I am 47 years old and have been dealing with PCS for over 3 years. As an adult it is no easier to deal with. I have been fighting the same issues as you have. Thank you for speaking out and expressing what a large part of the struggle is about. Congratulations on a well done Ted Talk.
Melissa - Feel free to reach back to me if you need some support and want to understand more about her treatment and journey. Wishing you only the best on your path to healing.
the doc she saw has his own methodology - non-invasive, no meds, just the right protocol of comprehensive activities, that are in the right order. Dr Victor Pedro - Rhode Island
@@marciagriffith2543 Dear Marcia, could you share the appointment cost and treatment fee to see Dr. Victor? What kind of insurance would be best for his practice? thanks.
I have been remiss in not commenting on this video. My daughter saw it the day after it was posted and I spoke to Dr. Victor Pedro, Cara's doctor. Our daughter began seeing Dr. Pedro while a college student in Providence, Ri, 3 times per week. She had sustained 2-3 serious concussions and began a downward spiral into post concussion headaches, fatigue, focus issues, etc while playing college soccer. After 3 months she was completely headache free. She is a new person. Thank you so much for posting this video and God bless Dr. Pedro.
@kathleen Hillsman Hi Could you share what is the treatment fee breakdown with Dr. Victor Pedro? I would like to give it a try, but without insurance would that be too much for me?
Cara, I just listened to your inspiring story. You are the epitome of resilience and will undoubtedly help many others. My son has been on a similar journey, however, not from a concussion, so his 'invisible illness' was less interesting to conventional medicine. However, like you and your family, we never gave up and he is currently on the path to healing. I hope he will follow in your footsteps and share his story when he is ready.
Tracy, it was such a pleasure to meet you and your family! What an incredible journey this is. Cheers to you for hanging in there and getting right help so you all can move forward. Best wishes. xo
Can confirm. In the US, if you are under 30, no pain you have is treated as legitimate. I’ve seen so many young people suffer because they are told “it must be all in your head” or “come on, it’s not really that bad”. It’s the biggest reason why I will always advocate that we abolish the RX system, and allow people to purchase the medications they need, rather than suffer as the victim of bureaucracy and a medical system trained to look out for addicted rather than treat patients.
Hello Jeff, sorry for the late reply. The thing is with RX's is that none of 18+ pills she tried helped. In fact, in some cases, they made her feel worse. In the end, the treatment that gave her her life back was non-invasive, no medications. Unfortunately, the doctor saw has closed his practice.
Thank you for this video about brain concussions / post traumatic brain injury syndrome. From time to time, brain concussions and attentional control issues are discussed at the ADHD Bulletin Board - a Yahoo Group. Thank you.
I cried when I was listening your story because that is what I am going through. How do I get in touch with the doctor who finally was able to treat you??? Please let me know. Thank you.
Your right. Hang in there sounds like your getting better. Thank you agreed 💯 percent. I was in car accident know the feeling of wife leaving me,calling me crazy, lazy. I used to be a workaholic going to not being able to work mocked, scorned , left on floor overnight or leave the house, depressed because can't go to work know what it is. But very thankful I can see where I'm getting better, stronger maybe someday I'll be fully recovered. There's hope take care of yourself listen to what your body is telling you.
PREACH AF. I love this so true I am twelve and have had three major concussions in a year. This is completely true and I hope to be like Ciara and do a TedX talk
I beileve i had a unique tbi, in boxing, i was fine getting hit in the bare head or with a hockey helmet on, but then i got this rubber helmet and it really hurt me. My life is pretty ruined. Time means nothing to me, i let weekends go by, ive been like this since it happened 6 years ago. I can almost feel my brain loading my vision, i cant describe it. More than that i just feel detached from all my friends and life, im always in pain, and im just waiting for every hangout with friends to be over, im not enjoying life. I dont want to leave this earth, but im not really enjoying my life either, its torturous. No one can really do anything or say anything to take the pain i feel away. All the times i had with my friends are gone, and i wont be my parents age at 55 sitting around with old friends laughing and have drinks, my whole life has been ruined! And i beileve its from an unsafe rubber like material helmet.
Liam - am so sorry that you have such a struggle. Know that you are not alone and hope you're able to find some relief soon. Cara's doctor is in Rhode Island - Dr. Victor Pedro. Look him up, call him and see how he can help. He saved my daughters life. God bless.
Excellent talk. My Aunt who is my best friend, had/has concussion for over a year now and I'm sure the Dr's are talking rubbish. They have dx her with severe Depression but doesn't display any of the symptoms of Depression apart from being fed up that she isn't getting any better, thanks for doing this.
Hi, Cara is my daughter and appreciate the kind words. I am so sorry to hear about your aunt. Please continue to support her and love her unconditionally. Guide her to seek professional mental health support because the psychological impact of PCS is massive - not only on the patient but on the caregivers as well. Take care.
I'd like to add a #7: invest in an athletic trainer at your high school and club sporting events. They are certified in recognizing concussions and are a valuable asset that need to be built into the Athletics department budget.
I respect what you've gone through regarding TBI and recovery (currently going thru it myself) but please don't ever close your eyes and drive. You put other people at risk when you do. Obviously you deserve to live as well but you have no right to take others out or cripple them/inflict TBI on them for life because of how you're feeling. I hope you're doing much better these days. This is probably one of the hardest things to recover from.
I have 10 documented concussions and I’m going to estimate at least three more but I never saw any medical assistance for and right now I feel pretty good I just turned 59
@@kyleblankenship3657 it's not really necessary to question someone's experience. Clearly, she's been able to pursue a positive life and that's what matters most
With these traumatic brain injuries, or any other injury for the matter, mild injuries cause us to make adjustments in our lives accommodating the injury. Interesting how serious "mild" injuries in medicine are. Guess they're called mild because they still classify as injuries.
@@marciagriffith2543 Thats so crazy. When I commented this i was searching for answers. Then randomly I found Cognitive FX and it changed my whole life!!!!!
@@robertdunn684 This makes me so happy! Since my daughters doctor is no longer in practice, I've been recommending people to look into Cognitive FX - so glad you're doing well!
everything you are saying jives with me, having everything in your life taken from you, living in pain, and having one beileve you. check check and check. i had an mri nothing showed up and that was it, im trying to get an eeg right now. But its so unfair i've been like this for 6 years, i guess my brain really is damaged, and theres nothing that can be done?
Liam E. Not true--your brain has the same miraculous regenerative capacities as every other cell in your body! It just requires the proper environment & frequencies to repair. Did you have a brain injury from an outward force? Or is it poisoned by mercury or other toxins? (I'm so lucky, I've got it all! 😃)
Kind of macabre, but if you try to commit suicide by hitting anything at 35mph, I doubt that you really mean it. When I was in a dark spot, I planned to do it at at least 60. The faster the better.
There's a cure!?!!?!🥹 please tell me that is true!🥺 Idk how much longer I can live like this. It's been 10yrs now.... My youth was stolen from me by my TBIs, and the wreck less drivers who caused them all😞 If there is ANY real hope....🥹🥰
Kassandra, am so sorry to here that you are experiencing such challenges. The doctor my daughter saw is no longer practicing but would recommend you research Cognitive FX treatment. Check out Natalie Anderson (she won Survivor) and her video - she explains their methods. Best wishes.
I am 47 years old and have been dealing with PCS for over 3 years. As an adult it is no easier to deal with. I have been fighting the same issues as you have. Thank you for speaking out and expressing what a large part of the struggle is about. Congratulations on a well done Ted Talk.
Melissa - Feel free to reach back to me if you need some support and want to understand more about her treatment and journey. Wishing you only the best on your path to healing.
Marcia Griffith what was her treatment???? I must know!!!!! I wanna be cured too
the doc she saw has his own methodology - non-invasive, no meds, just the right protocol of comprehensive activities, that are in the right order. Dr Victor Pedro - Rhode Island
@@marciagriffith2543 Dear Marcia, could you share the appointment cost and treatment fee to see Dr. Victor? What kind of insurance would be best for his practice? thanks.
Praying for your healing and grace from Adonai
I have been remiss in not commenting on this video. My daughter saw it the day after it was posted and I spoke to Dr. Victor Pedro, Cara's doctor. Our daughter began seeing Dr. Pedro while a college student in Providence, Ri, 3 times per week. She had sustained 2-3 serious concussions and began a downward spiral into post concussion headaches, fatigue, focus issues, etc while playing college soccer. After 3 months she was completely headache free. She is a new person. Thank you so much for posting this video and God bless Dr. Pedro.
This makes my heart sing!!!! I watched the PVD women's play this year...they're awesome! Hope your daughter is well. We should connect!
@kathleen Hillsman Hi Could you share what is the treatment fee breakdown with Dr. Victor Pedro? I would like to give it a try, but without insurance would that be too much for me?
So his office is closed m… now what??
This is so so spot on and encouraging to hear someone is going through/went through the same thing
Hope you're doing well!
Cara, I just listened to your inspiring story. You are the epitome of resilience and will undoubtedly help many others. My son has been on a similar journey, however, not from a concussion, so his 'invisible illness' was less interesting to conventional medicine. However, like you and your family, we never gave up and he is currently on the path to healing. I hope he will follow in your footsteps and share his story when he is ready.
Tracy, it was such a pleasure to meet you and your family! What an incredible journey this is. Cheers to you for hanging in there and getting right help so you all can move forward. Best wishes. xo
Can confirm. In the US, if you are under 30, no pain you have is treated as legitimate. I’ve seen so many young people suffer because they are told “it must be all in your head” or “come on, it’s not really that bad”. It’s the biggest reason why I will always advocate that we abolish the RX system, and allow people to purchase the medications they need, rather than suffer as the victim of bureaucracy and a medical system trained to look out for addicted rather than treat patients.
Hello Jeff, sorry for the late reply. The thing is with RX's is that none of 18+ pills she tried helped. In fact, in some cases, they made her feel worse. In the end, the treatment that gave her her life back was non-invasive, no medications. Unfortunately, the doctor saw has closed his practice.
Thank you! I needed that 🙏
Thank you for this video about brain concussions / post traumatic brain injury syndrome. From time to time, brain concussions and attentional control issues are discussed at the ADHD Bulletin Board - a Yahoo Group. Thank you.
So well articulated! Great talk. I wish you all the best! ❤️
I cried when I was listening your story because that is what I am going through. How do I get in touch with the doctor who finally was able to treat you??? Please let me know. Thank you.
You have to find a doctor that can teach you to live with your disabilities or find a way to do it yourself
If you need treatment look up Cognitive FX
Your right. Hang in there sounds like your getting better. Thank you agreed 💯 percent. I was in car accident know the feeling of wife leaving me,calling me crazy, lazy. I used to be a workaholic going to not being able to work mocked, scorned , left on floor overnight or leave the house, depressed because can't go to work know what it is. But very thankful I can see where I'm getting better, stronger maybe someday I'll be fully recovered. There's hope take care of yourself listen to what your body is telling you.
PREACH AF. I love this so true I am twelve and have had three major concussions in a year. This is completely true and I hope to be like Ciara and do a TedX talk
I beileve i had a unique tbi, in boxing, i was fine getting hit in the bare head or with a hockey helmet on, but then i got this rubber helmet and it really hurt me. My life is pretty ruined. Time means nothing to me, i let weekends go by, ive been like this since it happened 6 years ago. I can almost feel my brain loading my vision, i cant describe it. More than that i just feel detached from all my friends and life, im always in pain, and im just waiting for every hangout with friends to be over, im not enjoying life. I dont want to leave this earth, but im not really enjoying my life either, its torturous. No one can really do anything or say anything to take the pain i feel away. All the times i had with my friends are gone, and i wont be my parents age at 55 sitting around with old friends laughing and have drinks, my whole life has been ruined! And i beileve its from an unsafe rubber like material helmet.
Liam - am so sorry that you have such a struggle. Know that you are not alone and hope you're able to find some relief soon. Cara's doctor is in Rhode Island - Dr. Victor Pedro. Look him up, call him and see how he can help. He saved my daughters life. God bless.
I am so sorry
What are your symptoms?
Excellent talk. My Aunt who is my best friend, had/has concussion for over a year now and I'm sure the Dr's are talking rubbish. They have dx her with severe Depression but doesn't display any of the symptoms of Depression apart from being fed up that she isn't getting any better, thanks for doing this.
Hi, Cara is my daughter and appreciate the kind words. I am so sorry to hear about your aunt. Please continue to support her and love her unconditionally. Guide her to seek professional mental health support because the psychological impact of PCS is massive - not only on the patient but on the caregivers as well. Take care.
I'd like to add a #7: invest in an athletic trainer at your high school and club sporting events. They are certified in recognizing concussions and are a valuable asset that need to be built into the Athletics department budget.
thanks
A very well done Ted Talk !
I respect what you've gone through regarding TBI and recovery (currently going thru it myself) but please don't ever close your eyes and drive. You put other people at risk when you do. Obviously you deserve to live as well but you have no right to take others out or cripple them/inflict TBI on them for life because of how you're feeling. I hope you're doing much better these days. This is probably one of the hardest things to recover from.
I have 10 documented concussions and I’m going to estimate at least three more but I never saw any medical assistance for and right now I feel pretty good I just turned 59
How are they "documented" if you never saw a medical doctor to confirm concussion?
Wow! You're a warrior.
@@kyleblankenship3657 it's not really necessary to question someone's experience. Clearly, she's been able to pursue a positive life and that's what matters most
Tell me the name of the doctor who cured you!
Dr Victor Pedro Cranston, RI - a true life saver!
With these traumatic brain injuries, or any other injury for the matter, mild injuries cause us to make adjustments in our lives accommodating the injury. Interesting how serious "mild" injuries in medicine are. Guess they're called mild because they still classify as injuries.
What treatment did she do???
Hi Robert, my apologies for the delay in the reply. The doctor she saw has closed his practice. Sad but true. Wishing you the best
@@marciagriffith2543 I found a treatment called cognitive FX in Utah
@@robertdunn684 Not sure if you'll see this message but I know someone else who found Cognitive FX and had great results. Wishing you the best.
@@marciagriffith2543 Thats so crazy. When I commented this i was searching for answers. Then randomly I found Cognitive FX and it changed my whole life!!!!!
@@robertdunn684 This makes me so happy! Since my daughters doctor is no longer in practice, I've been recommending people to look into Cognitive FX - so glad you're doing well!
everything you are saying jives with me, having everything in your life taken from you, living in pain, and having one beileve you. check check and check. i had an mri nothing showed up and that was it, im trying to get an eeg right now. But its so unfair i've been like this for 6 years, i guess my brain really is damaged, and theres nothing that can be done?
Liam E. Not true--your brain has the same miraculous regenerative capacities as every other cell in your body! It just requires the proper environment & frequencies to repair.
Did you have a brain injury from an outward force? Or is it poisoned by mercury or other toxins? (I'm so lucky, I've got it all! 😃)
Can't hear or understand a word. Sound is awdul
Kind of macabre, but if you try to commit suicide by hitting anything at 35mph, I doubt that you really mean it. When I was in a dark spot, I planned to do it at at least 60. The faster the better.
No helpful info here...
You're wrong...
There's a cure!?!!?!🥹 please tell me that is true!🥺 Idk how much longer I can live like this. It's been 10yrs now.... My youth was stolen from me by my TBIs, and the wreck less drivers who caused them all😞 If there is ANY real hope....🥹🥰
Kassandra, am so sorry to here that you are experiencing such challenges. The doctor my daughter saw is no longer practicing but would recommend you research Cognitive FX treatment. Check out Natalie Anderson (she won Survivor) and her video - she explains their methods. Best wishes.