I was diagnosed in 2014 with discoid lupus. When I started I had dreadlocks that hung down to my shoulders. Well, over the years, my hair started to fall out little by little until the whole top of my head was bald! I was devastated! It has been depressing and heartbreaking for me until one day I decided to go bald! Now I am living to not let lupus win! I can do this and so can you Naomi Rose. Stay strong!
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
Girl, I totally understand. Diagnosed with Lupus in 2015. Suffered a lot including losing all of my hair. Was bald for a year and I wore wigs. My hair has grown back, but it is not as full as it is used to be. I sill have a few bald spots that I try to hide too! Lupus affects everyone differently and I have some scars on my face and body as well. They are dark and I’m working on getting my face to one color. I am so glad you found help to control your symptoms. It’s a tough diagnosis and is very traumatic, but keeping your mind focused on positive things will improve your health overall. I learned that staying positive, exercising , eating right, and seeking god for everything helps you move forward. We can all get stuck, in your body and/or your mind, Lupus or just life experiences. You will have moments, but you have a father who loves you regardless of where you are and what you look like. Stay positive, listen to your body, reduce your anxiety, and allow him to charge you. Plug into him because He is our source. 💕
You're so strong! Thank you for sharing. Definitely keeping my faith, adjusting, and accepting through my journey. You just became a motivation for me!
I feel you on everything you're saying. I don't have Lupus, but having similar issue with hair and skin. You are beautiful, stay prayed up, that's what I do to get thru each day. God bless you.
I’ve had Lupus for over 17 years I’ve been through and experienced a lot. If ever you need anything or have any questions don’t hesitate to reach out to me or the Lupus community. We are a big community and the support we receive from each other is indescribable. God bless you on your journey.
Also please don’t feel embarrassed. I had so many spots that I was looking rough out here in these streets. Men’s rogaine and time helped. Oh and stress please try not to stress about anything. Stress can makes our condition flare up.
@@deedeeg.7519 not really a specific group. I’m part of the lupus foundation of Georgia. There are chapters in every state. But I also met a lot of other lupus warriors through IG. They are so welcoming, helpful and supportive.
@@tezzie6722 I was diagnosed at 18 and my only symptoms were fatigue and hair loss. While going to different drs trying to figure out what was wrong I started experiencing joint pain and swelling.
You are still so beautiful, and so strong for being able to post this. Not everyone could cope with something like this at such a tender age. I am also 23 and I could only image how you feel right now. Prayers for you 🤍💕
Thanks for sharing your journey. I was diagnosed with SLE Lupus and Rheumatoid Arthritis 23 years ago. I'm 55. My son is 24 yrs old. I'm thankful that I've been able to see my son grow up. Everyday is a blessing. I manage my Lupus & RA one day at a time.
Your transparency is so amazing, you’re really an inspiration. Your hair and skin does not define you and I truly think this can bring you to a higher purpose to help more people. You got this and all your supports got you!!
You’re very strong cause I couldn’t come on camera to explain my lupus situation especially when it’s something new .. you’re good And your gonna be great stay positive 💖💖
Yes- they hurt. U can feel them & it’s like they branch off from each other. I had to stop lightening my hair. Took forever for a diagnosis. Yes the steroid liquid burns. I cried, shaved my head… the scabs & sores are embarrassing. Creams work a little for me. The scars on the face really suck & last forever, but I’m blessed that those scars faded w/ help of Ambi cream after they’ve ran their course. You are not alone. Take ur Plaquenil, use the steroid creams/foams/ solutions, etc. Since this video is a year old, has it gotten better?? God bless you! ❤
Thank you for sharing your journey. You are not alone and I’m sure you are helping others with Lupus and other autoimmune disorders. I don’t have Lupus but have been dealing with Crohn’s Disease for decades and it hasn’t been easy because its like an invisible disease where I look healthy on the outside but on the inside I’m far from it. I no longer work and I’m on disability because of the disease and have been for at least 20 years. I wish there were more brave and honest people like you that were sharing their stories when I was diagnosed. Please don’t be embarrassed as you have nothing to be embarrassed about. You are absolutely beautiful and your journey isn’t about you. God is using you and this test will indeed be your testimony. Keep leaning on God and know that all things work together for the good of them that love the Lord. I love you and you will continually be in my thoughts and prayers.
You feel embarrassed, while we over here talking about “oooo she’s so pretty” 😌Thank you for your transparency! I have a severe case of dermatitis & girl 😑 flakes on flakes everywhere when it decides to flare .
I was diagnosed with lupus and my first rheumatologist appointment is next week. However the insecurities are real and this dis-ease is stressing. You are gorgeous even though your going through stay strong
Hi love - just wanted to share my journey with discoid lupus with you. I first noticed a pink/red spot appear on my face around 2013, when I was 24. I thought it was a bug bite or something, and assumed it would go away. Needless to say, it never did. It grew in size from a seed to a grape, and became so inflamed that my friends became concerned. I finally went to the dermatologist and he gave me a cream and said he didn’t want to do a biopsy because he didn’t want to “ruin my pretty face.” I used the cream for 1-2 months - no change. I went back and he finally said, “OK. I think I know what this is.” He didn’t tell me in the moment but I got a call from his office, telling me I had lupus. They said it was likely discoid and not systemic. They gave me *another* cream. I didn’t feel comfortable using it, but I did. I honestly don’t know if it helped much, but over time, the spot healed and became a somewhat dark scar. Today, you can barely see it. I say all this to say, please just give it some time. It’s very scary and jarring in the moment, but it’s not the end all, be all. Also, my sister was recently diagnosed with discoid lupus as well. She is having issues with her hair, like you. We’re still working through it together, but I just wanted to let you know that you’re not alone, and there is hope! Sending you much love. ❤️❤️❤️
Stay strong…you got this! I had a few friends growing up from a young age who had lupus! The skin breakouts and hair loss vary from person to person….which I am sure you know. So, all you can do is stay positive and take it a day at a time.
Hey Girl love your video. I was diagnosed systemic and skin lupus at 16. I am now 24. Take care of yourself, watch what you eat, workout and when in the sun make sure you have sunscreen on and it will get better.
If you don’t mind me asking what treatments have you tried? I suffered alopecia and my hair grew back using a solution treatment - I haven’t had any more bald patches for 2 years now 🤞🏾🙏🏾
@@deidrejohnson7601 it’s called DCP Diphencyprone - I went through a private clinic (rather than the nhs) and they went through a few potential treatments but this one has personally been the best so far for me. I hope you’re able to get access to it or some more options for yourself to help with treatment 🙏🏾
I’ve also been diagnosed with Lupus and have done tons of research. The biggest play to reduce and potentially eliminate flare ups is a combination of a “gluten & dairy free anti-inflammatory diet”; cut sweets, fried foods, google the anti-inflammatory diet and food lists. Also incorporate regular acupuncture to regulate your immune system, and infrared sauna exposure. Keep fresh ginger and turmeric shots in your morning routine. Good luck sis ❤
I got diagnosed at 24 and I’m in my 30s now it’s been a journey and it’s not over! So glad to come across this video the support and this community is very essential to my health&happiness and I’m sure someone else’s too
I have lupus to and I have hair loss, and it effects my skin as well and have been looking for help. It depressed my on a daily basis so seeing you helps alot
I have mctd but I fr have lupus symptoms and in 2020 my hair fell out just like that I really couldnt process it emotionally because of everything going on but also alll my life since I was a lil girl ive always had rheumatoid issues and it took me a while to get diagnosed right
Omg the entire video I just kept thinking someone finally understands whats i'm going through!!! I was diagnosed with lupus in 2014. I was a sophomore in high school and my lupus was very active then. I was removed from gymnastics class and gym period because my hands were so swollen and joints hurt so bad. I can agree with you on the staying inside part. I sometimes forget to wear my sunscreen too. I'm so paranoid whenever I go out and it's sunny. I wear hats to protect my face and scalp. Sun glasses are great too to protect the face and eyes. I also experienced hair loss and it was so devastating for me. My scalp has gotten so sensitive over the years to the point I can't get braids. I've always had long healthy hair so it was hard to see my hair start thinning. I remember one day I was washing my hair and decided to record the process and was shocked to see there was a big bald spot in the back of my head. My mom thought I should just chop all my hair off but I was not ready to. I just continued to care for my hair and it has grown back and is flourishing!!! As long as you are eating right, drinking plenty water, not stressing and caring for your hair properly it will grow back. Don't let lupus defeat you!! You are beautiful and your hair does not define you. I am 23 years old as well and living with lupus is a daily battle but with God all things are possible!!! I'm looking forward to more videos on this topic.
💜😢 *hugs* I understand and you are not alone! I was diagnosed with Lupus in 2018, no illness is easy to go through. But, with continued strength and keeping up the brave fight. You got this! I stumbled across your channel from my YT recommendations and your story is truly powerful because you never know what someone is going through. Everything you’re going through sounds all to familiar. Just remember you are beautiful and we will conquer all of this!
I found out about me having lupus 2 years ago. It has not been easy my legs, back, arms and pure tiredness every day. I fight every day to try and have day. There is not enough videos about lupus. Thank you for making this video!!
Awww you’ll be rewarded for your transparency. My mom has lupus and you just give so much insight for what she’s been going through…I know it takes a lot to share something that’s so new to you, but theirs healing that comes with you sharing… Sending so much love, light and healing energy❤️ don’t get discouraged! I’m rooting for you, your success and overcoming this obstacle! You’re doing a great job ❤️
@@Leena_Here I didn’t say anything about a crystal, here… this is an overall uplifting comment, so what are you speaking on? And why are you talking to me bringing that type of energy to a naturally positive comment? Do I know you?
@@confessionsfrom25 You said (Energy) Which is what most New Age Believers say when speaking to others about positive and negative energy. Just a eye opener that it's not of GOD. And i was talking to You, Not the women.
@@Leena_Here I don’t need you to pick apart my statements. You go use your channel for your highest good, create videos and show your face and share your light, verses condemning people and picking apart their uplifting statements in the comments of others videos..
@@Leena_Here you have so much to say but have no videos posted… and it doesn’t seem like you were trying to “spread light or educate” you came to my comment to condemn me for my terminology.
I have it too, it stresses me out. I’ve been having scalp lesions since I was a little girl. The bald spots, the hair loss, the lesions on my body parts… it’s depressing and messes with my self esteem big time sometimes. Thank you for talking about it and being transparent, I hid behind it for so long.
JESUS CHRIST HEAL ALLLLLLL DISEASES....FASTING AND PRAYING WILL GET RID OF THAT LUPUS ONCE AND FOR ALL...LET GOD LEAD YOU TO YOUR CURE...LET GOD GIVE YOU DIRECTION IN THIS MATTER...GOD HAS ALL THE ANSWERS 🙌🙌🙌🙌🙌🙌🙌🙌
You are still blessed because I also have systemic lupus and my edges are gone and my bald spot is in the back. My skin went from clear to a face covered in blemishes in a matter of a couple of days. Now they are appearing on my body. And we are definitely blessed to be alive ❤️🙏
Hey girl , we used to work together at the world of coke , i been seeing your videos pop up out the blue and i see your still doing this RUclips thing that’s great ! i couldn’t possibly know what your going through with this new found health condition but your beautiful girl , keep up the good work.
There's a group for people who have been diagnosed with lupus. Also please look up herbs and foods that help as well as hurt lupus flares. I suffer from it as well💜💜
You are beautiful in and out! I have MS and my life has changed complete 360. My speech, walk, memory and all. But I came out about it and accepted it. It could have been worse. Just thank God we are still here. We have a testimony to tell. God bless you beautiful
Hi Stephanie I have MS to. I was diagnosed in 2016. It is tuff but I remind myself that nothing is greater than My Father in Heaven. That's what keep me🤭
Hey beautiful, this brought me to tears. I can tell that you are a beautiful person inside and out. Please don't be to hard on yourself. You are too gorgeous to be embarrassed about anything! God is with you at all times!
Your story popped up on my feed and I had to respond after viewing your video. Our lupus stories are so similar, its scary! I started having symptoms shortly after having my daughter. It took an entire year of excruciating pain before I was finally diagnosed with SLE. Over 20 years later and I'm still here. I say that to say you can do this. You will adjust to your new normal. I have alopecia and had the same patches, when the flare was over my hair grew back. I didn't get the butterfly rash that you appear to have, my flares impacted my joints. Some of the things that helped me get through my flares is having a good Rheumatologist and Dermatologist, getting enough sleep, watching what I ate, drastically reducing stress because as with all illness, symptoms will get worse if you are stressed. Even though I fought it at first, taking my medicine. I was on prednisone and plaquenil, that combo calmed my flares down and eventually I was able to get off of the prednisone. Maybe talk to your doctor about plaquenil or another anti-inflammatory medicine that is suitable for you. It will calm the inflammation in your body. I take it long term to minimize the severity of my flares. The side effects are minimal. Listen to your body, communicate all new symptoms to your Rheumatologist and make sure you are doing self-care when you can and as you mentioned in your video, above all else continue to go to God for strength to get through this. Psalm 55:22. Remember you have to be in good spirits for your baby boy, he needs you. Lean on your support system when things get too overwhelming, then get back to business. I don't know you personally, but I am here for you too. I am willing to share all that has helped me cope through the years.
Wow. This really means a lot. I'm actually taking the same medications you mentioned and they've been helping even though this is all new to me. I feel like it could definitely be worse so I'm putting God first and going from there. I'm definitely in the mindset of adjusting and accepting. Of course it's a working progress but I'm ready for it. Thank you again for your optimism!
I feel your pain through my screen but stay strong. You are beautiful with or without makeup. This platform you have here seems like it’s therapeutic to really talk and get things out. Girl keep talking to us and I’m praying for your healing ❤️🩹. I’m in remission from breast cancer so I can relate when it comes to things happening to your body and the struggles and strength of going through it and recovering from it or just living your best life with it. Thanks for being a help to others. You’re not alone. Take care. Blessings 💕
It's so nice to see u again please don't apologize for crying because this is not easy to deal with and your doing a good job! It's going to be ok my best friend has lupus so my heart goes out to u ! Your a sweet 💕 and u sharing your journey with lupus helps so many! I'm sure please don't expect so much from yourself..I give u so much credit for even opening up and I appreciate u!!
You are soooooo brave for this. I have so much respect for you and sharing your journey. Just sending love your way and I pray that this diagnosis does not consume you and your life even through the changes. God always has a way of doing things, dig deep and discover what joy and what things in general you can take away from these experiences and this journey. It’s important to also make sure that you have pppl around you that are understanding and loving and willing to be on this journey with you. I understand why you are embarrassed BUT life is all about adjusting and changes. Us as humans forget that when you become comfortable with what is. This is just a new chapter dont view or focus on the chapter that is ending. YOU HAVE LIFE! Your life is so valuable. Keep living , keep growing , keep glowing boo. Wishing you the very best.
Being diagnosed in 2014 with Lupus SLE 4/5, I definitely understand. Lots of ups and downs with haircare and skincare, but also my lifestyle period. It’s a lot to deal with. Just recently changed my career (again!) in 2020, due to another stress flare up of my massage therapy job being too much to deal with. My RA became more active, skin broke out in rashes and my hair started falling out. The heightened stress of the pandemic didn’t help much either. Now, I’m at a point where I’m more self aware of what’s going on with my physical, mental and emotional state, which helps with managing the lupus. Also, having people to talk to who are in a similar situation helps with not feeling so isolated. Family and friends that are supportive help, but it’s not the same as having a group that can relate. I just found your video, and not sure what all you’re doing and what’s your regimen or routine. I know that me and a few others from my support group tend to utilize skincare and haircare products that are Ayurvedic based and stay with protective styles for low maintenance (too tired to do anything extra, ya feel me😅). I also make sure to add (not take away) things to my diet that are helpful to the system like fermented foods (check out Cultured Food Life channel), desiccated animal organ supplements (if you’re not vegan 🤷🏾♀️), and eating locally grown foods that aren’t processed. Keeping up the energy has been key. Movement with the body (as a fitness instructor) has helped control the stress too. And whenever I do exercise, I always make sure to recover properly (self massage, anti inflammatory shakes, fascia blasting, sound healing and SLEEP). I understand that not everyone’s journey is the same, but it’s a rough road all the same and hope you have the support you need. I’ll keep looking through your posts and see how you’re coming through it. Prayers to you and the rest of us who are dealing with this invisible illness that challenge us to our very core. And thank you for being one of the brave ones who are giving voice to the journey that many of us face. ❤❤❤
I know it’s a big change for you & I’m praying you stay positive throughout your journey, it’s funny how we take lil stuff like our hair & skin for granted cause we never think something like this can happen to us so randomly. But honestly your skin doesn’t look bad at all I wish my skin look like yours I have pcos and I get pretty bad skin from that as well.
Girl you are so beautiful I literally be infatuated whenever you pop up on my feed. You are very strong and you been doing your thing! I personally don’t have lupus but my nana does and lupus was also a part of my boyfriends family. I still don’t know too much about it but I want to learn more. We’re here for you of course!
I was diagnosed with lupus 2 months ago, I have locs and have not gotten a retwist or been to the barbershop in 6 months. Keep up the great vids, very very inspiring g 💙
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
I will be praying for you. May the father cover & protect you dear. May God heal and restore every single hair stand on your head! I ask for a miracle😘
You are beautiful! I appreciate you sharing your experience & truth with Lupus! You will inspire & help others struggling with the same condition or something similar! God Bless!
I worked at a fresh juice bar and regular customer was able to get free from ALL meds by drinking 6 of our 16oz beet juices every day! Now she's a sports massage therapist in the NFL! She wasn't old but she's not as young as you are. She might have been 45-50. I'm actually praying for u for real! I hope this helps! I tell everyone I know that has lupus to drink/eat lots of beets. Stay strong beautiful! 💪🏾 💜
Girl i am suffering from lupus since 2009 my joints got swollen lots of pain loosing my hair have to wear wigs sometimes i go in to depression ,so am so happy i get to see that am not alone i subscribe so i could learn more thanks for sharing
Some of the medication can itch and burn according to my dermatologist. You should check with your dermatologist, but mine suggested to put it in the refrigerator so that when it’s cold and applied it feels a little bit better.
Girl I feel you so much. I just found your page today cause I’m struggling with my own newly found lupus journey. My hair is in shambles. And I honestly do not feel as beautiful as I did before. It’s a hard journey and hard to process in general.
Thank you… I really want to make awareness but my face has lesions because of my discoid lupus so I appreciate you and your a motivator thank you for just being so transparent 💯
Thank you for being so brave. It’s been 14 years and I not afraid of the changes my body is going through. My hair is thin only in the front and I tried to hide it but it’s difficult. Just great full for everything. Your doing a great job.
Hi there I too have lupus for 7years now along with my daughter and granddaughter.its not easy at all and you want to say why.but I really don't know but keep your head up do what you need to do.i wear wigs now because I can't grow my hair back .but I live my life and God is good and keep your faith sweetheart.your a beautiful woman ,💜💜💜💜lupus warrior
Hi my name is Tamara McBride I'm 30 I've had lupus for 13 years now mines has gotten worse I think causes my hair to fall out my hands feet everything hurts and is open constantly I watched ur video for support
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
Your such a beautiful person either way. I know it's hard to have health issues and be a mom all the same time. I have sjogrens and it come with a whole load of crap. I pray you pull this all and stay strong and don't let social media dictate what's beautiful or how you should feel. God bless you and your beautiful family.
Sis you’re so strong and still beautiful, I know it’s hard but please don’t let Lupus get you down. I pray and hope your hair and skin gets better, look into a whole anti-inflammatory diet, get plenty of sleep, up your usage of water and healthy foods in general and stay faithful in god and the fact that you’re an amazing strong woman. May everything work out in your favor and god bless ❤️❤️
I also have lupus and use the same drops. The reason why it can burn is because it has isopropyl alcohol in it. So don't scratch before use and wait at least an hour or more after you wash your hair. A Tar based shampoo (T-gel)helps me too. I was diagnosed 5 years ago but i was also misdiagnosed (alopecia) for at least 3. I will be praying for you 💗🙏🏿.
Your such an inspiration, you are still very beautiful your skin and hair. To be able to come on here and tell people your testimony shows how brave you are! I have epilepsy, so I can relate on the feeling embarrassed, but your beautiful queen always remember that!
Hi Naomi. I just saw your first lupus video and now watching this video. I was diagnosed December 2018 and you are not alone! I have SLE (and technically discoid lupus as well, but it is easier just to put it under SLE). I take medication twice a day and fortunately have not had a flare until the past couple of weeks. While flares are not fun (I know mine isn’t!). , I am grateful this is my first one and I know it lupus can be so much worse. Many hugs to you and Happy Lupus Awareness Month 💜
Girl you are still beautiful inside and out, And God will NEVER put more on you than you can handle. Everything happens for a reason good and bad and that sounds so cliche but its the truth and I feel like you're being so strong about it that, you will overcome this with that strength alone! I am a firm believer in natural remedies and self healing so I will look more into that but you still pretty! still pushing! and still strong! and anyone that talks down or judges you has a long walk of shame in front of them! I know you may feel insecure to the changes and that it is something that you're dealing with but nothing is ever permanent not even a tattoo. Love you so much keep shining bright Nay
Just know this hun, I pray for you more than I pray for my self and I know that one day god will answer my prayers for you, just keep staying positive and know that you have someone to live for YOUR SON!!
You’re still soooooo beautiful… God bless you on your journey, and I truly pray that he heals your body… Thank you for being so brave & strong and sharing your story… ❤️❤️❤️
I have Lupus and I suggested to you is to stop coloring your hair really any chemicals I would avoid my hair falls out but most of it grows back let it breathe as much as possible
I was diagnosed with discoid lupus last year after I had a scalp flare up and lost my hair at the very top of my head. I had long healthy locs and had to cut them out because of how bad my scalp was hurting and inflamed. DL has my hair thinning in the front and my self esteem has taken a hit as well.
Honey thank you cause I just got diagnosed with lupus at 38 and my scalp was always dry with sores and super dry scalp nothing worked on it I just want to say thank you for sharing your story it is informative
I have Lupus also, I know that you are trying to adjust to your diagnosis and God will see you through!! I have spots on my face and all over my body and it's annoying 😒. I will keep you in my thoughts and prayers 🙏🏿.
You are drop dead gorgeous ✨ I pray everything gets better for you! I love your energy💕 keep doing what you’re doing, God has something great in store for you😌😇
It's crazy the thinks we go through in life.... smh. But the man that God send you sis will accept your bold spots and by the grace of the Lord Jesus Christ you shall be healed. Stay positive and keep strong sister.
You are so beautiful inside and out. You have a great attitude which will carry you through life. I cut my hair too. It had 2 baldspots. My short hair doesn't look cute like yours. My hair was good too and my skin. I will keep in touch with you always. I've had it 15 years but I think I've had it alot longer. I have to seriously let you know you still have good looking hair. We notice it more than others. You are helping me too‼️ Until later👍✌️💖
I was diagnosed in 2014 with discoid lupus. When I started I had dreadlocks that hung down to my shoulders. Well, over the years, my hair started to fall out little by little until the whole top of my head was bald! I was devastated! It has been depressing and heartbreaking for me until one day I decided to go bald! Now I am living to not let lupus win! I can do this and so can you Naomi Rose. Stay strong!
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
@wisdomproverb9196 LISTEN AND LEARN SOMETHING
It’s not embarrassing sis. You have a condition, don’t feel embarrassed!
That’s what I was saying
She knows she has a condition though
I have lupus also since 16 years old.Your beautiful do not be embarrassed I am now 61 and by God's grace im still here
Girl, I totally understand. Diagnosed with Lupus in 2015. Suffered a lot including losing all of my hair. Was bald for a year and I wore wigs. My hair has grown back, but it is not as full as it is used to be. I sill have a few bald spots that I try to hide too! Lupus affects everyone differently and I have some scars on my face and body as well. They are dark and I’m working on getting my face to one color. I am so glad you found help to control your symptoms. It’s a tough diagnosis and is very traumatic, but keeping your mind focused on positive things will improve your health overall. I learned that staying positive, exercising , eating right, and seeking god for everything helps you move forward. We can all get stuck, in your body and/or your mind, Lupus or just life experiences. You will have moments, but you have a father who loves you regardless of where you are and what you look like. Stay positive, listen to your body, reduce your anxiety, and allow him to charge you. Plug into him because He is our source. 💕
You're so strong! Thank you for sharing. Definitely keeping my faith, adjusting, and accepting through my journey. You just became a motivation for me!
@@NaomiRoseM Sorry so late. Praise Jesus🙌🏾. It also helps to be part of a support group! We got to support each other!
I feel you on everything you're saying. I don't have Lupus, but having similar issue with hair and skin. You are beautiful, stay prayed up, that's what I do to get thru each day. God bless you.
I’ve had Lupus for over 17 years I’ve been through and experienced a lot. If ever you need anything or have any questions don’t hesitate to reach out to me or the Lupus community. We are a big community and the support we receive from each other is indescribable. God bless you on your journey.
Also please don’t feel embarrassed. I had so many spots that I was looking rough out here in these streets. Men’s rogaine and time helped. Oh and stress please try not to stress about anything. Stress can makes our condition flare up.
@@StephanieBeThrivin what's the name of group you're in?
@@deedeeg.7519 not really a specific group. I’m part of the lupus foundation of Georgia. There are chapters in every state. But I also met a lot of other lupus warriors through IG. They are so welcoming, helpful and supportive.
Any signs of Lupus when you were younger or were you diagnosed as a child?
@@tezzie6722 I was diagnosed at 18 and my only symptoms were fatigue and hair loss. While going to different drs trying to figure out what was wrong I started experiencing joint pain and swelling.
You are still so beautiful, and so strong for being able to post this. Not everyone could cope with something like this at such a tender age. I am also 23 and I could only image how you feel right now. Prayers for you 🤍💕
Thanks for sharing your journey. I was diagnosed with SLE Lupus and Rheumatoid Arthritis 23 years ago. I'm 55. My son is 24 yrs old. I'm thankful that I've been able to see my son grow up. Everyday is a blessing. I manage my Lupus & RA one day at a time.
Your transparency is so amazing, you’re really an inspiration. Your hair and skin does not define you and I truly think this can bring you to a higher purpose to help more people. You got this and all your supports got you!!
Thank you thank you thank youuuu! This means a lot!
You’re very strong cause I couldn’t come on camera to explain my lupus situation especially when it’s something new .. you’re good
And your gonna be great stay positive 💖💖
Yes- they hurt. U can feel them & it’s like they branch off from each other. I had to stop lightening my hair. Took forever for a diagnosis. Yes the steroid liquid burns. I cried, shaved my head… the scabs & sores are embarrassing. Creams work a little for me. The scars on the face really suck & last forever, but I’m blessed that those scars faded w/ help of Ambi cream after they’ve ran their course. You are not alone. Take ur Plaquenil, use the steroid creams/foams/ solutions, etc. Since this video is a year old, has it gotten better?? God bless you! ❤
Thank you for sharing your journey. You are not alone and I’m sure you are helping others with Lupus and other autoimmune disorders. I don’t have Lupus but have been dealing with Crohn’s Disease for decades and it hasn’t been easy because its like an invisible disease where I look healthy on the outside but on the inside I’m far from it. I no longer work and I’m on disability because of the disease and have been for at least 20 years. I wish there were more brave and honest people like you that were sharing their stories when I was diagnosed. Please don’t be embarrassed as you have nothing to be embarrassed about. You are absolutely beautiful and your journey isn’t about you. God is using you and this test will indeed be your testimony. Keep leaning on God and know that all things work together for the good of them that love the Lord. I love you and you will continually be in my thoughts and prayers.
You feel embarrassed, while we over here talking about “oooo she’s so pretty” 😌Thank you for your transparency! I have a severe case of dermatitis & girl 😑 flakes on flakes everywhere when it decides to flare .
Me too I have really bad eczema and psoriasis flakes everywhere and embarrassing mainly in my face
Me too
I was diagnosed with lupus and my first rheumatologist appointment is next week. However the insecurities are real and this dis-ease is stressing. You are gorgeous even though your going through stay strong
Thank you love!
We love you Naomi! You are beautiful. Thank you for the transparency.
So sorry for all that you’re going through. Wishing you a speedy recovery.
FYI you’re freaking gorgeous
Don't apologize or feel bad it's not your fault, many blessings to you
Hi love - just wanted to share my journey with discoid lupus with you. I first noticed a pink/red spot appear on my face around 2013, when I was 24. I thought it was a bug bite or something, and assumed it would go away. Needless to say, it never did. It grew in size from a seed to a grape, and became so inflamed that my friends became concerned. I finally went to the dermatologist and he gave me a cream and said he didn’t want to do a biopsy because he didn’t want to “ruin my pretty face.” I used the cream for 1-2 months - no change. I went back and he finally said, “OK. I think I know what this is.” He didn’t tell me in the moment but I got a call from his office, telling me I had lupus. They said it was likely discoid and not systemic. They gave me *another* cream. I didn’t feel comfortable using it, but I did. I honestly don’t know if it helped much, but over time, the spot healed and became a somewhat dark scar. Today, you can barely see it. I say all this to say, please just give it some time. It’s very scary and jarring in the moment, but it’s not the end all, be all. Also, my sister was recently diagnosed with discoid lupus as well. She is having issues with her hair, like you. We’re still working through it together, but I just wanted to let you know that you’re not alone, and there is hope! Sending you much love. ❤️❤️❤️
Stay strong…you got this! I had a few friends growing up from a young age who had lupus! The skin breakouts and hair loss vary from person to person….which I am sure you know. So, all you can do is stay positive and take it a day at a time.
Hey Girl love your video. I was diagnosed systemic and skin lupus at 16. I am now 24. Take care of yourself, watch what you eat, workout and when in the sun make sure you have sunscreen on and it will get better.
I'm praying for your quick healing and remember your still that amazing person you were before, don't let this ruin your happiness
I’m sorry that you are going through this. I can relate because I too suffer from a type of alopecia. It’s not fun.
you're so srong!
If you don’t mind me asking what treatments have you tried? I suffered alopecia and my hair grew back using a solution treatment - I haven’t had any more bald patches for 2 years now 🤞🏾🙏🏾
@@nataliethompson2811 what solution might I ask
@@deidrejohnson7601 it’s called DCP Diphencyprone - I went through a private clinic (rather than the nhs) and they went through a few potential treatments but this one has personally been the best so far for me. I hope you’re able to get access to it or some more options for yourself to help with treatment 🙏🏾
Don’t be embarrassed love. You’re so brave for showing this. Like so so brave. Praying for your healing ❤️ you’re so strong, remain positive girl.
The fact that you are embarrassed by it is breaking my heart. I literally am crying watching this.
Your journey is amazing you are going to help alot of people. Don't be ashamed at all you are beautiful!!! God is with you
I’ve also been diagnosed with Lupus and have done tons of research. The biggest play to reduce and potentially eliminate flare ups is a combination of a “gluten & dairy free anti-inflammatory diet”; cut sweets, fried foods, google the anti-inflammatory diet and food lists.
Also incorporate regular acupuncture to regulate your immune system, and infrared sauna exposure.
Keep fresh ginger and turmeric shots in your morning routine. Good luck sis ❤
Also eliminate alcohol, it causes inflammation too
I got diagnosed at 24 and I’m in my 30s now it’s been a journey and it’s not over! So glad to come across this video the support and this community is very essential to my health&happiness and I’m sure someone else’s too
You are SO brave for sharing your story. You are still beautiful, keep shining your light
I have lupus to and I have hair loss, and it effects my skin as well and have been looking for help. It depressed my on a daily basis so seeing you helps alot
I have mctd but I fr have lupus symptoms and in 2020 my hair fell out just like that I really couldnt process it emotionally because of everything going on but also alll my life since I was a lil girl ive always had rheumatoid issues and it took me a while to get diagnosed right
Omg the entire video I just kept thinking someone finally understands whats i'm going through!!! I was diagnosed with lupus in 2014. I was a sophomore in high school and my lupus was very active then. I was removed from gymnastics class and gym period because my hands were so swollen and joints hurt so bad. I can agree with you on the staying inside part. I sometimes forget to wear my sunscreen too. I'm so paranoid whenever I go out and it's sunny. I wear hats to protect my face and scalp. Sun glasses are great too to protect the face and eyes. I also experienced hair loss and it was so devastating for me. My scalp has gotten so sensitive over the years to the point I can't get braids. I've always had long healthy hair so it was hard to see my hair start thinning. I remember one day I was washing my hair and decided to record the process and was shocked to see there was a big bald spot in the back of my head. My mom thought I should just chop all my hair off but I was not ready to. I just continued to care for my hair and it has grown back and is flourishing!!! As long as you are eating right, drinking plenty water, not stressing and caring for your hair properly it will grow back. Don't let lupus defeat you!! You are beautiful and your hair does not define you. I am 23 years old as well and living with lupus is a daily battle but with God all things are possible!!! I'm looking forward to more videos on this topic.
💜😢 *hugs* I understand and you are not alone! I was diagnosed with Lupus in 2018, no illness is easy to go through. But, with continued strength and keeping up the brave fight. You got this! I stumbled across your channel from my YT recommendations and your story is truly powerful because you never know what someone is going through. Everything you’re going through sounds all to familiar. Just remember you are beautiful and we will conquer all of this!
I found out about me having lupus 2 years ago. It has not been easy my legs, back, arms and pure tiredness every day. I fight every day to try and have day. There is not enough videos about lupus. Thank you for making this video!!
Awww you’ll be rewarded for your transparency. My mom has lupus and you just give so much insight for what she’s been going through…I know it takes a lot to share something that’s so new to you, but theirs healing that comes with you sharing…
Sending so much love, light and healing energy❤️ don’t get discouraged! I’m rooting for you, your success and overcoming this obstacle!
You’re doing a great job ❤️
If you talking about Crystals, and magic and stuff, That's demonic. It's honestly entertaining demons.
@@Leena_Here I didn’t say anything about a crystal, here… this is an overall uplifting comment, so what are you speaking on? And why are you talking to me bringing that type of energy to a naturally positive comment? Do I know you?
@@confessionsfrom25
You said (Energy) Which is what most New Age Believers say when speaking to others about positive and negative energy. Just a eye opener that it's not of GOD.
And i was talking to You, Not the women.
@@Leena_Here I don’t need you to pick apart my statements. You go use your channel for your highest good, create videos and show your face and share your light, verses condemning people and picking apart their uplifting statements in the comments of others videos..
@@Leena_Here you have so much to say but have no videos posted… and it doesn’t seem like you were trying to “spread light or educate” you came to my comment to condemn me for my terminology.
It takes so much courage and strength to share your truth may god bless you ❤️
I have it too, it stresses me out. I’ve been having scalp lesions since I was a little girl. The bald spots, the hair loss, the lesions on my body parts… it’s depressing and messes with my self esteem big time sometimes. Thank you for talking about it and being transparent, I hid behind it for so long.
You beautiful naturally! With or without lupus, learn to love the journey❤️
JESUS CHRIST HEAL ALLLLLLL DISEASES....FASTING AND PRAYING WILL GET RID OF THAT LUPUS ONCE AND FOR ALL...LET GOD LEAD YOU TO YOUR CURE...LET GOD GIVE YOU DIRECTION IN THIS MATTER...GOD HAS ALL THE ANSWERS 🙌🙌🙌🙌🙌🙌🙌🙌
Amen!!!
Stop the nonsense! God provided us with herbs, doctors, specialists, etc.
@@sharonguyton9119 I REBUKE YOU, IN JESUS NAME, GET YE BEHIND ME SATAN 🙌🙌🙌🙌
AMEN!!!!!!!!!
@@wisdomproverb9196 In Jesus name Amen!!!
Aww boo it’s gonna be ok you’re giving me flashbacks 🥺😔🤦🏽♀️
Praying for you 💖💖💖
You are still blessed because I also have systemic lupus and my edges are gone and my bald spot is in the back. My skin went from clear to a face covered in blemishes in a matter of a couple of days. Now they are appearing on my body. And we are definitely blessed to be alive ❤️🙏
Hey girl , we used to work together at the world of coke , i been seeing your videos pop up out the blue and i see your still doing this RUclips thing that’s great ! i couldn’t possibly know what your going through with this new found health condition but your beautiful girl , keep up the good work.
Aww hey girl! Thank you so much. Keeping my faith and moving through it!
There's a group for people who have been diagnosed with lupus. Also please look up herbs and foods that help as well as hurt lupus flares. I suffer from it as well💜💜
You are beautiful in and out! I have MS and my life has changed complete 360. My speech, walk, memory and all. But I came out about it and accepted it. It could have been worse. Just thank God we are still here. We have a testimony to tell. God bless you beautiful
You're so strong! Thank you!
Hi Stephanie I have MS to. I was diagnosed in 2016. It is tuff but I remind myself that nothing is greater than My Father in Heaven. That's what keep me🤭
@@NaomiRoseM keep your head up and remember God is BIGGER💕
Im praying for u ❤️🙏🥰i love how strong you are
Hey beautiful, this brought me to tears. I can tell that you are a beautiful person inside and out. Please don't be to hard on yourself. You are too gorgeous to be embarrassed about anything! God is with you at all times!
Keep inspiring every little bit matters and there's a little girl somewhere thankful for you
Your story popped up on my feed and I had to respond after viewing your video. Our lupus stories are so similar, its scary! I started having symptoms shortly after having my daughter. It took an entire year of excruciating pain before I was finally diagnosed with SLE. Over 20 years later and I'm still here. I say that to say you can do this. You will adjust to your new normal. I have alopecia and had the same patches, when the flare was over my hair grew back. I didn't get the butterfly rash that you appear to have, my flares impacted my joints. Some of the things that helped me get through my flares is having a good Rheumatologist and Dermatologist, getting enough sleep, watching what I ate, drastically reducing stress because as with all illness, symptoms will get worse if you are stressed. Even though I fought it at first, taking my medicine. I was on prednisone and plaquenil, that combo calmed my flares down and eventually I was able to get off of the prednisone. Maybe talk to your doctor about plaquenil or another anti-inflammatory medicine that is suitable for you. It will calm the inflammation in your body. I take it long term to minimize the severity of my flares. The side effects are minimal. Listen to your body, communicate all new symptoms to your Rheumatologist and make sure you are doing self-care when you can and as you mentioned in your video, above all else continue to go to God for strength to get through this. Psalm 55:22. Remember you have to be in good spirits for your baby boy, he needs you. Lean on your support system when things get too overwhelming, then get back to business. I don't know you personally, but I am here for you too. I am willing to share all that has helped me cope through the years.
Wow. This really means a lot. I'm actually taking the same medications you mentioned and they've been helping even though this is all new to me. I feel like it could definitely be worse so I'm putting God first and going from there. I'm definitely in the mindset of adjusting and accepting. Of course it's a working progress but I'm ready for it. Thank you again for your optimism!
I feel your pain through my screen but stay strong. You are beautiful with or without makeup. This platform you have here seems like it’s therapeutic to really talk and get things out. Girl keep talking to us and I’m praying for your healing ❤️🩹. I’m in remission from breast cancer so I can relate when it comes to things happening to your body and the struggles and strength of going through it and recovering from it or just living your best life with it. Thanks for being a help to others. You’re not alone. Take care. Blessings 💕
It's so nice to see u again please don't apologize for crying because this is not easy to deal with and your doing a good job! It's going to be ok my best friend has lupus so my heart goes out to u ! Your a sweet 💕 and u sharing your journey with lupus helps so many! I'm sure please don't expect so much from yourself..I give u so much credit for even opening up and I appreciate u!!
You are soooooo brave for this. I have so much respect for you and sharing your journey. Just sending love your way and I pray that this diagnosis does not consume you and your life even through the changes. God always has a way of doing things, dig deep and discover what joy and what things in general you can take away from these experiences and this journey.
It’s important to also make sure that you have pppl around you that are understanding and loving and willing to be on this journey with you. I understand why you are embarrassed BUT life is all about adjusting and changes. Us as humans forget that when you become comfortable with what is. This is just a new chapter dont view or focus on the chapter that is ending. YOU HAVE LIFE! Your life is so valuable. Keep living , keep growing , keep glowing boo. Wishing you the very best.
Being diagnosed in 2014 with Lupus SLE 4/5, I definitely understand. Lots of ups and downs with haircare and skincare, but also my lifestyle period. It’s a lot to deal with. Just recently changed my career (again!) in 2020, due to another stress flare up of my massage therapy job being too much to deal with. My RA became more active, skin broke out in rashes and my hair started falling out. The heightened stress of the pandemic didn’t help much either. Now, I’m at a point where I’m more self aware of what’s going on with my physical, mental and emotional state, which helps with managing the lupus. Also, having people to talk to who are in a similar situation helps with not feeling so isolated. Family and friends that are supportive help, but it’s not the same as having a group that can relate.
I just found your video, and not sure what all you’re doing and what’s your regimen or routine. I know that me and a few others from my support group tend to utilize skincare and haircare products that are Ayurvedic based and stay with protective styles for low maintenance (too tired to do anything extra, ya feel me😅). I also make sure to add (not take away) things to my diet that are helpful to the system like fermented foods (check out Cultured Food Life channel), desiccated animal organ supplements (if you’re not vegan 🤷🏾♀️), and eating locally grown foods that aren’t processed. Keeping up the energy has been key. Movement with the body (as a fitness instructor) has helped control the stress too. And whenever I do exercise, I always make sure to recover properly (self massage, anti inflammatory shakes, fascia blasting, sound healing and SLEEP).
I understand that not everyone’s journey is the same, but it’s a rough road all the same and hope you have the support you need. I’ll keep looking through your posts and see how you’re coming through it. Prayers to you and the rest of us who are dealing with this invisible illness that challenge us to our very core. And thank you for being one of the brave ones who are giving voice to the journey that many of us face. ❤❤❤
I PRAY FOR YOU AND YOUR HEALTH I PRAY FOR YOUR FAMILY, FRIENDS, AND LOVED ONES AS WELL🤍🙏🏾
I know it’s a big change for you & I’m praying you stay positive throughout your journey, it’s funny how we take lil stuff like our hair & skin for granted cause we never think something like this can happen to us so randomly. But honestly your skin doesn’t look bad at all I wish my skin look like yours I have pcos and I get pretty bad skin from that as well.
Right! It's like you never know!
Hope you’re doing better. Lupus sucks.
Have you bleached your hair since your changes with lupus
Girl you are so beautiful I literally be infatuated whenever you pop up on my feed. You are very strong and you been doing your thing! I personally don’t have lupus but my nana does and lupus was also a part of my boyfriends family. I still don’t know too much about it but I want to learn more. We’re here for you of course!
I was diagnosed with lupus 2 months ago, I have locs and have not gotten a retwist or been to the barbershop in 6 months. Keep up the great vids, very very inspiring g 💙
You are not alone ! I have SLE Lupus and I’m also a mother of a 3 year old so I feel your pain! 💜💜💜💜 you will get through this you are a warrior Queen
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
I will be praying for you. May the father cover & protect you dear. May God heal and restore every single hair stand on your head! I ask for a miracle😘
You are beautiful! I appreciate you sharing your experience & truth with Lupus! You will inspire
& help others struggling with the same condition or something similar! God Bless!
Awww thank you!
🥰🤗 your beautiful, I’m dealing with a few autoimmune diseases and you are very inspiring 💯. I wish you the best
You're beautiful. Don't let this bring you down. You are strong and inspirational ❤️
Jesus is our healer, by his stripes you are healed in Jesus name. Don't give up praying, he gave you that hair & skin remember, love you .
Stay strong , it teaches me to be grateful with my flaws as well thank you for this love ❤️
I worked at a fresh juice bar and regular customer was able to get free from ALL meds by drinking 6 of our 16oz beet juices every day! Now she's a sports massage therapist in the NFL! She wasn't old but she's not as young as you are. She might have been 45-50. I'm actually praying for u for real! I hope this helps! I tell everyone I know that has lupus to drink/eat lots of beets. Stay strong beautiful! 💪🏾 💜
Girl i am suffering from lupus since 2009 my joints got swollen lots of pain loosing my hair have to wear wigs sometimes i go in to depression ,so am so happy i get to see that am not alone i subscribe so i could learn more thanks for sharing
Some of the medication can itch and burn according to my dermatologist. You should check with your dermatologist, but mine suggested to put it in the refrigerator so that when it’s cold and applied it feels a little bit better.
💕YOU ARE LOVE ! YOU’VE ALREADY BEATEN THIS ❤️
Girl I feel you so much. I just found your page today cause I’m struggling with my own newly found lupus journey. My hair is in shambles. And I honestly do not feel as beautiful as I did before. It’s a hard journey and hard to process in general.
Thank you… I really want to make awareness but my face has lesions because of my discoid lupus so I appreciate you and your a motivator thank you for just being so transparent 💯
Get well soon ❤
Your Defects Are Gonna Be Your Strengths And More May Your Troubles Be NoMore And Your Days Be Golden.💯💯💯🙏
Thank you for being so brave. It’s been 14 years and I not afraid of the changes my body is going through. My hair is thin only in the front and I tried to hide it but it’s difficult. Just great full for everything. Your doing a great job.
Hi there I too have lupus for 7years now along with my daughter and granddaughter.its not easy at all and you want to say why.but I really don't know but keep your head up do what you need to do.i wear wigs now because I can't grow my hair back .but I live my life and God is good and keep your faith sweetheart.your a beautiful woman ,💜💜💜💜lupus warrior
Hi my name is Tamara McBride I'm 30 I've had lupus for 13 years now mines has gotten worse I think causes my hair to fall out my hands feet everything hurts and is open constantly I watched ur video for support
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
Your such a beautiful person either way. I know it's hard to have health issues and be a mom all the same time. I have sjogrens and it come with a whole load of crap. I pray you pull this all and stay strong and don't let social media dictate what's beautiful or how you should feel. God bless you and your beautiful family.
Thank you soo much! This mean a lot
Sis you’re so strong and still beautiful, I know it’s hard but please don’t let Lupus get you down. I pray and hope your hair and skin gets better, look into a whole anti-inflammatory diet, get plenty of sleep, up your usage of water and healthy foods in general and stay faithful in god and the fact that you’re an amazing strong woman. May everything work out in your favor and god bless ❤️❤️
I also have lupus and use the same drops. The reason why it can burn is because it has isopropyl alcohol in it. So don't scratch before use and wait at least an hour or more after you wash your hair. A Tar based shampoo (T-gel)helps me too. I was diagnosed 5 years ago but i was also misdiagnosed (alopecia) for at least 3. I will be praying for you 💗🙏🏿.
Don’t be embarrassed! You and your journey are beautiful!!!
Don't worry about the little things you're a very pretty young lady God will work things out with you
Your vulnerability and bravery are admirable. Keeping you in my thoughts. 💕
Your such an inspiration, you are still very beautiful your skin and hair. To be able to come on here and tell people your testimony shows how brave you are! I have epilepsy, so I can relate on the feeling embarrassed, but your beautiful queen always remember that!
Hi Naomi. I just saw your first lupus video and now watching this video. I was diagnosed December 2018 and you are not alone! I have SLE (and technically discoid lupus as well, but it is easier just to put it under SLE). I take medication twice a day and fortunately have not had a flare until the past couple of weeks. While flares are not fun (I know mine isn’t!). , I am grateful this is my first one and I know it lupus can be so much worse. Many hugs to you and Happy Lupus Awareness Month 💜
I have been living with lupus for 3 years now and know how hard it can be 😔 sending you HEALING queen ❤️🩹
You really brave and I pray that it goes away and that you continue to have the strength to get through it ❤️
Girl you are still beautiful inside and out, And God will NEVER put more on you than you can handle. Everything happens for a reason good and bad and that sounds so cliche but its the truth and I feel like you're being so strong about it that, you will overcome this with that strength alone! I am a firm believer in natural remedies and self healing so I will look more into that but you still pretty! still pushing! and still strong! and anyone that talks down or judges you has a long walk of shame in front of them! I know you may feel insecure to the changes and that it is something that you're dealing with but nothing is ever permanent not even a tattoo. Love you so much keep shining bright Nay
Just know this hun, I pray for you more than I pray for my self and I know that one day god will answer my prayers for you, just keep staying positive and know that you have someone to live for YOUR SON!!
I'm going thru the same thing I'm so hurt but u keep me goin.going.. THANK YOU
🙏🏾 you are beautiful and with faith and prayer TMH will see you through it
You’re still soooooo beautiful… God bless you on your journey, and I truly pray that he heals your body… Thank you for being so brave & strong and sharing your story… ❤️❤️❤️
I have Lupus and I suggested to you is to stop coloring your hair really any chemicals I would avoid my hair falls out but most of it grows back let it breathe as much as possible
I was diagnosed with discoid lupus last year after I had a scalp flare up and lost my hair at the very top of my head. I had long healthy locs and had to cut them out because of how bad my scalp was hurting and inflamed. DL has my hair thinning in the front and my self esteem has taken a hit as well.
Honey thank you cause I just got diagnosed with lupus at 38 and my scalp was always dry with sores and super dry scalp nothing worked on it I just want to say thank you for sharing your story it is informative
I have Lupus also, I know that you are trying to adjust to your diagnosis and God will see you through!! I have spots on my face and all over my body and it's annoying 😒. I will keep you in my thoughts and prayers 🙏🏿.
You keep saying “so embarrassing”. I kno babe. 🥺 But it could happen to anyone. We’re here for you 💜
Thank you love!
You are drop dead gorgeous ✨ I pray everything gets better for you! I love your energy💕 keep doing what you’re doing, God has something great in store for you😌😇
It's crazy the thinks we go through in life.... smh. But the man that God send you sis will accept your bold spots and by the grace of the Lord Jesus Christ you shall be healed. Stay positive and keep strong sister.
You are so beautiful inside and out. You have a great attitude which will carry you through life. I cut my hair too. It had 2 baldspots. My short hair doesn't look cute like yours. My hair was good too and my skin. I will keep in touch with you always. I've had it 15 years but I think I've had it alot longer. I have to seriously let you know you still have good looking hair. We notice it more than others. You are helping me too‼️ Until later👍✌️💖
New sub ! Your beautiful & you’ll get through it for sure .❤️
You are beautiful and truly an inspiration thank you so much for sharing
Stay blessed and beautiful❤