Beating Burkitt's Lymphoma - Christen's Story - The Nebraska Medical Center
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- Опубликовано: 15 мар 2012
- Omaha, Neb - Christen Nino De Guzman knew she was sick. The 21-year-old student at the University of Nebraska-Lincoln was sleeping all day and missing class because she felt so tired. She assumed she had the flu.
"I went to a hospital in Lincoln and they told me I was anemic," said Nino De Guzman. "But in the next few weeks, I developed horrible night sweats -- my sheets and clothes would just be soaked."
She soon ended up in an emergency room and was given antibiotics for bronchitis. Unfortunately, she continued to get sicker.
"I finished school for the summer and was back home in Omaha," she said. "My mom took me to a hospital here and they discovered I had tumors throughout my abdomen. But after two weeks of testing, they still didn't have a definitive diagnosis. Meanwhile, my stomach was blowing up like I was seven months pregnant. Doctors thought it was from all the fluids I was getting, but in reality it was the tumors tripling in size."
That's when her mom had Christen transferred to The Nebraska Medical Center. "Immediately, there was a team of doctors around my bed trying to figure out what was wrong," said Nino De Guzman. "Within a day or two, they told me I had a type of non-Hodgkins lymphoma called Burkitt's lymphoma. I remember one of the E.R. doctors telling me they thought it was stage four, but he said 'I think we can cure this.' I would cling to those words for the next four months."
"The kind of lymphoma Christen had accounts for only 1% of adult lymphomas," said Philip Bierman, MD, hematologist/oncologist at The Nebraska Medical Center and one of the physicians who treated Christen. "It requires aggressive chemotherapy, but it can be extremely difficult to diagnose and there are other kinds of lymphoma that can be confused with it."
"Patients like Christen should be treated at a place that has the experience with the chemotherapy that's required for this lymphoma," said Dr. Bierman. "In this part of the country, we probably have the most experience with it."
After several rounds of intense and complex chemotherapy, Christen was recently declared cancer-free. She just returned from a trip to New York City and has big plans for the future.
"I feel so thankful to live so close to the number one hospital in the world for treating my kind of lymphoma," said Nino De Guzman. "It's a place where people come from all over the world to get treated. This will definitely be a special Thanksgiving for my family and me."
For more information about lifesaving lymphoma treatment call 1-800-922-0000.
I am 34 years old and cleared stage 4 Burkitt's lymphoma and leukemia last year. Unfortunately I am now dealing with side effects and granulomatous disorders of the lymphatic system and possible autoimmune disorders from the cancer and treatment. Trying to stay strong. It is such an inspiration for me to here others have beaten it.
My brother passed from Burkitts on January 1, 1980. Thank God the treatments have improved in 41 years. So happy for you.
I was 14 years old when iwas diagnosed with sporadic burkitts lymphoma, the year was 1992 i was just going into the 8th grade and playing volleyball very athletic. I was given an 80% chance of survival rate did a year of chemotherapy went into remission but after the year of treatment i relapsed in the central nervous system😢 my eyes went crossed and the right side of my face went paralyzed. They told me at the age of 15 i was going to have a very slim chance now i was given a 5% chance of beating the cancer i had a stem cell transplant full body radiation i beat the cancer with a god given miracle❤ my face and eyes went back to normal. I am happy to be alive but suffer many bad side effects from all the major two years of treatment , cant have children,wear hearing aids have osteo necrosis from the prednisone plus a major stroke. But i am alive and 44 years old and jesus keeps me pain free and healthy as a horse doctors are amazed how healthy i am after what i have been through . God bless everyone who has battled any type of cancer doesnt seem to matter how healthy we are to get it . P.s because i was at such a bad stage doctors said i was cured shen i remained cancer free for 2 years . And its been 29 years cancer free long story made short love❤❤❤❤❤❤❤ again giod bless you all
My son survived burkitts lymphoma. God bless you.
I have Burkitt's lymphoma and my lymphoma has gotten alot smaller with 2 rounds of chemo, 2 years ago I had a stroke and I beat that, now I will beat Burkitt's Lymphoma too. The day after I found out that I had lymphoma I met with the cancer doctor at the VA Hospital, had a bone marrow biopsy and was admitted to the hospital, the 3rd day I had my 1st chemo, and the next 2 days my 2nd and 3rd chemo's.
May son was diagnosed after many trips to the ER. We had gone to OU Children’s in Okc twice and they were going to send us home again with directions of more metucil which was not unblocking him. I cried and begged for them to do more at least get some scans and so they did and came back with Burkitts lymphoma. He was stage four. He did five months of some very rough chemo treatments but it’s been almost seven years and he’s so healthy and doing great.
i beat it as well toughest thing i’ve ever been threw.
My husband has berkitts lymphoma stage four it's aggressive he's had 8 rounds of chemo so far positive news handled chemo well we are concerned that on his 4th round of chemo they took blood from his hand put in spine won't that spread cancer in spine please any info will help
My mum survived Burkitts
i have Burkitts right now, getting chemo :)
I went thru CLL treatment in 2009. In 2021 my cancer came back much worse. I had CLL and Burkitt's. I was in palliative care waiting to die when I was finally diagnosed and moved from palliative care to a cancer clinic for treatment. I was at stage 4. I did 4 rounds of intense chemo, almost died twice, but pulled thru and in remission now. I am also dealing with some side effects from treatment but I am vertical, alive and still kicking.
My husband just finish his treatment
I love this story. I am a native Nebraskan and UNL alumni. I am 50 now and was just diagnosed with NHL, Follicular, B-cell, Indolent, Low grade lymphoma. I am starting treatment this week. Its been terrible waiting for the diagnosis and scheduling of appt, but finally I am starting on Thursday. I pray for a cure outcome and immediate relief from symptoms. Amen to Christen for getting the help you need.
May God bless you always. My friend. Amen ❤😢
Too bad everybody can't get top care like this lady
My 8 year old son was diagnosed with mature B cell non Hodgkin burkitts lymphoma. He had one round of intense chemo and suffered complications blockage in his bowel which then perforated. He had another round of chemo and were told he had relapsed/refractory. The hospital we are at in the uk is said to be the best children’s hospital in the world “great Ormond street hospital” but we spent 10 days on their paediatric ward with all the signs and symptoms of cancer and it took them near on 2 weeks to diagnose him.
Awww...her doctor is so sweet. And he seems to care about what he does and wants to get to the bottom of things! Doctors just aren't like that anymore.....I could imagine getting diagnosed with cancer is devastating. I would definitely feel more at ease with a doctor who is as passionate and easy-going as he seems to be!
What was your chemo regimen? Does anybody know this girls came over regimen?
My symptoms exactly ! I might have s tumor but it will make you feel like you can’t go on anymore couldn’t wake up and couldn’t get out of bed
How can we find out what all this treatment entailed? We would very much like to compare it with what my son is having in Portland. He was in the middle of a more general type of chemo before they knew exactly what type he had. His is Birkitts too. They finished the first chemo round about a week ago. He has a very tenacious pneumonia that is being treated with multiple antibiotics. They don't want to do any other chemos until his antibiotics are finished. He's really weak and quite depressed but tries to move around as much as he can. He's in isolation because of another infection he got. I sure wish I could know he's getting the very best treatment for this unusual type of cancer. It has really crushed our family.