Hello and Namaste 🙏 I'm Ravi from India and I'm also on the tracheostomy and ventilator, I'm totally disabled als patient on ventilator from 9 years and 7 months exactly, it's a little tough but not impossible to be on the ventilator you're a great inspiration to everyone , get well soon my friend.
Hi lovely vent lady 💗 I always look forward to your video's,it's good someone is still alive with a trach etc after over 30 yrs,there is a comment on here now from a person who has been on one for over 9yrs! I am sorry you don't go out as much now! Your right most people with a trach have other medical problems! I still pray for you morning & night that the cyst does not burst & kill you! Your a lovely person & who God has spared for a reason! Yes the ventilator keeps you alive but like me needing a full time Foley catheter to replace a failed bladder your ventilator etc keeps your lungs working! I am medically on the DeafBlind spectrum & use powerful hearing aids to hear & at night & poor light I use a long white blind cane! I use close captions to watch your video's as I am now profoundly deaf & can only hear an odd word your saying! Even if you did not have a trach & ventilator I still would not understand what your saying! You are one of the lucky ones who have learnt to speak whilst connected to a ventilator! These past few weeks I have wondered if you did not have a trach or been ventilator dependent would that cyst been operated on by now as it must be harder in the hospital to have a patient thats ventilator dependent! Another myth you dispelled is your not paralysed from the head down hence the reason for the trach or ventilator! Back when I was 20 & had a trach & ventilator I thought it was for life! I was paralysed from a brain injury but after nearly 4 yrs I made a full recovery! I could not play sport as my lungs were damaged,and when covid hit I knew if I got it bad I would be back on the ventilator again & being a lot older the chances of coming off it would have been slim! So I thank God I can still breathe on my own! But I know if I did not I would have had your support & advice! God bless you & your family 💗
Hello my dear friend! Thank you for sharing so much with me. I am glad you are able to do everything you can do. You are a miracle! I am not sure if my ventilator and tracheostomy tube have helped or hindered my medical care regarding my ovarian cyst. Thinking about it, the trach and vent probably helped. The one doctor I saw who sent me to the emergency department was scared since I had a trach and vent that if the cyst ruptured, it would make me really sick. No one has denied me care. It has just been a very long process trying to find the right doctor.
I took an early pension so I could care for my mom and have her live with me. I have contacted all Home Health agencies within driving distance (aprox 15 agencies) and couldn't find anyone would take a trach client. She has a trach because of intubation complications (scarring/adhesions) so she doesn't need a vent, just something to keep an open airway, and of course suctioning and humidifier. This has been very hard on me as I am needing respite relief! I finally did find someone private (not affiliated with a Home Health Agency) and we've trained her in but I'm worried if/when she wants to move on then we are back to square one! I am just shocked at the lack of resources for help for people with trachs, even the ENT social worker when mom left the hospital told us this was a constant problem when they discharge patients as they didn't have any solutions to give them! Are there any support groups out there for people with trachs so that they can bounce out questions to a like minded community?
Hello. Thank you for sharing some of your story with me. I am so sorry it has been hard to find care for your mom. Home health agencies in my area also do not do respiratory care. Respiratory care tends to be its own separate field. My medical equipment company employs respiratory therapists. They have a list of people who are available to do in-home care. Most of the time, this is not covered by insurance. If your mom has a medical equipment company, ask if they employ respiratory therapists. If not, there should be a medical equipment company in the area who hires respiratory therapists. Ask if any of their employees would be willing to pick up some extra work by caring for your mom. Another option is to seek out rehabilitation facilities. Most of the time, they will have listed on their website services offered. If it lists they take CPAP/BiPAP patients, then they have a respiratory therapist on staff. Call the facility and ask if they have respiratory therapists or nurses who know about trach care. Explain your situation and see if they will let you advertise for help with your mom. Another option: check with the hospital and ask if there are any respiratory therapy training programs in your area. Students may be willing to care for your mom to get experience in the field. It may also be worthwhile to reach out to nursing schools and nursing assistant programs. Students are usually eager to learn and gain experience in the medical field. I am very sorry it has been so tough on you. I do not know of any resources regarding support groups for tracheostomy tubes. If you are on Facebook, you may want to search "trach tube support group" and see if anything comes up in the search results. All my best to you and your mom.
My mom has severe COPD and is currently at the hospital and the docs say that when (or if) she's able to get home will be with the trach and the ventilator, a gastrostomy aswell. I'm very relieved to see you live so well, but i think my mom's case is different as her lungs doesn't work, i guess. You speak incredibly well also and i hope my mom recover her ability to speak again. Can you eat normally, too?
Hello. Thank you for your kind words. After getting a tracheostomy tube, I was given a swallow test. I passed the swallow test. I can eat by mouth. I hope everything goes well for your mom.
hi, thank you for posting very helpful info about Tracheostomy tube. i also have a Trach but I cannot speak. may I know if it is the ventilator that is helping you to speak? if yes, may I know the specific name or type of the vent you are using and the accessories you are using. thanks in advance 🥰❤️
Although I do use a ventilator, if I disconnect from the ventilator, I can still speak. For me, it does not matter if I do or do not use a ventilator. I can speak either way. If you would like more information on how to speak with a trach tube, please watch the following video: ruclips.net/video/FSL57g7iIN8/видео.html
Great question. I hope to do videos about these topics in the future. In short, all ventilator equipment is allowed on the airplane. My food which is IV nutrition called TPN is packed into coolers with ice packs and is checked with the luggage. It flies in the luggage compartment and is picked up in baggage claim.
@@Himashreetboro If a person has a spinal cord injury, diaphragm pacing may help with breathing. For other medical conditions, diaphragm pacing or phrenic nerve reconstruction may have no effect on breathing or may increase the rate of mortality.
Hello and Namaste 🙏 I'm Ravi from India and I'm also on the tracheostomy and ventilator, I'm totally disabled als patient on ventilator from 9 years and 7 months exactly, it's a little tough but not impossible to be on the ventilator you're a great inspiration to everyone , get well soon my friend.
Hello. Thank you for sharing some of your story with me. All my best to you!
Best information for me yet! Thank you!!
I am glad it was helpful.
Hi lovely vent lady 💗 I always look forward to your video's,it's good someone is still alive with a trach etc after over 30 yrs,there is a comment on here now from a person who has been on one for over 9yrs! I am sorry you don't go out as much now! Your right most people with a trach have other medical problems! I still pray for you morning & night that the cyst does not burst & kill you! Your a lovely person & who God has spared for a reason! Yes the ventilator keeps you alive but like me needing a full time Foley catheter to replace a failed bladder your ventilator etc keeps your lungs working! I am medically on the DeafBlind spectrum & use powerful hearing aids to hear & at night & poor light I use a long white blind cane!
I use close captions to watch your video's as I am now profoundly deaf & can only hear an odd word your saying! Even if you did not have a trach & ventilator I still would not understand what your saying! You are one of the lucky ones who have learnt to speak whilst connected to a ventilator! These past few weeks I have wondered if you did not have a trach or been ventilator dependent would that cyst been operated on by now as it must be harder in the hospital to have a patient thats ventilator dependent! Another myth you dispelled is your not paralysed from the head down hence the reason for the trach or ventilator! Back when I was 20 & had a trach & ventilator I thought it was for life! I was paralysed from a brain injury but after nearly 4 yrs I made a full recovery! I could not play sport as my lungs were damaged,and when covid hit I knew if I got it bad I would be back on the ventilator again & being a lot older the chances of coming off it would have been slim! So I thank God I can still breathe on my own! But I know if I did not I would have had your support & advice! God bless you & your family 💗
Hello my dear friend! Thank you for sharing so much with me. I am glad you are able to do everything you can do. You are a miracle!
I am not sure if my ventilator and tracheostomy tube have helped or hindered my medical care regarding my ovarian cyst. Thinking about it, the trach and vent probably helped. The one doctor I saw who sent me to the emergency department was scared since I had a trach and vent that if the cyst ruptured, it would make me really sick. No one has denied me care. It has just been a very long process trying to find the right doctor.
Amazing video ❤
Thank you.
Lovely video and very informative
Thank you.
Fantastic video
Thank you.
You're Amazing...🌻
Thank you.
I took an early pension so I could care for my mom and have her live with me. I have contacted all Home Health agencies within driving distance (aprox 15 agencies) and couldn't find anyone would take a trach client. She has a trach because of intubation complications (scarring/adhesions) so she doesn't need a vent, just something to keep an open airway, and of course suctioning and humidifier. This has been very hard on me as I am needing respite relief! I finally did find someone private (not affiliated with a Home Health Agency) and we've trained her in but I'm worried if/when she wants to move on then we are back to square one! I am just shocked at the lack of resources for help for people with trachs, even the ENT social worker when mom left the hospital told us this was a constant problem when they discharge patients as they didn't have any solutions to give them! Are there any support groups out there for people with trachs so that they can bounce out questions to a like minded community?
Hello. Thank you for sharing some of your story with me. I am so sorry it has been hard to find care for your mom. Home health agencies in my area also do not do respiratory care. Respiratory care tends to be its own separate field.
My medical equipment company employs respiratory therapists. They have a list of people who are available to do in-home care. Most of the time, this is not covered by insurance. If your mom has a medical equipment company, ask if they employ respiratory therapists. If not, there should be a medical equipment company in the area who hires respiratory therapists. Ask if any of their employees would be willing to pick up some extra work by caring for your mom.
Another option is to seek out rehabilitation facilities. Most of the time, they will have listed on their website services offered. If it lists they take CPAP/BiPAP patients, then they have a respiratory therapist on staff. Call the facility and ask if they have respiratory therapists or nurses who know about trach care. Explain your situation and see if they will let you advertise for help with your mom.
Another option: check with the hospital and ask if there are any respiratory therapy training programs in your area. Students may be willing to care for your mom to get experience in the field. It may also be worthwhile to reach out to nursing schools and nursing assistant programs. Students are usually eager to learn and gain experience in the medical field.
I am very sorry it has been so tough on you. I do not know of any resources regarding support groups for tracheostomy tubes. If you are on Facebook, you may want to search "trach tube support group" and see if anything comes up in the search results. All my best to you and your mom.
@@LifewithaVent Thanks for the tips, I think there may be a Respiratory School that I can look into perhaps finding a student.
@@SusieQ-nd3dy I hope everything goes well for you.
Thank you so much because my mom just had to have this done and without her I don't know but I do cuz my dad's already gone
I wish you and your mom all the very best. I am sorry to hear of your dad.
My mom has severe COPD and is currently at the hospital and the docs say that when (or if) she's able to get home will be with the trach and the ventilator, a gastrostomy aswell.
I'm very relieved to see you live so well, but i think my mom's case is different as her lungs doesn't work, i guess. You speak incredibly well also and i hope my mom recover her ability to speak again. Can you eat normally, too?
Hello. Thank you for your kind words. After getting a tracheostomy tube, I was given a swallow test. I passed the swallow test. I can eat by mouth. I hope everything goes well for your mom.
hi, thank you for posting very helpful info about Tracheostomy tube. i also have a Trach but I cannot speak. may I know if it is the ventilator that is helping you to speak? if yes, may I know the specific name or type of the vent you are using and the accessories you are using. thanks in advance 🥰❤️
Although I do use a ventilator, if I disconnect from the ventilator, I can still speak. For me, it does not matter if I do or do not use a ventilator. I can speak either way. If you would like more information on how to speak with a trach tube, please watch the following video: ruclips.net/video/FSL57g7iIN8/видео.html
@@LifewithaVent thank you so much. I will check the link you sent. God bless and take care
@@tinatoon2791 Thank you.
How do you bring your food and equipment on an airplane?
Great question. I hope to do videos about these topics in the future. In short, all ventilator equipment is allowed on the airplane. My food which is IV nutrition called TPN is packed into coolers with ice packs and is checked with the luggage. It flies in the luggage compartment and is picked up in baggage claim.
Sister u can do a daipraghm pacing for mobility
Thank you for the information.
@@LifewithaVent sister wat i want to say is won't daipraghm pacing or pherenic nerve reconstruction of dr Matthew Kaufman procedure help in breathing
@@Himashreetboro If a person has a spinal cord injury, diaphragm pacing may help with breathing. For other medical conditions, diaphragm pacing or phrenic nerve reconstruction may have no effect on breathing or may increase the rate of mortality.
@@LifewithaVent o yeah i got it , respiratory failure is such a bad illness even I am suffering from it from last year