreciate the two of you--all of you over there doing this important work. Thank you for the recent shoulder stabilizer exercises, too.
Aah fantastic Dr Eccles mentions ND people and sensory sensitivities 🙏🏻🙌💖 what’s also interesting is that I was dx with Pots and fibro a couple of years post car accident… and having recently had the C virus my Pots and possibly EDS is worse 😢
This is utterly amazing! I am one of those Trifecta people with complex comorbidities and I am learning so much from this. Thank you Jeannie for asking those key questions. Every 5 minutes I have to go off and research what you are both discussing, so I haven't actually finished it yet! Dr Eccles is actually my friend's doctor and I wish she was mine!!! Quick question. Do you have a transcription of this? I know many of us find information from videos difficult to access. I'm not well enough myself to edit the rather muddled automatic transcription that RUclips provides.
I haven’t been diagnosed with hEDS but I know I have it. ADAPT seems amazing. I was rushed to hospital two years ago as my heart rate was 140mph and rising (& I know that’s not that high but it was scary, as it came out of the blue) The cardiologist was not able to tell me why this happened. I really don’t know why cardiologists aren’t looking into this area. My menopause specialist (NHS) said it was because I was on too much oestrogen which wasn’t the case as I was seeing a private meno specialist.
I'm still listening to this.. it's brilliant and kinda upsetting at the same time. I can't believe someone not only believes and understands but is doing such important research to prove both aspects of the condition and treatment. I have so many of the issues, (almost all) that you guys are talking about. I've never pursued a diagnosis because I can't face the battle of medical gaslighting/PTSD. (It's probably partly because many doctors don't have a clue about these conditions. So instead of listening, they argue/ignore with our experiences, or tell us it isn't happening). I'd love to get to the bottom of my myriad symptoms/diagnoses. And get a proper evaluation diagnosis, so I know what I'm dealing with. And can get treatment necessary. Is anyone able to point me in the direction to get this. Or even on how to join a clinical trial?. It's so hopeful seeing this that help could be available. Thanku
Susie Kent, depending on where you live, hopefully you can find a good doctor (maybe ask in a local group on social media?) who can refer you to specialist who are good with hypermobility &/or your other symptoms. E.g. a rheumatologist for diagnosis, occupational therapist &/or physiotherapist for managing the functional impacts for you
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Dr Eccles is a genius and many need to follow her example & lead in medicine. I could listen to her all day. I noted her lovely top which might have be a nod to EDS (zebras)
She is doing fantastic work for our community
This is mindblowing! So much of this made sense to me. I can't believe how complex hypermobility is.
I know, amazing discoveries
This was so incredibly interesting and helpful. As the mom to a 19 yo diagnosed with EDS, POTS, and anxiety, it explains so much. Their symptoms continue to expand and worsen. ADD and autism have recently entered the conversation and now I know to pursue that testing and look for a PT, OT, movement therapist to help.
Thank you. So glad to hear it helped your journey.
I was ticking boxes all the way through, I have a reasonably logical brain and find it so frustrating the feeling of anxiety I get which has no logical foundation but affects me all the same. Also my son was diagnosed ADHD as a child this makes so much more sense.
I’m glad this had useful info for you.
so complex, looking forward to the next generation being a lot more informed !
🙏🏻
I've been watching Jessica closely for a while now as she is approaching very much the same pattern of ideas as I have, though from 'the other side' so to speak as I'm coming at this primarily from the neurodivergent experience. This particular discussion though is absolutely the best example on YT from Jessica exploring the interrelationships between neurodiversity, trauma, hypermobility, fibro, interoception, sympathetic and parasym systems, ED, inflammation etc etc.
I’m so glad you enjoyed this interview.
I loved this. This was really interesting. I have Hypermobility and having knowledge about these subjects is really helpful. This has also fed my passion of wanting to promote awareness of these conditions and in helping to see what better approaches could be done to manage them.
If you two wrote a book together I would happily read it.
Thank you. Very happy you enjoyed it.
When Dr Eccles mentioned weighted blankets... I miss mine! My partner realised that my back and shoulder issues became a lot worse over the 2 or 3 years I was using it, so maybe people should be careful of that. I hadn't been diagnosed with EDS then and had no idea what it even was, so hadn't made the connection, but my back and shoulder pain have improved a lot since giving it up (although my anxiety has increased). RIP blankey!
Yes they aren’t suitable for everyone.
This resonates with me, it makes sense that a difference in brain structure might lead to a different style of thinking. Thank you for doing this research. I hope hypermobility research continues well in to the future.
Thank you 😊
Stunning. Actually, I feel, unfortunately, like the perfect role model for most of Dr. Eccles different hypothesis...looking foward to more research - thanks for all your work and for sharing!
Glad you enjoyed this episode.
That explains so much! I loved it!
I'm so glad!
such smart people :O Thank you for your work !
Our pleasure!
Wow only 20mins in and I'm mind blown!!! That adaptable therapy sounds like a really good thing, I feel I've had to retrain myself in that, to desensitize what I think is actually happening in my body to what I think is 😳 this just shows me even more so how complex beings we are. Let alone throw traumas, conditioning, learnt behaviours etc and now menopause into the mix. Geez 🤯
I most definitely feel it's something within from birth (even during conception) as we're processing energy all the time right! And just looking at my family around me and the qualities they posses, anxiety, adhd, autism. Super super interesting. The mind literally does boogle hey 😯 AMAZING stuff 👏
Thanks for putting this out there as can really help to putting a sense of clarity, and of release, realisation and acceptance too 🙏 Real deep stuff 😢😊
Yes, she’s pretty amazing! So glad it was useful.
So the larger flight flight response causes sycosomatic pain
Fascinating!! Thank you
Glad you enjoyed it!
Interesting ! I've wondered about much of this over the years as I have constant anxiety and several health issues including a connective tissue disorder, arthritis and lymphedema.
Yes it’s fascinating
This is fascinating! I tick a lot of the ‘boxes’. Thanks Jeannie.
Glad it was useful info 👍
Awesome video!
Thank you 🙏🏻
@@JeannieDiBonHypermobility As an American, it's both frustrating and a relief to see this kind of research going on over in the UK. In the US, only profitable research is funded and only profitable information is even taught in curricula. I've been told that modern physios here don't even learn about hypermobility anymore (but that's an unverified rumor). It was a physio who first diagnosed me back in 1998, so I get so surprised that modern ones look at me blankly when I mention it. So I really appreciate the two of you--all of you over there doing this important work. Thank you for the recent shoulder stabilizer exercises, too.
Aah fantastic Dr Eccles mentions ND people and sensory sensitivities 🙏🏻🙌💖 what’s also interesting is that I was dx with Pots and fibro a couple of years post car accident… and having recently had the C virus my Pots and possibly EDS is worse 😢
Yes very interesting.
That was fascinating
Thank you 🙏🏻
This is utterly amazing! I am one of those Trifecta people with complex comorbidities and I am learning so much from this. Thank you Jeannie for asking those key questions. Every 5 minutes I have to go off and research what you are both discussing, so I haven't actually finished it yet!
Dr Eccles is actually my friend's doctor and I wish she was mine!!!
Quick question. Do you have a transcription of this? I know many of us find information from videos difficult to access. I'm not well enough myself to edit the rather muddled automatic transcription that RUclips provides.
Glad it was so useful
I haven’t been diagnosed with hEDS but I know I have it. ADAPT seems amazing. I was rushed to hospital two years ago as my heart rate was 140mph and rising (& I know that’s not that high but it was scary, as it came out of the blue) The cardiologist was not able to tell me why this happened. I really don’t know why cardiologists aren’t looking into this area. My menopause specialist (NHS) said it was because I was on too much oestrogen which wasn’t the case as I was seeing a private meno specialist.
My mum has elevated heart rate 😅
I'm still listening to this.. it's brilliant and kinda upsetting at the same time. I can't believe someone not only believes and understands but is doing such important research to prove both aspects of the condition and treatment.
I have so many of the issues, (almost all) that you guys are talking about. I've never pursued a diagnosis because I can't face the battle of medical gaslighting/PTSD.
(It's probably partly because many doctors don't have a clue about these conditions. So instead of listening, they argue/ignore with our experiences, or tell us it isn't happening). I'd love to get to the bottom of my myriad symptoms/diagnoses.
And get a proper evaluation diagnosis, so I know what I'm dealing with. And can get treatment necessary.
Is anyone able to point me in the direction to get this. Or even on how to join a clinical trial?. It's so hopeful seeing this that help could be available.
Thanku
Thank you. Yes Dr Eccles is doing brilliant work.
Susie Kent, depending on where you live, hopefully you can find a good doctor (maybe ask in a local group on social media?) who can refer you to specialist who are good with hypermobility &/or your other symptoms. E.g. a rheumatologist for diagnosis, occupational therapist &/or physiotherapist for managing the functional impacts for you
OMG, 1min and 40 seconds in and I've said OMG 5 times already!! OMG!
Yes I felt like that too! So many questions!
I can I've had OCD anxiety since 4 then chronic pain
Sorry to hear. Hope you found this episode helpful.
May I ask what clinic Dr Eccle’s works at?
She’s in Brighton hospital
I’m autistic with hEDS and Pots and GAD (anxiety). Interesting!
Hope this was useful.