My RLS Journey: Lew's Story
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- Опубликовано: 9 сен 2024
- Restless Legs Syndrome (RLS) Foundation presents the 'My RLS Journey' series.
In this video, we highlight Lew's RLS story. Lew discusses his RLS symptoms and other facets of this often misunderstood disease.
For more information about RLS and the Foundation please visit www.rls.org
'My RLS Journey' Series © RLS Foundation 2016
I have had it for over 20 years. I have self-harmed to distract from the horrible sensation. I can't work anymore. To fellow sufferers - you are not alone!
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
I am crying after watching these videos, have had RLS all of my adult life and am 71. Iv'e been through every test, jumped through every hoop and med (RopineroleER) is augmenting leaving me no options except gabbapentin. I'm just so tired, I know what the feeling is to want to give up. It does help to know I am not the only one. My maternal grandmother and 5 aunts had it including my mother. The name we called it "jimmy legs". Finally found a doctor who believed me because his wife also had it. It is a insidious disease.
Thats so sad :( i am 40 now. it begans at 32 with no sympoms before, having it suddenly in Arms and Legs . Instantly from nothing in midnight getting awake from it. I dont get it how that could be cause there were absolute no symtomps before.