This was a great discussion! My dad had an aortic dissection at 51. He was in the hospital for two days. His dissection killed him. I have an aneurysm. I'm 45. I'm having surgery in Feb 2025. I've had two TTEs, MRA, MRI Cardiac, Cardiac velocity and CT angiography. My genetic test was negative. I do not have high blood pressure. I'm not obese. I workout regularly (swim competitively, lift). My first TTE was 4.4, my second was 4.6 and my MRA was upwards of 4.9 (according to my surgeon). Because of all of this, I decided to have the surgery. I'd rather it repaired than not. And thanks to the John Ritter Foundation for connecting me with a great Aortic Advocate!
Had my disection 11 1 24 had a ct scan right away with die.they said i needed the operation right away i sighned the paperwork and i was out.river side did my work.they did good work high care.smoked a lot of years but the need to smoke left me when i woke.
My name is Donna wood and my brother chip Wilson of Arizona died several years ago of three aortic dissections. The doctors said because of that number at one time surgery was impossible and we lost him 12 days after his diagnosis. He had. No idea he had a problem of that sort.
I'm so sorry for your loss, Donna. If you haven't already done so we would encourage you to speak with your medical provider about aortic imaging, as aortic dissections can "run in families." You can read more about family screening on our website: johnritterfoundation.org/family-screening/
My aorta increased in dilation from 3.1 to 3.5 and don’t have high blood pressure. Trying to figure out why before it gets bigger. Thx for the content. I am an Energy drinker.
Hello, my name is Kiersten and I had a type one aortic dissection at age 30 I am now 32 and having continuous heart problems I had genetic testing done and I did have a mutation that was related to Loeys Dietz Syndrome I now have within the year, developed a murmur, and three of my valves are leaking and the aorta is bicuspid and is now growing sclerosis I think is the right word .. my heart rate is not being stabilized with medication anymore and I feel like I am not being heard .. I am feeling worse and dizzy 😵💫 all the time with 4 kids and a stay at home mom ..
I just had an echo and from the last year I also have a murmur and I’m just overwhelmed I am on the hunt for a second opinion because I just feel like I am being made to feel like I am being dramatic and i am just scared ..
Hi Kiersten, I'm so sorry to hear about everything you are dealing with. And with 4 kids I can only imagine you are feeling overwhelmed. I recommend reaching out to our free Aorta Advocate program. These folks have lived experience with aortic dissection and many of them have similar journeys. In addition to empathizing, they can help you navigate looking for a second opinion and an aortic team you feel confident in. You can submit a request through our website here: johnritterfoundation.org/aorta-advocates/
I found this on google: Can vitamin C shrink an aortic aneurysm? Vitamin C attenuated the development of AAA, decreasing maximal aortic diameter by 25.8% (P < 0.05) and preserving elastin lamellae (P < 0.05).
This was a great discussion! My dad had an aortic dissection at 51. He was in the hospital for two days. His dissection killed him. I have an aneurysm. I'm 45. I'm having surgery in Feb 2025. I've had two TTEs, MRA, MRI Cardiac, Cardiac velocity and CT angiography. My genetic test was negative. I do not have high blood pressure. I'm not obese. I workout regularly (swim competitively, lift). My first TTE was 4.4, my second was 4.6 and my MRA was upwards of 4.9 (according to my surgeon). Because of all of this, I decided to have the surgery. I'd rather it repaired than not. And thanks to the John Ritter Foundation for connecting me with a great Aortic Advocate!
This was fun to watch .
It seems as if you all enjoy what you do and truly care for people
Had my disection 11 1 24 had a ct scan right away with die.they said i needed the operation right away i sighned the paperwork and i was out.river side did my work.they did good work high care.smoked a lot of years but the need to smoke left me when i woke.
Thank you for the great information!
What about antibiotic CIPRO warnings about cautions
I have been diagnosed with asending at a 4 and disending at 4.5. .
My back and chest hurt .
My name is Donna wood and my brother chip Wilson of Arizona died several years ago of three aortic dissections. The doctors said because of that number at one time surgery was impossible and we lost him 12 days after his diagnosis. He had. No idea he had a problem of that sort.
I'm so sorry for your loss, Donna. If you haven't already done so we would encourage you to speak with your medical provider about aortic imaging, as aortic dissections can "run in families." You can read more about family screening on our website: johnritterfoundation.org/family-screening/
My aorta increased in dilation from 3.1 to 3.5 and don’t have high blood pressure. Trying to figure out why before it gets bigger. Thx for the content. I am an Energy drinker.
About 5 days before he died, my guy felt achy, and he said he wasn't sure if it was muscular or glandular.
I'm so sorry for your loss.
Hello, my name is Kiersten and I had a type one aortic dissection at age 30 I am now 32 and having continuous heart problems I had genetic testing done and I did have a mutation that was related to Loeys Dietz Syndrome I now have within the year, developed a murmur, and three of my valves are leaking and the aorta is bicuspid and is now growing sclerosis I think is the right word .. my heart rate is not being stabilized with medication anymore and I feel like I am not being heard .. I am feeling worse and dizzy 😵💫 all the time with 4 kids and a stay at home mom ..
I just had an echo and from the last year I also have a murmur and I’m just overwhelmed I am on the hunt for a second opinion because I just feel like I am being made to feel like I am being dramatic and i am just scared ..
Hi Kiersten,
I'm so sorry to hear about everything you are dealing with. And with 4 kids I can only imagine you are feeling overwhelmed. I recommend reaching out to our free Aorta Advocate program. These folks have lived experience with aortic dissection and many of them have similar journeys. In addition to empathizing, they can help you navigate looking for a second opinion and an aortic team you feel confident in. You can submit a request through our website here: johnritterfoundation.org/aorta-advocates/
I found this on google:
Can vitamin C shrink an aortic aneurysm?
Vitamin C attenuated the development of AAA, decreasing maximal aortic diameter by 25.8% (P < 0.05) and preserving elastin lamellae (P < 0.05).