I’ve been dealing with RBD symptoms since I was a kid, im 27 now and still dealing with it. I’m going to see a sleep specialist to see what’s going on. I’m scared 😭😭😭😭
I had a REM sleep behaviour disorder happen once to me, I don’t know if I’ve got Parkinson’s but I have so many non motor symptoms and some of the motor symptoms including freezing
my mother was diagnosed with parkinson's in 2016, but her muscular rigidity and weakness, which started on her left arm, began as early as 2013. it wasn't until a few months into her levodopa therapy in 2016 that she started acting out her dreams. her rem sleep disorder has gotten so much worse now that i myself lose sleep and have probably developed insomnia from frequent awakenings in the middle of the night because of her symptoms.
I have RBD and constipation and my sense of smell is weak. I also fall over randomly…I never thought much of any of these symptoms, but this video is motivating me to go to the doctor!
Thank you for this very informative production. At present, I am working with a Speech Pathologist, and we will be working on 'executive functions' and the Parkinson's disease Plus. Previously ruled out Dyslexia. Working with Grammarly and of course, copyright insurance. Diagnosed in 2013 with Parkinson's Disease Plus and had the STN DBS surgical implant in 2014.
It sounds like RBD should just be considered an early symptom of neurodegenerative disease (PD & LBD in particular). People who have it and don't go on to develop these conditions at some point in the future seem to be the exception rather than the rule. If you include things like Alzheimer's, ALS & prion diseases like CJD I bet the numbers are near 0 by the time of death (if they don't die of something else first). Super scary.
I was diagnosed with RBD. My dreams can be very vivid and i will wake up standing next to the wall about to punch it yelling curse words. One of my great aunts had Parkinson's. How do i get into the study??
I am 66 years old, I've had RBD for at least 28 years. It's never caused a big problem and it doesn't seem to be getting worse. I have no signs of PD or LB. I have never been on antidepressant drugs and never had a brain injury. Is there other causes of RBD? What percent doesn't lead to neurodegenerative disease?
Thank you for your important info. Question, do you agree that Dystonia could be a Parkinson sign? Been suffering from voice to neck in the past 8 yrs. Can barely speak and can not drive too much anymore. My neck will not turned to right. Don't know how to test for Parkinson's. No worries, think I may know what tests maybe needed on Parkinson's. One more major symptom is that I am constantly having tremors in my sleep and during the day. Talking in my sleep and having dreams that seem so real that I am smacking, kicking my husband. All my doctors seem to think that my condition may be nothing. Pretty much about to give up on looking for answers. Thank you loved your presentation.
It appears I do too.Ive had all the symptoms and was in the hospital here in Canada🇨🇦 2 yrs ago for a related stay (Seratonin syndrome) caused by GP misperscribing anti-deppresant medication.I informed them I highly suspected RBD and even had 3 episodes in one night(The last one recorded by the camera above me).That was about my yearly total until then.It proved to be a reaction to a drug called something like LABUTRIN (A grey/white capsule.I written the word many times but my memory is going in certain areas)That many other patients were on as they seem to be handing it out like candy in hospitals and even jail I am told for its sedative quality's.Still they seemed unconcerned about RBD and accused me of partially "faking"the one recorded and the next day triple the amount of this drug was in my medicine cup?! Of course I got myself checked out immediately and soon suffered more side effects that had me unable to lift my feet to walk properly.That passed in a couple weeks time and I think I'm back to the usual yearly total again.I have learned most medical personal doctors and nurses don't seem aware or all that concerned about people like us.They know something's happening of what they call SLEEP PARASOMNIAS but if this may developed in PARKINGTONS I'm only 58 and in good physical health and am considering being a guinnie pig if that's what it takes.I tried the CLONAZAPAM route more than once but it is a BENZODIAZAPAM meaning just a small variation from VALIUM so it should take away enough REM activity to give ya some instant peace if ya need it.But it's very addictive and habit forming so if you find it shuts down other functions you have to keep growing through the withdrawals and then later you need it again.So it will ying\yang ya to use an old adage .So there is quick relief if that's where your at,tell your doctor to prescribe or go to the local ghetto where you live and get CLONAZAPAM or any BENZODIAZAPAM if that's not available.And remember I'm giving you this advice becouse I know what it's like to fight battles with other people\animals\monsters in my sleep and have awakened up bruised,objects thrown about my room,and even hitting the floor in an attempt to elude in my dreams.Sure makes ya feel silly sometimes and is always remembered but others can only imagine what it's like ! Good luck and let me know how it goes😭 !!!
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I’ve been dealing with RBD symptoms since I was a kid, im 27 now and still dealing with it. I’m going to see a sleep specialist to see what’s going on. I’m scared 😭😭😭😭
24 here… same
I had a REM sleep behaviour disorder happen once to me, I don’t know if I’ve got Parkinson’s but I have so many non motor symptoms and some of the motor symptoms including freezing
This guy looks like he’s 19 years old but obviously has at least eight years of hard-core academic/lab work. Genius.
my mother was diagnosed with parkinson's in 2016, but her muscular rigidity and weakness, which started on her left arm, began as early as 2013. it wasn't until a few months into her levodopa therapy in 2016 that she started acting out her dreams. her rem sleep disorder has gotten so much worse now that i myself lose sleep and have probably developed insomnia from frequent awakenings in the middle of the night because of her symptoms.
that was a very informative speech, if someone shows symptoms of RBD, how he/she can prevent from further diseases?
I have RBD and constipation and my sense of smell is weak. I also fall over randomly…I never thought much of any of these symptoms, but this video is motivating me to go to the doctor!
My husband is the same we don't sleep in the same bed any more
Thank you for this very informative production. At present, I am working with a Speech Pathologist, and we will be working on 'executive functions' and the Parkinson's disease Plus. Previously ruled out Dyslexia. Working with Grammarly and of course, copyright insurance. Diagnosed in 2013 with Parkinson's Disease Plus and had the STN DBS surgical implant in 2014.
i think i have RBD. I also have enough Oxy to take myself out before/if i get Parkinson's. No way will i go thru that!
It sounds like RBD should just be considered an early symptom of neurodegenerative disease (PD & LBD in particular). People who have it and don't go on to develop these conditions at some point in the future seem to be the exception rather than the rule. If you include things like Alzheimer's, ALS & prion diseases like CJD I bet the numbers are near 0 by the time of death (if they don't die of something else first). Super scary.
I was diagnosed with RBD. My dreams can be very vivid and i will wake up standing next to the wall about to punch it yelling curse words. One of my great aunts had Parkinson's. How do i get into the study??
I am 66 years old, I've had RBD for at least 28 years. It's never caused a big problem and it doesn't seem to be getting worse. I have no signs of PD or LB. I have never been on antidepressant drugs and never had a brain injury. Is there other causes of RBD? What percent doesn't lead to neurodegenerative disease?
May I ask a question? How frequent are your RBD episodes? I am 62 and remember an episode from over 30 years ago.
Thank you for your important info. Question, do you agree that Dystonia could be a Parkinson sign? Been suffering from voice to neck in the past 8 yrs. Can barely speak and can not drive too much anymore. My neck will not turned to right. Don't know how to test for Parkinson's. No worries, think I may know what tests maybe needed on Parkinson's. One more major symptom is that I am constantly having tremors in my sleep and during the day. Talking in my sleep and having dreams that seem so real that I am smacking, kicking my husband.
All my doctors seem to think that my condition may be nothing.
Pretty much about to give up on looking for answers. Thank you loved your presentation.
THANK YOU SIR🙏
What is the main cause of RBD? DA/nigrostriatal pathway loss?
I’m young and dealing with RBD I think it’s maybe because my PTSD idk
I have RBD. Please help me
It appears I do too.Ive had all the symptoms and was in the hospital here in Canada🇨🇦 2 yrs ago for a related stay (Seratonin syndrome) caused by GP misperscribing anti-deppresant medication.I informed them I highly suspected RBD and even had 3 episodes in one night(The last one recorded by the camera above me).That was about my yearly total until then.It proved to be a reaction to a drug called something like LABUTRIN (A grey/white capsule.I written the word many times but my memory is going in certain areas)That many other patients were on as they seem to be handing it out like candy in hospitals and even jail I am told for its sedative quality's.Still they seemed unconcerned about RBD and accused me of partially "faking"the one recorded and the next day triple the amount of this drug was in my medicine cup?! Of course I got myself checked out immediately and soon suffered more side effects that had me unable to lift my feet to walk properly.That passed in a couple weeks time and I think I'm back to the usual yearly total again.I have learned most medical personal doctors and nurses don't seem aware or all that concerned about people like us.They know something's happening of what they call SLEEP PARASOMNIAS but if this may developed in PARKINGTONS I'm only 58 and in good physical health and am considering being a guinnie pig if that's what it takes.I tried the CLONAZAPAM route more than once but it is a BENZODIAZAPAM meaning just a small variation from VALIUM so it should take away enough REM activity to give ya some instant peace if ya need it.But it's very addictive and habit forming so if you find it shuts down other functions you have to keep growing through the withdrawals and then later you need it again.So it will ying\yang ya to use an old adage .So there is quick relief if that's where your at,tell your doctor to prescribe or go to the local ghetto where you live and get CLONAZAPAM or any BENZODIAZAPAM if that's not available.And remember I'm giving you this advice becouse I know what it's like to fight battles with other people\animals\monsters in my sleep and have awakened up bruised,objects thrown about my room,and even hitting the floor in an attempt to elude in my dreams.Sure makes ya feel silly sometimes and is always remembered but others can only imagine what it's like ! Good luck and let me know how it goes😭 !!!
Dr Tom is a snack 🥰
Yes! 😉🏳️🌈
sir contact and more information
im 30 and I have RBD.
Prions